The Life Raft Group. Building Strategic Alliances
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- Eugenia Reynolds
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1 The Life Raft Group Building Strategic Alliances
2 The Life Raft Group Our Mission Is Survival
3 Keeping GIST Patients Alive By Ensuring That no one dies because they cannot access treatment That no one dies because of their ignorance or that of their physician That research is coordinated to urgently find a cure
4 Building Strategic Alliances
5 Why Are Strategic Alliances Important? Relieve isolation Provide advice Provide emotional support Provide resources, including funding Provide complementary, value-added components to a project
6 Problems Faced In Establishing Strategic Alliances Mistrust Personalities Threaten organizational integrity Competition more important than alliance Not mutually beneficial Issue is no longer relevant
7 Problems: Hitting the wall Tom Overley, member of the LRG, and Norman Scherzer at Pfizer Offices
8 Factors That Can Contribute To Successful Outcome Clear focus Quid pro quo for each participant Mutual trust Personalities Integrity for each participant Current issue Common friends & enemies Common core values
9 Networking: The Foundation For Identifying New Strategic Alliances Networking at the Patient Summit in Budapest, 2006
10 Networking: The Foundation For Identifying New Strategic Alliances The LRG presented Dr. James Watson, Nobel Laureate, with an award in August 2004.
11 Networking: The Foundation For Identifying New Strategic Alliances Dr. George Demetri, Norman Scherzer, Dr. Edward Benz and Gilles Frydman (ACOR) meet at Dana Farber Cancer Institute.
12 Networking: The Foundation For Identifying New Strategic Alliances
13 8 Examples Of Life Raft Group Successful Strategic Alliances 1. Patient Communities 2. LRG Board of Directors 3. LRG Research Team 4. Global GIST Network 5. Cancer & Poker: Fundraising 6. Medical Professionals 7. Advocacy-Medicare 8. The Ultimate Strategic Alliance
14 1. Patient Communities: U.S. Life Raft Local Groups in Boston, Washington and Ohio.
15 1. Patient Communities: International The Netherlands Life Raft Group
16 2. LRG Board of Directors The LRG Board of Directors meeting in Dallas, Texas, 2006.
17 3. LRG Research Team-Planning Dr. Jonathan Fletcher, Dana Farber Cancer Institute, and Norman Scherzer discussing research plans.
18 3. LRG Research Team-Funding Dan Vasella, Norman Scherzer and David Epstein at a breakfast meeting in Boston, 2005.
19 3. LRG Research Team-Reality Dr. Jonathan Fletcher, Dana Farber Cancer Institute Dr. Mike Heinrich and Dr. Chris Corless, Oregon Health and Science University Dr. Peter Besmer and Dr. Cristina Antonescu, Memorial Sloan-Kettering Cancer Center Dr. Matt van de Rijn, Stanford University Dr. Brian Rubin, Cleveland Cancer Foundation Dr. Maria Debiec-Rychter, Catholic University of Leuven, Belgium
20 3. LRG Research-Dreaming An International Coalition Norman Scherzer, Rodrigo Salas, LRG BOD, Dr. Borbolla, Director of Clinical Research, and Dr. Montmayer, Director of Clinical Services, at a planning meeting. Cancer Center and Clinical Research Facility Tec de Monterrey (TEC) Health Science Campus located in Monterrey, Mexico
21 4. Global GIST Network- Conception Norman, Markus Wartenberg (Das Lebenshaus) and Gilles Frydman (ACOR)
22 4. Global GIST Network-Reality
23 5. Cancer & Poker: Fundraising Fundraising Poker Tournament, 2006
24 6. Medical Professionals Patient advocacy groups are good for business Patients own the Gold Currency of research-their tissue Over time, mutual respect and collaboration can develop
25 6. Medical Professionals With Dr. George Demetri Planning First Patient Meeting
26 6. Medical Professionals Dr. Merrill Egorin and Jerry Call, LRG Science Coordinator, networking at ASCO 2006
27 7. Advocacy-Medicare Congress considering Medicare Drug Benefit Gleevec is not included! LRG joins coalition of pharma and patient advocates We provide key testimony to include Gleevec We Succeed!
28 7. Advocacy: Medicare Coalition
29 7. Advocacy-Medicare: Behind The Scenes Quiet Moment With Ted Kennedy
30 8. The Ultimate Strategic Alliance LRG Members pause to remember lost comrades at Life Fest 2006
31 8. The Ultimate Strategic Alliance Five year Survivors pose at Life Fest 2006
32 Z z z Thanks For Listening
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