in Hope A Conference for Brain Tumor Patients and Their Families August 9-11, 2013 The University of Texas MD Anderson Cancer Center presents

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1 The University of Texas MD Anderson Cancer Center presents Together in Hope A Conference for Brain Tumor Patients and Their Families August 9-11, 2013 Omni Houston Westside Katy Freeway, Houston, Texas

2 presents Together in Hope A Conference for Brain Tumor Patients and Their Families August 9-11, 2013 Omni Houston Westside, Katy Freeway, Houston, Texas will bring you a conference designed to answer your questions about the newest research on the causes and treatment of brain tumors, and strategies for dealing with issues faced by brain tumor patients, their loved ones and caregivers. We invite you to join us and take part in an exciting exploration of new therapies and sharing of common experiences. Educational Sponsors: Conference Chair: Associate, MD Anderson Conference Highlights: General sessions will highlight information on pathology, surgery, the newest treatment strategies as well as complementary therapies, and what current research advances can mean for future therapies. Workshop sessions organized into three tracks will allow you to tailor your educational experience to your specific needs. A consulting room is staffed by experienced health professionals for one-on-one sessions to answer your questions. Refresh and refocus in support groups, or stop by the wellness room to experience massage therapy. MD Anderson wants you to receive the significant benefits of being updated with critiques and updates from our brain cancer medical experts.

3 Consulting Room The Consulting Room is designed to provide personal, one-on-one consultations with health professionals who will be available for scheduled sessions to answer your questions and address specific problems or concerns. You can bring copies of your reports or scans for review. The Consulting Room will be available on Friday from 2:15 4:30 p.m. and on Saturday from 11:00 a.m. 4:00 p.m. Support Groups Friday, 4:00 5:00 p.m. and Saturday, 4:30 5:30 p.m. Young Adults with Brain Tumors Men with Brain Tumors Patients & Families Living with Glioblastoma Multiforme Women with Brain Tumors Embracing Change: Understanding Palliative and End-of-Life Care Work-related Concerns: Navigating Employment, Disability, and Insurance Issues Wellness Room Massage therapy will be available Friday, 2:00 4:00 p.m. and Saturday, 11:00 a.m. 1:00 p.m. The chair massages are funded by Angie s Spa, Cancer Foundation Exhibits In the exhibit area you will find information on products and services for brain tumor survivors and families, health professionals, and others interested in brain tumor, disease, treatment, and recovery. The conference offers organizations and companies the opportunity to exhibit their products and services. Just So You Know If you are living with cancer, Just So You Know would like to invite you to record your oral history on video. You have unique experiences and wonderful stories to tell, and we want to encourage you to share them, record them, and pass them on. Available Friday afternoon, Saturday all day and Sunday morning. Program Noon Friday, August 9, 2013 Registration 12:30 p.m. Welcome Associate Conference Chair MD Anderson 12:45 Mary Lovely, PhD, RN, CNRN American Brain Tumor Association 1:00 Personalized Medicine Mark R. Gilbert, MD 1: :00 Question and Answer Session 2:15 Break 2:45 Brain Tumor Primer: Understanding Diagnosis, Follow-up and Risk Factors Marta Penas-Prado, MD 3:15 Depression and Anxiety Related to Diagnosis and Recurrence: What To Do About It? Mary K. Hughes, RN, CNS 3:45 Question and Answer Session 4:00 Support Groups 5:00-7:00 pm Meet & Greet Reception

4 Saturday, August 10, :00 a.m. Registration and Continental Breakfast 8:30 Keynote Presentation Roslyn Franken, MA, HSI Speaker, Author, Coach 9:00 Surfing the Web for Brain Tumor Information Elizabeth L. Brackeen 9:30 What s New in Treatment of Brain Tumors? Charles A. Conrad, MD 10:00 Question and Answer Session 10:15 Mind-Body Practices in Integrative Medicine Care and Research Alejandro Chaoul, PhD 10:45 Question and Answer Session 11:00 Patient Resting Time Caregiver Sessions: A. A New Normal: Helping Caregivers Adjust and Cope with Their Loved One s Brain Tumor Diagnosis Rebecca Savoie LCSW, OSW-C Sarah Hines, MSSW, LMSW B. Caregiver Process Group Noon Lunch/Siesta (Box Lunch Provided) 1:15 p.m. Workshop Session I Symptom Management: Sexuality and Cancer Peg Fields, MSN, RN The Pediatric Brain Tumor Program at the Children s Cancer Hospital at MD Anderson The Present and the Future Soumen Khatua, MD 2:15 Workshop Session II Radiation Oncology: New Trends and Technologies for CNS Tumors Anita Mahajan, MD Maximizing Cognitive Function Jeffrey S. Wefel, PhD Symptom Management Discussion Group Eva Lu T. Lee, MSN, ANP-BC 3:30 Workshop Session III 4:30 Support Groups Understanding & Managing Treatment Related Complications Monica E. Loghin, MD Surgery and Reoperation Options Ian McCutcheon, MD Paula F. DeMasi, APN 6:00-8:00 p.m. Dinner/Entertainment Drum Cafe Sunday, August 11, :00 a.m. Registration and Continental Breakfast 9:00 Patient Panel: In Their Own Words 9:45 Break 10:00 Panel of Experts Terri S. Armstrong, PhD, APRN-BC Mary Lovely, PhD, RN, CNRN Anita Mahajan, MD Raymond Sawaya, MD W. K. Alfred Yung, MD 10:45 Break 11:00 Keynote Address Juggle for Life Scott Burton 11:45 Summary and Prize Drawing Noon Adjourn

