MS Connection Newsletter

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Spring 2013 Kentucky-southeast indiana chapter MS

issue Walk MS: Lexington 2012 AIN Neuro Blockers Walk

Walk MS: Central Kentucky 2012 First Federal help us

event close to your home 4 employee spotlight: all

activities Walk MS: Paducah 2012 Kim s Kapables Walk

1 Spring 2013 Kentucky-southeast indiana chapter MS Connection Newsletter MS AWARENESS Special edition issue Walk MS: Lexington 2012 AIN Neuro Blockers Walk MS: Louisville 2012 Cathie s Crue INSIDE THIS ISSUE Walk MS: Central Kentucky 2012 First Federal help us create a world free of ms March find a Walk ms event close to your home 4 employee spotlight: all about tiffany 5 ms awareness week march activities Walk MS: Paducah 2012 Kim s Kapables Walk MS: Bowling Green 2012 Walking for H.O.P.E. 7 find a support group in your community

2 MS connection: Spring 2013 letter from the president Dear Friends, People impacted by MS are connecting all across the nation starting the week of March 11-17 to combine their efforts, knowledge,

2 2 MS connection: Spring 2013 letter from the president Dear Friends, People impacted by MS are connecting all across the nation starting the week of March to combine their efforts, knowledge, and hope in order to move us closer to a world free of multiple sclerosis. MS is all about connections. From neurological connections damaged by the disease, to personal connections between family members, caregivers and support providers, and individuals who raise funds for MS research, services, and advocacy. These connections define MS. Stacy Funk, chapter President Connect with us online: Kentucky-Southeast Indiana Chapter kyw@nmss.org Like us: Follow us: Pin with us: Connect with us: In this issue of the MS Connection, we highlight connections in the MS movement. Connect with us at one of our MS Awareness Week events, Walk MS, Bike MS, one of our Programs, or Talk MS Groups. Become an MS Activist and connect with thousands nationwide. You can help shape the policies and programs that impact people living with MS Connect with others at an online community that connects people involved in the MS movement with one another, with informative web content, and valuable resources most important to you. Share your experiences, connect with people you want to connect with, and have expert MS information and opinions right at your fingertips. As you read this issue, please think about the ways that you can personally connect to the MS movement. Together, our connections will create a world free of MS! Warm regards, Stacy Funk, Chapter President

nationalmssociety.org 1-800-344-4867 3 register now for walk ms at www.walkmsky.

3 nationalmssociety.org register now for walk ms at Walk MS: Louisville Saturday, May 18, 2013 Papa Johns Cardinal Stadium Walk MS: Central Kentucky Saturday, September 7, 2013 Freeman Lake - Elizabethtown Walk MS: Bowling Green Saturday, September 14, 2013 Preston Miller Park Walk MS: Madisonville Saturday, September 21, 2013 Madisonville City Park Walk MS: Paducah Saturday, September 28, 2013 Noble Park For more information contact Mary Carabella at or mary.carabella@nmss.org. Walk/Run MS: Bell County Saturday, April 20, 2013 Middlesboro High School Walk MS: Lexington Saturday, September 14, 2013 RJ Corman - Nicholasville For more information contact Tiffany Smith at or tiffany.smith@nmss.org. A special thank you to our statewide Walk MS sponsors Associates in Neurology, Superior Van and Mobility and Teva Neuroscience! Contact your local representative to find out how to get your very own Walk MS Orange Laces or how to become a part of the Kickin MS Club! National Multiple Sclerosis Society Kentucky-Southeast Indiana Chapter 1201 Story Avenue, Suite 200 Louisville, KY Chair: Michelle Husted Treasurer: Dennis Dirksen Secretary: Debbie Nelson Chapter President: Stacy Funk 2013 National Multiple Sclerosis Society, Kentucky-Southeast Indiana Chapter Information provided by the Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician. The Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The Society assumes no liability for the use or contents of any product or service mentioned.

