The Oklahoma Chapter of the Myasthenia Gravis Foundation. of America, Inc. Annual Meeting March 11, 2012

Transcription

1 The Oklahoma Chapter of the Myasthenia Gravis Foundation of America, Inc. The Oklahoma Chapter of the Myasthenia Gravis Foundation of America, Inc. Annual Meeting March 11, E 67th St S Suite 100 Tulsa, OK Phone: Fax: oklahoma@myasthenia.org Web page:

2

3 OKMGF Budget for 2012 Income: Community Health Charities 4,000 Chapter Support 34,000 Fundraising 2,000 Total Income 40,000 Expenses: Payroll Transactions 24,000 Direct Patient Services 500 National Assessment 5,000 Printing 2,500 Postage 2,000 MG Literature 200 Telephone 1,500 Fundraising 400 Executive Director 2,000 Office 1,500 Insurance 400 Total Expenses 40,000 Mission Statement The Oklahoma Chapter of the Myasthenia Gravis Foundation of America, Inc. The mission of The Oklahoma Chapter of the Myasthenia Gravis Foundation of America, Inc. is to provide education and patient services to improve the lives of all people affected by MG and to promote awareness of the disease myasthenia gravis. Page 9 Page 2

4 OKLAHOMA CHAPTER HISTORY In the summer of 1980 the Greater Kansas City Chapter of the Myasthenia Gravis Foundation s newsletter asked for those interested in a Oklahoma Support group to contact Anita King. That year saw the beginnings of this chapter. In January 1981 the first organized meeting of myasthenics in Oklahoma was held. More than 100 individuals - doctors, nurses, specialists, patients, family members and friends attended the gathering from several parts of the state. On March 1981 this group was recognized as a branch of the Greater Kansas Chapter of the Myasthenia Gravis Foundation. In December 1981 the National MG Foundation gave official recognition to the Oklahoma Green Country Chapter. On February 22, 1985 the Chapter was chartered as a non-profit corporation within the State of Oklahoma; in January 1988 the Chapter s name was changed from Oklahoma Green Country Chapter to Oklahoma Chapter of the Myasthenia Gravis Foundation, Inc. In December 2005 our named was again changed, to The Oklahoma Chapter of the Myasthenia Gravis Foundation of America, Inc., this last name change was done to bring us in line with our national organizations name, The Myasthenia Gravis Foundation of America, Inc. A major step was taken when the William K. Warren Foundation made it possible for the Chapter to establish an office in the Warren Medical Building, close by to one of Tulsa s largest medical centers, Saint Francis Hospital. Operational grants from the Founder s of Doctor s Hospital, Inc. of Tulsa and the establishing of a headquarters was instrumental in both expanding services and growth of Chapter membership. In October of 2011 we moved to our present location at 4606 E 67th St S, Suite 100, Tulsa. Today the main source of Chapter income are dues and donations, payroll contributions made through Community Health Charities of Oklahoma and operating grants from foundations. We are very grateful to the Warren Professional Building Corporation for the continued donation of office space. Also sincere gratitude to The Anne and Henry Zarrow Foundation and the William K. Warren Foundation for their kind and generous support of our organization in providing yearly operating grants. Since 1999 Peggy Foust, daughter-in-law of a myasthenic, has been the Executive Director. The Chapter has strived for these many years to provide educational information and support to all myasthenics, their families and health care professionals. We are dedicated to the goal that no myasthenic ever feels alone in their disease. Assets Liabilities Cash and Bank Account 15,732 Total Assets 15,732 Payroll Taxes 1,282 Total Liabilities 1,282 Net Assets 14,450 Total Liability and Net Assets 15,732 Income: Community Health Charities-Local 2,529 Chapter Support 22,452 Fundraising 365 Interest Earned 25 Research Collected for National 190 MGFA-CHC online 10% 1,459 Total Income 27,020 Expenses: OKMGF Annual Report 12/31/2011 Payroll Transactions 24,523 MGFA Assessment 3,343 Printing 2,319 Postage 1,206 Telephone 1,290 Fundraising 88 Executive Director 1,035 Office 602 Insurance 423 Depreciation 0 Equipment Maintenance 120 Research to National 170 Seminars 150 Total Expenses 35,269 Income less Expense -8,249 Page 3 Page 8

