Publications catalogue. For more information alzheimers.org.uk

Transcription

1 Publicatios catalogue For more iformatio alzheimers.org.uk 000

2 Iformatio for you This catalogue showcases the rage of iformatio Alzheimer s Society produces. It icludes factsheets, booklets ad other resources that ca help you live well with demetia, or support someoe else through the coditio. Our goal is to provide the best advice ad support to ayoe affected by demetia, icludig people livig with demetia ad their family ad frieds. You will eed differet iformatio at differet times ad we aim to make sure this is always accurate, up to date ad i the format you eed. There is also iformatio for health ad social care professioals. We hope it helps you to uderstad more about the coditio ad support people with demetia, ad their family ad frieds, to live as well as possible ow ad make plas for the future. We are accredited by the NHS Iformatio Stadard, so you ca trust that our iformatio is high quality, reliable ad clear. All our resources are reviewed by experts i the subject ad people with persoal experiece of demetia. We are focusig o producig more iformatio i alterative formats. This icludes iformatio i laguages other tha Eglish, audio products ad ebooks. You ca fid out more about these o page. 1 Iformatio for you

3 Cotets 1 After your diagosis Iformatio for carers 1 Iformatio for professioals Demetia-friedly commuities Research Policy 0 Demetia awareess Accessible resources Factsheets Subscribe today How to order Cotets Cotets

4 If you, or someoe close to you, have recetly bee diagosed with demetia, it might take some time to come to terms with it. The iformatio i this sectio has bee desiged to support you at this time. It will help you to uderstad more about your diagosis, offer some practical tips o the small chages you ca make to cotiue to do the thigs you ejoy, ad sigpost to other useful orgaisatios. After your diagosis 1 After your diagosis After your diagosis

5 Demetia ad laguage Tips: Commuicatig with a perso with demetia Before you speak How to speak What to say Listeig Body laguage ad physical cotact Sesory impairmet Hearig loss Sight loss Other useful orgaisatios Symptoms What causes demetia? Who gets demetia? How ca I tell if I have demetia? Diagosis demetia How is demetia treated? Ca demetia be preveted? Further readig Advace care plaig About LPAs Beefits of makig a LPA Who ca make a LPA Who ca be a attorey How to make a LPA Office of the Public Guardia Frequetly asked questios Other useful orgaisatios Whe to see the GP What support ca the GP give? Accompayig the perso to the GP surgery Ca the GP discuss cocers with carers? Chagig doctors Makig a complait Carers eeds Other services Other useful orgaisatios The demetia guide: Livig well after diagosis Booklet Code 1 pages, A 01 recetly bee told they have (DLB?) Assessmet ad 1 demetia. It will help you uderstad Code 0 diagosis 1 Code The more about demetia ad the demetia treatmets, support ad services Our factsheets are a key resource that are available. It icludes for ayoe affected by demetia. guide iformatio about how you ca live They offer iformatio ad advice Livig well after diagosis as well as possible with demetia ad o a rage of issues, as well as about makig plas for the future. It listig where to go for further also cotais helpful iformatio for support. ayoe takig o a carig role. They cover everythig from how The secod editio of the guide has bee demetia affects the brai to redesiged i our ew brad, as well as beig makig a Lastig power of attorey, fully revised ad updated. There are ew tips o how to commuicate more sectios o techology, livig aloe, chages effectively ad how to cope with to relatioships, commuicatig ad comig to terms with a diagosis. memory loss. Accessible versios For a full list of our factsheets, icludig I the demetia guide films, iformatio iformatio specific to Wales ad from the first editio of the booklet is Norther Irelad see page or go to delivered by a rage of experts ad people alzheimers.org.uk/factsheets affected by demetia who share their experieces of livig with the coditio. The For more iformatio alzheimers.org.uk 000 Olie alzheimers.org.uk/ demetiaguide DVD Code DVD mis 01 The guide is for ayoe who has films are available both as a DVD ad olie. Factsheets What is demetia? Code 00 What is vascular demetia? Code 0 What is demetia with Lewy bodies Commuicatig Factsheet 00 March 01 We all eed to commuicate with Cotets other people. We eed to tell other people a wide rage of thigs, icludig our eeds, wishes ad feeligs. How well we ca commuicate will affect our quality of life, as well as how much we are able to keep our idividuality ad sese of idetity. Demetia ca make it hard for people to Factsheet 00 commuicate, ad this ca be upsettig Jauary 01 ad frustratig for them ad those aroud them. However, there are may ways to help you support ad What commuicate is with demetia? each other. This factsheet gives tips ad advice for commuicatig with someoe with demetia, ad supportig them to commuicate i whichever way works best for them. The word demetia describes a Cotets set of symptoms that may iclude memory loss ad difficulties with thikig, problem-solvig alzheimers.org.uk or laguage. These chages are ofte small to start with, but for someoe with demetia they have become severe eough to affect daily life. A perso with demetia may also experiece chages i their mood or behaviour. Factsheet April 01 Demetia is caused whe the brai is damaged by diseases, such Alzheimer s disease or a series of Lastig strokes. Alzheimer s power of attorey disease is the most commo cause of demetia, but ot the oly oe. The specific symptoms that someoe with demetia experieces will deped o the parts of the brai that are damaged A Lastig ad the disease power of attorey (LPA) is Cotets that is causig the demetia. a legal tool This factsheet that gives aother adult explais what demetia is, icludig the the legal authority to make certai causes ad symptoms, ad how it is alzheimers.org.uk diagosed ad treated. decisios It also looks for at you, if you become some of the differet uable types of to demetia. make them yourself. The perso who is give this authority is kow as a attorey. They ca maage your fiaces, or make decisios relatig to your health ad welfare. This factsheet explais what a LPA is ad why you might Factsheet cosider makig oe. It also September 01 How the GP ca support provides practical advice ad iformatio about a how perso to appoitwith demetia a attorey, ad what powers you ca give them. The iformatio i this factsheet is for people livig i Eglad GPs ad ad Wales, GP ad practice is t staff Cotets iteded for those livig (icludig Norther practice Irelad, urses) have where the laws goverig a importat powers of attorey role i supportig are differet. For iformatio people about with demetia the laws ad their alzheimers.org.uk i Norther Irelad see factsheet NI, Edurig power of attorey carers. ad It is importat that people cotrollership. with demetia ad carers have regular check-ups with their ow doctor (at least oce a year). They should see them as soo as possible if they have ay cocers about their health. This factsheet looks at the differet kids of support available from a GP for a perso with demetia. It also explais how they ad their carer ca access them. alzheimers.org.uk What is frototemporal demetia (FTD)? Code 0 Drug treatmets for Alzheimer s disease Code 0 Rarer causes of demetia Code Lastig power of attorey Code The films iclude subtitle ad voiceover optios i Begali/Sylheti, Hidi, Pujabi, Traditioal Chiese/Catoese, Urdu ad Welsh ad well as British Sig Laguage. After your diagosis After your diagosis

