Unify, Network, Inspire, Treat & Educate. Education for Inflammatory Bowel Disease (IBD) Patients and Their Loved Ones

Transcription

1 Unify, Network, Inspire, Treat & Educate Education for Inflammatory Bowel Disease (IBD) Patients and Their Loved Ones Saturday, March 24, 2018 UPMC Presbyterian Scaife Conference Center, 11th Floor Adult Track: 8:30 a.m. 12:30 p.m. Young Adult/Parent Track: 11:15 a.m. 3:30 p.m. Admission is free, but all attendees must preregister: Tinyurl.com/IBDUNITE

2 UPMC s program will provide a full day of education and support for patients with Inflammatory Bowel Disease (or IBD - a collective term for Crohn s disease, ulcerative colitis and collagenous colitis). The educational track for adult patients will be held in the morning, and a track for young adults (ages 15-25) and their parents will occur in the afternoon. Lunch, patient education materials, and a keynote IBD lecture will be held in the middle of the day, when the programs for all participants young adults as well as adults will overlap. Participants are welcome to attend for the entire day, but are asked to remember that morning and afternoon content will be geared for the separate adult and young adult audiences. Morning Session: For the Adult IBD Patients and Loved Ones 8:30 a.m. Registration for Adult Program D. Ostomy Information and Patient Care Cecilia Zamarripa MSN,RN,CWON Mary Lou Grabowski Jacquelyn Lohman Continental fast 9:00 a.m. Welcome 9:05 a.m. IBD Overview and the Latest News about Treatment Advancements E. Intimacy and Fertility Sheila Ramgopal, MD, MA Lauren Mullinax, MD David G. Binion, MD 9:25 a.m. Behavioral and Psychiatric Components of IBD: Why This Works and Applications for Patients F. Bootcamp for Caregiver Burnout Eva Szigethy, MD, PhD Alyssa Culp, CRNP Eva M. Szigethy, MD, PhD 9:45 a.m. Questions for Dr. Binion and Dr. Szigethy 9:55 a.m. 10:45 a.m. 10:10 a.m. First Adult out Group Session 10:55 a.m. Second Adult out Group Session The first 5 to 10 minutes of each session will be in lecture format, and the remainder of each session will welcome general Q&A and discussion. These topics will be repeated during the second group session at 11:00 a.m. A. Diet and Nutrition: Practicalities and Pointers Erica Lagi, RD, LDN, CNSC Stacey Zettle, MS, RD, LDN B. The Mind-Gut Connection, Hypnosis and Finding Relief J. Brett Crittenden, MS C. Medication Safety and Side Effects Benjamin Click, MD Siobhan Proksell, MD Topics will be repeated. 11:15 a.m. Registration for Teen/Parent Program 11:30 a.m. Lunch Buffet UPMC medical professionals will be seated at each dining table. Attendees are encouraged to ask questions. For all registrants 12:00 p.m. Keynote Lecture: Enduring Crohn s Gregory Reed, PhD Professor and Director, University of Pittsburgh Center for Energy and the GRID Institute For all registrants 12:30 p.m. Adjourn Adult Portion of Program

