PARTNERING WITH HEARTKIDS

Transcription

1 PARTNERING WITH HEARTKIDS

2 Savannah Age 7 months WHO WE ARE HeartKids is the only national Profit for Purpose charity dedicated to supporting Australians of all ages impacted by congenital/childhood heart disease, the leading cause of infant death in Australia and a complex chronic disease requiring lifelong treatment. For over forty years, HeartKids has provided timely support to infants, young people and adults living with congenital/childhood heart disease all across Australia. We also fund life-saving research, provide reliable and evidence-based information and advocate for the needs of impacted families. Our support is a commitment for life, because there is no cure. People with congenital/childhood heart disease face unique challenges for their entire lives. Hamish Age 4 ADVOCACY Luka-Angel Age 14 INFORMATION SUPPORT Jeanette Age 45 RESEARCH Elsa Age 2

3 Mila Age 4 THE SIMPLE FACTS OUR MOTIVATION Eight babies are born with a heart condition in Australia every day. There is no known cure. Congenital heart disease is the most common birth abnormality, affecting 1 in every 100 babies. Moonshine Agency, Take Heart Project Liddywoo Age 14 Eight babies are born with congenital heart disease in Australia every day. That is almost 3,000 every year. Congenital/childhood heart disease is the single biggest cause of death of children under the age of one in Australia. Approximately half of the children diagnosed with congenital/childhood heart disease require surgery to correct it. Each week more than four Australians pass away as a result of congenital heart disease. It is estimated that 32,000 children (under 18 years of age) are currently living with congenital/childhood heart disease in Australia. Due to medical advances there are now more adults than children with congenital/childhood heart disease. Some children acquire heart disease - often as a result of rheumatic fever, which is prevalent in many Australian communities. OUR WORK, OUR IMPACT HeartKids provides lifelong support for heart kids and their families. Congenital heart disease is the leading cause of death of Australian babies. HeartKids is the compass to help navigate the journey of a person with congenital/childhood heart disease throughout their lifetime. HeartKids work is outcome focused and demonstrates real impact for families and for the community. Specifically, we: Advocate for the needs of people with congenital/childhood heart disease, their families and carers. Provide quality information to guide families on their whole life journey. Drive world class research into the causes, treatment and management of congenital/childhood heart disease; committing over $3.5 million to date. Deliver high quality support services via all major Australian children s hospitals. children s hospitals and in the community. Thanks to medical advances, there are over 32,000 adults who have lived with a heart condition since childhood. Source: Leggatt, 2011

4 In one year alone more than three million Australians switched from their normal product or service to another brand because it supported a charity or cause. (Cavill + Co 2014) HOW YOU CAN HELP Partnering with HeartKids can help you to achieve your business and community goals whilst making a real difference to those impacted by congenital/childhood heart disease. It makes business sense. HeartKids has a number of family focused programs which your partnership could support including: Project Compass A network of health professionals and peer-to-peer HeartKids Liaison Workers in each of the ten major cardiac hospitals and key regional centres. The emphasis is on support at pivotal points of diagnosis, treatment and transition from adolescence to adulthood. 1800HEARTK The HeartKids Helpline Line provides on demand support, advice and guidance for anyone affected by congenital/childhood heart disease. Congenital Heart Disease Registry The Congenital Heart Alliance of Australia and New Zealand (CHAANZ), with the fundraising and leadership of HeartKids, is implementing the bi-national Congenital Heart Disease Registry. This will inform clinical best practice and provide guidance on how to reduce the burden of the disease. Care Bags Care Bags contain practical items and information to assist families during unexpected hospital stays. Often they are the first interaction that a newly diagnosed family has with HeartKids, introducing them to the work of the organisation and opening the door to a range of additional support and information services. The HeartKids team collaborates closely with their partners, providing many opportunities for employee engagement (as teams or individuals, in both skilled and non-skilled capacity) and moves quickly to make decisions and create opportunities we can all be proud of. Our first campaign as partners, Sweetheart Day 2017, came together in a matter of days, with strong digital presence, PR, social media and a tailored activation strategy that drove an 83% uplift in funds raised during the dollar match campaign period. Greg Boyle, CEO, Virgin Money Australia Heart Beads Children are rewarded with distinctive beads specific to each procedure or treatment. The children feel a sense of achievement for their courage and the beads help them tell their difficult story. Teen Camp This national event provides young people with an opportunity to meet others with similar experiences and challenges to undertake activities in a supportive environment. Research has shown that children with congenital/childhood heart disease exhibit increased self-esteem and a more positive perception regarding their physical functioning and overall health after attending such camps. We welcome partnership interest on a number of levels. You may wish to: improve employee engagement through fundraising, volunteering or payroll giving sponsor an event to raise customer and community awareness make a significant cash donation (with tax benefits) towards HeartKids vital work to improve the lives of impacted families Tahlia-Jade Age 8 Companies that increased giving by 10% or more saw an average of 14% growth in pre-tax profits. (CEO Force for Good) Organisations with high verses low employee engagement experience 2.5 times greater revenue growth and report profitability 16% higher than average. (Australian Charities Fund Research, 2014)