6 Uderstadig your diagosis My visitor book Youg-oset demetia: Uderstadig your diagosis Code 01 Alzheimer s disease: Uderstadig your diagosis Code Vascular demetia: Uderstadig your diagosis Code 1 My visitor book A record of the health ad social care professioals who visit me at home 01 Name: Telephoe umber: This series is desiged to meet the specific iformatio eeds of ayoe who has recetly bee Helpcards diagosed with demetia. The booklets will help a perso with I have memory I have demetia I have Alzheimer s demetia to uderstad more about the problems Code 1 disease coditio ad how it ca affect them, as Code Code 1 well as helpig them to come to terms with some of the feeligs they may be havig. 01 Each booklet icludes iformatio about Credit card size differet aspects of livig with demetia, icludig practical guidace o how to Helpcards for people with demetia cope with a diagosis, treatmets, livig to carry with them to help maitai well, ad the support ad services that are idepedece. Ca be filled out with available. Demetia with Lewy bodies: Uderstadig your diagosis Code 01 Frototemporal demetia: Uderstadig your diagosis Code Code pages, A 01 My visitor book is for a perso with demetia to keep track of the professioals who visit them i their home. persoal details. After your diagosis After your diagosis

7 The memory hadbook Code pages, A 01 alzheimers.org.uk/ memoryhadbook 1 strategies, aids ad tools to help people cope. May of these suggestios are 1 from people livig with memory problems (icludig MCI ad demetia). The memory hadbook ca play a vital role i eablig people with memory problems to stay idepedet ad live well. The memory hadbook A practical guide to livig Readig through The with memory problems memory hadbook helped me to come to terms with my diagosis, ad made me realise that I am ot aloe. After readig it, I thought to myself I ca do this! Perso with memory problems For more iformatio alzheimers.org.uk 000 This booklet is for people with a diagosis of demetia or mild cogitive impairmet (MCI), or those without a diagosis. It is full of iformatio about memory problems ad tips for livig well. This relauched versio suggests lots of 1 After your diagosis After your diagosis 1

8 Livig with demetia series Livig with demetia series Maagig your moey This booklet explais how to get your fiaces i order, pla for the future, maage bak accouts ad fid easier ways to pay for thigs. Code 1 A Drivig This booklet explais what a diagosis of demetia meas if you drive, icludig whe to stop drivig ad practical tips o maagig without a car. Code A Livig aloe This booklet explais some of the thigs you might wat to thik about if you live aloe, icludig gettig aroud, how to stay i touch with people ad dealig with isolatio ad loeliess. Code A Keepig safe at home Keepig active This booklet explais how you ad ivolved Employmet ca make your home a safe ad This booklet explais why it is This booklet is for people who supportive eviromet that importat to keep active, ad are still workig. It explais your eables you to live well. provides tips ad suggestios for rights, ad gives advice o talkig Code thigs you might like to try. to your employer ad what your A Code ext steps might be. 01 A Code 01 A These free booklets have Health ad social care 01 bee writte for ayoe professioals Your relatioships recetly diagosed with This booklet explais the This booklet explais how Plaig ahead demetia. They aim to differet health ad social care demetia ca affect your This booklet explais how you ca professioals you might meet help you live as well as relatioships, as well as advice o pla ahead followig a diagosis. ad what each of them do. how to stay close to those who It covers fiaces, your wishes possible with the coditio Code are importat to you. for future care ad makig sure by offerig practical advice A Code the people you trust ca make ad tips o dealig with the 01 A decisios o your behalf. challeges that you will face 01 Code 0 followig a diagosis. A 01 1 After your diagosis 1 After your diagosis

9 You might have foud yourself movig ito the role of a carer if someoe close to you has bee told they have demetia, or you might have bee carig for someoe for some time ow. Carig for a perso with demetia ca be challegig, but also very rewardig. The iformatio preseted here aims to help you uderstad more about supportig someoe with demetia, ad how to look after yourself. Iformatio for carers 1 Iformatio for carers Iformatio for carers 1

