Table Of Content. Joint Action on Dementia Summary... 4 Work Package Coordinator, Leader contact and partners...

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1 Table Of Content Joint Action on Dementia Summary... 4 Work Package Coordination of the project Dissemination of the project Evaluation of the Joint Action Diagnosis and post-diagnostic support Crisis and care coordination Quality of care in Residential care Dementia-friendly communities Coordinator, Leader contact and partners UNIVERSITE LYON 1 CLAUDE BERNARD UNIVERSITE LYON 1 CLAUDE BERNARD UNIVERSITE LYON 1 CLAUDE BERNARD UNIVERSITE LYON 1 CLAUDE BERNARD UNIVERSITE LYON 1 CLAUDE BERNARD ISTITUTO SUPERIORE DI SANITA ISTITUTO SUPERIORE DI SANITA UNIWERSYTET MEDYCZNY W LUBLINIE UNIWERSYTET MEDYCZNY W LUBLINIE UNIWERSYTET MEDYCZNY W LUBLINIE UNIWERSYTET MEDYCZNY W LUBLINIE BYLGARSKO DRUZHESTVO PO DEMENZII HELSEDIREKTORATE HELSEDIREKTORATE MINISTERIE VAN VOLKSGEZONDHEID, WELZIJN EN SPORT SYKEHUSET I VESTFOLD HF ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINON ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINON ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINON Department of Health Department of Health Department of Health Department of Health AGENCIA DE QUALITAT I AVALUACIO SANITARIES DE CATALUNYA AGENCIA DE QUALITAT I AVALUACIO SANITARIES DE CATALUNYA AGENCIA DE QUALITAT I AVALUACIO SANITARIES DE CATALUNYA AGENCIA DE QUALITAT I AVALUACIO SANITARIES DE CATALUNYA CENTRUL NATIONAL DE SANATATE MINTALA SI LUPTA ANTIDROG CENTRUL NATIONAL DE SANATATE MINTALA SI LUPTA ANTIDROG Outputs D2.6 Layman version of the final report D4.3 Evidence Report post diagnostic Support D4.2 Report on testing Diagnosis D5.2 Report on Testing Crisis and Care Co-ordination Page 1/28

2 D6.2 Report on Testing Quality of Care in Residential Settings D7.2 Report on Testing Dementia Friendly Communities D3.3 Evaluation Report Testing Reports D2.5 Final Dissemination Report D3.4 Evaluation Report Joint Action D1.2 Final Report D1.1 Interim report D2.2 Website D5.1 Evidence Report Crisis and Care Co-Ordination D6.1 Evidence Report Quality of Care in Residential Settings D3.2 Evaluation Report Evidence Reports D3.1 Evaluation Plan D2.3 Dissemination Plan D2.4 Interim Dissemination Report D2.1 Leaflet D7.1 Evidence Report Dementia Friendly Communities D4.1 Evidence Report Diagnosis Page 2/28

3 Joint Action on Dementia JA GPSD [705038] START DATE: 01/03/2016 END DATE: 31/10/2019 DURATION: 36 month(s) CURRENT STATUS: Ongoing PROGRAMME TITLE: 3rd Health Programme ( ) PROGRAMME PRIORITY: - CALL: Grants for actions co-financed with Member State authorities 2014 (Joint Actions) TOPIC: Dementia Joint Action EC CONTRIBUTION: EUR KEYWORDS: Care, Collaboration On Key Aspects Of Dementia Diagnosis, Treatment And Support PORTFOLIO: Major and chronic diseases Page 3/28

