Fanning the Flames: Empowering Leaders in Palliative Care. June 8, 2018 STATEWIDE PALLIATIVE CARE CONFERENCE. Eagle Crest Resort - Redmond, Oregon

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1 Alice Doggett - Smith Rock Scenic View - Terrabonne, Oregon Fanning the Flames: Empowering Leaders in Palliative Care STATEWIDE PALLIATIVE CARE CONFERENCE June 8, 2018 Eagle Crest Resort - Redmond, Oregon Registration Required Space is Limited Registration: OHSU Center for Ethics (1) Click on the Events page (2) The Statewide Palliative Care Conference is the first event listed on the page Registration Fee: $ Sponsored By: Central Oregon Health Council OHSU Center for Ethics in HealthCare

2 STATEWIDE PALLIATIVE CARE CONFERENCE Eagle Crest Resort - Redmond, Oregon Keynote Speaker: Joan Teno, MD, MS Oregon Health & Science University Conference Co-Chairs: Donna Mills Central Oregon Health Council Susan Tolle, MD OHSU Center for Ethics in Health Care Target Audience: Our audience includes social work, medical, nursing, chaplaincy and public health professionals, as well as anyone who wishes to broaden their knowledge of current palliative care issues. Learning Objectives: 1. Discuss emerging challenges faced by palliative care programs around the state and share solutions. 2. Enhance compassionate communication skills by integrating palliative care teams to provide improved patient care. 3. Identify, discuss and share innovative approaches for psychosocial, spiritual and bereavement care. 4. Identify and participate in self-care opportunities. 5. Strengthen collaboration among palliative care and hospice professionals and programs statewide. Credit Statement: Accreditation Oregon Health & Science University School of Medicine is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. Credit OHSU School of Medicine designates this live activity for a maximum of 7.75 AMA PRA Category 1 Credits. Physicians should claim only the credit commensurate with the extent of their participation in the activity. Nursing: This program is currently approved by the OHSU School of Nursing for 7.42 Continuing Education contact hours. Provider is approved by the California Board of Registered Nursing, Provider Nursing Number CEP Social Work: This program is pending approval. Pharmacy: This program is approved for 7.75 Pharmacy Continuing Education contact hours. Nursing Home Administrators: This program is approved for 7.75 general hours. Acknowledgments: Special appreciation goes to John Kinsman for the endowment he established to provide partial support for this conference and The Kinsman Foundation for their support to help underwrite this conference. The conference organizers express their appreciation to the Central Oregon Health Council and the OHSU Center for Ethics in Health Care for their support in co-hosting this year s conference.

3 Fanning the Flames: Empowering Leaders in Palliative Care FACULTY Donna Becker, MSW PeaceHealth Peace Harbor Medical Center Partners in Care Jan Crider, MA, ATR, CCLS OHSU Doernbecher Children s Hospital Barb Hansen, MA, RN Oregon Hospice Association Scott Johnson, M.Div., BCC St. Charles Health System William Kennedy, DO Care Oregon Stephen Kerner, DO PeaceHealth Peace Harbor Medical Center Stephen Kornfeld, MD St. Charles Health System Bob Macauley, MD OHSU Doernbecher Children s Hospital Adriane Mackie, RN Partners in Care St. Charles Health System Donna Mills Central Oregon Health Council Anthony Mistretta, MD Asante - Rogue Regional Medical Center Maureen Nash, MD, MS Providence Joan Teno, MD, MS Oregon Health & Science University Susan Tolle, MD OHSU Center for Ethics in Health Care Eric Walsh, MD Kindred Hospice & OHSU Kate Westmoreland, MD Providence Wilson Wewa Paiute Native American Tribe

4 Fanning the Flames: Empowering Leaders in Palliative Care Friday, June 8, :30 8:00 Registration 8:00 8:05 Welcome Donna Mills 8:05 9:05 Keynote - The Medicare Hospice Benefit at the Cross Roads: Stars, APMs for Palliative Care, and Medicare Advantage Joan Teno, MD, MS 9:05 9:15 Walk Time 9:15 10:25 A1- Helping Children Say Good-Bye A2- Exploring Partnerships with Faith Communities to Enhance Palliative Care Program Success in Advance Care Planning Initiatives A3- Consult Jeopardy Come Play! A4- Evolving Oncologic Therapies and the Impact on the Palliative Care Team Scott Johnson, M.Div., BCC Jan Crider, MA, ATR, CCLS 10:25 10:40 Break GROUP A - 10:40 11:15 Preparing for Death the Native American Way Wilson WeWa, Elder and Spiritual Leader, Paiute Tribe GROUP A 11:15 11:50 SELF-CARE: THREE CONVERSATIONS Scott Johnson, M.Div, BCC 11:50 1:00 Lunch B1- Providing Palliative B2- Creating Cultural Change: 1:00 2:10 Care to Children: What s Increasing Patient Access to the Same and What s Palliative Care in Primary Care Different? Practices Bob Macauley, MD Adriane Mackie, RN 2:00 2:20 Walk Time C1- Rural Communities C2- POLST in Changing Times: 2:20 3:30 with Big Dreams: New Developments and Developing Community- Challenges for us All Based Palliative Care in Rural Areas Kate Westmoreland, MD Stephen Kornfeld, MD GROUP B SELF-CARE: THREE CONVERSATIONS Scott Johnson, M.Div, BCC GROUP B - Preparing for Death the Native American Way Wilson WeWa, Elder and Spiritual Leader, Paiute Tribe B3- Improving Quality Care for Those Dying with Dementia Maureen Nash, MD, MS C3- The Transition from Transplant: When the Unrealistic Wish for Liver Transplant Undermines Medical Decisions B4- Palliative Care in Coordinated Care Organizations (CCOs): Opportunities for Innovation Will Kennedy, DO C4- The Hero Narrative in Hospice and Palliative Care Donna Becker, MSW Stephen Kerner, DO Susan Tolle, MD Anthony Mistretta, MD Eric Walsh, MD 3:30 3:35 Walk Time Nimble and Quick: How Hospice and Palliative Care Programs can Adapt to a Rapidly Changing Medical System Landscape 3:35 4:30 Barb Hansen, MA, RN, CWON 4:30 5:20 Payers, Palliative Care and the Safety Net Will Kennedy, DO 5:20 5:30 Closing Remarks Donna Mills