5 MD Anderson Faculty General Session Terri S. Armstrong, PhD, APRN-BC, UT Health Sciences - SON Adjunct Elizabeth L. Brackeen Senior Librarian Patient Education-Learning Center Alejandro Chaoul, PhD Assistant General Oncology Charles A. Conrad, MD Mark R. Gilbert, MD Sarah Hines, MSSW, LMSW Social Work Counselor Social Work Mary K. Hughes, RN, CNS Advanced Practice Nurse Psychiatry Marta Penas-Prado, MD Assistant Rebecca Savoie, LCSW, OSW-C Social Work Counselor Social Work Raymond Sawaya, MD Chair & Associate W. K. Alfred Yung, MD Chair & Workshop Paula F. DeMasi, APN Advanced Practice Nurse Peg Fields, MSN, RN Advanced Practice Nurse Soumen Khatua, MD Assistant Pediatrics Patient Care Eva Lu T. Lee, MSN, ANP-BC Supervisor, Mid-Level Provider Monica E. Loghin, MD Assistant Anita Mahajan, MD Radiation Oncology Ian E. McCutcheon, MD Jeffrey S. Wefel, PhD Associate Guest Faculty Scott Burton Juggle for Life Minneapolis, Minnesota Roslyn Franken, MA, HSI Speaker, Author, Coach Ontario, Canada Mary Lovely, PhD, RN, CNRN American Brain Tumor Association Chicago, Illinois Access Grants Conference sponsors have provided a limited fund for attendees whose financial needs qualify them for assistance. A committee will review access grant applications and allocate available funds to those most in need of assistance with conference registration or lodging costs. Please indicate on the registration form to receive an application or apply on-line at Registration Information On-site registration opens at Noon on Friday, August 9 at the Omni Houston Westside Hotel. The opening session of the conference will begin at 12:30 p.m. on Friday, August 9, 2013 and the conference will adjourn at Noon on Sunday, August 11, Advanced registration is encouraged as space and materials are limited. Please see registration form for applicable fees. There are three ways to register: Mail to Department of CME/Conference Management Unit 1381 P.O. Box , Houston, TX Fax to Register on-line at We accept the following forms of payment: Check (payable through U.S. banks only) Money order Credit cards (MasterCard, VISA, and American Express) Cash (on-site registration only) A receipt and confirmation letter will be sent to you within 10 working days of receipt of your fee. The full conference registration fee includes tuition, final program and materials, continental breakfasts, lunch, breaks, reception and dinner. Agendas are subject to change because we are always striving to improve the quality of your educational experience. MD Anderson may substitute faculty with comparable exptertise on rare occasions necessitated by illness, scheduling conflicts, and so forth. Photographing, audio taping and videotaping are prohibited.

6 Special Assistance Contact the Department of CME/Conference Management at or if you have any special dietary or ADA accommodation needs. Accommodations A block of rooms has been reserved for conference attendees at the Omni Houston Westside Hotel, Katy Freeway, Houston, Texas. Early hotel reservation is suggested. Reservations can be made by phone at or on the internet at MeetingFacilities/BrainTumorConference8.aspx. When you make reservations, be sure to mention the MD Anderson Brain Tumor Conference to be assured of receiving the special meeting rate of $95.00 single or double. Please add 17% state and local taxes. Reservations and deposits received after July 18, 2013 will be confirmed if space is available and at current hotel published guest room rates. THIS IS NOT A SELF-MAILER - Address to: Together in Hope A Conference for Brain Tumor Patients and Their Families Department of CME/Conference Management Unit 1381 PO Box , Houston, TX or fax to Make check or money order payable to: REGISTRATION FEE All Participants Registration by mail...$50 On-site registration...$75 Saturday, August 10, 2013 Dinner (inclusive) 1 Yes 1 No Please send me Access Grant Application 1 Yes 1 No Ground Transportation Houston is served by two airports, George Bush Intercontinental (IAH) and William P. Hobby (HOU). Taxicabs are available at an estimated cost of $40-60, to or from William P. Hobby Airport or George Bush Intercontinental Airport. Super Shuttle operates a shuttle bus between George Bush Intercontinental Airport and the Omni Houston Westside Hotel for $23 one-way and $42 round-trip. For more information, call or toll-free at or on-line at Super Shuttle operates a shuttle bus between William P. Hobby Airport and the Omni Houston Westside Hotel for $18 one-way and $32 round-trip. For more information, call or toll-free at or on-line at CONFERENCE REGISTRATION / Together in Hope A Conference for Brain Tumor Patients and Their Families - August 9-11, 2013 Last Name First MI Highest Degree Department (include box no.) Specialty Institution Physician oyes ono Street City State/Foreign Country/Zip or Mail Code Daytime Phone (with area code) Cell Phone (with area code) Fax (with area code) Address Emergency Contact Phone (with area code) ovisa omastercard oamerican Express Charge the following: Credit Card Holder Name (First/Last) Credit Card Holder Billing Address & ZIP Code Credit Card Number Expiration Date MD Anderson Interdepartmental Transfer (IDT) No.: Business Unit Department Fund Group Fund Fund Type PC BU Project Activity Authorized Signature REQUIRED for credit card or IDT MD Anderson Employee ID No. (REQUIRED) IDT Approver Name (First/Last) please print IDT Approver

7 Department of CME/Conference Management - Unit 1381 # / / PO Box Houston, TX Non-Profit Org. U.S. Postage P A I D Houston, TX Permit No. 7052

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