3 Educational exhibit information will be available throughout Kimberly Goldby-Reffner, RN, BS, CCRC will coordinate the UPMC IBD information table, where you will receive cutting- edge clinical and research materials and can speak with our IBD Afternoon Session: medical team about individual concerns. For the Young Adult IBD Patient, Parents, Family, and Friends 12:45 p.m. Welcome to Afternoon Program B. The Brain-Gut Connection: Using Your Mind to Relax Your Body Emily Weaver, LCSW Janessa Nowlen, PsyD Hayley Ahlfeld 12:55 p.m. IBD Overview and Transitions to Adult IBD Care Marc Schwartz, MD 1:15 p.m. C. Transitions: What to Expect from an Adult GI and the Importance of Medicine Compliance Arthur M. Barrie, III, MD, PhD Sandra Kim, MD Whitney Gray, CRNP Young Adult Panel Young professionals and college students will discuss their IBD experiences and provide pointers and advice. Moderator: Sandra Kim, MD Panelists: 1. Laci Altman 2. Noah Burnett, RN 3. Matthew Carnprobst 4. Anthony Concilla 5. Molly Shannon, BSN, RN 1:45 p.m. 2:00 p.m. First out Group Session The first 5 to 10 minutes of each session will be in lecture format, and the remainder of each session will welcome general Q&A and discussion. These topics will be repeated during the second group session at 2:30 p.m. A. Diet & Nutrition: From Home Eating to Cafeteria & Restaurant Eating Stacey Zettle, MS, RD, LDN Erica Lagi, RD, LDN, CNSC D. Social Aspects & Discussion (Young Adult Patients Only) Marc Schwartz, MD Hilary Michel, MD E. Parent s Role in Transition (Parents Only) David Keljo, MD, PhD Tracey Shannon 2:30 p.m. Second out Group Session Topics will be repeated. 3:00 p.m. Questions, Discussion, Evaluations and Snacks Moderator: Sandra Kim, MD 3:30 p.m. Adjourn Educational exhibit information will be available throughout Kimberly Goldby-Reffner, RN, BSN, CCRC will coordinate the UPMC IBD information table. You will receive cutting-edge clinical and research materials and also have the opportunity to speak with our IBD medical team about individual concerns.

4 Course Faculty: Course Director: UPMC Physicians: Arthur M. Barrie, III, MD, PhD David G. Binion, MD David Keljo, MD, PhD Sandra Kim, MD Sheila Ramgopal, MD, MA Marc Schwartz, MD Eva M. Szigethy, MD, PhD UPMC Clinical Staff: Alyssa Culp, CRNP Kimberly Goldby-Reffner, RN, BSN, CCRC Whitney Gray, CRNP Erica Lagi, RD, LDN, CNSC Janessa Nowlen, PsyD Helen Bittman Sysko, PhD, BCBA-D Emily Weaver, LCSW Cecilia Zamarripa, MSN, RN, CWON Stacey Zettle, MS, RD, LDN UPMC Fellow and Intern Contributors: Hayley Ahlfeld Hilary Michel, MD Benjamin H. Click, MD Lauren Mullinax, MD J. Brett Crittenden, MS Siobhan Proksell, MD Community Expert Contributors: Laci Altman Molly Shannon, BSN, RN Noah Burnett, RN Tracey Shannon Matthew Carnprobst Randi Sigal (IBD Connect) Anthony Concilla Pamela Wein-Levy, RN Mary Lou Grabowski Jacquelyn Lohman (IBD Connect) Cheriese Williams Gregory Reed, PhD

5 Saturday, March 24, 2018 UPMC Presbyterian Scaife Conference Center, 11th Floor Adult Track: 8:30 a.m. 12:30 p.m. Young Adult/Parent Track: 11:15 a.m. 3:30 p.m. Admission is free, but all attendees must preregister: Tinyurl.com/IBDUNITE Questions? Call (412) Parking Directions: Free parking passes will be distributed to attendees at the IBD U.N.I.T.E program. If you are interested in free parking, please plan to park in either self-park at the UPMC Presbyterian Parking Garage (255 Lothrop Street) or valet park at the Falk Valet Parking area (located at the main entrance to UPMC Presbyterian). Parking will be covered for cars parking in these two lots only. For additional information, please visit: Tinyurl.com/upmc-presbyterian-parking. UPMC policy prohibits discrimination or harassment on the basis of race, color, religion, ancestry, national origin, age, sex, genetics, sexual orientation, gender identity, marital status, familial status, disability, veteran status, or any other legally protected group status. Further, UPMC will continue to support and promote equal employment opportunity, human dignity, and racial, ethnic, and cultural diversity. This policy applies to admissions, employment, and access to and treatment in UPMC programs and activities. This commitment is made by UPMC in accordance with federal, state, and/or local laws and regulations. UPP SR/RD 01/ UPMC