Sixth International Conference on Teenage and Young Adult Cancer Medicine

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2 Sixth International Conference on Teenage and Young Adult Cancer Medicine Day One Monday 7th June pm Registration Session One Chair: Professor Ross Pinkerton Ms Sue Morgan MBE Staff Specialist Paediatric Oncology & Director of Cancer Services, Royal Childrens and Mater Childrens Hospitals, Brisbane, Australia Teenage Cancer Trust Nurse Consultant, Teenage & Young Adult Cancer, St James s University Hospital, Leeds 6.30pm 8.00pm Developing an effective teenage and young adult service - what works and what fails - learning from experience Cheese & Wine Reception Day Two Tuesday 8th June 8.15am 9.00am Registration Welcome Session Two PREVENTION Chair: Professor Henry Kitchener Professor Rona Mackie CBE School of Cancer and Imaging Science, University of Manchester Senior Research Fellow, Public Health and Health Policy, University of Glasgow 9.10am 9.30am 9.50am 10.10am 10.30am 10.50am 11.10am 11.25am Getting the balance right sun exposure, skin damage & vitamin D needs The epidemiology of melanoma in young people Spot a spot, save a life - a prevention, education and outreach programme HPV clinical efficacy of prophylactic vaccines and the national UK programme HPV Vaccines the road to development of prophylactic HPV vaccination Consider the implications of HPV vaccinations for cervical screening Coffee Professor Rona Mackie CBE, Senior Research Fellow, Public Health and Health Policy, University of Glasgow Professor Adèle Green AC, Queensland Institute of Medical Research, Australia Dr Leonard Sender, Director Clinical Oncology Services UC Irvine Medical Center, Orange, California, USA Professor Henry Kitchener, School of Cancer and Imaging Science, University of Manchester Professor Margaret Stanley OBE, Department of Pathology, University of Cambridge Dr Maggie Cruickshank, Senior Clinical Lecturer in Gynaecology, University of Aberdeen Session Three A NARRATIVE TALE Chair: Ms Sam Smith Professor Ian Lewis Teenage Cancer Trust Nurse Consultant, Teenage and Young Adult Cancer, Teenage Cancer Trust Young Oncology Unit, Christie Hospital, Manchester Professor of Cancer Studies in Children and Young People, Leeds and Chairman of Teenagers & Young Adults with Cancer - a National Group for Professionals 11.45am Young people talk - what it was like to be diagnosed with cancer Professor Faith Gibson, Clinical Professor of Children and Young People s Cancer Care, Great Ormond Street Hospital for Children NHS Trust and London South Bank University

3 12.05pm 12.25pm 12.45pm 1.00pm Rationale behind GP decisions Addressing delays in diagnosis Lunch Dr Olga Kostopoulou, Senior Lecturer, Medical Decision Making & Informatics Research Group, King s College London Professor Tim Eden, Teenage Cancer Trust Professor, University of Manchester Session Four ENTRY INTO TRIALS Chair: Ms Louise Soanes Dr Jeremy Whelan Teenage Cancer Trust Nurse Consultant for Adolescents and Young Adults, Royal Marsden NHS Foundation Trust, London Consultant Medical Oncologist, University College Hospital, London 2.30pm 2.50pm 3.10pm 3.30pm 3.45pm Accrual to clinical trials as the standard of care - challeges and opportunities: UK and European perspectives Accrual to clinical trials as the standard of care - challeges and opportunities: Canadian & USA perspectives Patient choice Tea Dr Lorna A Fern, Research and Development Co-ordinator, National Cancer Research Institute, Teenagers and Young Adult Clinical Studies Group, Department of Oncology, University College Hospital, London Professor Ronnie Barr Professor of Pediatrics, Pathology & Medicine, McMaster University, Hamilton, Canada Ms Sue Morgan, MBE, Teenage Cancer Trust Nurse Consultant, Teenage & Young Adult Cancer, St James s University Hospital, Leeds Session Five BREAKOUT GROUPS 4.05pm 1 How do we decrease delays in diagnosis? 2 What are the obstacles to opening trials and trial entry? How can we overcome them? Convenor/co-ordinator: Professor Tim Eden, Teenage Cancer Trust Professor, University of Manchester Ms Sam Smith and Professor Ian Lewis Convenor/co-ordinator: Dr Clare Rowntree, Consultant Haematologist, University Hospital of Wales, Cardiff Dr Jeremy Whelan & Dr Lorna A Fern 5.15pm End of Day Day Three Wednesday 9th June Session Six PSYCHOLOGICAL & DEVELOPMENT ISSUES Chair: Professor David Walker Ms Vikky Riley Children s Brain Tumour Research Centre, Division of Child Health, Queen s Medical Centre, Nottingham Teenage Cancer Trust Nurse Consultant, University College Hospital, London 9.00am 9.20am Emerging adulthood - psychosocial and behavioural issues Transition to adult services and continuity Professor Brad Zebrack, Associate Professor, University of Michigan School of Social Work and University of Michigan Comprehensive Cancer Center, Ann Arbor, Michigan USA Dr Janet E McDonagh, Clinical Senior Lecturer in Paediatric and Adolescent Rheumatology, University of Birmingham and Birmingham Children s NHS Foundation Trust

