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1 Table Of Content Better control in paediatric and adolescent diabetes in the EU: working to create Centres of Reference... 2 Summary... 3 Coordinator, Leader contact and partners... 4 Hannover Medical School - GER... 4 Barts and the London NHS Trust - UK... 4 Foundation "Christian Serban" For the Help of Sick Children - ROM... 4 International Diabetes Federation Europe - IDF Europe... 4 Panagioti and Aglalia Kyriakou Children s Hospital - GRE... 4 The Queen Silvia Children s Hospital, Sahlgrenska University Hospital - SWE... 4 Medical University of Warsaw - MUW... 4 Assistance Publique Hopitaux de Paris - Hospital des Enfants Malades - Necker - AP-HP... 4 University Hospital Motol - CZ... 4 Centre Hospitalier de Luxembourg - LUX... 4 Stichting Diabeter - NED... 4 Outputs... 7 D1 EU Report and conclussions on status of diabetes in children and adolescents and related prevention and care programs... 7 Final report - Final report... 7 Interim report 1 - Interim report Report August Page 1/7
2 Better control in paediatric and adolescent diabetes in the EU: working to create Centres of Reference JA GPSD [705038] START DATE: 01/04/2008 END DATE: 01/04/2011 DURATION: 36 month(s) CURRENT STATUS: Finalised PROGRAMME TITLE: First Programme of Community action in the field of public health ( ) PROGRAMME PRIORITY: - CALL: Health Information (Hi 2007) TOPIC: Supporting the exchange of information and experience on good practice EC CONTRIBUTION: EUR KEYWORDS: Children, Health education, Health system, Quality evaluation, Type I PORTFOLIO: Major and chronic diseases, Population groups Page 2/7
3 SUMMARY General objectives SWEET s main objective is to improve secondary prevention, diagnosis and control of Type 1 and 2 diabetes in children and adolescents, by supporting the development of centres of reference (CORs) for paediatric and adolescent diabetes services across the EU. Strategic relevance and contribution to the public health programme Diabetes has a major impact on the health, social and economic domains of individual lives and society. Addressing diabetes in children and adolescents, SWEET contributes to public health policy and outcomes, reducing inequalities (access and quality) and preventing complications through a lifelong, holistic management approach. This enables people to stay healthy and active, which will impact positively on health budgets, employment and the economy as a whole Methods and means SWEET is based on a partnership of established European and national diabetes organisations. It involves key diabetes stakeholders from various Member States: patients, carers, specialists, GPs, educators, nurses, dieticians, psychologists and policymakers. This partnership, combined with a strong dissemination strategy, allows knowledge transfer and implementation. The cooperation, together with the CORs, ensures continuation and monitoring of activities and progress beyond the 3-year project-term. Desk research, surveys, exchange of information and consensus building are the main tools for reaching objectives and realising outcomes. Expected outcomes period The project is expected to improve knowledge of diabetes in children and adolescents; provide recommendations for minimum treatment and care standards, for patient education programmes and for paediatric training programmes for health professionals; give a definition and criteria of CORs for paediatric and adolescent diabetes, plus a toolbox supporting their creation. An additional outcome for SWEET serves as a model for setting up CORs for other conditions. In addition, the project is expected to improve the control of diabetes early in life will prevent other diseases such cardiovascular disease, stroke and renal failure. Page 3/7
4 COORDINATOR, LEADER CONTACT AND PARTNERS COORDINATOR (Foundation Hannoversche Kinderheilanstalt - ISPAD) Janusz-Korczak-Allee Hannover Germany Project leader contact Name: Danne Thomas danne@hka.de Phone: PARTNERS Hannover Medical School - GER Street: Carl-Neuberg-Str. City: 1 Hannover Country: Germany Barts and the London NHS Trust - UK Street: Royal London Hospital, Whitechapel City: E1 1 BB London Country: United Kingdom Foundation "Christian Serban" For the Help of Sick Children - ROM Street: Str. Avram Iancu 18 City: 1919 Buzias Country: Romania Page 4/7
5 International Diabetes Federation Europe - IDF Europe Street: Avenue Emile De Mot 19 City: 1000 Brussels Country: Belgium Panagioti and Aglalia Kyriakou Children s Hospital - GRE Street: Thibon and Libadias 1 City: Athens Country: Greece The Queen Silvia Children s Hospital, Sahlgrenska University Hospital - SWE Street: Sahlgrenska University Hospital City: Gothenburg Country: Sweden Medical University of Warsaw - MUW Street: Zwirki i Wigury 61 City: Warsaw Country: Poland Assistance Publique Hopitaux de Paris - Hospital des Enfants Malades - Necker - AP-HP Street: Avenue Victoria 3 City: Paris Country: France University Hospital Motol - CZ Street: V Uvalau 84 City: Praha 5 Country: Czech Republic Page 5/7
6 Centre Hospitalier de Luxembourg - LUX Street: Rue Barblé 4 City: 1210 Luxembourg Country: Luxembourg Stichting Diabeter - NED Street: Haringvliet 72 City: 3011 TG Rotterdam Country: Netherlands Page 6/7
7 Powered by TCPDF ( OUTPUTS D1 EU Report and conclussions on status of diabetes in children and adolescents and related prevention and care programs eport_dec2008.pdf Final report - Final report Interim report 1 - Interim report 1 Report August taug2009.pdf Page 7/7
Table Of Content. Defining best practices in palliative care in Europe... 2 Summary... 3 Coordinator, Leader contact and partners Outputs...
