Resolutions 2019 Be a superhero (capes optional)

Transcription

1 cysticfibrosis.org.uk/resolutions Resolutions 2019 Be a superhero (capes optional) Fighting for a Life Unlimited

2 Are you ready to be a superhero this year? Team CF superheroes are ordinary people with an extraordinary mission using their passion, interests or skills to fight for a life unlimited by cystic fibrosis. Come and join us, sign up for one of our events This year we are asking you to make one simple resolution join us and be a hero. Sign up for an event or hold your own, and use your superpower to fight for a life unlimited. Team CF superheroes come in all ages, shapes, sizes and backgrounds. No challenge is too big or too small whether you re running an ultra marathon or an amazing cake bake, being a super cyclist or a super step counter. Every hero helps to make a difference to the lives of those with cystic fibrosis. Your team needs you - we have something for everyone to take part in, wherever you are in the UK. Visit cysticfibrosis.org.uk/resolutions. Be a Team CF superhero. (Capes optional.) 2 cysticfibrosis.org.uk

3 Villain Rating The future starts with you! Use our rating guide to find the right challenge for you, and join our fight for a life unlimited. Very Easy (villain rating: all clear!) Easy (villain rating: no sweat) Helpful fundraising hints or tips, ideas and advice on F how to organise an event for the Cystic Fibrosis Trust visit cysticfibrosis.org.uk/howto his is just a taster check T out all the activities and events happening across the UK at cysticfibrosis.org.uk/events Read how Tim is determined to line up at the London Marathon in 2019, on page 12. Average (villain rating: no problemo) Tough (villain rating: step it up, you ve got this) Extremely Tough (villain rating: woah, epic showdown!) Fighting for a Life Unlimited 3

4 Run A one-minute mile, a four-hour marathon, your first fun run line up with Team CF. Choose the right challenge for you and help us create a better tomorrow for people living with cystic fibrosis. Blackpool Festival of Running Blackpool 27 & 28 April Belfast City Marathon Belfast 5 May Great Manchester Run Manchester 19 May Vitality London 10,000 London 27 May Great Strides Ultra Surrey Hills 8 June Great North Run Newcastle-upon-Tyne 8 September Cardiff Half Marathon Cardiff 6 October Royal Parks Half Marathon London 13 October 4 cysticfibrosis.org.uk

5 If you ve got true grit and a muddy-minded determination, these challenges are for you! We ll be there to cheer you all the way (from the nice, dry sidelines). Tough Mudder Various locations All year round 104 could provide lifesustaining medication for a year for someone with cystic fibrosis. By covering the cost of a pre-payment certificate, your gift would fund a year of prescription charges. Activity Villain Rating Average to Extremely Tough Fighting for a Life Unlimited 5

6 Your overseas challenge, your way As a bonafide superhero, the world is your oyster! From mountain trails to city streets to cross-country cycles, help us break barriers while you cross borders. Find more overseas events at cysticfibrosis.org.uk/events 8,000 could help improve the lives of young people living with cystic fibrosis. Your donation could fund our youth empowerment officer for three months, ensuring young people with CF live well during adolescence and make a healthy transition to adult care. Activity Villain Rating Tough 6 cysticfibrosis.org.uk

7 10,400 step challenge Brand new in 2019! Set yourself a timeframe and take a step for everyone living with cystic fibrosis each day. Share your goal on social media and challenge your friends and family to match you. 250 could support someone with cystic fibrosis and their family with the cost of attending a transplant assessment or having a transplant. With demands like travel and accommodation expenses, your fundraising efforts could help reduce the financial and emotional burden at this traumatic time. Activity Villain Rating Average Fighting for a Life Unlimited 7

8 Cycle Put the yellow in yellow jersey with Team CF! Saddle up with Team CF and ride with pride knowing you re making a difference. Tour De Berkshire Berkshire 3 August Prudential Ride London Surrey 100 London/Surrey 4 August London to Brighton Cycle London/Brighton 15 September 6,000 could mean support and information for people affected by cystic fibrosis when they need it most, by funding our helpline for a month. We receive over 300 enquiries each month, ranging from parents of children struggling with treatment, to welfare issues and benefits. Activity Villain Rating Average 8 cysticfibrosis.org.uk to Tough

