HONORARY COMMITTEE MEMBERS:

Transcription

1

2 THE COMMITTEE HONORARY CHAIR COUNCIL Suzanne & Paul Avery, Chairman, FARA Board of Directors Ron Bartek, President, FARA Judy Genshaft, PhD, President, USF Tara & Tod Leiweke, COO, National Football League Charles J. Lockwood, M.D., M.H.C.M., Senior Vice President, USF Health Sandi & Chris Sullivan, Entrepreneur HONORARY CHAIRS Janell & Steve Griggs, CEO, Tampa Bay Lightning HONORARY COMMITTEE MEMBERS: Anna Alfano Seth Appelbaum Michael Barbaro Lori & Anthony Barkett Debbie & Bob Basham Joanna Bernaldo Steve Blair Cindy Boss Denise & Tom Bradley Beth Brown Sandy Callaghan Laurie & Bruce Champion Maureen Chase Lauren Cooper Trudy & John Cooper Lynn Cristina Laurie Cruley Janey DePew Anthony Everett Tanya & Herman Fernandez FARA STAFF Jennifer Farmer Kyle Bryant Sarah & Jason Foglia Suzanne & Paul Gabos Gloria Giunta Terry Haley Charlotte & Bill Horne Amy & Kurt Hull Mary & Paul Jacobs Deborah Karam Pamela & Chris Kelsch Lisa & Vic Lafita Dawn & Kevin Lambert Amy & Tom Leobold Susan McLaughlin Pastor Jane McDonough Lucille O Neal Beth Piekarczyk Kaye & Jim Pollard Susie & Mitchell Rice Mary Ridgeway Julie Robertson Felicia DeRosa Erin Goerss Kathy & Doug Rothschild Wendy Ryan Liz Smith & Chip Newton Shereé & Jeff Smith Susie Snowdon Marie Stone Ashley Sullivan Sandi & Chris Sullivan Adam Sutton Georgette & Chris Tsavoussis Kelly & Lou Varsames Richard Verrecchia Jennifer Vickery Gail Wilson Heidi & Bill Wright Avery Lowry Zaritsky Theresa Zesiewicz, MD FAAN Martha Korman Zumwalt Carin Zwiebel Ann Musheno Jamie Young

3 SATURDAY SEPTEMBER 17TH YOU ARE CORDIALLY INVITED TO ATTEND AN EVENING TO REMEMBER Benefitting the Friedreich s Ataxia Research Alliance and USF Ataxia Research Center Tampa Marriott Waterside 700 S Florida Ave, Tampa, FL Emcee for the Evening: Wendy Ryan, ABC Action News Cocktail Reception & Silent Auction 5:30 pm Seated Dinner & Live Auction 7:30 pm Live Entertainment- Blonde Ambition Band 9:45 pm Cocktail Attire, RSVP Required, Complimentary Valet Parking Available #CureFA #EnergyBall2016 #FollowTheEnergy FARA received a 4 star rating for the 6th consecutive year! (4 out of 4 stars)

4 THE RESEARCH Friedreich s Ataxia (FA) is a debilitating multi-system disease and the most common cause of inherited ataxia; 1 in 100 people are carriers of the FA Gene. What begins as difficulty with balance and coordination, progresses over a short period of time to a life altering loss of mobility, energy, speech and hearing, robbing children and young adults of the ability to live active and independent lives. FA also presents serious risk of diabetes and life shortening cardiac disease. The Friedreich s Ataxia Research Alliance (FARA) funds research and builds partnerships needed to advance effective treatments for FA, and provides hope for families and individuals affected by this debilitating disease. The support of the Energy Ball has allowed FARA to nurture important partnerships and advance critical initiatives including: Drug discovery research that has led to new lead candidates in our treatment pipeline that are being tested in 3 ongoing clinical trials in individuals with FA Active research programs with more than a fifteen large and small pharmaceutical partners Initiation of a biomarker consortium of academic and pharmaceutical partners to find better ways to measure disease change and shorten clinical trial lengths Evaluation of more than 850 individuals with FA at clinical research centers around the world When our generous donors, dedicated researchers, pharmaceutical partners and courageous individuals battling FA come together, FARA facilitates life changing research progress. The Energy Ball demonstrates this kind of dynamic collaboration year after year. We hope you will join us in further advancing our efforts to treat and cure FA. Jennifer Farmer Executive Director FARA