5 Jeanmarie Carper (MG Patient) (resigned ) DeAnna Cooper, Ed. D. Margret Feller Treasurer/Secretary Peggy Foust, President (D-I-L MG Patient) Jennifer Morris Kay Northcutt, D. Min. (MG patient) Leon Seaton, R.N./Pastor (MG Patient) (resigned ) Carolyn Staubach, RN Board of Directors in 2011 Board Meetings called for in The Oklahoma Chapter of the Myasthenia Gravis Foundation of America, Inc. and its Board of Directors had called board meetings that were held at 5:00 pm in the OKMGF office at 6465 S Yale Ave, #623, Tulsa, Oklahoma unless otherwise noted: January 25, 2011, February 22, 2011, March 13, 2011-Chapter Annual Meeting, 2:00 p.m. held at Saint Francis Hospital, Tulsa, Oklahoma, April 27, 2011, July 28, 2011, August 25, 2011, September 22, 2011, and November 17, November s meeting was held at 4606 E 67th St S, Suite 100, Tulsa, OK DeAnna Cooper, Ed. D. Margret Feller Peggy Foust Kay Northcutt, D. Min. Tianna Rogers Carolyn Staubach, RN Rick Weigel Board Members for 2012 Office Staff The Chapter has two part-time employees: Peggy Foust, Executive Director Margret Feller, Vice-President / Treasurer Office hours are: Monday & Friday 11-4 and Wednesday 9 4 Page 7 OKMGF Chapter Accomplishments of 2011 Patient Support Group Meetings held in 2011 January 23, 2011 Oklahoma City Our program was a talk with our fellow members about their holidays and how we all deal with the cold winter months, with a caring sharing time afterwards. March 13, 2011 Tulsa Annual Meeting of the Oklahoma Chapter, held at Saint Francis Hospital s Education Center. We showed a film on Laparoscopic Thymectomy by the Henry Ford Health System, with a caring sharing time afterwards. April 10, 2011 Oklahoma City we showed the film Chewing & Swallowing Challenges with Dr. Lee Akst, Loyola Swallowing Center. June 5, 2011 Tulsa A Chapter Picnic in the Park was held in Tulsa s Lafortune Park celebrating June as MG Awareness Month. Hot dogs, hamburgers and beverages were provided. June 11, 2011 Oklahoma City A Chapter Picnic in the Park was held in OKC s Camp DaKaNi where we once again celebrated June as MG Awareness Month. Hot dogs, hamburgers and beverages were provided. July 17, 2011 Oklahoma City Pam Forducey, PhD. with Integris Health, spoke on stress with a chronic illness, how chronic illness affects the family and how to help stress. August 7, 2011 Tulsa Kristy Marshall, R.N with Oklahoma Blood Institute will be speaking on use of Plasmapheresis in Myasthenia Gravis. September 11, 2011 Oklahoma City we saw the film With Courage I Can Live a Fulfilled Life with Joy and Purpose with Lisa Gigliotti, J.D., with a caring sharing time afterwards.. November 6, 2011 Tulsa discussion on the importance of support groups, what topics the group would like to hear or learn about, followed with a sharing / caring time. December 4, 2011 Oklahoma City we had a group discussion on reducing stress during the holidays, then everyone enjoyed a pot luck luncheon. In Tulsa Patient Support Group meetings were held in the Education Center at Saint Francis Hospital. In Oklahoma City Patient Support Group meetings were held in the Central Oklahoma Cancer Conference Center. All patient support group meetings were held on Sunday afternoons at 2:00 pm, light snacks were provided. New MG Patients Added In new MG patients were added to our patient list. MG literature, chapter newsletters and information was sent to them. Page 4

6 OKMGF Chapter Accomplishments of Statewide Presence by County HOVAK Newsletter In ,000 copies of the HOVAK were printed and distributed to MG patients, their families and health care providers. OKMGF Chapter MG Flyers Chapter MG flyers were sent out in 3,600 bank statements by American Bank & Trust Co. located in Tulsa, Oklahoma in the month of June. Medical Profession Contact The Chapter continued to distribute copies of the book Myasthenia Gravis A Manual for the Health Care Provider to the hospitals throughout the state that have medical libraries or medical reference rooms for their health care professionals use. We also distributed copies of Myasthenia Gravis A Manual for the Health Care Provider to the many neurologists and physicians throughout the state that treat myasthenia gravis patients. Professional Information Packets were mailed out to medical professionals when requested by a myasthenia gravis patient. We serve Oklahoma MG patients in 84 % of the 77 counties in Oklahoma. OKMGF presence broken down by geographic area: Adair - 7 Alfalfa - 1 Atoka - 2 Beaver - 1 Beckham - 1 Blaine - 2 Bryan - 8 Caddo - 3 Delaware - 8 Dewey - Ø Ellis - 2 Garfield - 7 Garvin - 5 Grady - 4 Grant - Ø Greer - 2 Harmon - Ø Harper - 1 Haskell - 3 Hughes - 2 Jackson - 5 Jefferson - 1 Johnson - Ø McCurtain - Ø McIntosh - 3 Murray Ø Muskogee - 24 Noble - 1 Nowata - 4 Okfuskee - 1 Oklahoma Okmulgee - 4 Osage - 4 Ottawa - 7 Pawnee - 4 Payne - 11 Pittsburg - 14 Pontotoc - 2 Washita - 1 Woods - 2 Woodward - 2 We also serve MG patients in the following areas: Kansas 43 Missouri 11 Arkansas 18 Texas 22 Other Served 52 Fundraisers Canadian - 28 Carter - 5 Kay - 9 Kingfisher - 1 Pottawatomie - 8 Pushmataha - 2 Macy s Shop for a Cause - August 27, 2011 we participated in selling shopping passes to Macy s for through their fundraisers for non profits. Magical Night of Giving November 20, 2011 we participated in selling tickets to Promenade Mall s Magical Night of Giving. Cherokee - 4 Choctaw - 4 Cimarron - 2 Cleveland - 26 Kiowa - 4 Latimer - 1 LeFlore - 10 Lincoln - 8 Roger Mills - Ø Rogers 10 Seminole - 3 Sequoyah - 4 Socials June 5, :00 pm The Tulsa Support Group held Picnic in the Park where we celebrated June as MG Awareness Month with a picnic held in Tulsa s Lafortune Park. Hamburgers, hotdogs, beverages were provided. June 11th, :00 am The Oklahoma City Support Group held a Picnic in the Park where we celebrated June as MG Awareness Month at Camp Da- KaNi. Hamburgers, hotdogs, beverages were provided. Good food, conversation and a fun time were enjoyed by all. Coal - 1 Comanche - 10 Cotton - 3 Craig - 1 Creek - 6 Custer - Ø Logan - 6 Love - Ø Major - 1 Marshall - Ø Mayes - 6 McClain - 5 Stephens - 6 Texas - 2 Tillman - 1 Tulsa Wagoner - 5 Washington - 16 Page 5 Page 6