OVARIAN CANCER NATIONAL CONFERENCE

Transcription

1 FRIDAY JULY 13, 2018 OVARIAN CANCER NATIONAL CONFERENCE Attendee and Exhibitor Registration Open REGENCY FOYER Newcomers Welcome Reception CAPITOL ROOM A Is this your first National Conference? Come join other first time attendees and OCRFA staff to connect in a friendly atmosphere. SPONSORED BY: Genentech Inc. Community Partners Welcome Reception CAPITOL ROOM B Meet your colleagues from across the country who are working with us to save women s lives. This is a great opportunity to network with other Community Partner organizations. SPONSORED BY: Clovis Oncology 4:30 PM 6:30 PM 5:00 PM 6:00 PM 5:00 PM 6:00 PM SATURDAY JULY 14, 2018 Gentle Yoga Class THORNTON ROOM, 11TH FLOOR OCRFA Advocate Leader and yoga teacher, Bridget Toomey, will lead this gentle class, which will end with a soothing gong bath a sound massage for the body and mind! No experience or special equipment necessary. LED BY: Bridget Toomey Breakfast REGENCY BALLROOM A Start the day off with a healthy breakfast, and visit with our Exhibitors. Survivors Teaching Students: Saving Women s Lives Breakfast (for Survivors Teaching Students volunteers only) LEXINGTON/CONCORD Join fellow volunteers for updates from National Program Director, Susan Leighton, and participate in an open discussion. SPONSORED BY: EMD Serono/ Pfizer SPEAKER: Susan Leighton, MA, National Program Director, Survivors Teaching Students, Ovarian Cancer 7:15 AM 8:00 AM 7:30 AM 8:30 AM 7:30 AM 8:30 AM 6 presented by Ovarian Cancer

2 Opening Ceremony Welcome to the 21st Ovarian Cancer National Conference! Join us to kick off this inspirational weekend as we recognize leaders in the community, announce our 2018 research and leadership awards, and share what s new at Ovarian Cancer. SPEAKER: Audra Moran, President & CEO, Ovarian Cancer Break Mello Abrams Lecture: New Treatments for Ovarian Cancer It s an incredibly exciting time for ovarian cancer research! Learn from renowned ovarian cancer expert Dr. Ursula Matulonis what s new and on the horizon for the treatment of ovarian cancer. INTRODUCED BY: Judy Abrams, OCRFA Leadership Council, President Emerita, Ovarian Cancer National Alliance SPEAKER: Ursula Matulonis, MD, Director and Chief, Division of Gynecologic Oncology, Dana-Farber Cancer Institute 8:45 AM 9:45 AM 9:45 AM 10:00 AM 10:00 AM 11:00 AM BREAKOUTS: Newly Diagnosed: Ovarian Cancer 101 LEXINGTON/CONCORD If you ve recently been diagnosed with ovarian cancer, it s normal to have lots of questions. Learn more about the basics of the disease and what to expect in treatment and survivorship. SPONSORED BY: Clovis Oncology SPEAKER: Teresa P. Diaz-Montes, MD, MPH, FACOG, Associate Director, Lya Segall Ovarian Cancer Institute, Mercy Medical Center Navigating the Health Insurance System COLUMBIA C Health insurance coverage, denials, appeals it s a maze! Join expert Tina Segura to learn how to navigate the system. SPONSORED BY: Genentech Inc. SPEAKER: Tina Segura, Esq., Staff Attorney, Disability Rights Legal Center 11:15 AM 12:15 PM 11:15 AM 12:15 PM #OvarianConf 7

3 BREAKOUTS: continued... Integrative Medicine for Ovarian Cancer COLUMBIA A Join Dr. Shelly Latte-Naor for a conversation about the beneficial role of evidence-based integrative medicine in ovarian cancer treatment, including yoga, massage and acupuncture. SPONSORED BY: EMD Serono/ Pfizer SPEAKER: Shelly Latte-Naor, MD, Assistant Attending Physician, Memorial Sloan Kettering Cancer Center All About PARP Inhibitors The ovarian cancer community is abuzz with news about PARP inhibitors. Find out what you need to know with expert Dr. Ursula Matulonis. SPONSORED BY: AstraZeneca, Clovis Oncology, and TESARO SPEAKER: Ursula Matulonis, MD, Director and Chief, Division of Gynecologic Oncology, Dana-Farber Cancer Institute Networking Lunch REGENCY BALLROOM A Refuel and relax while you meet others in your ovarian cancer community. Look for special tables marked for caregivers, young survivors, newly diagnosed, long-term survivors and for men only. Ovarian Cancer Dream Team: Where are We? Hear the latest on the Ovarian Cancer Dream Team s cuttingedge research on ovarian cancer prevention and treatment from the Dream Team s co-leader, Dr. Alan D Andrea. SPONSORED BY: Gail Baird Foundation SPEAKER: Alan D. D Andrea, MD, Director, Susan F. Smith Center for Women s Cancers, Dana-Farber Cancer Institute 11:15 AM 12:15 PM 11:15 AM 12:15 PM 12:30 PM 1:45 PM 2:00 PM 3:00 PM GET INVOLVED: OVARIAN CANCER RESEARCH FUND ALLIANCE We hope the National Conference will inspire you to take action on behalf of your health and the well-being of all women with ovarian cancer. Throughout the program you will find ways to take the inspiration home with you. Want to learn more? Just ask any OCRFA staff member or visit the OCRFA table! 8 presented by Ovarian Cancer

