Cochlear Implants: Navigating a Forest of Information One Tree at a Time

Transcription

1 Cchlear Implants: Navigating a Frest f Infrmatin One Tree at a Time Resurces Develped by Debra Berlin Nussbaum at the Cchlear Implant Educatin Center 1

2 Resurces The printing f this publicatin was supprted by federal funding. This publicatin shall nt imply apprval r acceptance by the U.S. Department f Educatin f the findings, cnclusins, r recmmendatins herein. Gallaudet University is an equal pprtunity emplyer/educatinal institutin, and des nt discriminate n the basis f race, clr, sex, natinal rigin, religin, age, hearing status, disability, cvered veteran status, marital status, persnal appearance, sexual rientatin, family respnsibilities, matriculatin, plitical affiliatin, surce f incme, place f business r residence, pregnancy, childbirth, r any ther unlawful basis. 2

3 Resurces Accessries and Assistive Listening Technlgies Manufacturer infrmatin Cchlear Crpratin: Accessries and Assistive Listening Devices Advanced Binics: Prducts and Accessries fr the Speech Prcessr MED- EL: Other Using Assistive Listening Devices; Getting Cnnected Hw T Guide: Getting Cnnected (PDF) Using Direct Audi Input - Using direct cnnectin with the FM Battery Pack Cver Oticn Amig FM Cmpatibility Guide (PDF) Phnak: FM Slutins fr Cchlear Implants (PDF) Auditry Habilitatin: On- line Prfessinal Training Cchlear Crpratin: HOPE Curses (archived n a variety f tpics specific t auditry habilitatin) Therapy: Same r Different fr a Child with Bilateral Cchlear Implants? Triangle Time: Parents as Partners Prject 'Versatile Vcabulary' Aural Rehabilitatin in Bilateral Cchlear Implantatin f Adults Beynd Meldy: Music and Auditry Skill Develpment in Yung Children Keeping Skills Sharp Over Summer Sund Speech fr Speech Sunds Learning with Literacy Mre Sund Speech fr Speech Sunds Therapy Ideas fr Preschlers Mre Therapy Ideas fr Preschlers Therapy Ideas fr Elementary Age Mre Therapy Ideas fr Elementary- Aged Students Let s Take It Outside: Outdr Therapy Plans Let's Take it Outside 2: Fun fr all Ages Here, There and Everywhere: Carryver fr Auditry Gals One Level: Many Tls - One Tl: Many Levels Vcabulary Develpment fr the Cchlear Implant User Hear fr the Hlidays 3

4 Auditry Skills: Yu Lead the Way Yu Lead the Way, Part 2 Auditry Verbal Apprach: Hw Des it Apply t Me? Achieving the Best Outcmes with a Cchlear Implant: 20 Tp Tips Auditry Skills: A Clser Lk Bringing Literacy t the Table: Using Bks in Therapy Using Experience Bks t Prmte Early Literacy Advanced Binics: Prfessinal Resurces Fr Auditry Habilitatin Auditry Skill Develpment Assessment Tls Assessment Tls frm Advanced Binics: (anntated list f listening, speech, and spken language assessment tls), Test Reference fr Cchlear Implants (PDF) Meaningful Auditry Integratin Scale (IT- MAIS) (PDF) LittlEars Auditry Questinnaire (PDF) Functining after Pediatric Cchlear Implantatin (FAPCI) Questinnaire Parents' Evaluatin f Aural/Oral Perfrmance f Children (PEACH) Cttage Acquisitin Scales fr Listening, Language, and Speech (CASLLS) Functinal Auditry Perfrmance Indicatrs (FAPI) (PDF) Advanced Binics: Tracking Auditry Prgress in Children with CIs Reference Card (PDF) Advanced Binics: The Bilingual Family Interview Scale (BIFI) (PDF) HOPE: Integrated Scales f Develpment: Frm Listen, Learn and Talk (PDF) Tracking Prgress: Advanced Binics: Clinical Red Flags fr Slw Prgress in Children with Cchlear Implants (PDF) Advanced Binics: Tls fr Schls: Tracking Auditry Prgress in Children with Cchlear Implants (PDF) Auditry Habilitatin Guides Auditry Speech Language (AuSpLan) Summary (PDF) Bilateral Cchlear Implants Central Institute fr the Deaf: Speech Perceptin Instructinal Curriculum Evaluatin (SPICE) Learn t Talk Arund the Clck Cchlear Crpratin: Listen, Learn, and Talk My Baby and Me MED- EL: Tw Ears Are Better Than One Advanced Binics Hear Mre Nw and in the Future with Bilateral Harmny Cchlear Implants (PDF) 4

