11th Annual Promising Pathways Conference on Best Practice in Autism Spectrum Disorder

Transcription

1 11th Annual Promising Pathways Conference on Best Practice in Autism Spectrum Disorder April 7th, 2018 Estero, Florida Keynote Speaker: Sarah Spence, MD., PhD. Boston Children s Hospital Autism Spectrum Center Follow us on Facebook and Twitter!

2 Red Arrow Cohen Center Yellow Arrow Sugden Resort & Hospitality Management Green Arrow Parking Garage 1 2 2

3 Agenda 8:00 9:00 Onsite Registration and Vendor Exhibits Cohen Center Gallery Complimentary Coffee & Tea Cohen Center 2nd Floor Pre-purchase Boxed Lunch Option Cohen Center, 2nd Floor Einstein s Bagels Open 7:45 am to 4:00 pm Chick-fil-A Open 11:00 am to 2:00 pm 9:00 10:45 Opening Session Cohen Center Ballroom Introductions Dr. Eunny Hyun, Dean & Professor FGCU College of Education FGCU Welcome Dr. James Llorens, Provost FGCU Academic Affairs Keynote Introduction Dr. Robert Gregerson, Dean & Professor FGCU College of Arts & Sciences Keynote Speaker Sarah Spence, MD, PhD Boston Children s Hospital Autism Spectrum Center 10:45 11:00 Break & Vendor Exhibits 11:00 12:00 Concurrent Session 1 12:00 1:00 Lunch & Vendor Exhibits; Cohen Center Gallery Selected eateries open: Chick-fil-A and Einstein s Bagels Pick up pre-ordered box lunches in Cohen Center, 2nd Floor 1:00 2:00 Concurrent Session 2 2:00 2:15 Break & Vendor Exhibits 2:15 3:15 Concurrent Session 3 Information to help you enjoy your day: Opening Session will begin at 9:00 in the Cohen Center Ballroom located on the second floor. Complimentary coffee and hot tea are available outside of the Cohen Center Ballroom, starting at 8:00, while it lasts. You may pre-order lunch during 8:00 to 9:00 at the station on the second floor, next to the coffee. All breakout sessions will be held in the Cohen Center and in the Sugden Resort & Hospitality Management building, which is located between the Cohen Center and Parking Garage 1. Restrooms are located next to the stairs in Cohen Center (both 1st and 2nd floors); and next to the Cyber Café in Sugden Resort & Hospitality Management. Promising Pathways committee members and volunteers (in lime green shirts) are available to assist and answer questions. 3

4 Welcome to the 11th Annual Promising Pathways Conference on Autism Spectrum Disorder! We are very pleased to welcome our keynote speaker, Sarah Spence, MD, PhD, from the Autism Spectrum Center at Boston Children s Hospital. Dr. Spence s keynote presentation is titled The Current and Future in Autism Spectrum Disorder Diagnosis and Treatment. Autism Spectrum Disorder (ASD) is a complex neurodevelopmental disorder. Currently we have many tools for diagnosis and a number of therapies and medications designed to treat the clinical symptoms. However increasing knowledge about the underlying neurophysiological pathology is leading to exciting new diagnostics and mechanistically based therapeutics. In this keynote session, Dr. Spence will describe current diagnostic methods and available pharmacological treatments for AS, as well as pathophysiological neural pathways that are being used to develop new diagnostics and therapies. We are confident you will find this session interesting and informative! Dr. Spence will also present during the first breakout session from 11:00 to 12:00: Neurological Co-morbidities in ASD: Sleep, Seizures, etc. Please see the session abstract on page 10 for additional information. Each year we welcome parents, educators, healthcare workers and community members interested in serving individuals with autism spectrum disorder to the Promising Pathways conference. Through donations from our generous community and business sponsors, we are able to continue to offer the conference at no charge to attendees. While we do not specifically endorse sponsors, we do encourage you to visit our vendor exhibit and learn more about the programs and services available in our area. If you are interested in supporting next year s conference or joining our planning committee, please contact us. On behalf of the entire Planning Committee, we hope that the investment of your time today provides you with new knowledge, insights and contacts. We welcome your feedback and will be providing a post-event survey via . We hope you enjoy the conference! Sincerely, Leigh Anna and Carolynne Co-Chairs, Promising Pathways Planning Committee Ms. Leigh Anna Nowak Dr. Carolynne Gischel CARD Consultant Assistant Professor of Special Education Center for Autism and Related Disabilities College of Education Florida Gulf Coast University lnowak@fgcu.edu cgischel@fgcu.edu Conference Planning Committee: This conference is a community event coordinated by a regional volunteer planning committee. We are thankful for the time and talents provided by everyone on our committee! Dr. Sarah Fabrizi FGCU College of Health Professions and Social Work Lynn James Parent & Family Care Council Tamiki Lumpkin Center for Autism and Related Disabilities Christine Maughan The School District of Lee County Debbi Nicolosi UCF Technical Assistance & Training Systems Iris Perez FGCU College of Education Dr. Joanna Salapska-Gelleri FGCU College of Arts and Sciences Britt Stroud, MD Golisano Children's Hospital of Southwest Florida Tara Tallaksen Golisano Children's Hospital of Southwest Florida Eliana Tardio Family Network on Disabilities Karla Zengel FGCU Doctoral Student, Doctor of Physical Therapy 19 Follow us on Facebook and Twitter! 4

