Dr Teresa Pountney PhD MA FCSP Chailey Heritage Clinical Services North Chailey, East Sussex, BN8 4JN Tel:

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1 Dr Teresa Pountney PhD MA FCSP Chailey Heritage Clinical Services North Chailey, East Sussex, BN8 4JN Tel: CURRENT POSTS: Head of Research, Physiotherapist, Chailey Heritage Clinical Services, Sussex Community NHS Trust Senior Research Fellow in Paediatrics, University of Brighton MAIN RESPONSIBILITIES Head of Research at Chailey Heritage Clinical Services responsible for: Research Programme Improving the Quality of Life for Children with complex disability and their families Research governance Developing research programmes Supporting staff to undertake research studies Chailey Research Fund Clinical work Teaching responsibilities as a visiting lecturer at the University of Brighton, Oxford Brookes and within the NHS PhD Supervision, University of Brighton Professional Doctorate Adviser/Supervisor at Clinical Research Centre, University of Brighton PROFESSIONAL AND ACADEMIC QUALIFICATIONS: 1978 Chartered Society of Physiotherapists (Distinction) 1995 MA Health Education (Europe) 2002 PhD The effectiveness of postural management programmes in reducing hip dislocation and spinal curvature in bilateral cerebral palsy: University of Brighton MEMBERSHIP OF PROFESSIONAL AND RELEVANT BODIES Health Professions Council PH Chartered Society of Physiotherapy Honorary Member of Association of Paediatric Chartered Physiotherapists European Academy of Childhood Disability Posture and Mobility Group British Academy of Childhood Disability Strategic Research Group Awards Fellow of the Chartered Society of Physiotherapists 2009 Robert Williams Award 2011 COMMITTEES Sussex Community Trust & Development Group Chair PROFESSIONAL ACTIVITIES: Reviewer for Developmental Medicine & Child Neurology 22 October, 12 1

2 RESEARCH ACTIVITIES October The effects of night positioning on sleep, postural deformity and pain in children and young people with cerebral palsy - an exploratory study to 2010 To investigate the effects of sleep systems on sleep quality and pain in children and young people with cerebral palsy to 2010 Effectiveness and feasibility of intensive short-term graded exercise programmes, using either treadmill or static exercise bicycle, for non-ambulant children and young people with cerebral palsy The Effect of Tilt-in-Space Wheelchairs on Children s Posture and Function The effectiveness of postural management programmes in reducing hip dislocation and spinal curvature in bilateral cerebral palsy Development of an assessment scale (Chailey Levels of Ability) & design and development of lying supports, seating system, standing supports and tricycle for children with motor impairment 1997 Validation of the Chailey Levels of Ability present Investigation into effectiveness of 24 hour postural management programmes 51/2 year study funded by Action Medical Research 2006 The effect of different angles of Tilt in Space wheelchairs on the posture and function of children with cerebral palsy A Phase IV, Randomised, Double blind, Dose ranging Study in Children and Young People to determine the Optimal Dose of Botulinum Toxin Type A (Dysport ) in Managing the Symptoms of Hip Muscle Spasticity due to Cerebral Palsy PhD Examiner Measuring Outcomes in Neonates; 2001 Intervention for Children with Juvenile Idiopathic Arthritis 2005 Modified constraint-induced movement therapy children with congenital hemiplegic 2009 The evaluation of combined hydrotherapy & standard land-based physiotherapy in children with juvenile idiopathic arthritis 2001 Free to Move and Change Position predicting sitting discomfort in children with multiple disabilities 2012 Professional Doctoral Examiner Children with disabilities & families: team working & the role of the key worker 2012 Posture and sleep in children with cerebral palsy 2010 Research Awards Research for Patient Benefit 246,031 Research for Patient Benefit Research for Patient Benefit 61, Nancie Finnie Charitable Trust 38, October, 12 2

3 Action Medical Research 286,000 APCP Research Fund 13,000 Chailey Research Fund 31, Ipsen 30,547 Cerebra Books 2001 Physiotherapy for Children 2004 Chailey Approach to Postural Management 2 nd Ed East Sussex Chailey Heritage Clinical Services PUBLICATIONS Elizabeth Bryant, Terry Pountney, Heather Williams and Natalie Edelman Can a six-week exercise intervention improve gross motor function for non-ambulant children with cerebral palsy? A pilot randomized controlled trial DOI: / Clin Rehabil published online 30 July 2012 McCarthy G, Ogubona F, Green EM, Simmonds A, Pountney TE, Bryant E (2011) A population study of Lesch-Nyhan Disease in the United Kingdom Developmental Medicine & Child Neurology (53) Pountney TE, Mandy A, Green E and Gard PR (2009) Hip Subluxation and Dislocation Cerebral Palsy A Prospective Study On The Effectiveness Of Postural Management Programmes. Physiotherapy Research International 14(1): (2008) Published online in Wiley InterScience ( DOI: /pri.434 Michael, S. M., Porter, D. and Pountney. T. (2007) Tilted seat position for non-ambulant individuals with neurological and neuromuscular impairment: a systematic review, Clinical Rehabilitation, 21, Pountney TE (2007) Dislocation of the hip in cerebral palsy in Recent Advances in Paediatrics: Royal Society of Medicine Press: London Pountney TE (2007) Physiotherapy for Children. Butterworth Heinemann Elsevier: Oxford Williams, H. and T. E. Pountney (2007). Effects of a static bicycling programme on the functional ability of young people with cerebral palsy at GMFCS Levels IV and V. Developmental Medicine & Child Neurology. 49 Humphreys, G. and T. Pountney (2006). A Qualitative Study Of The Views Of Staff And Carers Involved In The Development And Implementation Of An Integrated Care Pathway For 24-Hour Postural Management Of Children And Adults With Motor Impairments. Physiotherapy. 9 : Pountney, T. E. and E. M. Green (2006). Hip dislocation in cerebral palsy. BMJ 332: Pountney, T. E., E. M. Green, et al. (2005). To assess the effectiveness of postural management programmes in reducing hip dislocation in children with bilateral cerebral palsy. Developmental Medicine & Child Neurology 47 (Suppl. 103 ): 48. Williams, H. A. and T. E. Pountney (2005). Static bicycle training for non-ambulant adolescents with cerebral palsy: effect on muscle strength and functional ability. Developmental Medicine & Child Neurology 47 (suppl 103): October, 12 3