10 This is me This is me Code 1 pages, A 01 I partership with A simple form to help record persoal iformatio about someoe who caot share it easily themselves. They may be livig with Whe you fid yourself carig for a relative or fried, it ca be a dautig prospect. Learig to cope ad adapt brigs ew challeges for the perso with demetia ad those carig for them. These ca demetia or experiecig delirium or be emotioally ad physically other commuicatio difficulties. demadig. It is suitable for use i ay settig at This is our rebraded guide to all aspects This is me home, i hospital, i respite care or a care of carig for someoe livig with This leaflet will help home ad eables the perso with you support me i demetia. This comprehesive book a ufamiliar place. demetia to receive care that is tailored focuses o uderstadig demetia, to them as a idividual. how it affects someoe ad the impact of carig. It also has practical tips o maagig fiacial ad legal This is me makes such a arragemets, aspects of daily livig ad huge differece to the carer persoal care activities as well as the patiet. There is a focus o maitaiig abilities Carer ad devisig strategies for copig with the chages demetia brigs ad your feeligs as it progresses. These aspects ca cotribute to helpig you maage, stay better iformed ad less isolated. There are also sectios o the other services that are available ad ca provide further iformatio ad support. My full ame is photo My full ame Name I like to be called Where I live (list your area, ot your full address) Carer/the perso who kows me best I would like you to kow Please place a photograph of yourself i the space provided. Tur to the back page of this form for guidace otes to help you complete This is me, icludig examples of the kid of iformatio to iclude. Keep the completed form i a suitable place so that all care staff ca see it ad refer to it easily. My backgroud, family ad frieds (home, pets ad ay treasured possessios) Curret ad past iterests, jobs ad places I have lived ad visited The followig routies are importat to me Thigs that may worry or upset me Someoe who has demetia, delirium or other commuicatio difficulties, ca fid chages, such as movig to a ufamiliar place or meetig ew people who cotribute to their care, usettlig or distressig. This is me provides iformatio about the perso at the time the documet is completed. It ca help health ad social care professioals to build a better uderstadig of who the perso really is. This is me should be completed by the idividual(s) who kow the perso best ad, wherever possible, with the perso ivolved. It should be updated as ecessary. It is ot a medical documet. Refer to the otes o the back page to help fill i the categories below. This is me x Code 1 pages, A Pack of.0 01 Carig for the perso with demetia: A hadbook for families ad other carers Code 00 1 pages, A Iformatio for carers 1 Iformatio for carers

11 Factsheets What is demetia? Code 00 Risk factors for demetia Code 0 Lastig power of attorey Code For our full rage of products ad gifts, visit our olie shop at alzheimers.org.uk/shop or call Every purchase you make helps fud our Carers: lookig after Code 00 brai yourself Code work to support all Code Uderstadig ad those who eed our help supportig a perso ad ultimately fidig a with demetia cure for demetia. Code Our olie shop offers a wide Factsheets are reviewed every rage of products icludig: three years. All A. Number of daily livig aids to help with everyday pages varies. Up to six copies Commuicatig of each are free. Each copy life for people with demetia ad their carers What is demetia? thereafter costs 0p. All factsheets Alzheimer s Society ad Demetia Lastig power of attorey ca be dowloaded free from Frieds braded products How the GP ca support alzheimers.org.uk/factsheets. a perso with demetia celebratio gifts ad favours for For a complete list of factsheets weddigs ad aiversaries Christmas cards available, please see page. a great rage of gifts for all the family. We also publish a Witer gift catalogue ad a Daily livig aids catalogue packed with helpful assistive products. Factsheet 00 March 01 Factsheet 00 Jauary 01 We all eed to commuicate with Cotets other people. We eed to tell other Demetia ad laguage people a wide rage of thigs, Tips: Commuicatig with a perso with demetia icludig our eeds, wishes Before you speak ad feeligs. How well we ca Factsheet How to speak commuicate will affect our April 01 The word demetia describes a What Cotets to say quality of life, as well as how set of symptoms that may iclude Listeig Symptoms much we are able to keep our memory loss ad difficulties Body What laguage causes ad demetia? physical cotact idividuality ad sese of idetity. with thikig, problem-solvig Sesory Who impairmet gets demetia? Demetia or laguage. ca make it These hard for chages people to are Hearig loss Factsheet How ca I tell if I have demetia? commuicate, ofte small ad this to ca start be with, upsettig but for September 01 Sight loss ad frustratig A Lastig for them power ad those of attorey aroud (LPA) is Diagosis Cotets demetia someoe with demetia they have Other useful orgaisatios them. However, a legal there tool are may that gives ways to aother adult How is Advace demetia care treated? plaig become severe eough to affect help you support the legal ad commuicate authority to with make certai Ca demetia About LPAs be preveted? each other. daily This life. factsheet A perso gives with tips demetia ad decisios for you, if you become Further Beefits readig of makig a LPA advice may for commuicatig also experiece with someoe chages i with demetia, uable their mood ad supportig to make behaviour. them toyourself. The Who ca make a LPA commuicate perso i whichever who is way give works this authority Who ca be a attorey best for them. GPs ad GP practice staff Cotets Demetia is kow is caused as whe a attorey. the brai isthey ca How to make a LPA (icludig practice urses) have Whe to see the GP damaged maage by diseases, your fiaces, such as Alzheimer s or make Office of the Public Guardia disease or a a series importat of strokes. role Alzheimer s i supportig What support ca the GP give? decisios relatig to your health Frequetly asked questios disease is the people most commo with demetia cause of ad their ad welfare. This factsheet explais Accompayig alzheimers.org.uk the perso to the GP surgery demetia, but ot the oly oe. The specific Other useful orgaisatios carers. It is importat that people symptoms what that a someoe LPA is ad with why demetia you might Ca the GP discuss cocers with carers? with demetia ad carers have experieces cosider will deped makig o oe. the parts It also of the Chagig doctors brai that provides are regular damaged check-ups practical ad the advice disease with their ow ad Makig a complait that is causig doctor the demetia. (at least This oce factsheet a year). explais iformatio what demetia about is, icludig how to appoit Carers eeds They should see them as soo causes a ad attorey, symptoms, ad ad what how it powers is you Other services alzheimers.org.uk diagosed ca ad as give treated. possible them. It also if they looks have at ay Other useful orgaisatios some of the cocers differet types about of demetia. their health. The iformatio i this factsheet is for people This livig factsheet i Eglad looks ad at Wales, the differet ad is t iteded kids for of those support livig available i Norther from Irelad, a GP where for the a laws perso goverig with demetia. powers of It also attorey are differet. explais For how iformatio they ad their about carer the laws alzheimers.org.uk i Norther ca access Irelad them. see factsheet NI, Edurig power of attorey ad cotrollership. alzheimers.org.uk Assistive techology devices to help with everyday livig Code The progressio of Alzheimer s disease ad other demetias Code Commuicatig Chages i behaviour Code Beefits Code 1 Metal Capacity Act 00 Code 0 Demetia ad the Visit Alzheimer s Society s olie shop Lots of our daily livig aids are reviewed by people with demetia ad their carers so we ca be sure we re offerig you the best selectio of products. 0 Iformatio for carers 1 Iformatio for carers