5 Fanning the Flames: Empowering Leaders in Palliative Care 2018 Statewide Palliative Care Conference Breakout Sessions Please choose one session using the online registration link. Friday, June 8, 2018 Breakout Session A A1 Helping Children Say Good-Bye Jan Crider, MA, ATR, CCLS 1. Explain ways to give difficult information to a child about a poor diagnosis and/or impending death of a loved one. A2 Exploring Partnerships with Faith Communities to Enhance Palliative Care Program Success in Advance Care Planning Initiatives Scott Johnson, M.Div, BCC A3 Consult Jeopardy Come Play! Kate Westmoreland, MD Objectives not available at this time. A4 Review of Evolving Immunologic Therapies in Oncology and the Impact on the Palliative Care Team Stephen Kornfeld, MD Breakout Session B B1 Providing Palliative Care to Children: What s Bob Macauley, MD B2 the Same and What s Different? Creating Cultural Change: Increasing Patient Access to Palliative Care in Primary Care Practices Adriane Mackie, RN 2. Through stories and case examples, learn how to better communicate and support children during difficult times. 1. Discuss the importance of advance care planning and statistics. 2. Discuss The Conversation Project (a national advance care planning initiative) at local and national levels and how to engage faith groups as community partners. 3. Discuss how theology and end of life conversations and advance care planning are good dance partners. 4. How to access resources to provide advance care planning support for your service area. 1. Learn about new targeted and immunologic oncology therapies. 2. Review the challenges these therapies may pose to the Palliative care team. 3. Review strategies for the Palliative care team to work optimally with the Oncology care team 1. Identify areas of contrast and overlap between adult and pediatric palliative care. 2. Empower attendees to take better care of children with life-limiting illness. 1. Describe our model of integrating nurse-driven palliative care in primary care clinics. 2. Share patient outcomes, quality metrics, provider satisfaction, successes, and challenges. 3. Collaborate with the group on strategies and possible solutions to increase access to palliative care. B3 Palliative Care for Special Needs Populations Maureen Nash, MD 1. Participants will understand poorly controlled symptom clusters for those dying with dementia 2. Know standardized tools to use to guide care B4 Palliative Care in Coordinated Care Organizations (CCOs): Opportunities for Innovation Rural Communities with Big Dreams: Developing Community-Based Palliative Care in Rural Areas Will Kennedy, DO 1. Understand Coordinated Care Organizations (CCO) in depth. 2. Understand the state of affairs with palliative care in CCOs across Oregon. Breakout Session C C1 Donna Becker, MSW Stephen Kerner, DO C2 C3 C4 POLST in Changing Times: New Developments and Challenges for us All How Precisely does Precision Medicine Align with Cancer Patient's Real Goals? The Hero Narrative in Hospice and Palliative Care 1. Discuss ways to develop and sustain community-based palliative care programs in rural communities. 2. Explore techniques to address the challenges inherent in rural palliative care. Susan Tolle, MD 1. Understand why Oregonians are more likely to die at home. 2. Learn why the use of POLST to provide code status orders is inappropriate. 3. Analyze why home hospice POLST submission rates are so low and learn about Oregon POLST Quality Reports. 4. Identify why so many POLST orders are being completed at age Learn about new innovations in information sharing and education and explore new paths to better outcomes. Anthony Mistretta, MD 1. Analyze the evidence that modern chemotherapy and targeted cancer therapies actually improve patient survival and, more importantly, quality of life. 2. Develop a model that palliative care providers can use to provide evidence-based counseling to patients facing questions about initiation or continuation of palliative cancer therapies. Eric Walsh, MD 1. To understand the mythical, spiritual, political and professional attributes of the hero. 2. To examine the psychology of how the role of hero appeals to health care providers. 3. To examine how the hero can promote or inhibit healing.

6 Fanning the Flames: Empowering Leaders in Palliative Care 2018 Statewide Palliative Care Conference General Sessions Keynote Panel Plenary Joan Teno, MD, MS The Medicare Hospice Benefit at the Cross Roads: Stars, APMs for Palliative Care and Medicare Advantage Nimble and Quick: How Hospice and Palliative Care Programs can Adapt to a Rapidly Changing Medical System Landscape Payers, Palliative Care and the Safety Net Barb Hansen, MA, RN Will Kennedy, DO 1. Analyze data and research on the hospice rating system. 2. Help attendees understand how to improve systems. 3. Describe next steps for hospice care. 1. Talk about the position of hospice and palliative care programs in medical system. 2. Discuss some myths about palliative care program impact on hospice programs. 3. Discuss strategies hospice and palliative care programs can implement to facilitate timely patient care. 1. Define the population and the various needs. 3. Define basic clinical and care model considerations.

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