4 9.40am 10.00am 10.15am Addressing the issues of compliance and adherence Coffee Professor John Spinetta, Professor Emeritus of Psychology, San Diego State University, USA Session Seven DEALING WITH SPECIFIC CANCERS Chair: Dr David Hobin Ms Louise Hooker Consultant Paediatric Oncologist, Birmingham Children s Hospital Project Manager, Children and Young People, Improving Outcomes Guidance Implementation, National Cancer Action Team 10.35am 10.55am 11.15am 11.35am 11.55am 12.15pm 12.30pm Patterns of disease Optimising treatment for ALL & brain tumours in the teenage years Teenage & young adult cancers focusing on bone tumours Hodgkins lymphoma An overview of thyroid cancers in teenagers and young adults Lunch Professor Jillian M Birch, Director Cancer Research UK Paediatric and Familial Cancer Research Group, University of Manchester Dr Simon Bailey, Consultant Paediatric Oncologist, Royal Victoria Infirmary, Newcastle upon Tyne Dr Stefan Bielack, Medical Director, Departments of Paediatrics, Haematology, Oncology, Immunology; Klinikum Stuttgart Olgahospital; Stuttgart, Germany Dr Kevin Windebank, Senior Lecturer in Paediatric and Adolescent Oncology, Royal Victoria Infirmary, Newcastle upon Tyne Dr Beng K Yap, Consultant Clinical Oncologist, Christie Hospital, Manchester Session Eight CHALLENGE OF LIVING WITH CANCER Chair: Professor Ronnie Barr Professor Faith Gibson Professor of Pediatrics, Pathology & Medicine, McMaster University, Hamilton, Canada Clinical Professor of Children and Young People s Cancer Care, Great Ormond Street Hospital for Children NHS Trust and London South Bank University 2.00pm 2.20pm 2.40pm 3.00pm 3.25pm The challenges of remission Can communication skills be taught? The challenge of end of life care for teenagers and young adults Tea Ms Vikky Riley, Teenage Cancer Trust Nurse Consultant, University College Hospital, London Dr David Hobin, Consultant Paediatric Oncologist, Birmingham Children s Hospital Dr Anne Grinyer, School of Health and Medicine, Lancaster University Session Nine BREAKOUT GROUPS 4.00pm 5.00pm 5.15pm 3 How do we overcome the challenges facing teenage & young adult patients with cancer? 4 When is enough enough? Difficulties in decision making Final summing up Conference closes Convenors/co-ordinator: Professor David Walker Professor John Spinetta and Ms Louise Hooker Convenors/co-ordinator: Dr Anne Grinyer Professor Ronnie Barr, Ms Vikky Riley and Mr David Wright, Teenage Cancer Trust Lead Nurse for Teenagers and Young Adults, Merseyside & Cheshire Cancer Network, Clatterbridge Centre for Oncology NHS Foundation Trust

