7/15/2013. Presenter. Laura S. Beving. Overview. Manager, Stroke Survivor and Caregiver Education and Outreach

Transcription

1 Presenter Laura S. Beving Manager, Stroke Survivor and Caregiver Education and Outreach Overview What is LEAP? Why LEAP? How does LEAP work? Where to hold a LEAP program Objectives and goals Materials for programs Suggestions for implementation Contact information 1

2 Poll How confident are you in discussing strokerelated topics with stroke survivors and caregivers? Rate on a scale 1 4 ( 1= Not very confident, 4 = Very confident) Do you currently have a post-stroke education class? To ask a question of the speaker Type question here. Make sure Send to: drop down is marked to All Panelists What is LEAP? A structured yet flexible post-stroke education program for stroke survivors and caregivers Developed by healthcare professionals Free! All materials necessary for program available at no cost at 2

3 Why LEAP? People spend less time hospitalized and in rehab; additional education is necessary to live their best life after a stroke More than 7 million stroke survivors in U.S. Affordable Care Act Provisions Improved health literacy Reducing readmissions Why LEAP? (continued) Research supports importance of post-stroke education Post-stroke education has been demonstrated to result in better recovery outcomes Well-organized, multidisciplinary education has been shown to improve outcomes Duncan, Zorowitz, Bates, Choi, Glasberg, Graham, et al. Stroke. 2005;36: e100 e143. Clarke, Barker Collo, & Feigin. Top Stroke Rehabil Jan Feb;19(1):32 9. Survivors and caregivers seek out stroke related information significantly more during rehab/recovery Stroke awareness significantly increases after stroke Caregivers/Survivors Who Reported Seeking Out Stroke-related Information During the Continuum 120% 100% 80% Before stroke During acute care During rehab/recovery 93.5%* 90.8%^ 79.8%* 97.1%^ 60% 40% 20% 22.3%* 28.3%^ 0% Stroke Survivors (N = 1620) Caregivers (N = 752) *Significantly differ at the p <.001 level ^Significantly differ at the p <.001 level 3

4 Survivors seek out information most during rehab/recovery from a healthcare professional Number of Survivors Who Selected Source Stroke Survivors Reported Sources for Stroke-related Information Before, During and After Their Stroke Before stroke During acute care During rehab/recovery NIH AHA ASA NSA Internet Healthcare professional How does LEAP work? 4 modules taught over a few weeks or months Each module about 2.5 hrs. Share facts about stroke, rehab and secondary prevention Explain psychosocial aspects of changes in post-stroke life Information about community and national resources Embracing living best life after a stroke Where? Ideally, hold classes in: Hospital Rehabilitation center Health clinic Facilitates the participation of HCPs Rooms should be ADA accessible with accessible restrooms nearby 4

5 LEAP Objectives and Goals To enhance participants : Knowledge Stroke effects and aftermath Rehabilitation options Common psychosocial and emotional responses Key resources available Skills -- Relationships, self-care and self-advocacy Adaptive strategies for ADL Stress management Improve language and memory deficits Attitudes about post-stroke living Recognize common misconceptions Value of mutual support among survivors and caregivers Value of living in the present Materials Housed at (login required) Materials include: Facilitator s guide Participant handouts PowerPoint presentations Marketing tool kit Signage Evaluations Facilitator s Guide Contents LEAP overview LEAP learning objectives Implementation guide for modules Timed agenda Talking points List of supplies to support program Facilitator tips 5

6 Example of Materials Handouts Blood pressure log Registration forms Stroke quizzes Meaningful messages Informational pieces Evaluations Certificate of completion 6

7 PowerPoint Presentations Stroke 101 What is a stroke? Recovery and Rehabilitation Drug Therapies Wellness Wheel Will add more when available Marketing Tool Kit Flier with program details copy Initial Reminder Press release PSA language Sample Facebook post Art files with logo Marketing LEAP webinar How to market your LEAP program July 30, 2013, at 1 p.m. EDT/ 11 a.m. MDT Presenter: Clair Diones Director, Marketing & Communications National Stroke Association 7

8 Suggestions for Implementation Implementation checklist At least two (2) facilitators Stroke coordinator and a therapist (OT/PT/SLP) Pre-registration if possible Ideal class size is 20 stroke survivors and their caregivers Tables in U formation for sessions 1 and 4 Promotes sharing and getting to know each other Implementation (continued) Clearly define group norms and expectations Briefly review previous module at beginning of each class Name tents rather than name tags Provide note cards for participants questions Implementation (continued) Resource table in back of room There are numerous available handouts, not all are applicable to all participants Wheelchair accessible Including accessible restrooms nearby Spread sessions over at least 1 month Hold program twice per year 8

9 Barriers to Implementation What barriers do you anticipate in the implementation of the LEAP program at your facility? At each session Registration table Blood pressure check station Relaxation exercise Knowledgeable guest speakers Comfort break with healthy snacks Resource Table Evaluations After each module for internal feedback Final evaluation at end of four modules share with National Stroke Association to report back to funders and improve program Three months post-program share with National Stroke Association to report back to funders and improve program 9

10 To ask a question of the speaker Type question here. Make sure Send to: drop down is marked to All Panelists Contact Information If you have any questions contact: Valerie at vsiebert-thomas@stroke.org Laura at lbeving@stroke.org This project was developed by National Stroke Association with sponsorship provided by Patterson Foundation, Genentech, Inc. and the Allergan Foundation 10

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