4 MS connection: Spring 2013 employee spotlight all about Tiffany Name: Tiffany Smith Position: Development Manager since January of 2011 Degree: Photo credit: Public Joe Shymanski Relations Eastern

Cumulus Broadcasting Places lived: Kentucky Hobbies, Talents, Special Interests: I love watching sports and cheering on my favorite teams, going to concerts, shopping (a hobby and a talent), spending

4 4 MS connection: Spring 2013 employee spotlight all about Tiffany Name: Tiffany Smith Position: Development Manager since January of 2011 Degree: Photo credit: Public Joe Shymanski Relations Eastern Kentucky University Previous work experience: Community Relations/Promotions Coordinator for the Lexington Tiffany smith, Legends Minor League Development Manager Baseball and Promotions Director for Cumulus Broadcasting Places lived: Kentucky Hobbies, Talents, Special Interests: I love watching sports and cheering on my favorite teams, going to concerts, shopping (a hobby and a talent), spending time with my family and being social! Favorite color: Pink Three words that best describe me: Caring, Honest, Thoughtful Last book read: I just read I Love You, Stinky Face to my 6 month old son Last movie watched: Lincoln was the last movie I watched Something few know about me: I love being a mom! I just had my first child, my sweet baby boy, back in July. I am experiencing that being a parent is hard at times but so very rewarding. Those hard times are quickly forgotten when I hear him laugh or when he gets excited to see me when I walk in the room. I just never knew it was possible to have so much love for someone. He definitely melts my heart! My favorite part about working for the Society: I have so many reasons why I love working for the chapter but one of my favorites is all of the new people I have met, friends I have made and the support they give. Each of their unique stories about why they want to help me in the fight to create a world free of MS inspires me and makes me want to work harder to raise funds for research to find a cure. To contact Tiffany, call or tiffany.smith@nmss.org. mary carabella (Development Manager) and chris beahl at erica dietrich s party at zazoo s. congratulations to chris for hosting a burpee competition that raised almost $3,000!

5 nationalmssociety.org JOIN THE MOVEMENT March The Kentucky-Southeast Indiana Chapter of the National Multiple Sclerosis Society is connecting with people from across the nation during MS Awareness Week, March to give what we know. MS Awareness Week opportunities: Marquees for MS Volunteer Contest - Plaster this phrase, Celebrate Multiple Sclerosis Awareness Week March or Celebrate MS Awareness Week March on all the marquees in your community! Take a picture of yourself next to the marquee and post it on the Chapter s Facebook page at or it to bailey.preston@nmss.org for a chance to win a digital camera! The more marquees you get the phrase on the more times you will be entered to win. Moving Against MS - Cycle or walk for half hour increments in the center of 4th Street Live in Louisville from 9:00 AM 7:00 PM on Friday, March 15, For more information or to sign up to bike, walk, or volunteer call or Jerika.amos@nmss.org. Walk MS Louisville Kick Off Party - Enjoy beer battered pancakes, the Krispy Kreme station, and lots of prizes! Build your team and learn more about Walk MS Louisville at Drinkswell on Saturday, March 16, 2013 at 9:30 AM. For more information contact Mary Carabella at or mary. carabella@nmss.org. Bike MS Training Ride Kick Off Party - Kick off your morning on Saturday, March 16, 2013 at 8:45 AM with a 15 mile training ride beginning at Drinkswell in Louisville. The ride will be followed by beer battered pancakes, beer and prizes! Haven t registered for 2013 Bluegrass, Bikes and Bourbon yet? FREE Bluegrass, Bikes and Bourbon registration for training ride attendees! For questions or more information please call or jerika.amos@ nmss.org. Give What You Know - Share your story and connect with others at You can create your own video story, download web banners, register to participate in Walk MS, Bike MS, or some other special event near you. Whether you volunteer, bike, walk, advocate, educate, or support every action is a way of moving us closer to a world free of MS and shows your commitment to the MS movement. Have other ideas about spreading awareness in your community? Contact or bailey.preston@nmss.org.