12 Whether you are just startig out i your first role or you are lookig for specialist iformatio o specific areas of care, you will fid high quality resources to help you put your learig ito practice. These books cotai comprehesive guidace o areas such as activities for people with demetia, utritio, safeguardig ad mobility. They will help you to develop professioally, icrease your kowledge ad hoe your skills i care. Iformatio for professioals Iformatio for professioals Iformatio for professioals

13 Safeguardig people with demetia Code 0 pages, A Oe copy 0 copies 0 0 copies 0 01 This idispesable resource will help you idetify types of abuse ad recogise whe someoe with demetia is at risk or has bee abused or eglected. It outlies the provisios of the Care Act ad gives clear guidace o your resposibilities ad what to do to Takig part: Activities for people with demetia Code 1 1 pages, A 1 01 This updated editio of Alzheimer s Society book of activities reflects examples of recet best practice ad iovatio i demetia care. It also presets case studies, isight from professioals ad practical tips to give further ideas ad guidace for ejoyable activities. reduce risk or i the evet of The wide variety of activity suggestios a cocer. are arraged i chapters. Below are just It also icludes essetial questios to a selectio of the themes covered: cosider whe assessig risk ad best Coversatio ad discussio practice recommedatios. It gives all the iformatio staff eed to put learig ito Usig computers ad the iteret practice recogisig abuse ad takig appropriate actio. Remiiscece This guide cotais the followig chapters: Physical activities What is demetia? Gardeig Abuse ad people with demetia This book is a vital resource for ayoe providig perso-cetred care to Safeguardig people with demetia someoe with demetia. It will ispire from abuse professioals ivolved i all aspects of demetia care ot oly those resposible How do we recogise abuse? for activity programmes. It will also be a What actio should be take? valuable resource for family members lookig for ways to tailor care ad fid Where to go for support ways to make someoe with demetia feel egaged ad ivolved. Iformatio for professioals Iformatio for professioals

14 Promotig mobility for people with demetia: a problemsolvig approach Code 1 pages, A 0 Ifluetial title from author Rosemary Oddy. This book provides comprehesive ad accessible iformatio o all aspects of maitaiig mobility for occupatioal therapists ad Alzheimer s Society guide to the demetia care eviromet Code pages, A 00 Writte by Jackie Pool, leadig occupatioal therapist ad traier. Describes clearly ad comprehesively how physical ad social eviromets ca support a perso-cetred approach to demetia care. Icludes illustrated examples of iteral ad exteral eviromets ad advice o how to put physiotherapists, but also for solutios ito care practice. ayoe ivolved i carig for people Memories are made of this with demetia. Code 0 pages, A.0 00 A detailed resource o remiiscece activities i demetia care. Specific ideas for the use of music ad objects complemet clear istructios for activities. Alzheimer s Society guide to caterig for people with demetia Code 0 pages, A.0 Special offer 00 Buy these four Practical guide full of tips ad ideas, as books together for 0(+P&P) well as advice ad iformatio to help iform caterers about topics icludig meu plaig, utritio, taste, flavour ad presetatio as well as swallowig difficulties, poor appetite ad weight loss. Iformatio for professioals Iformatio for professioals

15 Support ad care for people with demetia at home A guide for homecare workers I associatio with Support ad care for people with demetia at home: A guide for homecare workers Code 0 pages, A Oe copy 0 copies 0 0 copies 0 This guide for homecare workers provides advice, practical tips ad strategies o supportig a perso with demetia at home. Sectios cover Helpig you to assess cogitio: A practical toolkit for cliicias Code pages, A 01 This olie resource aims to help health professioals, icludig GPs with kowledge of measurig cogitive fuctio, determie the most appropriate cogitive assessmet tool for use with patiets i their settig. It lists a variety of available tools with suggestios of their topics from challegig behaviour ad suitability to comparative settigs. commuicatio to recogisig pai, record-keepig ad lookig after yourself. Guidace for NHS cotiuig healthcare Evidece-based approaches for improvig assessors demetia care i care homes pages, A Code Code pages, A 0 00 Specialist resource for CHC assessors Robust guidace, iformatio ad workig i hospitals ad other care practical activities for implemetig settigs who are familiar with the chage to improve demetia care i care Natioal framework for NHS cotiuig homes. Fidigs are based o UK research healthcare ad NHS-fuded ursig ito alterative approaches to sedative care. Icludes questios to cosider, medicatio i the support of people with suggested idicators of eeds, ad tips demetia i care homes. o makig assessmets for people i the later stages of demetia. Iformatio for professioals Iformatio for professioals