Table Of Content Defining best practices in palliative care in Europe... 2 Summary... 3 Coordinator, Leader contact and partners... 4 The University of Sheffield... 4 Fundacio Privat Institut d'investgadó
More informationTable Of Content. Outputs... 7
Table Of Content European Cooperation on Development and Implementation of Cancer Screening and Prevention Guidelines... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Scientific Institute
More informationTable Of Content. A European Network of Centres of Reference for Dysmorphology... 2 Summary... 3 Coordinator, Leader contact and partners...
Table Of Content A European Network of Centres of Reference for Dysmorphology... 2 Summary... 3 Coordinator, Leader contact and partners... 4 The Children's Memorial Health Institute IPCZD... 4 Katholieke
More informationTable Of Content. Outputs... 8
Table Of Content The PRES European Network of Registries for Autoinflammatoy Diseases in childhood.... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Assistance publique Hôpitaux de Paris-Centre
More informationTable Of Content. Outputs... 8
Table Of Content European registry and network for Intoxication type Metabolic Diseases... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Assistance Publique-Hôpitaux de Paris, Hôpital Necker-Enfants
More informationTable Of Content. Outputs... 7
Table Of Content National policies for EHR implementation in the European area: social and organizational issues... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Foundation for Research
More informationTable Of Content. Annex 1: Conference report... 7 Annual project reports (URL)... 7 Original Full Information (Dec 2008)... 7.
Table Of Content Alcohol Policy Network in the Context of a Larger Europe: Bridging the Gap... 2 Summary... 3 Coordinator, Leader contact and partners... 6 Outputs... 7 Annex 1: Conference report... 7
More informationOperation of the European NGO Network for Smoking Prevention... 2 Summary... 3 Coordinator, Leader contact and partners... 5
Table Of Content Operation of the European NGO Network for Smoking Prevention... 2 Summary... 3 Coordinator, Leader contact and partners... 5 A.N.P.AS. Associazione Nazionale Pubbliche Assistenze... 5
More informationTable Of Content. Smoking in movies: Impact on European youth and policy options... 2 Summary... 3 Coordinator, Leader contact and partners...
Table Of Content Smoking in movies: Impact on European youth and policy options... 2 Summary... 3 Coordinator, Leader contact and partners... 4 Medical Research Council (MRC)... 4 Radboud University Nijmegen...
More informationTable Of Content. Outputs... 7
Table Of Content Using Multidimensional Prognostic Indices(MPI)to improve costeffectiveness of interventions in multimorbid frail older persons.... 2 Summary... 3 Coordinator, Leader contact and partners...
More informationTable Of Content. D05 - Agreed-upon plan for the implementation and evaluation of UHC2.0 for
Table Of Content Urban Health Centre 2.0: Integrated health and social care pathways, early detection of frailty, management of polypharmacy and prevention of falls for active and healthy ageing in European
More informationTable Of Content. Policy Action and Information for Rare Diseases in Europe... 2 Summary... 3 Coordinator, Leader contact and partners...
Table Of Content Policy Action and Information for Rare Diseases in Europe... 2 Summary... 3 Coordinator, Leader contact and partners... 6 Kontaktudvalget for Mindre Sygdoms-og handicapforeninger (KMS)...
More informationTable Of Content. Outputs... 8
Table Of Content Coordinating a European initiative among national organizations for organ transplantation... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Pauls Stradins Clinical University
More informationTable Of Content. EUROCHIP-III "Common Actions"... 2 Summary... 3 Coordinator, Leader contact and partners Outputs... 7
Table Of Content EUROCHIP-III "Common Actions"... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Integraal Kankercentrum Noord-Nederland - IKN... 5 Suomen Syöpäyhdistys R.Y. (Cancer Society
More informationTable Of Content Active Ageing with Type 2 Diabetes as Model for the Development and Implementation of Innovative Chronic Care Management in Europe
Table Of Content Active Ageing with Type 2 Diabetes as Model for the Development and Implementation of Innovative Chronic Care Management in Europe.. 2 Summary... 3 Coordinator, Leader contact and partners...