4 BREAKOUTS: Advocacy at Home: Taking Action in Your State COLUMBIA A Want to make an immediate impact on legislation affecting the ovarian cancer community? This session may be for you. Come learn how to do policy advocacy at the state level and leave armed with model legislation. SPEAKERS: Chad Ramsey, Vice President, Policy, Ovarian Cancer Vanessa Cramer, Associate Director, Policy, Ovarian Cancer Too Young for This! Facing Cancer Under 40 COLUMBIA C Hear strategies for dealing with the unique set of challenges younger women face when diagnosed with ovarian cancer. SPONSORED BY: Gail Baird Foundation SPEAKER: Erin Price, MSW, LGSW, Navigation Programs Manager, Smith Center for Healing and the Arts For Community Partners: Best Practices (for Community Partners only) LEXINGTON/CONCORD Share tips and strategies with your colleagues from other ovarian cancer organizations, while getting expert tips on best practices in organizational leadership. SPEAKER: Glen O Gilvie, Chief Executive Officer, Center for Nonprofit Advancement Managing Recurrence Recurrence is in the back of every ovarian cancer survivor s mind. Join Dr. Sarah Adams for a presentation and discussion about the diagnosis and management of recurrent ovarian cancer. SPEAKER: Sarah Adams, MD, Associate Professor, Gynecologic Oncology, University of New Mexico The TEAL Takeover Party It s a party to celebrate you! Join us for food, music, dancing and lots of fun and laughter. Break out the teal costumes and dress up for the annual Wear Your Best Teal contest, and a chance to win free registration for the 2019 National Conference! 3:30 PM 4:30 PM 3:30 PM 4:30 PM 3:30 PM 4:30 PM 3:30 PM 4:30 PM 5:45 PM 8:00 PM #OvarianConf 9

5 SUNDAY JULY 15, 2018 Gentle Yoga Class THORNTON ROOM, 11TH FLOOR OCRFA Advocate Leader and yoga teacher, Bridget Toomey, will lead this gentle class, which will end with a soothing gong bath a sound massage for the body and mind! No experience or special equipment necessary. LED BY: Bridget Toomey Breakfast REGENCY BALLROOM A Start the day off with a healthy breakfast, and visit with our Exhibitors. Ask the Experts Our panel of experts from some of the country s top institutions will answer your questions about ovarian cancer research, science, and clinical trials. You may submit questions in advance at the registration desk. PLEASE NOTE: The experts cannot answer specific questions about your treatment. Please speak with your healthcare team about your personal health questions. SPONSORED BY: Genentech Inc. SPEAKERS: Susan C. Modesitt, MD, Director of the Gynecologic Oncology Division and Director of the High Risk Breast/Ovarian Cancer Clinic, University of Virginia Amanda Nickles Fader, MD, Associate Professor of Gynecology and Obstetrics, Johns Hopkins Medicine Department Anil Sood, MD, Professor, University of Texas MD Anderson Cancer Center Break 7:15 AM 8:00 AM 7:45 AM 8:45 AM 9:00 AM 10:30 AM 10:30 AM 11:00 AM GET INVOLVED: OVARIAN CYCLE Ovarian Cycle are fun spin events to fight ovarian cancer. Cycle with friends and family to raise money for life-saving research. Join an Ovarian Cycle ride in your area or organize your own. If you are affiliated with one of our Community Partner organizations, we have a special Ovarian Cycle Community Partner program. Find out more, visit the OCRFA table. 10 presented by Ovarian Cancer

6 BREAKOUTS: Caring for the Caregiver LEXINGTON Join Mark Gibbons from the Caregiver Action Network to learn about resources for caregivers and taking care of yourself while caring for a loved one. SPONSORED BY: Gail Baird Foundation SPEAKER: Mark Gibbons, Senior Director of External Programs, Caregiver Action Network Rare Ovarian Cancers COLUMBIA A Join expert Dr. Amanda Nickles Fader for a discussion focused on new research and treatment of rare types of ovarian cancer. SPONSORED BY: Clovis Oncology SPEAKER: Amanda Nickles Fader, MD, Associate Professor of Gynecology and Obstetrics, Johns Hopkins Medicine Department Policy Update: Drug Pricing CONCORD The cost of drugs continues to rise but there appear to be some real efforts underway to address the issue. Join us as we discuss the current landscape and how reform efforts might impact the cost of crucial therapies. SPONSORED BY: AstraZeneca SPEAKERS: Chad Ramsey, Vice President, Policy, Ovarian Cancer Vanessa Cramer, Associate Director, Policy, Ovarian Cancer Genetics and Hereditary Ovarian Cancer What role do genetics and family history play in ovarian cancer? Recent studies have shown the important role our genetic makeup plays in the diagnosis and treatment of ovarian cancer. Dr. Modesitt tells you what you need to know. SPONSORED BY: Myriad Genetics Inc. SPEAKER: Susan C. Modesitt, MD, Director of the Gynecologic Oncology Division and Director of the High Risk Breast/Ovarian Cancer clinic, University of Virginia Racial Health Disparities in Ovarian Cancer COLUMBIA C What factors contribute to the disparities in outcomes for women of color with ovarian cancer, and what can we do about it? Join Dr. Temkin for an informative discussion. SPEAKER: Sarah Temkin, MD, Division Director, Virginia Commonwealth University #OvarianConf 11