4 SUMMARY Project abstract Joint Action on Dementia The Joint Action will focus on two phases on work: approximately 12 months on developing a consensus on the best evidence of effective action in 4 key areas (diagnosis and post-diagnostic support; crisis and care coordination; quality of care in residential care settings; and dementia-friendly communities); and approximately 24 months on testing the best evidence of effective action in localities to develop a greater understanding of how change can be taken forward in practice.in addition, there will be 3 additional components: evaluation of the joint action (outputs and quality: dissemination; and overall coordination of this project.the project will be achieved through collaborative effort, with the 4 main work plans having identified leads or co-leads and other countries contributing time to the work. Summary of context, overal objectives,strategic, relevance and contribution of the action The World Health Organisation (WHO) recognises dementia as a public health priority. In May 2017, the World Health Assembly endorsed the Global action plan on the public health response to dementia The Plan provides a comprehensive blueprint for action for policy-makers, international, regional and national partners, and WHO in areas such as: increasing awareness of dementia and establishing dementia-friendly initiatives; reducing the risk of dementia; diagnosis, treatment and care; research and innovation; and support for dementia carers. Dementia is a devastating condition for the people affected, their family and friends, and for health systems. The OECD (Organisation for Economic Cooperation and Development) has been working on how health systems need to be adapted to rise to the challenge; looking at ways to harness information technologies and big data to improve the prevention and treatment of the disease; and examining the innovation model to mobilise the research and tools needed to address dementia. The EU Council of Ministers adopted Council Conclusions on Supporting people living with dementia: improving care policies and practices on the 7 December 2015 which, inter alia, welcomed the second Joint Action (JA) on Dementia Act on Dementia, to be launched in 2016, and invited Member States to: address dementia as a priority through cross-sectoral national strategies, action plans or programmes on dementia to provide appropriate treatment and assistance to people living with dementia, their families and caregivers, while ensuring the sustainability of health and social security systems, and to continue to devote special attention to strengthening the coordination within Member States of relevant policies in the field of dementia, including reinforcing the role of primary care. EU Joint Actions are designed to Page 4/28

5 encourage governments, academics and other non-profit organisations to join forces across Europe to tackle problems shared by many EU Member States and are co-financed with Member State authorities under the Health Programme. This Joint Action s outputs are intended to provide practical guidance for policymakers developing and implementing their national dementia plans, policies and strategies. It aims to provide cost-effective and practical examples of the core components of good dementia diagnosis, care and support, with the ultimate objective of improving the quality of life for those living with dementia and their carers. Improving diagnosis, services and community support for people with dementia will help to ensure that a greater proportion of people with the disease will be enabled to live a good quality of life in their own home and in their community for longer. This in turn will contribute to avoiding the financial burden of health and social care expenditure on unnecessary hospital and residential care admissions. When people do require institutional care, it is important that they receive safe, effective and high quality care, which protects and promotes their dignity and respect and maintains their quality of life. This work will build on the previous JA (ALCOVE) and contributes to the overarching objective of the EU Health Programme to: Promote health, prevent diseases and foster supportive environments for healthy lifestyles taking into account the health in all policies' principle, Contribute to innovative, efficient and sustainable health systems and Facilitate access to better and safer healthcare for Union citizens. JA-DEM2 is divided in three horizontal WPs (WPs 1 to 3) and 4 core WPs (WPs 4 to 7). Three of the core WPs are based traditionally in the sphere of health and social care delivery (Diagnosis and post diagnostic support, Crisis and Care Coordination, and Residential Care respectively) while the fourth cuts across several areas of policy (Dementia Friendly Communities). Methods and means JA DEM2 is broken down into three phases of work. The first phase was focussed on surveying the available evidence, reaching consensus on best practice models for change to be tested in localities. In the second phase, each core WP will agree test sites and which best practice models are to be tested. The third phase will allow each WP to test the best practice models of change. During this reporting period, phase one has been completed for all core WPs, and phase two is well underway for all WPs. During phase one, primary research activities have taken the form of online surveys, consultative meetings and interviews. Secondary research activities have been extensively used in this first phase of the JA The methodology employed within each WP has been peer reviewed and evaluated by WP3 (AQUAS), and recommendations to improve the robustness of the final Page 5/28