More informationTable Of Content. OTH-01-5 years AIDS Action Europe (RU)... 6 OTH-02-5 years AIDS Action Europe (EN) Page 1/9
Table Of Content AIDS Action Europe: Public Policy Dialogue and Linking & Learning... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Outputs... 6 D01-01 - E-news AIDS Action Europe (EN)...
More informationTable Of Content. European Collaboration on Dementia... 2 Summary... 3 Coordinator, Leader contact and partners Outputs...
Table Of Content European Collaboration on Dementia... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Associacao Portuguesa de Familiares e Amigos de Doentes de Alzheimer... 5 Universiteit
More informationTable Of Content. Outputs... 9
Table Of Content A european pilot network of reference centres in refractory epilepsy and epilepsy surgery... 2 Summary... 3 Coordinator, Leader contact and partners... 6 UNIVERSITAIR MEDISCH CENTRUM UTRECHT...
More informationTable Of Content. Outputs... 8
Table Of Content European Network of Reference for Rare Pediatric Neurological Diseases... 2 Summary... 3 Coordinator, Leader contact and partners... 5 University College London... 5 Univerzita Karlova
More informationTable Of Content. Outputs... 9
Table Of Content European Expert Paediatric Oncology Reference Network for Diagnostics and Treatment... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Klinikum Dortmund ggmbh... 5 Uniwersytet
More informationTable Of Content. European Prevention Initiative for Dermatological Malignancies... 2 Summary... 3 Coordinator, Leader contact and partners...
Table Of Content European Prevention Initiative for Dermatological Malignancies... 2 Summary... 3 Coordinator, Leader contact and partners... 4 Sir Paul Boffa Hospital - SPBH... 4 Aristotle University
More informationTable Of Content. The European Influenza Surveillance Scheme... 2 Summary... 3 Coordinator, Leader contact and partners Outputs...
Table Of Content The European Influenza Surveillance Scheme... 2 Summary... 3 Coordinator, Leader contact and partners... 6 Institut Pasteur... 6 Health Division... 6 Nphs Communicable Disease Surveillance
More informationTable Of Content. Invasive Bacterial Infections Surveillance in the European Union... 2 Summary... 3 Coordinator, Leader contact and partners...
Table Of Content Invasive Bacterial Infections Surveillance in the European Union... 2 Summary... 3 Coordinator, Leader contact and partners... 5 National School of Public Health... 5 National Institute
More informationTable Of Content. Information network on rare cancers... 2 Summary... 3 Coordinator, Leader contact and partners Outputs...
Table Of Content Information network on rare cancers... 2 Summary... 3 Coordinator, Leader contact and partners... 5 National University Specialised Hospital for Active Treatment in Oncology - NOH... 5
More informationTable Of Content. Page 1/7
Table Of Content Closing the Gap - Reducing Premature Mortality. Baseline for Monitoring Health Evolution Following Enlargement... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Outputs...
More informationTable Of Content. Standardizing Measurement of Alcohol Related Troubles... 2 Summary... 3 Coordinator, Leader contact and partners Outputs...
Table Of Content Standardizing Measurement of Alcohol Related Troubles... 2 Summary... 3 Coordinator, Leader contact and partners... 4 Fundació Clínic per a la Recerca Biomèdica - FCRB... 4 Generalitat
More informationTable Of Content. Outputs... 12
Table Of Content A European Platform For Mental Health Promotion And Mental Disorder Prevention: Indicators, Interventions And Strategies... 2 Summary... 3 Coordinator, Leader contact and partners... 5
More informationTable Of Content. EUropean Best Information through Regional Outcomes in Diabetes... 2 Summary... 3 Coordinator, Leader contact and partners...
Table Of Content EUropean Best Information through Regional Outcomes in Diabetes... 2 Summary... 3 Coordinator, Leader contact and partners... 5 The Adelaide and Meath Hospital Dublin, incorporating the
More informationTable Of Content. European surveillance of travel associated legionnaires' disease... 2 Summary... 3 Coordinator, Leader contact and partners...
Table Of Content European surveillance of travel associated legionnaires' disease... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Statens Serum Institute... 5 National Environmental Health
More informationTable Of Content. Outputs... 9
Table Of Content Development & Implementation of a European Guideline and training standards for Diabetes Prevention... 2 Summary... 3 Coordinator, Leader contact and partners... 4 University of Oslo...
More informationTable Of Content. Page 1/8
Table Of Content 22nd Conference: Changing perceptions, practice and policy... 2 Summary... 3 Coordinator, Leader contact and partners... 6 Outputs... 7 D04-00 - Programme and book of abstracts (EN)...
More informationTable Of Content. Outputs... 8
Table Of Content Young and HIV: European network to arrange an innovative prevention campaign and to exchange good practices - experience in Europe"... 2 Summary... 3 Coordinator, Leader contact and partners...