5 Bilateral Cchlear Implants: The Natural Chice fr Children Hear Cnfidently: Bilateral Hearing and AutSund (PDF) The Real Wrld: Bilateral Hearing and HiRes (PDF) Bys Twn Natinal Research Hspital: Bilateral Cchlear Implants Cchlear Implant Manufacturers Cntact Infrmatin Advanced Binics Cchlear Crpratin MED- EL Crpratin, USA Neurelec Cchlear Implants and Meningitis FDA Public Health Ntificatin, February 2006: Cntinued Risk f Bacterial Meningitis in Children with Cchlear Implants with a Psitiner Beynd Twenty- Fur Mnths Pst- Implantatin FDA Public Health Ntificatin; Octber 2007: Imprtance f Vaccinatin in Cchlear Implant Recipients Center fr Disease Cntrl Recmmended Vaccinatins Plicy Statement f the American Academy f Pediatrics Cchlear Implants and Sign Language Critical Review: Is it beneficial fr children awaiting a cchlear implant t be taught sign language prir t implantatin (PDF) Lud and Clear Newsletter: Sign f the Changing Times (2006) (PDF) Cchlear Crpratin HOPE Curse: Sign Language and Cchlear Implants: The Real Stry Cchlear Implants and Sign Language: Building Fundatins fr Effective Educatinal Practices, cnference prceedings, 2009 Cchlear Implants and Sign Language: Putting It All Tgether (Identifying Effective Practices fr Educatinal Settings), cnference prceedings, 2002 Nussbaum, D., & Sctt, S. (2011). The Cchlear Implant Educatin Center: Perspectives n effective educatinal practices. In R. Paludneviciene & I. Leigh (Eds.), Cchlear implants: Evlving perspectives (pp ). Washingtn: DC: Gallaudet University Press. (PDF) Nussbaum, D. Waddy- Smith, B. & Dyle, J. (2012). Students wh are deaf and hard f hearing and use sign language: cnsideratins and strategies fr develping spken language and literacy skills. Seminars in Speech and Language. Vlume 33, Number 4, p (PDF) Seal, B., Nussbaum, D., Belzner, K., Sctt, S., & Waddy- Smith, B. (2011). Cnsnant and sign phneme acquisitin in signing children fllwing cchlear implantatin. Cchlear Implants Internatinal, 12(1),

6 Visual Language and Visual Learning Science f Learning Center. (2012, June). The Implicatins f Bimdal Bilingual Appraches fr Children with Cchlear Implants (Research Brief N. 6). Washingtn, DC: Julie Mitchiner, Debra Berlin Nussbaum, and Susanne Sctt Nussbaum, D. (2008). Yur child has a cchlear implant: Why include sign language. In American Sciety fr Deaf Children's parent publicatin, Endeavr) (See: Clerc Center Archived Papers) Educatinal Resurces Students with Cchlear Implants: Guidelines fr Educatinal Prgram Planning Advanced Binics Advanced Binics: Cchlear Implants in the Classrm (PDF) Tls Fr Schls Cchlear Crpratin! HOPE On- Line Curses (archived): Serving Children In Schls Preparing Students t be Successful in their Learning Envirnments LSLS Strategies in the Classrm Triangle Time: Parents as Partners Planning Mre Effective Lessns Planning Mre Creative Lessns: Schl Audilgists and Teachers (r Therapists) Wrking Tgether High Expectatins and Optimal Outcmes fr Students with Cchlear Implants Captining and Nte Taking: Hw Des That Wrk? Mainstreaming Issues fr Children with Cchlear Implants Back t Schl with Cchlear Implants: The Tp 10 Things Parents Need t Knw HOPE fr Next Year: IEP Gals & Reprts Push In r Pull Out: Interventin Ideas fr 1- n- 1 Services Wrking Tgether: Teaching Teams Wrking Tgether: Parent and Prfessinals Clear Speech: Applying Research Findings t the Classrm Educatin and Access Laws that Supprt Children with Hearing Lss 6