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6 Breakout Session 1 11:00 12:00 Title Topic Presenter(s) Location Neurological Co-morbidities in ASD: Sleep, Seizures, etc. Diagnosis & Treatment Sarah Jane Spence, M.D., PH.D. SRHM 114 ABC s of Behavior: Building Blocks of Behavior Analysis Positive Behavior Support Anjali Van Drie, MA, MSW, BCBA; David Brown, MSW SRHM 111 Assistive Technology: An Introduction for Parents Assistive Technology Heidi Hyche, M.A., CC/SLP CC Ballroom Bringing the IEP into the Home Parent Involvement Matthew Sokalski, BA, MBA SRHM 240 Building Relationships: Foundational Skills for Navigating the Social Arena Social Skills Sandra Worth, Founder, President, and Executive Director of My Autism Connection, Inc. SRHM 110 Driving With Autism First Person Experiences Mike DiMauro SRHM 208 Knowledge is Power: The Foundations of IDEA Special Education Law This session delivered in Spanish. Parent Involvement Eliana Tardio; Donna Djerf CC 247 Puzzled Readers: Promoting Reading Comprehension in Home Literacy Routines Instructional Strategies Noelle Balsamo, M.E.D., BCBA CC 214 The ABLE Act in 2018 and Special Needs Trusts & Effects of New Tax Code Legal, Benefits, Financial Lance McKinney, Esq., Certified Elder Law Attorney CC 213 Lunch: 12:00 1:00 See page 3 for details. 6

7 Breakout Session 2 1:00 2:00 Title Topic Presenter(s) Location Assistive Technology: An Introduction for Parents Assistive Technology Heidi Hyche, M.A., CC/SLP CC Ballroom Behavior Basics: Understanding Problem Behavior Positive Behavior Supports Kurtis Shrewsberry, BCBA SRHM 110 Bringing the IEP into the Home Parent Involvement Matthew Sokalski, BA, MBA SRHM 240 Living in the Community: Evaluating Residential Options Adult Living Sheryl Soukup, CFRE SRHM 114 Milestones in the Life of a Person with Autism First Person Experiences Brad Karpel and Family SRHM 208 SSI for Young Adults This session delivered in Spanish. Legal, Benefits, Financial Idela T. Hernandez, M.S., CRC, CPWIC CC 247 Study Abroad Programs Efforts to Include Students with Disabilities Instructional Strategies Noemi McDonald; Rhiannon Forry CC 214 The ABLE Act in 2018 and Special Needs Trusts & Effects of New Tax Code Legal, Benefits, Financial Lance McKinney, Esq., Certified Elder Law Attorney CC 213 Break & Vendor Exhibits: 2:00 2:15 7

