Arthritis Foundation

Transcription

1 Arthritis Foundation

2 The Arthritis Foundation is boldly pursuing a cure for America's #1 cause of disability, while championing the fight against arthritis with life-changing resources, science, advocacy and community connections. We come together to Live Yes! by learning about arthritis, leaning on each other, and living our best life.

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7 Who we are

8 What we do

9 Live Yes! Arthritis Network

10 Live Yes! Arthritis Network

11 The Why: What Matters to Our Constituents... Pain physical and emotional Medical outcomes Access to care Next Steps: Easier daily living Individual program impact measurement Optimize mission model for the future Connections with other patients

12 Juvenile Arthritis and Young Adult Resources

13 KidsGetArthritisToo.org Comprehensive Resources Medical care Parent stories National JA Conference Camps & family days School issues & educational rights Transition information Research updates Educational Webinars

14 JA Power Pack Champ heat/cool therapy bear Hot/cold body wrap for teens

15 JA Power Pack - New in 2018 Improve communication between child/parent Help the child: understand their disease learn to manage their emotions about their disease

16 JA Power Pack - New in 2018 Improve communication between teen and parent as they transition into adulthood Help the teen: understand phases of transition (into high school, into college) learn to manage their emotions about their disease

17 Impacting families! Finding the JA Power Pack program was wonderful. It was just the pick me up that Dean needed. He loved the bear and the backpack and even wore the backpack to school. The information was so helpful for us as parents and also to give out to friends, family and teachers. High praises to the JA Power Pack program. Thank you for providing a national support system for all families.

18 JA Conference July 18 21, 2019 Houston, TX August 1 4, 2019 Minneapolis, MN Focuses on health, wellness and fun for kids affected by childhood rheumatic disease.

19 JA Conference Separate educational and social programming tracks for parents, kids, teens and young adults. Topics for parents include the latest treatments and research, and strategies for managing daily activities and developmental and social issues.

20 JA Camp Programs 42 resident camps and family camping experiences across the country Information and locations at arthritis.org/jacamps.

21 2018 JA Camp Locations = JA camp program (resident camp) == Teen Retreats = JA camp program (family camp)

22 Local JA Day Events Networking, education, support for entire family Occurs in markets across the country

23 ipeer2peer Mentor Program Nationwide program offers teens, 13-17, an opportunity to be matched with a trained Young Adult Mentor. JA Transitions Website Designed to prepare teens, young adults, and their families for the transition to healthy adulthood. Includes JA Transitions Supporting the unique needs of Teens and Young Adults

24 Winterhoff Arthritis Scholarship Program - Annual college scholarship opportunity for students with rheumatic diseases who are involved with the Arthritis Foundation. JA Transitions Supporting the unique needs of Teens and Young Adults Young Adult (YA) Initiatives Opportunities for YA volunteers to take on leadership roles. Visit arthritis.org/get-

25 Help & Support Resources Content Connection Community

26 CONTENT

27 Arthritis Today Award-winning magazine E-newsletters Drug & Supplement Guide

28 arthritis.org

29 Better Living Toolkit Essential resource to help people better understand and manage their arthritis Includes the Better Living Health Tracker, featuring the RAPID3 tool: Helps patients monitor symptoms, goals and progress toward goals Facilitates effective communication during doctor appointments Order the printed toolkit: BetterLivingToolkit.org

30 Breaking the Arthritis Pain Chain

31 Wipe Out Gout

32 Rx for Access

33 Arthritis Resource Finder

34 Community Events Living Your Yes with RA Health tracking Goal-setting Communication Living Made Easier (OA) Gardening Cooking Daily living

35 CONNECTION TO FIT

36 Your Exercise Solution (YES) Tool Unique and ground-breaking online tool that provides personalized advice and modifications for popular physical activities Mobile App Available! Focuses on six joints and provides 4,000 different combinations of customized exercise and activity results Developed and reviewed by a range of experts, including the CDC, physical therapists, rheumatologists, orthopedic surgeons YourExerciseSolution.org

37 Your Exercise Solution

38 Walk With Ease Proven to: Reduce the pain and discomfort of arthritis Increase balance, strength and walking pace Build confidence in your ability to be physically active Improve overall health

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40 CONNECTION TO COMMUNITY

41 Arthritis Support Network

42 Arthritis Foundation Advocacy Program

43 2018 Advocacy Survey Results

44 Ambassador Programs Arthritis Ambassadors - Must be 18 or over and fill all the basic requirements Platinum Ambassadors - Ambassadors that must fulfill additional requirements beyond the basics. Junior Ambassador - Must be 13-17

45 State Advocacy Days

46 How do Advocates find out what s happening? Advocacy in Action bi-weekly that goes out to our Advocates Ambassador Newsletter Jr. Ambassador Newsletter Social Media - Follow us on Facebook Arthritis and on Twitter Hashtag #advocateforarthritis Advocacy Blog - blog.arthritis.org/advocacy/

47 For the latest information on anything advocacy, go to At the website you will find information on: Signing up to become an Advocate and Advocate 101 *Advocacy Tools and Resources -Includes the NEW Advocacy Committee Toolkit Information on the Ambassador Program Platinum Ambassador Assembly News *Action Center NEW Take Action Today! Federal Policy Priorities and Legislative Position Statements Advocacy Results News and Regulatory- Always something NEW! Link to the Advocacy Blog

48 Walk to Cure Arthritis Largest gathering of the arthritis community in the world Celebrate Arthritis Warriors Most events held in May Started in the 1990s in Tennessee Nationally branded Arthritis Walk in 2003 Rebranded Walk to Cure Arthritis in 2014

49 Jingle Bell Run Original festive race for charity 5k timed race where participants tie jingle bells to their shoes Most events held in December 34 th year

50 Marquee Events Galas Audience: Corporate & Community Leaders, high level donors Usually a black tie dinner with live and silent auctions Individual giving ask Bone Bash Halloween themed social event Typically includes dinner, live & silent auctions Other ticketed social events

51 Questions & Comments

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