7 On the Rad Again: The Rle f the Itinerant Teacher fr Children with Cchlear Implants Making a Case fr Classrm Acustics CLIC IT! Creating Listeners in the Classrm: Ideas fr Teaching Lessns frm a First Grade Mainstream Classrm: A Teacher and Parent Share their Experiences Sign Language and the Cchlear Implant: The Real Stry Gearing Up My Classrm: Strategies t Supprt a Student with a Cchlear Implant! Strive and Thrive: A Guide Fr Parents, Schl Readiness: Hints and Tips (PDF)! Nucleus Cchlear Implant Educatrs Guide Other Resurces! Cchlear Implants In The Classrm: The Rle f The Educatinal Audilgist! NC Learn, UNC Schl f Educatin: On- line vides and discussin n teaching children wh are deaf and hard f hearing. The vides are assciated with the article Deaf Learners and Successful Cgnitive Achievement. Fitting the Speech Prcessr Teaching Deaf Students in the Inclusive Classrm: Part 1 Teaching Deaf Students in the Inclusive Classrm: Part 2 Deafness, Self- Esteem, and the Inclusive Classrm The Imprtance f Deaf Culture Deafness, Language, and Literacy The Imprtance f Cllabratin Manufacturer infrmatin Advanced Binics Getting Ready fr a Binic Ear; What t Expect at Surgery and Initial Stimulatin (PDF) Neural Respnse Imaging: Measuring Auditry- Nerve Respnses frm the Cchlea with the HiReslutin Binic Ear System (PDF) Aut Sund MED- EL Yur Child s New Cchlear Implant; What t D After the First Fitting (PDF) Impedance and Field Telemetry 7

8 Autmatic Sund Management Cchlear Crpratin SmartSund HOPE Archived On- line Curse (fr prfessinals), Partnering with Yur CI Audilgist: Tips fr Getting the Mst frm yur Prgramming Sessin HOPE archived n- line curse (fr families), Partnering with Yur CI Audilgist: Hw t Get the Best MAP Pssible fr Yur Child Cchlear Americas: Neural Respnse Telemetry Habilitatin Resurces Manufacturer Habilitatin Resurces Cchlear Crpratin: Sund Fundatins fr Babies (habilitatin tl supprting parents fr the first 12 mnths fllwing cchlear implantatin) Teens and Adults Hpe Ntes (music perceptin) Self- Auditry Training Websites On- line games in Spanish HOPE Getting Started Practical Tips fr Parents (PDF) Advanced Binics: The Listening Rm (an n- line resurce that prvides interactive practice activities t imprve listening skills fr infants/tddlers, kids, teens and adults) Tune Ups (a music CD f 18 sngs and a listening prgram that weaves music and language tgether) MED- EL: LittlEARS Diary (and assciated activities t develp listening) Listen Hear Newsletters (listening activities) Activities t prmte listening t music (English and Spanish) Sundscapes: Interactive Listening Activities (included are interactive vide activities and supprting materials t dwnlad fr children f varius age grups) Listening Fun with Music and Sng (vide examples f early music and sng activities during therapy) Starting Out (ages 0-2) Ms. MacDnald s Shed (ages 2+) 8