16 Traiig ad Cosultacy Alzheimer s Society Traiig ad Cosultacy provides specialist traiig to orgaisatios directly resposible for deliverig demetia care ad support, as well as to orgaisatios whose staff come ito cotact with people livig with demetia. From specialist health ad social care traiig to geeral demetia awareess courses, our courses offer great value for moey ad ca be tailored to your idividual objectives ad requiremets. Recet customer feedback shows that.% of people who atteded our traiig betwee April 01 ad March 01 said that their kowledge ad uderstadig of demetia has improved as a result of attedig the course ad.% said that they ow feel more cofidet supportig a perso livig with demetia. If you would like further iformatio please cotact the Traiig ad Cosultacy team by ig demetiatraiig@alzheimers.org.uk or telephoig Iformatio for professioals Iformatio for professioals 1

17 Alzheimer s Society established a Champio group o demetiafriedly commuities. This focuses o improvig the experieces of people with demetia withi specific sectors. We have ow produced a umber of publicatios which provide valuable iformatio about a rage of issues relatig to demetia-friedly commuities. Demetia- Friedly Commuities Demetia-Friedly Commuities Demetia-Friedly Commuities

18 Becomig a demetia-friedly arts veue: A practical guide Becomig a demetia-friedly arts veue: A practical guide Code 0 pages, A 01 This guide allows arts veues to tailor practical guidace ad create a demetiafriedly approach specific to their orgaisatio. It provides guidace o commuity egagemet, accessibility ad programmig to help people livig with demetia to socialise ad remai Demetia-friedly housig charter Demetia-friedly housig charter: Guidace o deliverig a demetia-friedly approach to housig Code pages, A 01 This charter is desiged to help all professioals i the housig sector support people livig with demetia i their homes ad i housig with care settig. It facilitates cosistecy ad good practice, as well as helpig to future-proof idepedet. orgaisatios ad services. Becomig a demetia-friedly retailer: Creatig a demetia-friedly workplace: A practical guide A practical guide for employers Code 0 Code pages, A pages, A This guide aims to help large ad small This iformative guide is for employers, retail orgaisatios wishig to improve to help them gai a uderstadig of the demetia-friedliess of their store. demetia, how it impacts orgaisatios ad It suggests makig simple chages to the practical steps they ca take to support Becomig a demetia-friedly eable people with demetia to cotiue Creatig a demetiafriedly workplace employees, cliets ad customers. shoppig by creatig places that A practical guide for employers uderstad their eeds. Guidace o deliverig a demetia-friedly approach to housig Demetia-friedly housig charter 1 Demetia-Friedly Commuities Demetia-Friedly Commuities

19 Alzheimer s Society fuds high-quality research ito the cause, cure, care ad prevetio of all forms of demetia. The research team produce a umber of publicatios that rage from showig the sciece behid demetia to explaiig how people ca get ivolved. Research Research Research

20 Care ad cure The Alzheimer s Society research magazie Issue Sprig 01 Breakig the kowledge barrier Professor Bart de Strooper lays out his ambitious visio for the 0 millio Demetia Research Istitute. Page Demetia ad delirium How episodes of cofusio ca worse the symptoms. Page Makig research a reality Page Care ad cure magazie Code CC Four issues a year 1 pages, A alzheimers.org.uk/careadcure Our quarterly research magazie is aimed at a geeral audiece who are iterested i what is happeig i demetia research. It icludes feature articles to explai the backgroud to research, as well as the latest research fidigs ad ews about the Society s research programme. Research Network voluteer. Aual Research Review 01 Joi Demetia Research Code AR1 Code JDR HELP A Fold out DL leaflet BEAT alzheimers.org.uk/researchreview This fold-out leaflet outlies how people Each year we produce a Aual Research ca participate i demetia research. It Review that looks back o the last year explais who ca take part, the beefits of research fudig. We highlight some of for researchers ad for participats, ad our successes ad examples of where our gives the website ad phoe umber for research has made a differece to those people who would like to joi. livig with demetia. Register your iterest i demetia research today Alzheimer s Society Research Network Code RNF A, double-sided 01 The Alzheimer s Society Research Network provide valuable advice ad feedback from their persoal experiece of demetia, as people who have demetia or are carers or former carers. Their iput helps to make sure we fud high quality research. This flyer explais the role of a Research Research

21 Our Policy team works to improve the lives of people with demetia ad their carers. I this sectio you will fid up-to-date policy reports which provide iformatio o the state of demetia i Eglad ad the UK. These publicatios set out the key statistics about demetia as well as documetig how well people are livig with the coditio ad the barriers they are facig. For more iformatio please visit alzheimers.org.uk/policy Policy 0 Policy 1 Policy