5 THE RESEARCH The USF Health Ataxia Research Center is a truly unique national resource. We are one of the Nation s leading clinical research centers evaluating effective treatments for inherited ataxia disorders. Ataxias cause an inability to coordinate voluntary muscular movements and can lead to progressive disability. The USF Center combines the know-how of a team of international neuroscientists with skilled clinicians who focus on the development and delivery of effective therapies to those affected by Friedreich s and Spinocerebellar Ataxia. In addition to conducting major trials of new pharmaceutical agents to treat inherited ataxias, we are working on better methods of early diagnosis and a more comprehensive understanding of these diseases. As we pursue a cure for these diseases, we need your help! We are very proud of the relationship between FARA and the USF Health Ataxia Center and pleased to see that our common goal is being pursued with energy, efficiency and creativity. Thank you for your support, together we are making a difference and providing hope for those afflicted with these disorders. With your help, we will find a cure. Charles J. Lockwood MD, MHCM Senior Vice President, USF Health Dean, Morsani College of Medicine

6 SPONSORSHIP SPONSORSHIP OPPORTUNITIES $50,000 Presenting Sponsorship Priority seating for 20 guests (2 tables) at The Energy Ball 8 guest invitations to Patron Party Verbal acknowledgment as a Presenting Sponsor during the Understanding Energy for a Cure Scientific Symposium, Patron Party and the Energy Ball Logo recognition on the main screen during The Energy Ball and on all bidding handhelds $25,000 Platinum Sponsorship Priority seating for 10 guests (1 table) at The Energy Ball 6 guest invitations to Patron Party Verbal acknowledgment as a Platinum Sponsor during the Energy Ball Logo recognition on the main screen during The Energy Ball $15,000 Diamond Sponsorship Priority seating for 10 guests (1 table) at The Energy Ball 4 guest invitations to Patron Party Logo recognition on the main screen during The Energy Ball $10,000 Gold Sponsorship 10 guests (1 table) at The Energy Ball 2 guest invitations to Patron Party Logo recognition on the main screen during The Energy Ball Logo and link on event website: Logo and link on event website: Prominent name recognition and logo in program booklet and on all event signage Prominent name recognition and logo in print advertising (including Thank You ad in Tampa Bay Times), press releases, and The Advocate, FARA s bi-annual newsletter Logo and link on event website: Logo recognition in program booklet Name recognition in post event Thank You ad in Tampa Bay Times and FARA Newsletter-The Advocate Logo and link on event website: Logo recognition in program booklet Name recognition in post event Thank You ad in Tampa Bay Times and FARA Newsletter-The Advocate Logo recognition in program booklet Name recognition in post event Thank You ad in Tampa Bay Times and FARA Newsletter-The Advocate

7 SPONSORSHIP SPONSORSHIP OPPORTUNITIES (CONTINUED) $5,000 Silver Sponsorship 10 guests (1 table) at The Energy Ball Name recognition on event website: Name recognition in program booklet Name recognition in FARA Newsletter - The Advocate UNDERWRITING SPONSORSHIP OPPORTUNITIES $15,000 Mobile Bidding Sponsor (Handheld Electronic Device for Silent Auction Bidding) 10 guests (1 table) to The Energy Ball 2 guest invitations to Patron Party Logo recognition on the main screen during The Energy Ball Includes logo displayed on 500+ handhelds during The Energy Ball Logo and link on event website: Logo recognition in program booklet Name recognition in post event Thank You ad in Tampa Bay Times and FARA Newsletter-The Advocate $15,000 Patron Party Sponsor 10 guests (1 table) at The Energy Ball 2 guest invitations to Patron Party Patron Party Sponsor Recognition Signage Logo and link on event website: Logo recognition in program booklet Name recognition in post event Thank You ad in Tampa Bay Times and FARA Newsletter-The Advocate $5,000 Understanding Energy for a Cure Scientific Symposium 10 guests (1 table) at The Energy Ball Sponsor recognition signage and mentions during the Symposium Name recognition on event website: Name recognition in program booklet The Energy Ball Individual $375 Individual at The Energy Ball The Energy Ball Table $3, guests (1 table) at The Energy Ball

