8 th Annual Developmental Disabilities Public Policy Conference in Sacramento
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1 8 th Annual Developmental Disabilities Public Policy Conference in Sacramento Sunday March 8 th and Monday March 9 th, 2015 (Legislative Visits on March 10 th, 2015) Holiday Inn Capitol Plaza Hotel 300 J Street Sacramento, CA Hosted by The Arc and United Cerebral Palsy California Collaboration Conference Partners 1
2 Conference Agenda Sunday March 8, 2015 Day One Morning Plenary: 8:30 am to 12:00 pm (Sponsored by The Arc San Diego) Introductions/Overview Richard Fitzmaurice, President, The Arc California The 10 Campaign: The Lanterman Coalition s Campaign to Begin the Developmental Services System Recovery Tony Anderson, Executive Director, The Arc California and Director of The Arc UCP California Collaboration The Lanterman Act: Yesterday and Today, A Story of Hope or Fear? Dion Aroner, California Assembly Member ( ); Partner, Aroner, Jewel, and Ellis 8:30 am 9:00 am 10:00 am 10:45 am California Early Start Policy Primer: Where Do We Go From Here? Marie Poulsen, Ph.D., University of Southern California; Chair, Early Start Interagency Coordinating Council 11:00 am 11:50 pm Day One Lunch Keynote: 12:00 pm to 1:30 pm (Sponsored by The Arc Ventura) Nunzio (Bob) Perotti Recognition Award (posthumously) and the 30 Year Anniversary of the ARC v DDS Decision 12:30 pm Lunch Keynote: It s Not About the Four Walls: The Settings Rule From CMS and the Federal Policy That Will Change Everything Laura Brackin, Ph.D., Brackin and Associates 2
3 Day One Afternoon Plenary: 1:30 pm to 5:30 pm (Sponsored by Fred Jones and Kathleen Reed) The ASAN Policy Agenda: Nothing About Us Without Us Ari Ne eman, President and Co-Founder, Autistic Self Advocacy Network Panel: Decision-Making and the Conservatorship Question Judy Thomas, Director, California Compassionate Care Coalition and Laurel Mildred, Mildred Consulting, authors of Thinking Ahead Matters: Supporting and Improving Healthcare Decision- Making and End-of-Life Planning for People With Intellectual and Developmental Disabilities Tom Coleman, Legal Director and Nora Baladarian, Ph.D., Disability and Abuse Project, Spectrum Institute Ari Ne eman, President and Co-Founder, Autistic Self Advocacy Network Melissa Crisp-Cooper, Faculty, Office of Developmental Primary Care, Department of Family and Community Medicine, University of California, San Francisco 1:30 pm 1:50 pm 3:00 pm Recent Court Decisions and the Impact on People With Disabilities Marty Omoto, Director and Organizer, California Disability Community Action Network An Update From The Arc of the United States and Personal Remarks From a Parent Who Dreams of a Bright Future for His Daughter Ron Brown, President, The Arc of the United States Wrap-Up Richard Fitzmaurice, President, The Arc California Reception: Speakers Unplugged Lifetime Achievement Award Wes Chesbro, Former Senator ( ) and Assembly Member ( ) 3:15 pm 4:00 pm 4:45 pm 5:00 pm 6:00 pm 3
4 Conference Agenda Monday March 9, 2015 Day Two Morning Plenary: 8:30 am 12:30 pm (Sponsored by Therap) Introductions/Overview Tony Anderson, Executive Director, The Arc California and Director of The Arc UCP California Collaboration The Current State Budget Status Scott Graves, California Budget Project Leadership Award Assembly Member Dr. Shirley Weber, Leadership for Change The Legislative Analyst s Office: The Budget and Supports for People With I/DD and Their Families Rashi Kesarwani, Legislative Analyst s Office 8:30 am 8:45 am 9:45 am 10:00 am 10:35 am Senator of the Year 2014 Senator Jim Beall Sea Change in Employment Services (The New Workforce Innovation and Opportunity Act, HCBS Settings, etc.) Joe Xavier, Director of the Department of Rehabilitation 10:55 am 11:15 am Day Two Lunch Keynote: 12:00 pm to 1:20 pm Santi Rogers, Director, Department of Developmental Services (Sponsored by UCP of the North Bay) Department of Developmental Services Director Santi Rogers 4
5 Monday March 9, 2015 Afternoon outs: 1:30 pm to 3:10 pm (Sponsored by California Supported Life Network) Out#1 1:30 pm Self-Determination Jim Knight, Assistant Deputy Director Department of Developmental Services Diablo Room The ABLE Act Stephen Dale, JD Dale Law Firm El Dorado Room Coordinated Approaches to Health Services Dr. Clarissa Kripke Office of Developmental Primary Care, Department of Family and Community Medicine, University of California, San Francisco Fresno Room Out #2: 2:20 pm In-Home Supportive Services: How the State s Biggest Olmstead Program Is Surviving Today Karen Keeslar, California Association of Public Authorities Diablo Room The Current State of Providing Supported Living Services in California California Supported Living Network Jacquie Dillard-Foss, STEP Carol McKinney, Harmony Home El Dorado Room Efforts in Managed Care: The Impact on People with Intellectual and Developmental Disabilities David Donohue Vice President of Innovative Solutions LifeShare Management Group, LLC Fresno Room 3:10 pm 5
6 Monday March 9, 2015 Afternoon Plenary: 3:30 pm to 6:00 pm (Sponsored by AT&T) Leadership Award Assembly Member Brian Mainschein, Leadership for Change Criminal Justice and Employment National Public Policy, The New Language Study, and Part Two of the United Cerebral Palsy Policy Study Stephen Bennett, President and CEO of the United Cerebral Palsy (UCP) National Office The Arc & UCP San Diego v Douglas, Delgadillo Chad Carlock, JD Law Offices of Chad Carlock Criminal Justice System: The Arc of the US National Center on Justice and Disability How Are People with I/DD Treated: As Victims and Defendants Teresa Anderson, Moderator, The Arc California Leigh Ann Davis, Program Manager, The National Center on Criminal Justice and Disability (NCCJD), The Arc of the United States Closing Remarks Richard Fitzmaurice, President, The Arc California Celebration Reception Leadership Award Senator Fran Pavley, Leadership for Change 3:30 pm 3:40 am 4:30 pm 5:20 pm 6:00 pm 6
7 Closing Reception Join us for a reception where you can talk further with your fellow advocates about tomorrow s legislative visits. Don t forget to chat with our great sponsors. Conference Partners The California Supported Living Network AT&T Fred Jones and Kathleen Reed Event Sponsors The Arc San Diego United Cerebral Palsy of the North Bay The Arc Ventura Therap LifeShare Exhibitor Sponsors Placer ARC G2 Insurance Hogan Insurance Pharmacy Alternatives Please take the time to visit with our sponsors. They play a critical role in enabling us to provide you with a sustainable high-quality public policy conference. Thank you! 7
8 Conference Partners Event Sponsors Exhibitor Sponsors Scholarship Sponsors Jim Baldwin Rebecca Leinhart Fred Jones and Kathleen Reed The Law Offices of Chad Carlock, Esq. 8
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