5 Sixth International Conference on Teenage and Young Adult Cancer Medicine Monday 7th, Tuesday 8th, Wednesday 9th June 2010 REGISTRATION FORM Please print in Block Capitals Prof / Dr / Mr / Ms / Mrs / Miss Surname First Names Place of Work Position Held Address City Post Code Country Tel Fax Membership of Professional Organisations We encourage all delegates to book early. For those who are able to do this we offer a reduced registration fee - see below. Booked before 26th February 2010 Booked after 26th February 2010 REGISTRATION FEES (Doctors/Professional equivalent) Full Conference th June only th June only REGISTRATION FEES (Nurses/Social Workers/ Professional equivalent) Full Conference th June only th June only NB all prices include VAT Cheese & Wine reception on 7th June included in registration fee. For catering purposes please indicate whether or not you will attend YES / NO If you would like us to submit an invoice please provide full details on the reverse of this form Cheques should be made payable to: TEENAGE CANCER TRUST and should be in Pounds Sterling and drawn on a UK bank. Credit transfers should be drawn on a UK bank in Pounds Sterling and free of bank charges to Teenage Cancer Trust (Royal Bank of Scotland) Acc No: , Sort Code: BIC: RBOS GB 2L, IBAN: GB91 RBOS PAYMENTS BY CREDIT or DEBIT CARD Card Number VISA / MASTERCARD / SWITCH Expiry Date Name on card Cardholders Signature Issue No: Start Date Expiry Date Special Information (eg wheelchair user) Dietary Requirements The registration fee will be refunded if notification of cancellation is received by 30th April 2010 although an administration charge of 10% will be made. After 1st May 2010, no refunds will be made. Delegate places are transferable. Date Signature Charity Registration Number: VAT Registration Number:

6 CONFERENCE STEERING COMMITTEE Dr K Albritton (Cook Children s Hospital, University of North Texas Health Science Center, USA) Prof R Barr (McMaster University, Canada) Dr A Bleyer (St Charles MedCenter, Oregon, USA) Prof R Pinkerton (Mater Hospitals, Australia) Prof J Spinetta (Prof Emeritus of Psychology, San Diego State University, USA) Ms D Tindle (Queensland Paediatric Haematology/Oncology Network, Australia) Prof JM Birch (Royal Manchester Children s Hospital) Prof Tim Eden, Dr M Leahy, Ms S Smith (Christie Hospital, Manchester) Dr D Hobin (Consultant Paediatric Oncologist, Birmingham Children s Hospital) Ms L Hooker (Children and Young People IOG Implementation, National Cancer Action Team) Dr I Lewis, Ms S Morgan (St James s University Hospital, Leeds) Dr L Fern, Ms V Riley, Dr J Whelan (University College Hospital, London) Dr C Rowntree (University Hospital Wales, Cardiff) Dr K Windebank (Royal Victoria Infirmary, Newcastle upon Tyne) and Mr S Davies, Mr N Revell, Mrs M Whiteson MBE (Teenage Cancer Trust) Teenage Cancer Trust reserves the right to alter any part of this conference programme in the event of unforseen circumstances Your name and place of work will appear on the conference attendance list in the form given to us on the registration document. Teenage Cancer Trust will not disclose your contact details to any third party. Teenage Cancer Trust maintains a secure bookings database for the organisation of the International Conferences. Information you supply on this registration form will be held by Teenage Cancer Trust and retained only to facilitate future bookings and inform you of other conferences in this series. Please tick this box if you do not wish information supplied to us to be used in this way. INVOICING DETAILS CONTACT NAME INSTITUTION ADDRESS TELEPHONE NUMBER ADDRESS PO NUMBER (If applicable) Please return form to: SAM GRESHOFF, Teenage Cancer Trust, 3rd Floor, 93 Newman Street London, W1T 3EZ, UK or FAX to: +44(0) Confirmation of receipt of the registration form will be sent by where possible CPD ACCREDITATION APPLIED FOR Hotel accommodation information and booking form will be ed to you as part of the delegate confirmation pack