Table Of Content. EUropean Best Information through Regional Outcomes in Diabetes... 2 Summary... 3 Coordinator, Leader contact and partners...

Transcription

1 Table Of Content EUropean Best Information through Regional Outcomes in Diabetes... 2 Summary... 3 Coordinator, Leader contact and partners... 5 The Adelaide and Meath Hospital Dublin, incorporating the National Children s Hospital - AMNCH... 5 Dutch Institute for Healthcare Improvement - CBO... 5 Hillerod University Hospital - HUH (until 17/04/2011)... 5 Yorkshire & Humber Public Health Observatory - YHPHO (until 16/04/2009)... 5 Wetenschappelijk Instituut Volksgezondheid (WIV)-FOD Volksgezondheid-Inst. Scient. Santé Pub. -ISP-WIP-IPH... 5 School of Public Health, Medical and Health Sciences Centre, University of Debrecen - UD MHSC... 5 Joanneum Research Forschungsgesellschaft mbh - JRS... 5 International Diabetes Federation - IDF (from 01/09/2009)... 5 Ministry of Health - CYPRUS... 5 Medical Faculty - University of Ljubljana - UL... 5 Societa Italiana di Diabetologia e Malatti Metaboliche - SiD (from 17/04/2011)... 5 University of Dundee - UNIVDUN... 5 Stiftelsen Nätverk för läkemedelsepidemiologi - NEPI (until )... 5 Gemeinschaftskrankenhaus Havelhöhe ggmbh, Medical Dept. Diabetes - GKH... 5 Haraldsplass Diakonale Sykehus AS - NOKLUS... 5 Medical University of Silesia - University Hospital N 6 - GCZDiM... 5 Università Tà Malta - UNIMALTA... 5 Centre Hospitalier du Luxembourg - LUX... 5 Institute of Diabetes, Nutrition and Metabolic Disease "N. Paulesco" - PAULESCU... 5 Göteborgs Universitet - UGO (from 01/09/2009)... 5 The Mediterranean Institute for the Advance of Biotechnology and Health Research - FIM (until 17/04/2011)... 5 Serectrix s.n.c. di Di Iorio & C. - SERECTRIX... 5 Outputs BIRO_Academy_Residential_Course_Year_ EUBIROD Common Dataset EUBIROD Database Engine EUBIROD Privacy Impact Assessment EUBIROD Statistical Materials Final report - Final report Interim report 1 - Interim report Interim report 2 - Interim report Report_On_Training Website Page 1/11

2 EUropean Best Information through Regional Outcomes in Diabetes JA GPSD [705038] START DATE: 01/09/2008 END DATE: 01/03/2012 DURATION: 42 month(s) CURRENT STATUS: Finalised PROGRAMME TITLE: First Programme of Community action in the field of public health ( ) PROGRAMME PRIORITY: - CALL: Health Information (Hi 2007) TOPIC: Operating the health information and knowledge system EC CONTRIBUTION: EUR KEYWORDS: Diabetes, Patients registries PORTFOLIO: Data collection, Health indicators, Major and chronic diseases Page 2/11

3 SUMMARY General objectives EUBIROD targets the sustainability of complex systems of health indicators requiring continuous update and regular maintenance. The project proposes an action to implement, extend, and customize the application of the BIRO technology in at least 20 European Member States. Participants will be connected through a system that will safely collect aggregated data and produce systematic EU reports of diabetes indicators. Strategic relevance and contribution to the public health programme EUBIROD aims to implement a sustainable European Diabetes Register through the coordination of existing national/regional frameworks and the systematic use of the BIRO technology. The system will fulfil the Conclusions of the EU Council for the systematic data collection and monitoring of diabetes complications and health outcomes across Europe. Methods and means EUBIROD will actively involve national/regional networks in the collection of diabetes data. The project includes the following activities: - data collection: ensuring wide adoption of BIRO while taking into account privacy/security issues; - epidemiological analysis: adding new functionalities for the delivery of EU standardized indicators; - technological transfer: providing a toolbox to facilitate the connection process and to remove any obstacles in the use of the system; - dissemination: training partners on field through the activity of a BIRO academy ; - evaluation: reviewing major achievements through international experts that will use objective indicators measuring the degree of completeness and the information content of statistical reports. Expected outcomes period Page 3/11