6 products from the first phase of this project (evidence reports) have been accepted by each of the core WP areas. During the evidence-gathering phase efforts have been made to include the target group people living with dementia or those with the Behavioural and Psychological Symptoms of Dementia (BPSD) and their carers. The target group has been reached with the help of the Alzheimer Europe Working Group from People with Dementia. Alzheimer Europe is also represented on the advisory and steering groups of the project. Care has also been taken to ensure that a similar methodology to obtain models of best practice in the 4 core areas of Act on Dementia Joint Action During the first eighteen months, the partners in each of the WPs have worked hard to achieve deliverable outputs through several meetings and teleconferences. However there have been delays. These have been due partly to the complexity of work plans to achieve the best primary and secondary evidence, an partly as a result of organisational restructuring, illness of key personnel and delays in recruitment of research staff. However, despite these delays significant progress has been made across all areas of work. Work performed during the reportingperiod Work Package 4 - Deliverable 1 (WP4.D1) - Report on the benefits and risks of NCD/dementia diagnosis: Literature research, analysis and synthesis (France); Elaboration of the first version of the report (France, with support of WP4 partners); Discussion of the associated content in WP4 meetings (physical meeting, conference calls) (All WP4 partners) & amendment of the document (France); Presentation of the main associated conclusions at the Alzheimer Europe meeting (Brussels, 28th of June 2017) (France). - Survey on the current practices about diagnosis & post-diagnosis supports in Europe (in link with WP4.D2 & WP4.D3) : Elaboration of the different parts of the survey: Governments, Health Professionals, Patient/Family Associations (France, in collaboration with other WP4 partners); Conception & implementation of the online surveys (France); Identification of the respondents (All WP4 partners); Sending of the links related to the online surveys in April 2017 to the respondents (France, with support of other WP4 partners); Collect of the answers - work in progress (France); Presentation of the preliminary results at the Alzheimer Europe meeting Page 6/28

7 (Brussels, 28th of June 2017) (France). - Deliverable 2 (WP4.D2) - Report on testing evidence-based examples of best practices in diagnosis of dementia : Finalization of the shared scheme on dementia diagnosis graduated strategy (France, in collaboration with other WP4 partners); Redaction of the associate scientific publication (France); Submission of 2 abstracts for presentation in congresses to come (2017 Alzheimer Europe Conference and to 2017 European Union Geriatric Medicine Society Conference) (France); Choice of the implementation projects to be further tested: (1) Destigmatisation program towards the GPs; (2) (Nurse/GP cooperation, and (3) Telemedicine to improve dementia detection in nursing homes (All WP4 partners). Work package 5 WP5 has worked to complete the deliverable Review and survey on relevant research and practices of dementia care coordination and crisis response services for people with dementia. in particular, WP5 tried to improve the synthesis of evidence either building tables with different types of studies than reporting specific evidence of the RCTs already previously collected in accordance to the PICO process; reviewed the evidence on Management of crises and access to emergency care or acute care including other 11 articles -WP5 has worked to complete the qualitative and quantitative selfadministered questionnaire/survey which was sent to all EU Member States, not only those participating in the Joint Action, and WP5 has obtained a response rate = 20/29(69%) This includes working with Alzheimer Europe to extend scope to survey to countries that did not participate in the survey conducted in December. (Austria, Belgium, Croatia, Denmark, Finland, Poland, Romania, Sweden) WP5 began discussions on Deliverable Identification of the best practice in care co-ordination and crisis response services for people with dementia. WP5 Italian team contributed to WP 4 deliverable 1, and to call conference to WP4 on survey items/questions and procedures. WP5 co-leader, Nicola Vanacore, went to Modena (Emilia Romagna Region) to meet managers of Health Local (AUSL Modena), to set out the objectives of our JA and to discuss the possibility that Modena could participate in testing the best practice models identified in the JA. AUSL Modena has developed a network of assistance and care of services dedicated to dementia formed by: Centres for Cognitive disorders and dementia; temporary residential care for dementia; day care dementias; residential and semi-residential facilities (where the percentage of people with dementia is high);nuclei in primary care with project dedicated to cognitive disorders; five voluntary associations of family members of people with dementia. In this AUSL hav Page 7/28