9 Old MacDnald s Farm (ages 2+) Let s G Shpping (ages 6+) Telling Tales (ages 10+) Cntinents and Oceans (Teens) Other Resurces: Starfall: A free website t teach children t read with phnics. Fr preschl, kindergarten, and first grade. Phnics games and n- line interactive bks. Equal Vice fr Deaf Children (EVDC): Resurce designed fr families wh d nt have access t a qualified therapist t help their child acquire spken cmmunicatin skills. Listening Tree: A subscriptin that allws access t hundreds f printable listening and language activities. Listening tree has a Spanish versin with Spanish weekly activities Stryline Online: Stries read alud by members f the Screen Actrs Guild (with captining) Superduper Publicatins: ipad apps fr auditry and speech habilitatin Hw a Cchlear Implant Wrks Manufacturer infrmatin MED- EL: Hw MAESTRO wrks Advanced Binics: Hw hearing with a cchlear implant wrks (including shrt vide) Cchlear Americas: Hw Nucleus 6 wrks Fact sheets American Speech- Language- Hearing Assciatin (ASHA), Cchlear Implants Natinal Institute n Deafness and Other Cmmunicatin Disrders: Abut Cchlear Implants U.S. Fd and Drug Administratin: Cchlear Implants Websites that prvide sund simulatins that apprximate the experience f listening thrugh a cchlear implant: University f Texas- Dallas/Cchlear Implant Labratry University f Califrnia- Irvine PBS- Scientific American Frntiers: Tuning In Manufacturer cmparisn Cchlear Implants Online: Brand Cmparisn Chart (Updated by Cchlear Implant Online n June 27, 2011) (PDF) 9

10 Insurance Advanced Binics Reimbursement Services and Insurance Authrizatin Cchlear Crpratin Otlgic Management Services (OMS): A specialized unit f the Cchlear Crpratin reimbursement department. OMS prvides prspective candidates with insurance preauthrizatin and verificatin supprt at n charge fr CI and Baha devices and related prcedures. OMS als helps patients seek cverage fr bilateral implantatin f bth cchlear implants and Baha devices and appeal denials fr cverage. Cchlear Crpratin Insurance Supprt Services MED- EL General infrmatin abut MED- EL reimbursement supprt Other Cchlear Implant Financial Assistance Resurces Cchlear Implant Awareness Fundatin Let Them Hear Fundatin Interpreting/Transliterating Learn UNC: Mdes f Cmmunicatin, Interpreters, Hearing Aids, and Cchlear Implants (vide and links t infrmatin n wrking with children wh are deaf and hard f hearing in inclusive classrms) Registry f Interpreters fr the Deaf: Interpreting fr the Student with Cchlear Implants (2009) (PDF) Preparing fr Surgery Manufacturer resurces Advanced Binics: Getting Ready Fr a Binic Ear; What t expect at surgery and initial stimulatin; Brchure and DVD (PDF) The Adventures f Binic Buddy (clring bk t dwnlad) (PDF) General infrmatin abut the surgical prcedure (sme including vide clips f the surgery itself) Otlgy and Neurlgy: Massachusetts Eye and Ear: Harvard (discussin, plus vides f actual surgical prcedures) Cchlear Implant Help FDA: What Happens Befre, During, and After Implant Surgery Trubleshting a Cchlear Implant MED- EL: On- line Trubleshting Guide 10

11 Cchlear Americas: Trubleshting a Nucleus 6 Advanced Binics Trubleshting Guides Last revised Octber

12 The Laurent Clerc Natinal Deaf Educatin Center is cmprised f tw federally mandated demnstratin schls fr students frm birth thrugh age 21 wh are deaf. Lcated n the campus f Gallaudet University, these schls wrk in cllabratin with a natinal netwrk f exemplary prgrams and prfessinals t identify, research, develp, evaluate, and disseminate innvative curricula, materials, educatinal strategies, and technlgies fr students wh are deaf r hard f hearing. The Clerc Center als prvides training and technical assistance t families and prgrams thrughut the United States, and serves as a mdel individualized educatinal prgram, wrking in clse partnership with its students and their families. Wrking fr Deaf and Hard f Hearing Children Thrughut the United States 12