2013 Canadian Marfan Association Conference Diagnosis Treatment and Management of Marfan Syndrome and Genetic Aortic Disorders

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1 2013 Canadian Marfan Association Conference Diagnosis Treatment and Management of Marfan Syndrome and Genetic Aortic Disorders Vancouver, British Columbia September 27 and 28 CME Accredited Conference Patient and Family Conference September 27 September 28 Featuring presentations from renowned local and international experts and small group workshops! Join the CMA community for an unforgettable experience! Child and Family Research Institute th Avenue W. Vancouver, BC V5Z 4H4 REGISTER TODAY AT

2 Sponsored by Please contact the Canadian Marfan Association for sponsorship and volunteer opportunities Who should attend? including but not limited to: Cardiologists Family physicians Cardiovascular Surgeons Paediatricians Geneticists Registered nurses Ophthalmologists ` Residents Medical Students Rheumatologists Emergency physicians Orthopedic Surgeons Optometrists Molecular and Clinical Researchers Sleep specialists Pain management specialists Chiropractors, Physiotherapists, Occupational therapists and other allied health professionals Registration for residents and medical/nursing students is free! info@marfan.ca Canadian Marfan Association Centre Plaza Post, 128 Queen St. S., PO Box Mississauga, ON L5M 4Z0 P: (905) Toll Free: 1(866) F: (905) Registered Charity RR0001 SUPPORTING PATIENTS WITH MARFAN SYNDROME AND GENETIC AORTIC DISORDERS

3 PROGRAM CME ACCREDITED CONFERENCE FRIDAY, SEPTEMBER Registration and Breakfast Welcome CLINICAL SYNDROMES MFS. Clinical features and new Diagnostic criteria L-DS Clinical recognition and Differential diagnosis Aortic Aneurysm syndromes. New Information Questions and answers BREAK CLINICAL PROBLEMS ( 1 ) The importance of a Multidisciplinary Clinic for CTD and aortic aneurysm syndromes and various clinic models Imaging the aorta, heart and arterial system in CTD and genetic aortic disorders Adult cardiac concerns and care in CTD and genetic aortic disorders Paediatric cardiac concerns and care in CTD and genetic aortic disorders Aortic/cardiac Surgery in CTD and genetic aortic disorders Questions and answers LUNCH CLINICAL PROBLEMS ( 2 ) Ophthalmic problems and care in MFS Orthopedic care in CTD Pregnancy in CTD and genetic aortic disorders Activity in patients with CTD and genetic aortic disorders Questions and answers :10 BREAK RESEARCH AND TRANSLATIONAL KNOWLEDGE What is the Fibrillin abnormality? What s new from the CTD trials? What s happening in basic research? Questions Closing and Thanks 5.15 Refreshments and Networking

4 PROGRAM PATIENT AND FAMILY CONFERENCE SATURDAY, SEPTEMBER Registration and Breakfast Welcome and Introduction SPECTRUM OF CONDITIONS Marfan syndrome, new Diagnostic Criteria & Differential Diagnosis Aortic aneurysm syndromes. New information The importance of a Multidisciplinary Clinic for Care of CTD and genetic aortic disorders :10 PANEL QUESTIONS 10: BREAK CLINICAL CARE and RESEARCH Cardiac care and medications Aortic/cardiac surgery Ophthalmic care Orthopedic care What s new in research PANEL QUESTIONS LUNCH WORKSHOPS Workshop Session Workshop Session :20 Workshop Session Workshop Session Closing Remarks, Thanks Refreshments and Networking

5 WORKSHOPS FAMILY CONFERENCE Physical Activity: How much is too much Managing Loeys-Dietz Syndrome Genetic Testing: Why, when, where and the future Preparing for Aortic Surgery Pregnancy & Family Planning Strategies for Managing Stress & Other Psychological Concerns Orthopaedic Management: Scoliosis & Dural Ectasia Broad Spectrum Healthcare Management: Clinics and Multidisciplinary Care Ophthalmologic Management and Advances in Treatment Paediatric Management: Transition to Adulthood and Research All workshops are led by leading specialists in the field of Marfan syndrome and related Genetic Aortic Disorders. Children & Youth Program for ages 5-17! Experience the CMA conference and create memories for a lifetime! Ask your specific questions and learn important information from leading specialists at workshops REGISTRATION FEES Continuing Medical Education (CME) Physicians (non CMA member) $200 Physicians (CMA member) $150 Nurses, OT, PT, and other healthcare professionals $ 60 Residents, medical students, and other healthcare professional students Free Non health/medical professionals (general audience) $ 60 Patient & Family Conference Individual (18 years and older) $ 50 Family (2 adults + up to 2 children under 16 years) $100 Teen (12-17 years of age) $ 25 Children (12 and under) Free

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