8 The main output achieved so far and their potential impact and use by target group (including benefits) Work packages 4-7 have each undertaken evidence reviews, which are near final and shortly to be submitted on the EU Portal. Each work package has identified best practice (s) during phase 1 work, which will be tested during phase 3 of the JA in some pilot sites. WP 4 - DEMENTIA/NEUROCOGNITIVE DISORDERS (NCD) DIAGNOSIS AND POST DIAGNOSTIC SUPPORT The aim of this work package is to provide to the EU Members States clear arguments, as well as evidence-based/proven information when applicable, regarding both the advantages and the disadvantages associated with the diagnosis at each step of the disease, both for people living with dementia/ncd, but also for their family and caregivers, for the healthcare providers, and for the health and social care economy, through a specific analysis of the existing literature on the topic. An evidence review, which was the first deliverable of this WP has summarised the evidence of the benefits/profits and the risks/challenges/disclosures associated with the dementia/ncd diagnosis and WP4 has set out a new diagnosis strategy for dementia/ncd which has been validated both by the European Commission and the French medical institutions. The evidence review is being peer reviewed by the evaluation team (WP3) and will be placed on the JA website once it has been signed off by the Programme Board. WP4 has undertaken associated literature searches and analysis on the best tools for detection/diagnosis of NCD/dementia, and started the construction of the pilot projects on three main topics following the recent observations/analyses and the preliminary results of their online surveys, which are the following: (1) A destigmatisation programme aimed at General Practitioners (GPs) regarding NCD/dementia; (2) A nurse/gp cooperation programme to improve NCD/dementia detection; and (3) A telemedicine programme to improve NCD/dementia detection in nursing homes. These 3 pilot projects will start to define their implementation plans in November 2017 and will start executing their plans in January The feasibility report and the associated results of testing each of these areas, which aim to improve both detection and diagnosis for people with NCD/dementia, will be included within the second deliverable. The third deliverable will provide and evidence report on the post-diagnosis supports for people living with NCD/dementia. WP4 has built and reached agreement for a hierarchized diagnosis strategy tailored to the patient to better determine and explain the complex diagnosis Page 8/28

9 routes as regard to best evidence and international practices. This consensual strategy will help to better involve primary care in European countries, especially GP s, in neurocognitive detection, and adapt the diagnosis processes to the patient/caregiver wills and needs. WP5 Crisis and Care Co-ordination The aim of this work package is to provide to the EU Members States clear, evidence-based and tested information and recommendations on how to effect change and improvement in care co-ordination and crisis response services for people with dementia. To achieve this, WP5 have written a report identifying evidence-based best examples of best practice in care co-ordination and crisis response services for people with dementia. This involved mapping of relevant research on and practices of dementia care co-ordination in participating countries, including defining dementia crisis and care co-ordination. This was done by defining research questions, including the definition of crisis and care co-ordination in dementia, and scoping a definition of what will be considered as crisis and care coordination, and to whom and in which setting this definitions will be applied. A systematic review of published literature and a review of available public documents such as guidance, policies and legislations, was carried out using a set of defined keywords which included care pathways for patients with dementia, information on Achieved outcomes compared to the expected outcomes During the reporting period, each core WP had produced a near final evidence report and all were awaiting sign off by the Programme Board at the time of writing. However, at this stage the JA was not expecting to have delivered evidence to demonstrate significant progress towards each of the four expected Outcomes from Act on Dementia. Below is a brief review of achievements against each outcome: (1) Evidence of benefit in test sites of applying best practice Test sites are not yet activated. (2) Evidence of adoption of evidence in Member States not participating in the Joint Action (assessed using measures and methodology agreed in the Evaluation Plan). Evidence will not be available till nearer the end of the JA. Page 9/28

10 (3) Evidence of stronger collaboration between Member States in respect of dementia. The JA partners have already demonstrated stronger collaboration by looking at ways to combine pilot testing between each of the core WPs. There is also evidence of stronger international collaboration as the WHO dementia Friendly toolkit is closely aligned to the work of this JA WP7. (4) Evidence for continued EU prioritisation of dementia. The continued work programme of the EU Expert Group on Dementia, and the renewal of, or launches of Dementia Policy and Strategy documents by Member States is evidence of the continuing prioritisation of dementia. Dissemination and evaluation activitiescarried out so far and their major results Dissemination WP2 The aims of this WP are: to ensure that people and organisations providing institutional or statutory care for people with dementia and officials and politicians within Member States who have the responsibility for health and social care services know about the (JA); and to ensure that learning from the JA is shared widely so that people living with dementia and the people who care for them benefit from improved services. The activities carried out during the first 18 months related to these objectives. Key actions included: Establishment of a Dissemination Advisory Group (DAG) and arranging meetings of the group; (the DAG includes a representative of each WP and Alzheimer Europe) Development and provision of the visual identity of the JA logo and branding Preparation of the EU JA -Act on Dementia leaflet, display banner and business card Conducting of a procurement exercise to secure expert advice on website development and working closely with that agency on website development Launch of temporary website (October 2016)and establishment of static website and ongoing work to finalise the full website Preparation of the Communication Digital Strategy, and dissemination work plan and circulation to DAG and Programme Board (PB) members; Initial stakeholder mapping exercise; Provision of templates for Power Point presentations and update documents; Participation in dissemination activities (conferences, meetings etc). Page 10/28