4 Pountney TE, Green EG The cerebral palsies and motor learning disorders In Physical management in Neurological rehabilitation. Ed Stokes Elsevier, London Pountney TE, McCarthy GT. Neural Tube Defects: Spina Bifida & Hydrocephalus. In Physical management in Neurological rehabilitation In press Mosby, London Pountney, T.E., C. M. Mulcahy, Clarke S., and E. M. Green Chailey Approach to Postural Management. 2nd ed. East Sussex: Chailey Heritage Clinical Services Pountney, T. E., Mandy, A., Gard, P Repeatability and Limits of Agreement in Measurement of Hip Migration Percentage in Children with Bilateral Cerebral Palsy. Physiotherapy 89 (5): Pountney TE,Mandy A,Green EM,Gard P. Management of hip dislocation with postural management. Child:care, health and development 2002, 28: Pountney TE,Mulcahy CM,Clarke S,Green EM. Chailey Approach to Postural Management. Active Design, Birmingham: 2000.ISBN Pountney TE, et al. Content & Criterion Validation of the Chailey Levels of Ability". Physiotherapy 1999, 85: Green EM,Mulcahy CM,Pountney TE. An Investigation into the Development of Early Postural Control. Developmental Medicine & Child Neurology 1995, 37. Pountney T, McCarthy GT. Neural Tube Defects: Spina Bifida & Hydrocephalus. In Neurological Physiotherapy. Ed Stokes Mosby, London Fearn T, et al Postural Management. In Physical Disability in Childhood: An Interdisciplinary Approach. Ed McCarthy. 1992Churchill Livingstone, London Mulcahy CM,Pountney TE,Green EM. A non-interventional approach to assessing motor ability. Physiotherapy Theory and Practice 1992, 8: Pountney TE,Mulcahy CM,Green EM. Early Development of Postural Control. Physiotherapy 1990, 76: Mulcahy CM, Pountney TE, Billington GD. Adapted Tricycle. Physiotherapy 1991, 77: 660 Mulcahy, C.M., T.E. Pountney, R.L. Nelham and E.M. Green Adaptive Seating for Motor Handicap: Problems, a Solution, Assessment & Prescription. British Journal of Occupational Therapy 51 (10): Mulcahy CM, Pountney TE. Ramped Cushion. British Journal of Occupational Therapy 1987, 50: 97. Mulcahy CM, Pountney TE. The Sacral Pad- Description of its Clinical Use in Seating. Physiotherapy 1986, 72: October, 12 4

5 CONFERENCE PRESENTATIONS (last 4 years) 2011 Effectiveness of an intensive six week graded exercise programmes for non ambulant children and young people with cerebral palsy Terry Pountney, Heather Williams, Elizabeth Bryant 2011 A critical review of postural management European Academy Childhood Development, Rome 2009 The evidence base for postural management. Nordic Seating Symposium, Iceland 2009 Hip dislocation in cerebral palsy- where are we now Cerebral Palsy Hip Management., Lace centre, Liverpool The Evidence Base for Postural Management. Enabling Children with Complex Disability. Chailey Heritage Clinical Services, East Sussex 2008 Workshop & Lecture on Postural Management Programmes. Congresso Internacional sobre Discacipadad Monterrey, Mexico 2008 Postural assessment and seating The North of England Collaborative Cerebral Palsy Survey, Gateshead 2007 The Effect of Tilt-in-Space Wheelchairs on Children s Posture and Function Terry Pountney, Research Physiotherapist, PhD MA MCSP, Ladan Najafi, Clinical Engineer BEng- MSc, Donna Cowan, Consultant Clinical Scientist, BSc PhD MIET MIPEM 2007 The evidence base for postural management. Chailey Heritage Clinical Services. APCP Conference. Effingham Park 2006 Hip dislocation in cerebral palsy British Academy of Childhood Disability Derby 2006 Effectiveness of Postural Management in the Reduction of Hip Subluxation in children with CP. New Evidence in Paediatric Rehabilitation at Swiss Association of Paediatric Rehabilitation Aarau Switzerland 2005 Consensus Meeting - MacKeith expert meeting to develop a consensus on postural management programmes. Royal Society of Medicine, London 2005 Applying the Chailey Levels of Ability for Functional Activities Workshop & invited speaker on Postural management programmes or positioning equipment? Posture and Mobility Group Conference, Exeter University, Devon 2005 To assess the effectiveness of postural management programmes in reducing hip dislocation in children with bilateral cerebral palsy. European Academy of Childhood Disability, Monaco. 22 October, 12 5