Mid South Chapter Annual Meeting January 22, 2011

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1 Mid South Chapter Annual Meeting January 22, 2011

2 Mission We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS.

3 ABOUT THE MID SOUTH CHAPTER

4 General Chapter Information Chapter Territory 45,699 square miles 107 counties served (TN, 7 in MS, 1 in AR & 5 in GA) 8,827 registered people with MS 6,950,512 - estimated chapter population Market Growth Percent Change in Population (1.42%)

5 General Chapter Information: Territory Market Area 2 Market Area 1 3,451 (39%) 1,941 (22%) Market Area 3 1,173 (13%) Market Area 4 2,262 (26%) Total number of people with MS: 8,827

6 General Chapter Information: Board of Trustees Chairman of the Board: Phil Lowe, Jr. Jeff Arnett Garrett Asher David Brandes, MD Roger Cole Robert Fallis, MD Mark Fry Ann Giffin Christy Jarrell Demetria Kalodimos Mary Littleton Jeff Lipscomb Dana Moore Bob Mueller Rachel Odom Kevin Poff Steve Quarles Steven Simmons Kathy Smith Ram Sriram, MD Sibyl Wray, MD

7 General Chapter Information: Staff Stacy Mulder President Middle TN Deanna Jones Director of Client Programs & Services East TN Diane Payne VP of Finance & Administration Middle TN Adam Germek VP of Development Middle TN Leslie Morton Manager of Information Systems Middle TN Meredith Kear Client Programs & Services Manager Middle TN Sherry Bramucci Client Programs & Services Manager West TN Carrie Tessier Development Director Middle TN Andie Sanders Development Manager Middle TN Emily Garrett Development Coordinator West TN Lauren Looser Development Coordinator Middle TN Emily Nathanson Development Coordinator Middle TN

8 PROGRAMS & SERVICES

9 Programs & Services In education programs & 12 collaborative teleconferences 97% of our programs were completely underwritten Over 175 face-to-face interactions with 125 clinicians Increased client base by 19% (8,827 people with MS) We submitted the Saint Thomas Center for MS Treatment for consideration as a MS Center of Comprehensive Care Pharma revenue increased by 168% (from $27,169 to $72,820) 64 newly diagnosed clients were engaged 2 scholarships were awarded totaling $2,000 Distributed 50+ holiday gift baskets to people with MS Bear sales increased 2%; total $23,185 utilized to underwrite our financial assistance outreach.

10 Programs & Services: Self Help Groups Self Help Group Locations 28 Total in 107 Counties

11 Programs and Services: Volunteer Engagement Volunteer Leadership 28 Self Help Groups Clinical Advisory Committee Three Chapter Programs Committees Government Relations Committee Developing an Advocacy internship and practicum

12 INFORMATION REFERRAL SERVICE (IRC)

13 Information Referral Center (IRC) The IRC, based in Denver, CO, is staffed by a team of MS Navigators who are licensed clinical social workers or licensed professional counselors. The IRC is often the first point of contact for individuals and family members who are seeking information because of a new MS diagnosis. Navigators answer an average of 160 phone calls per month from the Mid South Chapter and mail approximately 50 packets of information per month. In addition to general information, the IRC routinely handles crisis calls that require immediate response.

14 REVENUE & DEVELOPMENT

15 Revenue & Development: FY10 Walk $502, Jack and Back bike $659, Rock and Roll bike $430, WAMS $137, DOC $0.00 Golf and other special events $73, Wine Tastings $12, Programs Income $94, Research Restricted/Bequests $34, Other revenue sources $152, Direct Mail $51, Total Income $2,150, Total Expenses * $2,055, *Includes 40% Research Remittance

16 Revenue & Development: FY11 Budget Walk $504, Jack and Back bike $671, Rock and Roll bike $509, WAMS $137, DOC Dr. Colleen Conway-Welch $200, The Roast $50, Golf $63, Jack Daniels 5K Run $4, Class Event Chattanooga $22, Wine Events Chapter Wide $15, Programs Income $85, Major Gifts $45, Other revenue sources $114, Interest/Direct Mail Estimates $50, Total Income $2,472, Total Expenses $2,467,997.00

17 Revenue & Development: Bike MS BIKE MS Locations Jack & Back Rock-n-Roll

18 Revenue & Development: Walk MS Walk Locations (12)

19 Revenue & Development: Leadership Events Individual & Major Donors/Golden Circle Other Special Events DOC WAMS Golf 0 '06 '07 '08 '09 '10 Budget '11

20 Calendar of Events 2011 January 22 Annual Meeting & Board Meeting February 17 Nashville Women Against MS Luncheon 25 PT/OT Conference in Memphis March 7-10 Public Policy Conference, Washington DC 10 Nashville Beer Tasting at Blackstone 10 The Memphis Brew Movement MS Awareness Week 16 Board Meeting

21 Calendar of Events Continued April 2 Walk MS: Clarksville, Collierville, Gallatin & Murfreesboro 9 Walk MS: Greeneville and Nashville 16 Walk MS: Chattanooga, Cleveland, Columbia & Knoxville 30 Walk MS: Cookeville May 19 Board Meeting 25 Global MS Day June 12 Bob Mueller Celebrity Scramble Pairings Party 13 Bob Mueller Celebrity Scramble

22 Calendar of Events Continued July 21 Board Meeting 28 Memphis Women Against MS Luncheon TBD Chattanooga Leadership Class August TBD The Roast September 10/11 Rock-n-Roll Bike MS 22 Board Meeting 22 Nashville Dinner of Champions

23 Calendar of Events Continued October 1/2 Jack and Back Bike MS TBD Cue for A Cure 22 Walk MS: McMinnville November TBD Stomp MS: Wine on the Runway December TBD Chattanooga Women Against MS Luncheon

24 RESEARCH

25 Current or recently funded research in the Mid South Chapter Vanderbilt University Medical Center Narayan Bhat, Ph.D. -Department of Medicine, Division of Rheumatology Exploring the association between specific genetic variation and the development of MS $33,000 (ended in August) Saint Jude Children s Research Hospital Hongbo Chi, Ph.D. - Department of Immunology Investigating interactions of the molecule that may have the capacity to turn off the immune attack in MS $117,731 (ongoing) Vanderbilt University School of Medicine Fanglin Zhang, M.D., Ph.D. - Department of Neurology Determining how interferons alter MS-related immune activity for clues to improving current treatments for MS $156,515 (ended in June)

26 Thank You! Together, We re Unstoppable!

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