Progress in CD: An Update On The Advances In Crohn s Disease
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- Mark King
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1 Dear Registrant: Wednesday, October 6, :00 PM 2:15 PM EASTERN 12:00 PM 1:15 PM CENTRAL 11:00 AM 12:15 PM MOUNTAIN 10:00 AM 11:15 AM PACIFIC Thank you for registering for the upcoming FREE, live educational teleconference, Progress In CD:. This teleconference is presented by the Crohn s & Colitis Foundation of America and features Jonathan Braun, MD, PhD. Dr. Braun is a Professor and Chair of Pathology and Laboratory Medicine at the David Geffen School of Medicine, and Co-Director of the Institute for Molecular Medicine, at the University of California, Los Angeles (UCLA). To join this educational teleconference, please dial in 15 to 20 minutes prior to the start time. Call toll-free (866) and use Conference # Dialing in early helps to ensure that all participants are connected in a timely manner. You will hear important updates from the Crohn s & Colitis Foundation of America while you wait for the teleconference to begin. Included in this packet you will find the following information: Teleconference agenda Speaker biography Program Evaluation form Please note that the evaluation form can also be completed by visiting immediately following the teleconference Crohn s & Colitis Foundation of America Materials For more information about the Crohn s & Colitis Foundation of America, please visit or call the Information Resource Center at 888-MY.GUT.PAIN ( ). Thank you again for your interest in this exciting educational program! Sincerely, Kimberly Frederick, LCSW, MSW Vice President, Patient & Professional Services
2 Teleconference Agenda 12:40 PM 1:00 PM ET Participants join the program Dial-in number: (866) Passcode: :00 PM 1:05 PM ET Program Overview Kimberly Frederick, LCSW, MSW Vice President, Patient & Professional Services 1:05 PM 1:40 PM ET Presentation Jonathan Braun, MD, PhD Professor and Chair of Pathology and Laboratory Medicine David Geffen School of Medicine Co-Director, UCLA Institute for Molecular Medicine University of California, Los Angeles (UCLA) Los Angeles, California 1:40 PM 2:10 PM ET Question-and-Answer Session 2:10 PM 2:15 PM ET Summary and Conclusion Kimberly Frederick, LCSW, MSW
3 Jonathan Braun, MD, PhD Professor and Chair of Pathology and Laboratory Medicine David Geffen School of Medicine Co-Director, Institute for Molecular Medicine University of California, Los Angeles (UCLA) Los Angeles, California Jonathan Braun, MD, PhD, is a Professor and Chair of Pathology and Laboratory Medicine at the David Geffen School of Medicine, and Co-Director of the Institute for Molecular Medicine at the University of California, Los Angeles (UCLA). After earning his medical degree and doctorate from Harvard University, Dr. Braun completed residency training at Brigham and Women s Hospital in Boston and obtained a research fellowship from the Whitehead Institute for Biomedical Research in Cambridge, Massachusetts. Dr. Braun s research currently focuses on the cell biology of the intestine as it relates to the diagnosis and treatment of inflammatory bowel disease. His group is also devoted to new strategies in functional immune assessment, including gene targeting and positron-emission tomography for real-time imaging of immune-mediated inflammation. He has published more than 120 primary research studies, and his work has earned him the March of Dimes Basil O Connor Award, the Leukemia & Lymphoma Society s Special Fellow and Scholar Awards, and a Fellowship of the American Association for the Advancement of the Sciences. Dr. Braun has recently served as chair of the National Scientific Advisory Committee of the Crohn s and Colitis Foundation, and is currently President of the Federation of Clinical Immunology Societies.