11 Development of a calendar of events Attendance at Alzheimer Europe Conference in Copenhagen in 2016 and Berlin 2017 Attendance at the EU Expert Group on Dementia, which was held during the Council of Europe Presidency Event in Bratislava 2016 and Malta in 2017 Input to The World Health Organisation (WHO) consultation on its Draft WHO global action plan on the public health response to dementia The plan was adopted by WHO Member States at the 70th World Health Assembly in May In June 2017, the JA was invited to present to the AE Public Affairs Committee. WP3 Evaluation The specific aims of this WP are: To evaluate the impact of the JA using appropriate qualitative and quantitative measures. To support the production of interim and final reports on the JA Act on Dementia. To ensure that individual WP deliverables meet an acceptable quality threshold. Activities carried out during the first 18 months of the JA have included: The development of the JA Evaluation Plan, first deliverable of WP3, agreed by Joint Action Programme Board; this is a live document subject to ongoing minor modification as the JA proceeds; also, producing a meeting schedule. The Evaluation plan includes two sections: part I and part II. Part I includes the following tasks: Evaluation of accomplishment of milestones and deliverables and their deadlines (task 1), Evaluation of accomplishment of all meetings and the quality of Programme Board (PB) and final meetings (task 2). Peer reviewing activities to promote methodological quality of key documents and materials (task 3). Evaluation of methodological quality threshold of key deliverables (task 4). Part II includes the task 5, related to the impact assessment of JA Act on Dementia. Measuring impact assessment within the JA Act on Dementia implies the degree in which main goals of the project are achieved & benefits are evidenced at short, medium and long term related to these aims. The tasks 5 are divided in different subtasks detailed in the Evaluation plan. Establishment of an Evaluation Advisory Group (EAG); the EAG includes a representative of each WP and Alzheimer Europe. Page 11/28

12 WP3 has worked also in its second deliverable, the implementation of the Evaluation plan. WP3 arranged some meetings with each WP to discuss and close methodological quality assessment and peer-review of all work plans and technical reports Page 12/28

13 Work package Work Package 1: Coordination of the project Start month: 1 End month: 36 Work Package Leader: Scottish Gov Establish Joint Action Programme Board to give overall direction to the Joint Action. Membership to include each of the WP leads as well as people living with dementia and their carers and representatives of the European Commission and Chafea. Co-ordination arrangements in place including communication plan for working with participants, to include programme of meetings including at least one face to face meeting of Programme Board each year. programme of engagement with each Work Package to track progress against Work Package Work Plans (from M3, tracking milestones and deliverables monthly by reference to the website). programme of engagement with each Work Package to track activity in relation to spend to ensure resources are deployed in accordance with the rules on eligibility. website in place for participants for storage of documents such as agendas, minutes of meetings and other papers. Development and maintenance of the risk register. Consideration of reports from work packages and secretariat support to Joint Action Programme Board which will agree Reports from WP4-7 taking account of advice from WP3. Work Package 2: Dissemination of the project Start month: 1 End month: 36 Work Package Leader: Scottish Gov Establish a Dissemination Advisory Group (DAG) including those living with dementia and their carers. Project plan agreed for Work Package, including programme of meetings, monitoring of progress on preparation and implementation of the dissemination plan and tracking of impact. Preparation of initial materials, including a leaflet to promote the project and common presentation materials for use at conferences and events. Review and updating of promotional and presentation materials throughout the Page 13/28