22 Turig Up the Volume 1 Turig Up the Volume: uheard voices of people with demetia Code 00 pages, A Olie oly 01 alzheimers.org.uk/ turigupthevolume Demetia UK: Update Kig s College Lodo ad the Lodo School of Ecoomics, provides the most We kow that people s experiece of detailed ad robust picture to date of demetia differ. Someoe livig with the prevalece ad ecoomic impact of frototemporal demetia, or demetia demetia i the UK. with Lewy bodies, will differ from those Turig Up livig with Alzheimer s, ad people with This report updates the fidigs of the the Volume: youg-oset demetia face a differet 00 Demetia UK report, which led to uheard voices of people with set of challeges to those who develop ladmark chages i how demetia was demetia demetia later i life. prioritised across the UK. Speakig to people with demetia o this scale ad importatly with this level of detail has helped us uderstad the real experiece of livig with demetia i 01. A groudbreakig look at the real challege of livig with demetia i the UK today May 01 Alzheimer s Turig Up the Volume project is the largest cosultatio of people affected by demetia we have ever udertake, aimig to capture the experieces of as may differet people affected by demetia as we ca across Eglad, Wales ad Norther Irelad. Code 0 pages, A 01 alzheimers.org.uk/ demetiauk I autum 01, Alzheimer s Society published a major study o the social ad ecoomic impact of demetia i the UK. The study showed that there would be 0,000 people livig with demetia i the UK by 01 ad that demetia costs the UK billio a year. The research, commissioed through Policy Policy

23 Perhaps you are holdig a evet or represetig the Society. Here you ll fid the free resources that are available to you if you wat to publicise Alzheimer s Society products ad services or raise awareess of demetia. Demetia awareess Demetia awareess Demetia awareess

24 Worried about your memory? These materials explai what you should do if you are worried about yourself, or someoe you kow. For more iformatio visit alzheimers.org.uk/memoryworry Worried about your memory? Leaflet Eglish Code 1 Welsh Code 1 pages, DL 01 Booklet Natioal Demetia Helplie card Tur to us. Eglish Code 0 We re here Eglish Code 0 pages, A for you. Welsh Code 0 Call 000 Double sided, credit card size 01 helplie@alzheimers.org.uk Cotais cotact details for the Natioal Poster Demetia Helplie to publicise the services Eglish Code 1 offered for ayoe affected by demetia. Welsh Code A Wat to talk about demetia? 01 Code 1 A, double-sided thigs you should kow about demetia Code THINGS1 01 mm x mm This flyer itroduces Talkig Poit, a olie support commuity for people 01 thigs Wat to with demetia, carers ad families. We re here you should Iformative booklet to get the facts ad talk about It icludes iformatio o how to access kow about for you demetia dispel the myths about demetia Tur to us. We re here for you. If you have questios or cocers about demetia, call our Natioal Demetia Helplie for expert iformatio ad support. Call us ow o 000 helplie@alzheimers.org.uk demetia? Tur to us. We re here for you (Helplie flyer) Code 1 A, double-sided 01 This flyer promotes the Natioal Demetia helplie, icludig opeig hours ad details of the type of iformatio, support ad advice available o all aspects of demetia from traied advisers. Talkig Poit. alzheimers.org.uk alzheimers.org.uk/talkigpoit Demetia awareess Demetia awareess

25 A selectio of our publicatios are available i alterative formats to make them accessible to as may people as possible. These iclude ebooks, films, largeprit PDFs, publicatios i other laguages, ad audio-versios of our most popular factsheets. We have also developed some publicatios specifically to meet the eeds of people with learig disabilities. To see what we have available go to alzheimers.org.uk/ accessibleresources Accessible resources Accessible resources Accessible resources

26 Ebooks Some of our most popular titles are available as ebooks. They ca be purchased from major ebook retailers icludig Amazo, Google Play, Waterstoes, Kobo ad itues. Visit alzheimers.org.uk/ebooks or search for the titles you wat usig your ereader device. Resources for professioals Booklets Safeguardig people with demetia: The demetia guide: Livig well after Recogisig adult abuse diagosis Each day is differet: A itroductio What are the advatages of ebooks? to the care ad support of people with demetia Storage ad portability: keep as may titles o your device as you like. How to help people with demetia: A guide for customer-facig staff Usability: chage the fot, size of text ad cotrast ad brightess of the Support ad care for people with scree to suit your eeds. demetia at home: A guide for homecare workers Searchability: fid the iformatio you eed quickly ad easily. Alzheimer s Society guide to caterig for people with demetia Liks to further iformatio whe you are olie. Memories are made of this: Remiiscece activities for people Other fuctioality such as otes, with demetia highlightig ad dictioary to ehace the way the iformatio works for you. Takig part: Activities for people with demetia Promotig mobility for people with demetia: A problem solvig approach 0 Accessible resources 1 Accessible resources

