Dementia Action Alliance Quarterly Meeting Report. Royal Pharmaceutical Society
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1 Dementia Action Alliance Quarterly Meeting Report Royal Pharmaceutical Society
2 Attendees
3 DAA Quarterly Meeting 2013 Agenda Welcome from Chair - Sharon Blackburn, National Care Forum Morning Delirium: what it is and why it matters - Louise Allan, British Geriatrics Society Demographics: focus on older ethnic minorities - Omar Khan, The Runnymede Trust All Party Parliamentary Group on dementia: Dementia does not discriminate - Alli Anthony, Alzheimer s Society Carer s perspective - Manjit Nijjar, Uniting Carers Questions & Answers Making services more culturally competent - Karan Jutlla, Association for Dementia Studies,University of Worcester All member showcase and panel - Janet Jadavji, YECCO, Julia Botsford, Dementia UK, AlliAnthony, Alzheimer s Society, Karan Jutlla, Association for Dementia Studies, University of Worcester. Afternoon Alliance update - Simon Kitchen, Dementia Action Alliance Workshop - How can your organisation take action to support people with dementia from BAME backgrounds? The challenge of dementia in ethnic minorities: An international perspective - Jacob Roy, Chair of Alzheimer s Disease International Carers Call to Action - Rachel Niblock and Ruth Hannan Updates from members
4 Sharon Blackburn, National Care Forum Welcome from chair Wonderful chair Sharon chaired beautifully
5 Louise Allan, British Geriatrics Society Delirium: what it is and why it matters Excellent and clear
6 Omar Khan, The Runnymede Trust Demographics: focus on older ethnic minorities Very good!
7 Alli Anthony, Alzheimer s Society All Party Parliamentary Group on dementia: Dementia does not discriminate The Experiences of Black, Asian and Minority Ethnic (BAME) Communities Useful Barriers to accessing services Language Cultural views of ageing Lack of awareness of dementia Dementia services not being culturally diverse There is no term for dementia in South Asian languages
8 Manjit Nijjar, Uniting Carers Carer s perspective Very moving & powerful Manjit s experience will stay with me
9 Questions and answers
10 Karan Jutlla, ADS, University of Worcester Making services more culturally competent Brilliant presenter helping us understand diversity in cultures Thought provoking A person-centred approach People should be regarded as individuals alongside knowledge of social and political influences
11 All member showcase and panel Janet Jadavji - YECCO, Julia Botsford - Dementia UK, Alli Anthony - Alzheimer s Society, Karan Jutlla - ADS, University of Worcester
12 Simon Kitchen DAA Alliance Update New board members Very upbeat General Election Proposed asks : Post diagnostic support Breaking down the post code lottery
13 Workshop How can your organisation take action to support people with dementia from BAME backgrounds? Important to turn knowledge & understanding into action however small it seems
14 Workshop (continued) Well chaired. Some good ideas
15 Jacob Roy, Chair of Alzheimer s Disease International The challenge of dementia in ethnic minorities: An international perspective Good to have the international perspective Alzheimer s Disease International Established 1984 The umbrella organisation of Alzheimer associations around the world Why are dementia friendly societies important?
16 Rachel Niblock and Ruth Hannan Carers Call to Action Excellent Our Shared Vision We need your help as DAA members to engage with 152 Health and Wellbeing boards
17 Updates from members
18 Feedback and Reflection on the Day Fantastically stimulating The best so far!! Interesting & useful presentations & discussions
19 Feedback and Reflection on the Day Excellent presentations and networking A real eye opener Inspiring speakers
20 Thank you to all those who attended For presentations visit: To contact the Secretariat please contact For further DAA information visit:
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