8 Breakout Session 3 2:15 3:15 Title Topic Presenter(s) Location Behavior Basics: Understanding Problem Behavior Positive Behavior Supports Kurtis Shrewsberry, BCBA SRHM 110 Building Relationships: Foundational Skills for Navigating the Social Arena Social Skills Sandra Worth, Founder, President, and Executive Director of My Autism Connection, Inc. SRHM 111 Knowledge is Power: The Foundations of IDEA Special Education Law Parent Involvement Eliana Tardio; Donna Djerf CC Ballroom Living in the Community: Evaluating Residential Options Adult Living Sheryl Soukup, CFRE SRHM 114 Milestones in the Life of a Person with Autism First Person Experiences Brad Karpel and Family SRHM 208 Puzzled Readers: Promoting Reading Comprehension in Home Literacy Routines Instructional Strategies Noelle Balsamo, M.E.D., BCBA CC 214 SSI for Young Adults Legal, Benefits, Financial Idela T. Hernandez, M.S., CRC, CPWIC CC 213 Study Abroad Programs Efforts to Include Students with Disabilities This session delivered in Spanish. Instructional Strategies Noemi McDonald; Rhiannon Forry CC 247 8

9 ABC s of Behavior: Building Blocks of Behavior Analysis Breakout Session 1 Positive Behavior Support Participants will learn essential building blocks to manage behavior. Based on applied behavior analysis, this training will review what behavior is, the importance of antecedents and consequences, and using this information with your children. Behavior management tools to manage behaviors will be reviewed followed by an Q&A portion for participants Anjali Van Drie, MA, MSW, BCBA; David Brown, MSW Assistive Technology: An Introduction for Parents Breakout Sessions 1 & 2 Assistive Technology This session provides parents with an overview of assistive technology; the role of AT in a standards-based learning environment; and, how assistive technology determinations are made by IEP teams. Heidi Hyche, M.A., CC/SLP Behavior Basics: Understanding Problem Behavior Breakout Sessions 2 & 3 Positive Behavior Support Many children engage in problem behavior. This session will focus on looking at behavior at a functional level. Participants will learn the functions of behavior and strategies that can help reduce/eliminate problem behavior while teaching functional skills. Kurtis Shrewsberry, BCBA Bringing the IEP into the Home Breakout Sessions 1 & 2 The session will cover each section of the IEP and how to synchronize it in a home. Parent Involvement Matthew Sokalski, BA, MBA Building Relationships: Foundational Skills for Navigating the Social Arena Breakout Sessions 1 & 3 Social Skills This presentation will focus on effective methods to assist individuals with Autism in building relationships with their peers, employers, and the community while teaching how to navigate societal rules and expectations. Practical strategies and activities will be shared. Sandra Worth, Founder, President, and Executive Director of My Autism Connection, Inc. Driving With Autism Breakout Session 1 Adult Living, First Person Experiences Mike DiMauro is an adult with autism and he has driven along the east coast of the United States for over 15 years. Mike wants to share his experience of driving and encourage others with autism to drive as well! Mike DiMauro Knowledge is Power: The Foundations of IDEA Special Education Law Breakout Sessions 1 Spanish & 3 English Parent Involvement Through this presentation, families can gain a deeper understanding of IDEA, the special education law, and will get strategies to better communicate with teachers and professionals for a successful individualized education plan. Eliana Tardio; Donna Djerf Delivered in Spanish and English 9