27 Demetia ad laguage Tips: Commuicatig with a perso with demetia Before you speak How to speak What to say Listeig Body laguage ad physical cotact Sesory impairmet Hearig loss Sight loss Other useful orgaisatios Symptoms What causes demetia? Who gets demetia? How ca I tell if I have demetia? Diagosis demetia How is demetia treated? Ca demetia be preveted? Further readig Advace care plaig About LPAs Beefits of makig a LPA Who ca make a LPA Who ca be a attorey How to make a LPA Office of the Public Guardia Frequetly asked questios Other useful orgaisatios For people with learig disabilities Factsheet 1 What is demetia? What is demetia? Easy Read factsheet for people with learig disabilities Code ER1 1 pages, A 01 For people with sight impairmet The demetia guide The demetia guide: Livig well after diagosis i braille Code BR Available o request 01 Livig well after diagosis Supportig a perso with demetia Easy Read factsheet for people with Factsheets learig disabilities Factsheet Code ER a perso with 1 pages, A Our most popular factsheets are demetia available i audio format o CD. You 01 Commuicatig ca also liste to them olie at alzheimers.org.uk/audioadvideo All our factsheets are available What is demetia? i large-prit (1pt) versios olie. To dowload go to alzheimers.org.uk/factsheets Lastig power of attorey We all eed to commuicate with other people. We eed to tell other people a wide rage of thigs, icludig our eeds, wishes ad feeligs. How well we ca commuicate will affect our quality of life, as well as how much we are able to keep our idividuality ad sese of idetity. Demetia ca make it hard for people to commuicate, ad this ca be upsettig ad frustratig for them ad those aroud them. However, there are may ways to help you support ad commuicate with each other. This factsheet gives tips ad advice for commuicatig with someoe with demetia, ad supportig them to commuicate i whichever way works best for them. The word demetia describes a set of symptoms that may iclude memory loss ad difficulties with thikig, problem-solvig or laguage. These chages are ofte small to start with, but for someoe with demetia they have become severe eough to affect daily life. A perso with demetia may also experiece chages i their mood or behaviour. For more iformatio alzheimers.org.uk 000 Cotets Factsheet 00 March 01 Cotets alzheimers.org.uk Demetia is caused whe the brai is damaged by diseases, such as Alzheimer s disease or a series of strokes. Alzheimer s disease is the most commo cause of demetia, but ot the oly oe. The specific symptoms that someoe with demetia experieces will deped o the parts of the brai that are damaged A Lastig ad the disease power of attorey (LPA) is that is causig the demetia. a legal tool This factsheet that gives aother adult explais what demetia is, icludig the the legal authority to make certai causes ad symptoms, ad how it is diagosed ad treated. decisios It also looks for at you, if you become some of the differet uable types of to demetia. make them yourself. The perso who is give this authority is kow as a attorey. They ca maage your fiaces, or make decisios relatig to your health ad welfare. This factsheet explais what a LPA is ad why you might cosider makig oe. It also provides practical advice ad iformatio about how to appoit a attorey, ad what powers you ca give them. Factsheet 00 Jauary 01 Cotets alzheimers.org.uk Factsheet April 01 The iformatio i this factsheet is for people livig i Eglad ad Wales, ad is t iteded for those livig i Norther Irelad, where the laws goverig powers of attorey are differet. For iformatio about the laws i Norther Irelad see factsheet NI, Edurig power of attorey ad cotrollership. alzheimers.org.uk Accessible resources Accessible resources

28 For people with hearig impairmet Five of our factsheets are also available i British Sig Laguage (BSL). What is demetia? Code 00 What is Alzheimer s disease? I other laguages The demetia guide: Livig well after diagosis DVD The demetia guide first editio DVD has subtitle ad voiceover optios i a rage of other laguages. These iclude Begali/ Sylheti, Hidi, Pujabi, Traditioal Chiese/ Catoese, Urdu ad Welsh, as well as British Sig Laguage. The demetia guide: Livig well after diagosis traslated PDFs Code 01 Traslated versios of the demetia guide What is vascular are available olie oly i Begali, Hidi, demetia? Pujabi, Traditioal Chiese, Urdu ad Code 0 Welsh. This is me What is demetia with This is me, our tool to eable people to Lewy bodies (DLB)? receive perso-cetred care, is available Code 0 i Welsh. What is frototemporal To dowload the PDFs go to demetia? alzheimers.org.uk/traslatios Code 0 Dyma fi To watch these, go to alzheimers.org.uk/ This is me accessibleresources BACK COVER FRONT COVER The demetia guide Livig well after diagosis Bydd y dafle ho y eich helpu chi i fy ghefogi mew lle aghyfarwydd. This leaflet will help you support me i a ufamiliar place. Fy ew llaw yw My full ame is OPENING I partership with Rhowch lu ohooch eich hu y y lle a ddarperir. Trowch at dudale gef y ffurfle ho i gael odiadau callaw i ch helpu i gwblhau Dyma fi, ga gywys eghreifftiau o r math o wybodaeth i w chywys. Cadwch y ffurfle wedi ei llewi mew lle addas fel y gall yr holl staff gofal ei gweld a chyfeirio ati hawdd. Please place a photograph of yourself i the space provided. Tur to the back page of this form for guidace otes to help you complete This is me, icludig examples of the kid of iformatio to iclude. Keep the completed form i a suitable place so that all care staff ca see it ad refer to it easily. Accessible resources Accessible resources

29 Our factsheets offer iformatio o a wide rage of topics relatig to demetia. They explai the issues, give practical advice ad tips, ad poit you i the directio of other sources of iformatio ad support. Factsheets Factsheets Factsheets