7 Networking Lunch REGENCY BALLROOM A Refuel, relax and meet new friends. Look for tables marked by geographic region to find other women who live near you! Clinical Trials: What You Need to Know Clinical trials are a critical way to advance the science of ovarian cancer research. They can also be intimidating! Dr. Elise Kohn will demystify clinical trials and discuss what s new. SPONSORED BY: AstraZeneca SPEAKER: Elise C. Kohn, MD, Head, Gynecologic Cancer Therapeutics, National Cancer Institute 12:00 PM 1:15 PM 1:30 PM 2:30 PM BREAKOUTS: For Men Only CONCORD Stop by and informally share with other men who understand what you re going through. SPEAKER: Mark Gibbons, Senior Director of External Programs, Caregiver Action Network Doctor-Patient Communication LEXINGTON Join a discussion with experts from the Cleveland Clinic to learn about the elements of productive interactions between patients and their care team. SPONSORED BY: AstraZeneca SPEAKERS: Gretchen Fisher, MD, Staff OB/GYN and Patient Experience Officer, Cleveland Clinic Carol Santalucia, MBA, Director, Service Excellence and Culture, Cleveland Clinic Sexual Health after Cancer (for survivors only) COLUMBIA C Join Dr. Saketh Guntupalli, author of Sex and Cancer: Love, Intimacy and Romance After Diagnosis, for a discussion of the common sexual problems survivors face, their causes and solutions. SPEAKER: Saketh R. Guntupalli, MD, Associate Professor, University of Colorado School of Medicine at Denver 12 presented by Ovarian Cancer

8 BREAKOUTS: continued... Long-term Survivorship COLUMBIA A What do we know about the factors that contribute to long-term survivorship? Join Dr. Leigh Pearce to find out what the latest research shows. SPEAKER: Leigh Pearce, PhD, MPH, Associate Professor, University of Michigan Get Involved! Ways to Engage with Your Ovarian Cancer Community Feeling inspired this weekend? Hear from survivors about the many different ways you can stay involved in your community. Educate others, lend your voice, speak out, and fundraise for the cause! SPEAKERS: Audra Moran, President & CEO, Ovarian Cancer Susan Leighton, MA, National Program Director, Survivors Teaching Students, Ovarian Cancer Laura Forte, Ovarian Cancer Advocate Leader Closing Session: What s Next? Join us for a fun and inspirational end to an amazing weekend! SPEAKER: Audra Moran, President & CEO, Ovarian Cancer Advocacy Day Training This training is MANDATORY for all Advocacy Day participants. Open only to Advocacy Day registrants. Learn which policy issues are priorities for the ovarian cancer community in Prepare for your meetings with Congressional staffers by practicing key messages and meeting your fellow advocates. Light snacks and beverages will be available. SPEAKER: Jeremy Scott, Senior Vice President, The District Policy Group Chad Ramsey, Vice President, Policy, Ovarian Cancer Vanessa Cramer, Associate Director, Policy, Ovarian Cancer Research Fund Alliance 4:00 PM 5:00 PM 5:30 PM 7:30 PM #OvarianConf 13

9 MONDAY JULY 16, 2018 Advocacy Day Today is the day your voice will be heard on the Hill. Advocacy Day Breakfast REGENCY A BALLROOM Before your big day on Capitol Hill, meet here to join your fellow advocates, and fuel up with a healthy breakfast! Advocacy Day Shoutback OLYMPIC BOARD ROOM Come back after your meetings on the Hill and share your experiences! This is optional for Advocacy Day attendees. 8:00 AM 10:00 AM 2:00 PM 4:00 PM GET INVOLVED: ADVOCATE LEADERS Our Advocate Leaders are a group of highly trained individuals who advance the interests of women with ovarian cancer at the local, state and federal levels. The Advocate Leaders raise awareness through news articles and op-eds, develop relationships with their elected officials and fight for increased funding for ovarian cancer research throughout the country. To learn more about this program, look for OCRFA Advocate Leaders throughout the National Conference. 14 presented by Ovarian Cancer