10 Living in the Community: Evaluating Residential Options Breakout Sessions 2 & 3 Adult Living This presentation will provide an overview of residential options for individuals with developmental disabilities. Attendees will learn about resources available to assist individuals in various residential settings, and will also learn how a new statewide community land trust for individuals with developmental disabilities can help. Sheryl Soukup, CFRE Milestones in the Life of a Person with Autism Breakout Sessions 2 & 3 First Person Experiences The speaker, an adult on the spectrum, will review some of the unique milestones in his life. A moderated panel session with the speaker and his family will follow the presentation. The audience will be called upon to ask questions. Brad Karpel and Family Neurological Co-morbidities in ASD: Sleep, Seizures, etc. Puzzled Readers: Promoting Reading Comprehension in Home Literacy Routines Breakout Sessions 1 & 3 Instructional Strategies Children with ASD require early and frequent opportunities to participate in shared reading activities focused on comprehension skill development. This presentation will provide an overview of the cognitive factors that contribute to reading comprehension challenges and suggestions for promoting parent implementation of effective strategies during naturally occurring home literacy routines. Noelle Balsamo, M.E.D., BCBA SSI for Young Adults Breakout Sessions 2 Spanish & 3 English Legal, Public Benefits, Financial Young adults receiving Supplemental Security Income (SSI) will have a case review to determine disability eligibility under the adult disability criteria at the age of 18. Understanding how the process works is crucial. Idela T. Hernandez, M.S., CRC, CPWIC Delivered in Spanish and English Diagnosis & Treatment Breakout Session 1 Individuals with ASD have increased rates of co-occurring conditions. As a pediatric neurologist I treat many kids with ASD who have "ASD plus." This session will discuss comorbidities such sleep problems, epilepsy, language regression, macrocephaly (big heads), motor difficulties and certain neurogenetic syndromes. Sarah Spence, MD, PhD, Boston Children s Hospital, Autism Spectrum Center Study Abroad Programs Efforts to include Students with Disabilities Breakout Sessions 2 English & 3 Spanish Instructional Strategies Faculty leaders in a study abroad program devised a method to assess potential challenges students with disabilities may face when entertaining study abroad programs. We will share our findings and hope to inform study abroad policies for at FGCU. Noemi McDonald; Rhiannon Forry Delivered in Spanish and English The ABLE Act in 2018 and Special Needs Trusts & Effects of New Tax Code Breakout Sessions 1 & 2 Legal, Public Benefits, Financial This 1 hour program will spend half of the time charting a recommended plan for the use of Special Needs Trusts and the ABLE accounts. It will boil down the options to bottom line benefits of one over the other and typical situations when they are used. The other portion of this program will provide an update on the impact of the new tax code as it affects the ABLE account and other deductions for the disability community. This program is designed to give practical recommendations and not just cover rules of the various benefit programs. Interactive audience polling participation will be used to give the presenter specific audience information and will allow the audience to test their intake of information as presented. Lance McKinney, Esq., Certified Elder Law Attorney 10

11 Thank you for attending the 11th Annual Promising Pathways Conference on Best Practice in Autism Spectrum Disorder! We hope you found the sessions informative and valuable! You will receive a survey at your registration address. Please take a moment to complete the survey and provide feedback on this year s conference. Your feedback will inform us as we plan future conferences. We look forward to seeing you again at the 12th Annual Conference on Best Practice in Autism Spectrum Disorder on April 6, 2019! Promising Pathways Planning Committee Attendance Verification Form Promising Pathways Conference on Best Practice in Autism Spectrum Disorder Florida Gulf Coast University - April 7, 2018 Note: This form is not for CEUs for Physical Therapists, Occupational Therapists, Clinical Social Work, Marriage and Family Therapy, Mental Health Counseling and Nursing. See CEU table for details. For those needing attendance verification for school district MIP points, you may use this Session Verification Form throughout the conference to track the sessions you attend. At the end of each session (keynote and breakouts), please see the conference staff or room host for attendance verification signature. Name: School: District: Session Title Presenter Signature Keynote: The Current and Future in Autism Spectrum Disorder Diagnosis and Treatment Sarah Spence, MD, PhD Boston Children s Hospital, Autism Spectrum Center Breakout Session 1: 11:00 am 12:00 pm Breakout Session 2: 1:00 pm 2:00 pm Breakout Session 3: 2:15 pm 3:15 pm 11

12 Special Thanks to All of Our 2018 Promising Pathways Conference Sponsors! Promising Pathways