6 6 MS connection: Spring 2013 Calendar Programs Join us at one of our two locations for our Healthy Steps Lunch Bunch series! Participate in an educational and support program from 11:00 AM to 12:30 PM. Bring your caregivers, family, and friends and enjoy a FREE lunch. Space is limited, so please RSVP by calling option 1 or visit our website at Lexington Lunch Bunch March 25, April 29, June 24 *May meeting cancelled due to holiday* Last Monday of the month at Cardinal Hill in the Center of Learning Room 3, on 2050 Versailles Road in Lexington. Louisville Lunch Bunch April 9, May 7, June 4 First Tuesday of the month at Kosair Charities in the Community Room at 982 Eastern Parkway in Louisville. teleconference Managing the symptoms of ms April 9-7:30 PM Register for the upcoming teleconference by calling option 1! bike ms bluegrass, bikes, & bourbon June 22-23, 2013 Our new route will start at Gallrein Farms in Shelbyville, KY and head into the heart of bourbon country. Overnight in the Lawrenceburg and Versailles area before riding back to Gallrein Farms the following day. For more information contact Jerika Amos at or jerika.amos@nmss.org. REGISTER NOW for Bike MS at Upcoming Events Best of Louisville Bash July 25, 2013 Churchill Downs, Louisville Tickets $50 and Tables $750 For more information go to Crystal Boots & Silver Spurs - Lexington August 17, Spindletop Hall For more information contact Tiffany Smith at or tiffany.smith@nmss.org. Crystal Boots & Silver Spurs - Southern Indiana September 28, Floyds Knobs, IN For more information go to com. For tables and tickets contact Maria Wheatley at or mariau@macconstruction.com.

7 7 nationalmssociety.org Talk ms group meetings Bowling Green Contact Tim at (270) :00 PM, Sky Rehab Clinic 2nd Tuesday of each month Elizabethtown Contact Tom at (270) :00 PM, Republic Bank Ring Rd. 4th Tuesday of each month Frankfort Contact Michelle at (502) :30 PM, Frankfort Regional Medical Pavilion 2nd Friday of each month Lexington Contact Leslie at (859) :30 AM, Location TBA 1st Wednesday of each month Madisonville Contact Dan or Carolyn at (270) :00 PM, Trover Clinic 8th Floor 4th Monday of each month Middlesboro Contact Nina at (606) :00 PM, Middlesboro ARH 2nd Tuesday of each month NEW GROUP! pictured left to right: Cathy Kemple (office Manager), DiAnne Montgomery, Aaron montgomery, bob montgomery, and stacy funk (chapter president). a special thank you to bob for raising over $27,000 at january s jam for a cure at headliner s music hall! New Albany Contact Michael at (812) :00 PM, Floyd Memorial Hospital 4th Monday of each month Paducah Contact Jessica at (270) :30 PM, Lourdes Hospital Marshall Nemer Pavilion, Borders Room 1st Tuesday of each month Ohio County Contact Tim at (270) :30 PM, Ohio County Wellness Center 1st Tuesday of each month winchester Contact Carolyn at (859) :00 PM, Gaunce s Deli & Cafe 1st Thursday of each month

Free Matter for the Blind or Handicapped 1201 Story Avenue Suite 200 Louisville, KY 40206 Volunteer Spotlight DAniel Carper Daniel Carper, an adventurous 12 year old, has set his mind to riding in

8 Free Matter for the Blind or Handicapped 1201 Story Avenue Suite 200 Louisville, KY Volunteer Spotlight DAniel Carper Daniel Carper, an adventurous 12 year old, has set his mind to riding in the 2013 Bike MS. Not only is he going to ride, but his fund raising goal is $1,300! However, he doesn t plan to use only his charm and wit to reach the goal! When asked Why ride? Daniel says, To support my family members who have MS and find a cure. He has started Cords for a Cause which designs, braids, and sells paracord bracelets for $5, with all proceeds going to his Bike MS fund. With the help of family and friends, he has currently raised over $900 for the National MS Society by making and selling over 150 bracelets and garnering a few extra donations along the way from generous supporters. One of his big events was Daniel carper, 12-year-old volunteer the LaGrange Beef O Brady s Cords for a Cause night where over 50 bracelets were sold and 10% of food sales went to his fund for a total of $452. With more Cords for a Cause events before the ride, he will surely surpass his goal. How far will you ride? he replies, I want to do the 65 mile route! He invites everyone to get on their bikes and join him on the road in June to help find a cure and Bike MS! To purchase your very own bracelet send an to parabrace.ms@gmail.com.

MS Connection Newsletter

Summer 2013 Kentucky-southeast indiana chapter MS Connection Newsletter we are gearing up for bike ms: bluegrass, bikes, & Bourbon on june 22-23, 2013! find out more about riding or volunteering at www.bikemsky.org