5 Partnership opportunities range from providing volunteers through to naming rights sponsorship. HEARTKIDS NATIONAL EVENTS Sweetheart Day is HeartKids national annual awareness and fundraising campaign which takes place in January and February focusing on Valentine s Day. The campaign raises awareness of congenital/childhood heart disease and its impact on 64,000 (or more) affected Australians. The general public, community groups and corporates are encouraged to hold an event, make a donation or purchase heart-themed merchandise. Super Boss Day is a corporate team building initiative whereby CEOs, Managers and co-workers dress as a superhero to raise funds to support people impacted by congenital/ childhood heart disease. Bosses can register themselves or be nominated by staff, friends or family. It s a lot of fun and a great way to engage your customers, employees and colleagues whilst supporting a great cause. Two Feet & A Heartbeat is a community 2.1km Charity Walk where each participant carries a coloured flag to signify their connection to congenital/childhood heart disease. White is for those walking in memory of a heart angel (deceased loved one), blue for individuals with congenital/childhood heart disease, and red for those walking in support of the cause. Being part of this event is a powerful experience as employees and customers walk alongside impacted families, personalising your contribution to the cause. JANUARY FEBRUARY MARCH APRIL MAY JUNE JULY AUGUST OCTOBER NOVEMBER DECEMBER Sweetheart Day Super Boss Day SEPTEMBER Two Feet & A Heartbeat

6 OUR RESEARCH Research has the power to change the outlook for those with congenital/childhood heart disease, but sadly investigations in this area remain significantly underfunded. HeartKids is the leading research funding body in Australia to drive research into the causes, treatment and management of congenital/ childhood heart disease. With the support of our sponsors and donors, HeartKids is proud to have committed over $3.5 million of funding to research projects looking to unlock the mysteries of congenital/childhood heart disease. HeartKids research partnerships provide a unique opportunity to improve the long-term health outcomes for those affected by congenital/childhood heart disease whilst benefiting from fantastic networking and PR opportunities. PARTNERSHIP OPPORTUNITIES GOLD RESEARCH PARTNER $50,000 Naming rights of a world-class research project Your brand on all research related communications and marketing materials Invites for your chairperson, board, executives and key employees or invited guests to the research awards ceremony to hear first hand from researchers on the impact of your support Promotion to HeartKids highly engaged community on Facebook (minimum of four posts per year valued at $5-$10K per post) and active database of supporters Compelling content for your social media channels including use of HeartKids powerful imagery, logo, stories and case studies Tailored PR support Your logo on the HeartKids homepage, sponsor page and the research sponsor page VIP invitations to key HeartKids events throughout the year providing networking and client entertaining opportunities An opportunity for your staff and key stakeholders to meet a researcher to discuss their project and see their work first hand Detailed reporting on the impact of the research program Gold Research Partner certificate for display in your offices Use of HeartKids logo on your marketing collateral SILVER RESEARCH PARTNER $25,000 Your brand on all research related communications and marketing materials Invitations for your chairperson, board, executives and key employees or invited guests to the research awards ceremony to hear first-hand from researchers on the impact of your support Promotion to HeartKids highly engaged community on Facebook (minimum of two posts per year valued at $5-$10K per post) and active database of supporters Compelling content for your social media channels including use of HeartKids powerful imagery, logo, stories and case studies Tailored PR support Your logo on the HeartKids sponsor and research sponsor web pages Invitations to key HeartKids events throughout the year providing networking and client entertaining opportunities An opportunity to meet with a member of the HeartKids Research Advisory Committee to discuss the research projects and their associated outcomes Detailed reporting on the impact of the research program Silver Research Partner Certificate for display in your offices Use of HeartKids logo on your marketing collateral BRONZE RESEARCH PARTNER $10,000 Your brand on all research related communications and marketing materials Invitations for your chairperson, board, executives and key employees or invited guests to the research awards ceremony to hear first-hand from researchers on the impact of your support Compelling content for your social media channels including use of HeartKids powerful imagery, logo, stories and case studies Your logo on the HeartKids sponsor page and research sponsor web pages An opportunity to meet with a member of the HeartKids team to discuss the research projects and their associated outcomes Detailed reporting on the impact of the research program Invitation to select HeartKids events throughout the year providing networking and client entertaining opportunities Bronze Research Partner Certificate for display in your offices Use of HeartKids logo on your marketing collateral No matter what kind of partnership you re looking for, rest assured, we can build a program which allows you to make a real difference to the lives of people impacted by congenital/childhood heart disease whilst realising real business benefits. Please contact office@heartkids.org.au or to find out more about our unique and tailored approach to partnerships. HeartKids has committed over $3.5 million to research Will Age 10 We reviewed a large number of charities doing impressive work and chose to invite HeartKids to partner with the Pinnacle Charitable Foundation, because the organisation was quickly able to understand our objectives and was clearly delivering real community impact. HeartKids provides detailed and transparent reporting, and offers wonderful opportunities for us to hear directly from researchers on the outcomes and impact of their work, and to share these experiences with our staff and key stakeholders. HeartKids has always worked with us as a true partner, and through understanding each other s priorities we have been able to craft a real win-win relationship. Our initial vision was to provide seed funding for the first 3 years of this program, and give Grants-in-Aid a solid platform to build on. However given the impressive outcomes of the initial 3 year partnership, we were delighted to extend our involvement for a further 3 years to contribute to the early assessment and development of HeartKids ground-breaking congenital heart disease registry project. We are truly impressed by HeartKids innovative approach and are very proud of our partnership which creates shared value, engages our staff and stakeholders, and most importantly improves the outlook for those affected by childhood heart disease. Mary Jung, Community Investment Manager, Pinnacle Investment Management Group Limited Partners and their key stakeholders have an opportunity to meet with researchers at our annual Grants-in-Aid (GIA) awards ceremony to hear the outcomes and impact of their research.

7 Supporting heart kids through life HeartKids is the compass to help navigate the congenital/childhood heart journey throughout life. HeartKids is Australia s leading congenital/childhood heart disease charity and is not government funded. Donations of $2 or more are tax deductible. heartkids.org.au HeartKids Helpline office@heartkids.org.au twitter.com/heartkidsaust