30 Code Title About demetia 00 What is demetia? 01 What is Alzheimer's disease? 0 What is vascular demetia? 0 What is demetia with Lewy bodies (DLB)? 0 What is frototemporal demetia (FTD)? 0 Geetics of demetia 0 Drug treatmets for Alzheimer's disease 0 Drugs for behavioural ad psychological symptoms i demetia Code Title Emotioal ad practical support 1 The later stages of demetia Usig equipmet ad makig adaptatios at home Assistive techology devices to help with everyday livig Drivig ad demetia Apathy, axiety ad depressio Talkig therapies (icludig cousellig, psychotherapy ad CBT) Detal care ad oral health Travellig ad goig o holiday Assessmet ad diagosis 0 Supportig a lesbia, gay, bisexual or tras perso with 0 Learig disabilities ad demetia demetia What is alcohol-related brai damage? Makig decisios ad maagig difficult situatios 0 What is youg-oset demetia? 00 Commuicatig Rarer causes of demetia 01 Walkig about 0 Risk factors for demetia 0 Cotiece ad usig the toilet Demetia ad the brai 0 Washig ad bathig The progressio of Alzheimer's disease ad other demetias 0 Grief, loss ad bereavemet 0 What is mild cogitive impairmet (MCI)? 0 Demetia ad aggressive behaviour Sight, perceptio ad halluciatios i demetia Dressig Eatig ad drikig 1 Pressure ulcers (bedsores) 1 Sex ad itimate relatioships 1 Explaiig demetia to childre ad youg people Stayig healthy Carers: lookig after yourself Uderstadig ad supportig a perso with demetia Chages i behaviour Copig with memory loss Exercise ad physical activity 1 Ed of life care Factsheets Factsheets

31 Code Title Health ad social care 1 Assessmet for care ad support i Eglad NI1 Commuity care assessmet (for Norther Irelad) W1 Assessmet for care ad support i Wales How the GP ca support a perso with demetia Replacemet care (respite care) i Eglad NI Respite care i Norther Irelad W Respite care i Wales Selectig a care home Hospital care Payig for care ad support i Eglad NI Payig for care ad support i Norther Irelad W Payig for care ad support i Wales Legal ad fiacial 1 Beefits 1 Coucil tax NI1 Direct paymets (for Norther Irelad) The Metal Health Act 1 ad guardiaship 0 Metal Capacity Act 00 Advace decisios ad advace statemets NI Fiacial ad legal tips (for Norther Irelad) Lastig power of attorey NI Edurig power of attorey ad cotrollership Persoal budgets Deprivatio of Liberty Safeguards (DoLS) 0 Becomig a deputy for a perso with demetia 0 Factsheets Factsheets 1

32 Subscribe today Our magazie. Livig with demetia, showcases 0 pages of real-life stories, support ad iformatio about the growig demetia movemet, alogside tips from people livig with the coditio. All this is delivered to your door every two moths whe you sig up. There s o subscriptio fee. We just ask that you cosider makig a doatio to support our visio of a world without demetia. Uite with us ow agaist demetia by subscribig. It helps us stregthe our campaigig voice while geeratig valuable fuds to improve the quality of life for people with demetia, their carers ad families. Livig with demetia magazie Code LWD Six issues a year 0 pages, A Sig up at alzheimers.org.uk/subscribe or call (Mo Fri, am pm). The latest editio came through my letter box today, ad I felt as if a light had bee switched o i my darkess. They seemed to be talkig about world I live i. Subscribe today Subscribe today

33 How to order You ca order oe copy free of may of our publicatios (excludig publicatios for health ad social care professioals) via our olie order form. Please visit alzheimers.org.uk/orderpublicatios Alteratively, you ca use this form to order by post or over the phoe o To place a order, please complete the order form ad sed it to: Alzheimer s Society Publicatios Orders PO Box High Wycombe HP1 DS Order form Please complete both sides of this form Title Surame Address First ame Postcode Telephoe Please ote that there is a postage ad packig charge of. o every order. This does ot apply to free publicatios. I eclose a cheque payable to Alzheimer s Society. I would like a pro forma ivoice (orgaisatios oly). To make a paymet usig a credit or debit card, please call Gift Aid makes every 1 you give worth more at o extra cost to you I am happy for all gifts of moey that I have made to Alzheimer s Society i the past four years ad all future gifts of moey that I make, to be Gift Aid doatios I am a UK taxpayer ad uderstad that if I pay less Icome Tax & Capital Gais Tax i the curret tax year tha the amout of Gift Aid claimed o all of my doatios across all Charities, it is my resposibility to pay ay differece. Alzheimer s Society reclaims p for every 1 you doate from the tax you pay for the curret tax year. If you chage your ame, address or tax status, please let us kow. Thak you for your support Data protectio We ca oly wi the fight agaist demetia with the passio ad geerosity of our supporters. We d love to keep you updated about everythig we re doig. We will ever sell your data oto third parties. Let us kow how you d like to be cotacted: Subscribe today How to order Yes, please do cotact me via Yes, please do cotact me via phoe Yes, please do cotact me via SMS No cotact via mail, please

34 Order form Item code Publicatio title Quatity Amout Alzheimer s Society is the UK s leadig demetia charity. We provide iformatio ad support, improve care, fud research, ad create lastig chage for people affected by demetia. If you have ay cocers about Alzheimer s disease or ay other form of demetia, visit alzheimers.org.uk or call the Alzheimer s Society Natioal Demetia Helplie o 000. (Iterpreters are available i ay laguage. Calls may be recorded or moitored for traiig ad evaluatio purposes.) To order publicatios orders@alzheimers.org.uk Order subtotal Doatio (Thak you) Postage ad packig.* TOTAL * This postage charge does ot apply to free publicatios Please fill out both sides of this form ad retur to: Alzheimer s Society Publicatios Orders, PO Box, High Wycombe, HP1 DS. You ca also order publicatios olie at alzheimers.org.uk/orderpublicatios Registered charity o.. A compay limited by guaratee ad registered i Eglad o.. Alzheimer s Society operates i Eglad, Wales ad Norther Irelad. Alzheimer s Society Crutched Friars Lodo ECN AE ifo@alzheimers.org.uk alzheimers.org.uk Code PL1