4 Your feedback is important to us. We use your comments to help develop future educational programs. For your convenience, we offer two ways to submit your program evaluation: Visit and complete the evaluation online. Complete the information below and mail back to us in the enclosed self-addressed, stamped envelope. Program Evaluation 1. Please rate this program on a scale of 1 to 5. (Please circle one answer for each.) 5=Outstanding 4=Good 3=Satisfactory 2=Fair 1=Poor Overall program Convenience of teleconference/webcast format Effectiveness of faculty speakers Helpfulness of Q&A session After participating in this program, I: (please select all that apply) r Plan to follow up with my doctor on something I learned today r Have a better understanding of Crohn s disease r Feel confident in the current treatment plan r Have the same knowledge base as I did prior to the program 3. How did you find out about the program? (Please check one.) r Mailed invitation r CCFA Web site r CCFA Newsletter r r Referred by friend r Referred by healthcare provider r Doctor s office r Other (please specify) 4. What topics would be of interest for future educational programs? r Ulcerative colitis r Alternative therapies & new treatment options r Pediatrics r Emotional aspects of IBD r Colorectal cancer r Diet & nutrition r Surgery r Side effects of treatment r Other (please specify) 5. How can we improve this program? (Continued)
5 Program Evaluation (Continued) 6. Have you participated in a live teleconference/webcast before? r Yes r No 7. Would you participate in another CCFA teleconference/webcast? r Yes r No 8. Please check if you have been diagnosed with any of the following: r Crohn s disease r Ulcerative colitis r Other r Not applicable 9. How long ago were you diagnosed? r 1 6 months r 7 11 months r 1 3 years r 4 5 years r 6 10 years r more than 10 years r not applicable 10. Did you participate in this program to gather information for: r Yourself r Parent r Sibling r Other relative r Friend r Your patients 11. If you are a healthcare professional, please indicate the category that best describes you: r RN r CPN r GI r GP r Other 12. What is your age? r Under 18 r r r r r 71 or older 13. What is your gender? r Male r Female 14. How did you participate in this program? r Teleconference r Webcast 15. Other comments: Thank you for your feedback. Please return the completed Program Evaluation form in the self-addressed, stamped envelope provided, or send to: Robert Michael Educational Institute LLC 101 Laurel Road Voorhees, NJ 08043
6 INFORMATION RESOURCE CENTER PUBLICATIONS LIST AND ORDER FORM Date: Phone number:( ) Name: ID Number: Organization: Disease Diagnosis (circle one): Street and PO Box: CD UC City/State/Zip: Patient Parent Country: Other: MAIL THIS FORM TO: Attention: INFORMATION RESOURCE CENTER MY.GUT.PAIN Crohn s and Colitis Foundation of America ( ) 386 Park Ave South info@ccfa.org 17 th Floor New York, NY BROCHURES UPDATED: Living with Crohn s Disease: This easy to read brochure discusses an overview on Crohn s disease from diagnosis to treatment to coping. Single copies (maximum of 10): x1 Bulk Quantity: x25 (limit 50 per order) UPDATED: Living with Ulcerative Colitis: This easy to read brochure describes an overview on ulcerative colitis from diagnosis to treatment to coping. Single copies (maximum of 10): x1 Bulk Quantity: x25 (limit 50 per order) Managing Flares and Other IBD Symptoms: Single copies (maximum of 10): x1 Bulk Quantity: x25 (limit 25 per order) Information Resource Center (IRC):This is a valuable resource alerting patients to CCFA s IRC and the various resources available to patients and families on how to manage their diseases. Single copies (maximum of 10): x1 Bulk Quantity: x50 NEW: Understanding IBD Medication and Side Effects Single copies (maximum of 10): x1 Bulk Quantity: x25 (limit 25 per order) KIDS & TEENS A guide for Kids and Teens (maximum of 1 copy) NEW: IBD & ME Activity Book (kids 8-13) Single copies (maximum of 10) x1 Bulk Quantity: x25 (limit 25 per order) Pete Learns All About Crohn s & Colitis: An educational comic book for school age children & teen Single copies (maximum of 2): x1 Crohn s Disease & Ulcerative Colitis: A Guide for Teachers and Other School Personnel Single copies (maximum of 10): x1 Crohn s Disease & Ulcerative Colitis: A Guide for Parents Single copies (maximum of 25): x1
7 FACT SHEETS These easy to read fact sheets offer information on different classifications of medications and other useful information. Please note fact sheets are limited one per order. Please feel free to copy and distribute: Find a Physician or Treatment Center Diagnosing IBD Financial Resources Emotional Factors Know Your A B C s (Colorectal Cancer Awareness) Diet & Nutrition NEW: Complementary and Alternative Medicine (CAM) Sexuality NEW: General Healthcare Maintenance Pregnancy and IBD NEW: Influenza and IBD NEW: Women & IBD Medications Aminosalicylates Antibiotics Biologics Corticosteroids Immunomodulators Surgeries: Surgery for Crohn s Disease Surgery for Ulcerative Colitis Extraintestinal Complications: Arthritis Liver Disease Bone Loss Skin Disorders Eye Disorders Intestinal Complications Kidney Disorders Fact sheets En Español Acerca de la Enfermedad de Crohn (Information on Crohn s Disease) Dieta Y Nutrición (Diet & Nutrition Information) Acerca de la Colitis Ulcerosa (Information on Ulcerative Colitis) INDIVIDUAL MEMBERSHIP Membership includes a membership card with the I Can t Wait information, subscriptions to Take Charge and Under the Microscope, monthly chapter newsletters and discounts on CCFA merchandise. Individual Lay $30.00 Family Lay $60.00 Supporting Lay $ Contributing Lay $ Patron Lay $ Benefactor Lay $ PROFESSIONAL MEMBERSHIPS Professional membership includes subscriptions to Take Charge, Under the Microscope, Inflammatory Bowel Diseases Journal (plus online journal access) as well as a listing in our online physician list available to patients. (Healthcare premier memberships receive the journal quarterly.) Participating Physician $ Premier Physician $ Healthcare Professional $ Fellow $50.00 Group membership is available ($250 per physician) CREDIT CARD INFO Total Charge: Credit Card Type (circle one): Credit Card #: Visa MC Discover AMEX Approval Code: Expiration Date: / July 2010
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