14 Joint Action to ensure material remains up to date and relevant. Creation of a website to include materials promoting and explaining the Joint Action, to be updated by Work Package leads as progress is made on each of the Objectives. Preparation of a full Dissemination Plan on the basis of work with the DAG and Work Package leads to identify key audiences and opportunities to promote the overall Joint Action and the work taken forward by the individual Work Packages. To include (1) a calendar of events where the Joint Action will be presented; (2) networks and organisations that will receive updates on the Joint Action; (3) plans for academic and non-academic publications promoting the work and outcomes of the Joint Action; (4) plans for use of social media to promote the Joint Action. Regular review of the Dissemination Plan to track progress and consider amendments. Planning and delivery of a conference to conclude the Joint Action. Production of Interim and Final Dissemination Reports to report on activities to promote the evidence and learning from the Joint Action. The Work Package lead will lead each of the tasks above working with the other Work Package leads, participants and wider stakeholders. Key materials and plans will be considered by the DAG. Work Package 3: Evaluation of the Joint Action Start month: 1 End month: 36 Work Package Leader: Spain 2 AQUAS Establish Evaluation Advisory Group (EAG) including those living with dementia and their carers. Collaborate with the Work Package leads and EAG to produce a draft Evaluation Plan (M3), which sets out the methodology by which the Joint Action will be evaluated including (1) process measures to assess and report on the quality of WP process and reports; (2) qualitative and quantitative measures to be adopted by Work Packages during the test site evaluations; (3) measures and approach to assess the overall impact of the Joint Action. Engage with Work Package leads throughout the Joint Action to assess progress using the methodology and measures set out in the Evaluation Plan. AQuAS is the lead partner for each of these tasks. Page 14/28

15 Work Package 4: Diagnosis and post-diagnostic support Start month: 1 End month: 36 Work Package Leader: France UCBL Description of work (where appropriate, broken down into tasks), lead partner and role of applicants Development and agreement of a project plan for the Work Package (see Chapter 15, Annex), to include the programme of meetings of WP members, arrangements for engagement with expert groups and communications strategy for the management of work within the Work Package. Survey of available evidence to develop a consensus report on the benefits and risks of diagnosis of dementia (will consider available literature and engage with partners, stakeholders, and expert networks, including those living with dementia and their carers). Survey of available evidence to develop a consensus report on best strategies to take forward diagnosis of dementia (will consider available literature and engage with partners, stakeholders, and expert networks, including those living with dementia and their carers). Agreement of test sites and which best practice models are to be tested. Testing of best practice models of change in respect of diagnosis in localities. Production of evaluation report in accordance with Evaluation Plan. Survey of available evidence to develop a consensus report to define support goals and make recommendations for implementing post-diagnostic support in Member States (will consider available literature and engage with partners, stakeholders, and networks, including those living with dementia and their carers). The WP lead will lead and co-ordinate the work, working with other participants as agreed. Work Package 5: Crisis and care coordination Start month: 1 End month: 36 Work Package Leader: Netherlands Page 15/28

16 Development and agreement of a project plan for the Work Package (see Chapter 15, Annex), to include the programme of meetings of WP members, arrangements for engagement with expert groups and communications strategy for the management of work within the Work Package. Survey of available evidence to agree best practice models for change to be tested in localities (will consider available literature and engage with partners, stakeholders, and networks, including those living with dementia and their carers). Agreement of test sites and which best practice models are to be tested. Testing of best practice models of change in localities. Production of evaluation report in accordance with Evaluation Plan. The WP lead will lead and co-ordinate the work, working with other participants as agreed. Work Package 6: Quality of care in Residential care Start month: 1 End month: 36 Work Package Leader: Norway 2 Development and agreement of a project plan for the Work Package (see Chapter 15, Annex), to include the programme of meetings of WP members, arrangements for engagement with expert groups and communications strategy for the management of work within the Work Package. Survey of available evidence to agree best practice models for change to be tested in localities (will consider available literature and engage with partners, stakeholders, and networks, including those living with dementia and their carers). Agreement of test sites and which best practice models are to be tested. Testing of best practice models of change in localities. Production of evaluation report in accordance with Evaluation Plan. The WP lead will lead and co-ordinate the work, working with other participants as agreed. Page 16/28

17 Work Package 7: Dementia-friendly communities Start month: 1 End month: 36 Work Package Leader: UK Dept of H Development and agreement of a project plan for the Work Package (see Chapter 15, Annex), to include the programme of meetings of WP members, arrangements for engagement with expert groups and communications strategy for the management of work within the Work Package. Survey of available evidence to agree best practice models for change to be tested in localities (will consider available literature and engage with partners, stakeholders, and networks, including those living with dementia and their carers). Agreement of test sites and which best practice models are to be tested. Testing of best practice models of change in localities. Production of evaluation report in accordance with Evaluation Plan. The WP lead will lead and co-ordinate the work, working with other participants as agreed. Page 17/28