More informationTable Of Content. Page 1/8
Table Of Content First European Day of the Brain. Ageing, Stroke and Alzheimer s Disease-finding innovative solutions.... 2 Summary... 3 Coordinator, Leader contact and partners... 6 Outputs... 7 D01-01
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Table Of Content EURORDIS_FY2010... 2 Summary... 3 Coordinator, Leader contact and partners... 6 Outputs... 7 D04 - Electronic Newsletter and V.3 of EURORDIS website (EN)... 7 D01 - Activity Report OPERA
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Table Of Content Anti Stigma Programme: European Network... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Associação para o Estudo e Integração Psicossocial - AEIPS... 5 UNIVERSITY MENTAL
More informationHBV-HCV-HIV: THREE DIFFERENT AND SERIOUS THREATS FOR EUROPEAN YOUNG PEOPLE. A NETWORK TO STUDY AND TO FACE THESE CHALLENGES IN EU
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More informationTable Of Content. Elderly Network on Ageing and Health... 2 Summary... 3 Coordinator, Leader contact and partners Outputs...
Table Of Content Elderly Network on Ageing and Health... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Istituto Nazionale per lo Studio e la Cura dei Tumori (INSCT)... 5 Deutsches Institut
More informationTable Of Content. Page 1/14
Table Of Content Support to EATG in promoting UA in the New Member States and New Neighbourhood countries... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Outputs... 6 D09-03 - EATG Newsletter
More informationTable Of Content. Outputs... 7
Table Of Content An EU Rare Diseases Registry for Wolfram Syndrome, Alstrom Syndrome and Bardet Biedl Syndrome... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Medical University of Lodz...
More informationTable Of Content. D Report on TB and HIV situation among vulnerable groups in the project area
Table Of Content TUBERCULOSIS EPIDEMIC AMONG VULNERABLE GROUPS... 3 Summary... 4 Coordinator, Leader contact and partners... 6 Сдружение "Доза обич"/ Dose of love Association... 6 Latvijas Tuberkulozes
More informationTable Of Content. European Organisation for Rare Diseases... 2 Summary... 3 Coordinator, Leader contact and partners... 6 Outputs...
Table Of Content European Organisation for Rare Diseases... 2 Summary... 3 Coordinator, Leader contact and partners... 6 Outputs... 7 D04 - Electronic Newsletter (EN)... 7 D01 - Activity Report EURORDIS
More informationTable Of Content. Outputs... 7
Table Of Content Surveillance System: Occurrence of Urinary Incontinence in Women as a Consequence of Inefficient or Inappropriate Obstetric Care... 2 Summary... 3 Coordinator, Leader contact and partners...
More informationTable Of Content. European Surveillance of Sexually Transmitted Infections... 2 Summary... 3 Coordinator, Leader contact and partners...
Table Of Content European Surveillance of Sexually Transmitted Infections... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Department of Health and Children/ East Coast Area Health Board...
More informationTable Of Content. European Surveillance of Congenital Anomalies (Phase 3)... 3 Summary... 4 Coordinator, Leader contact and partners...
Table Of Content European Surveillance of Congenital Anomalies (Phase 3)... 3 Summary... 4 Coordinator, Leader contact and partners... 5 Registry of Congenital Anomalies... 5 CNR Institute of Clinical
More informationTable Of Content. Healthy Ageing Supported by Internet and the Community... 2 Summary... 3 Coordinator, Leader contact and partners Outputs...
Table Of Content Healthy Ageing Supported by Internet and the Community... 2 Summary... 3 Coordinator, Leader contact and partners... 5 Debreceni Egyetem, Tudományegyetemi Karok... 5 Universidad de Castilla-
More informationTable Of Content. Outputs... 7
Table Of Content CAPACITY BUILDING IN HIV/SYPHILIS PREVALENCE ESTIMATION USING NON-INVASIVE METHODS AMONG MSM IN SOUTHERN AND EASTERN EUROPE... 2 Summary... 3 Coordinator, Leader contact and partners...
More informationTable Of Content. Democracy, Cities & Drugs II... 3 Summary... 4 Coordinator, Leader contact and partners Outputs... 9
Table Of Content Democracy, Cities & Drugs II... 3 Summary... 4 Coordinator, Leader contact and partners... 6 Kur-Und Gesundheitszentrum KNAPPENHOF (from 12/03/2010)... 6 EUROPEAN TREATMENT CENTRES FOR
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Table Of Content Monitoring Suicidal Behaviour in Europe... 2 Summary... 3 Coordinator, Leader contact and partners... 5 University Psychiatric Hospital, Centre for Mental Health... 5 Psychiatry Ambulatory
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Table Of Content Developing a training and resource package for improving the sexual and reproductive health of people living with HIV/AIDS... 3 Summary... 4 Coordinator, Leader contact and partners...
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