4 EUBIROD will ensure that: - the BIRO system is operational in at least 20 countries ; - a common framework for the use of standardized measurements is adopted and well understood through specialized training; - annual EU BIRO Diabetes Reports are routinely produced for the European Commission. Page 4/11

5 COORDINATOR, LEADER CONTACT AND PARTNERS COORDINATOR (Università degli Studi di Perugia - DIMI-UNIPG) Via Enrico dal Pozzo PERUGIA Italy Project leader contact Name: Massi Benedetti Massimo massi@unipg.it Phone: PARTNERS The Adelaide and Meath Hospital Dublin, incorporating the National Children s Hospital - AMNCH Street: Belgard Square North, Tallaght City: Dublin 24 Country: Ireland Dutch Institute for Healthcare Improvement - CBO Street: Churchilllaan 11 City: 3257 Utrecht Country: Netherlands Hillerod University Hospital - HUH (until 17/04/2011) Street: Helsevej 2 City: 3400 Hillerod Country: Denmark Page 5/11

6 Yorkshire & Humber Public Health Observatory - YHPHO (until 16/04/2009) Street: Heslington City: YO10 5DD York Country: United Kingdom Wetenschappelijk Instituut Volksgezondheid (WIV)-FOD Volksgezondheid-Inst. Scient. Santé Pub. -ISP-WIP-IPH Street: Rue J. Wytsmanstraat 14 City: 1050 Brussels Country: Belgium School of Public Health, Medical and Health Sciences Centre, University of Debrecen - UD MHSC Street: Kassai u. 26 City: 4032 Debrecen Country: Hungary Joanneum Research Forschungsgesellschaft mbh - JRS Street: Steyrergasse 17 City: 8010 Graz Country: Austria International Diabetes Federation - IDF (from 01/09/2009) Street: Chaussee de la Hulpe 166 City: 1170 Brussels Country: Belgium Ministry of Health - CYPRUS Street: Marcou Drakou Street 10 City: 1448 Lefkosia Country: Cyprus Page 6/11

7 Medical Faculty - University of Ljubljana - UL Street: Vrazov trg 2 City: 1000 Lujbljana Country: Slovenia Societa Italiana di Diabetologia e Malatti Metaboliche - SiD (from 17/04/2011) Street: Via Pisa, 21 City: Rome Country: Italy University of Dundee - UNIVDUN Street: Nethergate City: DD1 4HN Dundee Country: United Kingdom Stiftelsen Nätverk för läkemedelsepidemiologi - NEPI (until ) Street: Malmö University Hospital City: Malmö Country: Sweden Gemeinschaftskrankenhaus Havelhöhe ggmbh, Medical Dept. Diabetes - GKH Street: Kladower Damm 221 City: Berlin Country: Germany Haraldsplass Diakonale Sykehus AS - NOKLUS Street: Ulriksdal 8 City: 5892 Bergen 6165 Country: Norway Page 7/11

8 Medical University of Silesia - University Hospital N 6 - GCZDiM Street: Medikow 16 City: Katowice Country: Poland Università Tà Malta - UNIMALTA Street: Msida City: 2080 Malta Country: Malta Centre Hospitalier du Luxembourg - LUX Street: Rue du Barblé 4 City: 1210 Luxembourg Country: Luxembourg Institute of Diabetes, Nutrition and Metabolic Disease "N. Paulesco" - PAULESCU Street: Ion Movila 5-7 City: Bucharest 2 Country: Romania Göteborgs Universitet - UGO (from 01/09/2009) Street: Vasaparken City: Göteborg Country: Sweden The Mediterranean Institute for the Advance of Biotechnology and Health Research - FIM (until 17/04/2011) Street: Avenida Carlos Haya 25 City: Malaga Country: Spain Page 8/11

9 Serectrix s.n.c. di Di Iorio & C. - SERECTRIX Street: Via Colle Cervone 40 City: Pescara Country: Italy Page 9/11

10 OUTPUTS BIRO_Academy_Residential_Course_Year_1 cademy_residential_course_year_1.pdf EUBIROD Common Dataset 1_common_dataset.pdf EUBIROD Database Engine 3_database_engine.pdf EUBIROD Privacy Impact Assessment 2_privacy_impact_assessment.pdf EUBIROD Statistical Materials 1 statistical_materials.doc Page 10/11

11 Powered by TCPDF ( Final report - Final report Interim report 1 - Interim report 1 Interim report 2 - Interim report 2 Report_On_Training _on_training.pdf Website Page 11/11