18 COORDINATOR, LEADER CONTACT AND PARTNERS COORDINATOR SCOTTISH GOVERNMENT (SG) Victoria Quay EH6 6QQ EDINBURGH United Kingdom WEBSITE: Project leader contact Name: BARCLAY Gillian Phone: PARTNERS UNIVERSITE LYON 1 CLAUDE BERNARD Street: BOULEVARD DU 11 NOVEMBRE 1918 NUM43 City: VILLEURBANNE CEDEX 761 Country: France UNIVERSITE LYON 1 CLAUDE BERNARD Street: BOULEVARD DU 11 NOVEMBRE 1918 NUM43 City: VILLEURBANNE CEDEX 761 Country: France UNIVERSITE LYON 1 CLAUDE BERNARD Street: BOULEVARD DU 11 NOVEMBRE 1918 NUM43 City: VILLEURBANNE CEDEX 761 Country: France Page 18/28

19 UNIVERSITE LYON 1 CLAUDE BERNARD Street: BOULEVARD DU 11 NOVEMBRE 1918 NUM43 City: VILLEURBANNE CEDEX 761 Country: France UNIVERSITE LYON 1 CLAUDE BERNARD Street: BOULEVARD DU 11 NOVEMBRE 1918 NUM43 City: VILLEURBANNE CEDEX 761 Country: France ISTITUTO SUPERIORE DI SANITA Street: Viale Regina Elena 299 City: ROMA Country: Italy ISTITUTO SUPERIORE DI SANITA Street: Viale Regina Elena 299 City: ROMA Country: Italy UNIWERSYTET MEDYCZNY W LUBLINIE Street: AL.RACLAWICKIE 1 City: LUBLIN Country: Poland UNIWERSYTET MEDYCZNY W LUBLINIE Street: AL.RACLAWICKIE 1 City: LUBLIN Country: Poland Page 19/28

20 UNIWERSYTET MEDYCZNY W LUBLINIE Street: AL.RACLAWICKIE 1 City: LUBLIN Country: Poland UNIWERSYTET MEDYCZNY W LUBLINIE Street: AL.RACLAWICKIE 1 City: LUBLIN Country: Poland BYLGARSKO DRUZHESTVO PO DEMENZII Street: Chataldja str 25 City: 1504 Sofia Margarita Raycheva Country: Bulgaria HELSEDIREKTORATE Street: Universitetsgata 2 City: 0130 Oslo 7000 Country: Norway HELSEDIREKTORATE Street: Universitetsgata 2 City: 0130 Oslo 7000 Country: Norway MINISTERIE VAN VOLKSGEZONDHEID, WELZIJN EN SPORT Street: Postbus City: 2500 BD Den Haag Country: Netherlands Page 20/28

21 SYKEHUSET I VESTFOLD HF Street: Taranrodveien 47 City: 3103 Tonsberg 2136 Country: Norway ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINON Street: 6 CHRISTOU LADA STR City: ATHINA 000 Country: Greece ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINON Street: 6 CHRISTOU LADA STR City: ATHINA 000 Country: Greece ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINON Street: 6 CHRISTOU LADA STR City: ATHINA 000 Country: Greece Department of Health Street: Waterloo Rd City: SE1 8UG London Country: United Kingdom Department of Health Street: Waterloo Rd City: SE1 8UG London Country: United Kingdom Page 21/28

22 Department of Health Street: Waterloo Rd City: SE1 8UG London Country: United Kingdom Department of Health Street: Waterloo Rd City: SE1 8UG London Country: United Kingdom AGENCIA DE QUALITAT I AVALUACIO SANITARIES DE CATALUNYA Street: ROC BORONAT City: BARCELONA 000 Country: Spain AGENCIA DE QUALITAT I AVALUACIO SANITARIES DE CATALUNYA Street: ROC BORONAT City: BARCELONA 000 Country: Spain AGENCIA DE QUALITAT I AVALUACIO SANITARIES DE CATALUNYA Street: ROC BORONAT City: BARCELONA 000 Country: Spain AGENCIA DE QUALITAT I AVALUACIO SANITARIES DE CATALUNYA Street: ROC BORONAT City: BARCELONA 000 Country: Spain Page 22/28