8 THE ENERGY EXPERIENCE SEPTEMBER 15TH 17TH, 2016 Thursday, September 15th Friday, September 16th Saturday, September 17th Understanding Energy for a Cure Symposium USF Sam and Martha Gibbons Alumni Center 4202 East Fowler Ave. Tampa, Fl :00 pm Welcome / Food & Drinks 6:00 pm Science Symposium Sponsors and guests are welcome to attend this informative event to learn how your support has helped move research forward in finding treatments for Friedreich s Ataxia. Join USF Ataxia Research Center leadership, Dr. Theresa Zesiewicz MD., FAAN, along with FARA Executive Director, Jennifer Farmer and President, Ronald Bartek for a special interactive symposium focused on advancing therapeutic approaches. The symposium will feature updates for ongoing clinical trials along with drug discovery efforts targeting the root cause of this genetic disease. Top researchers will share insights into emerging treatments for Friedreich s Ataxia. A special panel of individuals living with FA will also share their experiences and perspectives. Please visit our website for more details on speakers and presentations: Sign up for the symposium now at: Patron Party (The Patron Party is for Gold Sponsors and above) The FARA Energy Ball Tampa Marriott Waterside 700 S Florida Ave, Tampa, FL :30 pm Cocktail & Silent Auction 7:30 pm Seated Dinner & Live Auction 9:45 pm Live Entertainment

9 R.S.V.P. The FARA Energy Ball 2016 Sponsorship Commitment Sponsorship $50,000 Presenting Sponsorship $25,000 Platinum Sponsorship $15,000 Diamond Sponsorship $10,000 Gold Sponsorship $5,000 Silver Sponsorship $3,500 Table Sponsorship (10 seats) Underwriting Sponsorship $15,000 Mobile Bidding Sponsor $15,000 Patron Party Sponsor $5,000 Understanding Energy for a Cure Symposium Sponsor FARA Energy Ball Only $375 Per Person x = $ Reservations and payment may also be submitted online at: CUREFA.ORG/ENERGYBALL Your payment will guarantee your reservations at the event. Make checks payable to: Charge: FARA ENERGY BALL Visa Master Card American Express Name as it should be listed for Sponsorship: Account #: Security Code Exp. Date: I would like to contribute the credit card processing fee (2.6%) YES NO (please circle one) Name on Card: Signature: Contact & Title (if a corporation): Mailing Address: City: State: Zip: Phone: ( ) Cell: ( ) Address: Web Address: (for sponsors applicable to web link) I am unable to attend, but would like to support FARA s efforts to end Friedreich s Ataxia disease. Please accept my donation of $ If not reserving or making payment online at: curefa.org/energyball please either mail, fax or this to: The FARA Energy Ball P.O. Box Tampa, FL Ava Forney: (813) Fax: (813) ava.faraenergyball@curefa.org A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN FLORIDA REGISTRATION DOES NOT IMPLY ENDORSEMENT OF RECOMMENDATION BY THE STATE. OUR STATE OF FLORIDA REGISTRATION NUMBER IS CH Print Deadline: For logo to be in event brochure (for sponsors gold level and above), logo must be received by August 15, 2016.

10 SPONSORS PRESENTING SPONSORS The Avery Family Foundation Tod & Tara Leiweke PLATINUM SPONSORS Paul & Mary Jacobs Southern Crafted Homes Kurt & Amy Hull

11 GOLD SPONSORS Ritschel Family Chris & Sandi Sullivan Doug & Kathy Rothschild Bill & Vickie Krutzer Franklin & Barbara Carson Family Foundation The Corbett Family Charitable Foundation Shon & Sharyn Craig Derek & Marcy Hennecke MEDIA SPONSORS Design donated by: Printing donated by: Central Florida Press

12 2016 The Friedreich s Ataxia Research Alliance gratefully acknowledges the generous sponsors who make this event possible. #CureFA #EnergyBall2016 #FollowTheEnergy FARA received a 4 star rating for the 6th consecutive year! (4 out of 4 stars)