23 CENTRUL NATIONAL DE SANATATE MINTALA SI LUPTA ANTIDROG Street: PITAR MOS, 15, SECTOR 1, BUCHAREST City: BUCHAREST Country: Romania CENTRUL NATIONAL DE SANATATE MINTALA SI LUPTA ANTIDROG Street: PITAR MOS, 15, SECTOR 1, BUCHAREST City: BUCHAREST Country: Romania Page 23/28

24 OUTPUTS D2.6 Layman version of the final report Scottish Gov Expected on: 01/11/2019 This is a short (e.g. 10 pages) version of the final report, written for the interested public as a target group. D4.3 Evidence Report post diagnostic Support France UCBL Expected on: 01/09/2019 Report identifying evidence-based best examples of best practice in diagnosis. D4.2 Report on testing Diagnosis France UCBL Expected on: 01/09/2019 Report identifying evidence-based best examples of best practice in postdiagnostic support. D5.2 Report on Testing Crisis and Care Coordination Netherlands Expected on: 01/09/2019 Report on testing evidence-based examples of best practice in care coordination and crisis response services for people with dementia. D6.2 Report on Testing Quality of Care in Residential Settings Norway 2 Page 24/28

25 Expected on: 01/09/2019 Report on testing evidence-based examples of best practice in improving quality of care for people with dementia in residential settings. D7.2 Report on Testing Dementia Friendly Communities UK Dept of H Expected on: 01/09/2019 Report on testing evidence-based examples of best practice in improving support for people with dementia to live at home through the development of dementia friendly communities. D3.3 Evaluation Report Testing Reports Spain 2 AQUAS Expected on: 01/10/2019 Evaluation Report on WP4-7 Reports on testing evidence-based examples of best practice D2.5 Final Dissemination Report Scottish Gov Expected on: 01/11/2019 Report that describes the activities to promote the Joint Action and share the learning D3.4 Evaluation Report Joint Action Spain 2 AQUAS Expected on: 01/11/2019 Evaluation Report on impact of Joint Action. D1.2 Final Report Scottish Gov Expected on: 01/11/2019 Page 25/28

26 Final report describing the project implementation and the results achieved (with WP4-7 Reports as Annexes). D1.1 Interim report Scottish Gov Published on: 12/06/2018 Report describes the activities carried out, milestones and results achieved in the first half of the project. Deliverables can be attached as annexes. D2.2 Website Scottish Gov Published on: 01/06/2018 Website established with public facing and closed part to support collaboration. (So is both PU and CU) D5.1 Evidence Report Crisis and Care Co- Ordination Netherlands Published on: 01/06/2018 Report identifying evidence-based best examples of best practice in care coordination and crisis response services for people with dementia. D6.1 Evidence Report Quality of Care in Residential Settings Norway 2 Published on: 01/06/2018 Report identifying evidence-based best examples of best practice in improving quality of care for people with dementia in residential settings. D3.2 Evaluation Report Evidence Reports Spain 2 AQUAS Page 26/28

27 Published on: 01/06/2018 Evaluation Report on WP4-7 Reports identifying evidence-based best examples of best practice for testing (provided to Joint Action Programme Board to support consideration of those reports by the Programme Board and support production of the Interim Report). D3.1 Evaluation Plan Spain 2 AQUAS Published on: 17/05/2018 Evaluation Plan (agreed by Joint Action Programme Board) D2.3 Dissemination Plan Scottish Gov Published on: 17/05/2018 Dissemination Plan (agreed by Joint Action Programme Board) D2.4 Interim Dissemination Report Scottish Gov Published on: 17/05/2018 Report that describes the activities to promote the Joint Action and share the learning. D2.1 Leaflet Scottish Gov Published on: 22/12/2017 A leaflet to promote the project must be produced at the beginning D7.1 Evidence Report Dementia Friendly Communities UK Dept of H Published on: 22/12/2017 Report identifying evidence-based best examples of best practice in improving Page 27/28

28 Powered by TCPDF ( support for people with dementia to live at home through the development of dementia friendly communities. D4.1 Evidence Report Diagnosis France UCBL Published on: 22/12/2017 Report on testing evidence-based examples of best practice in dementia diagnosis. Page 28/28