9 Schools fundraising There are loads of great fundraising activities for your little heroes, from a dressing up day to getting the space hoppers out for a Big Bounce event. School fundraising is a great way for kids to have fun and engage with fundraising while raising awareness about cystic fibrosis. 750 could help ease the financial burden on a family coping with bereavement. We offer grants to support families facing the cost of paying for a funeral for someone with cystic fibrosis. The median age of death of someone with CF is just 31 years old, and we recognise that the death of someone with cystic fibrosis can place a financial, as well as hugely emotional, toll on family members. Activity Villain Rating You can rely on our Events team to help make it a smash. Very Easy Fighting for a Life Unlimited 9

10 21 June 2019 It s that time of year when all our heroes assemble: Wear Yellow Day! Hold a yellow-themed event and get your friends and colleagues to join in. Remember to share the photos with #CFYelfie. Visit cysticfibrosis.org.uk/yellow to see some of our favourites and to download our Wear Yellow Day guide to help you plan!! 10 cysticfibrosis.org.uk

11 #CFYelfie Don t forget CF Week June! Fighting for a Life Unlimited 11

12 Tim Hughes aka superhero superpower: taking on crazy challenges. I signed up for the London Marathon 2019 because I wanted to do something incredible for my 40th birthday and to show the world you can have CF and still do crazy challenges. hether My philosophy w is that you have CF or no t ower. everyone has a superp My first half marathon wasn t a typical experience. I had been training well and had started raising some money for the Trust. Unfortunately, I came down with an exacerbation and was only discharged from hospital six days before the run - I finished my home IVs the day before the race! I know that running is hugely beneficial. I love the energy it s given me, a whole new outlook on life. Looking ahead to the London Marathon I am absolutely petrified - but extremely excited at the same time! 12 cysticfibrosis.org.uk

13 g is hugely I know that runnin energy it s given the ve lo I l. a ci efi n be ook on life. m e, a whole new outl My philosophy whether you have CF or not is that everyone has a superpower. When you push yourself, you find you re capable of more than you ever imagined. Fighting for a Life Unlimited 13

14 Great Strides TM In 2019 Great StridesTM is bigger than ever. Choose from 4 treks, 1 ultra (see page 4) or take on our first ever Triple Peaks Challenge. Team up with family, friends or colleagues and sign up now. Great StridesTM Peak District 1 June Great StridesTM 65 Surrey Hills 8 June Great StridesTM Brecon Beacons 29 June Great StridesTM Yorkshire Dales 6 July Triple Peaks Challenge choose from one of the peaks Snowdon, Scafell Pike or Ben Nevis or take on all three! Visit cysticfibrosis.org.uk/ greatstrides to find out more 14 cysticfibrosis.org.uk

15 2,000 could fund one of our summer studentships, where scientists undertake research projects to improve the health and wellbeing of people with CF in the long term. Activity Villain Rating Tough Fighting for a Life Unlimited 15

16 Big Cake Bake Give those eggs a beating, whip that cream it s cakes not capes! Throw your own tasty fundraiser. 12 could help a young person with cystic fibrosis transition from primary to secondary school. By paying for a support pack, your gift could help someone with cystic fibrosis, their parents or teachers navigate this stressful time. Activity Villain Rating Very Easy 16 cysticfibrosis.org.uk

17 Adrenaline Is it a bird? Is it a plane? No it s a Team CF fundraiser taking their endeavours to new heights! Whether it s skydiving or abseiling, we ve got an extreme challenge for you. Find more adrenaline events at cysticfibrosis.org.uk/events Larpool Viaduct Abseil Whitby 30 March Forth Rail Abseil Scotland 7 July Northampton Lift Tower Abseil Northampton 7 September Devils Gorge Abseil Mold 21 September 25 could allow us to be there with practical advice and a listening ear when someone is struggling. Your gift would provide 1.5 hours of important call time with a trained helpline staff member, offering support for anything from travel insurance to benefits and employment issues. Activity Villain Rating Average Fighting for a Life Unlimited 17

18 Carols by Candlelight Join us for one of the highlights of the festive season. Held in memory of Alice Martineau, who had cystic fibrosis and released her debut album Daydreams in 2002, this evening of carols and readings is organised by her family and friends and has raised well over 1 million for the Cystic Fibrosis Trust over the past 15 years. Get your tickets for this very special evening at cysticfibrosis.org.uk/ carolsbycandlelight. 1,000 could empower someone with cystic fibrosis to develop their passion, hobby or skill into a new business idea. Our Helen Barrett Bright Ideas Awards give people with CF the support they need to help them achieve their ambitions, build self-confidence and give them something to focus on away from living with cystic fibrosis. Activity Villain Rating Very Easy 18 cysticfibrosis.org.uk

19 Volunteering If participating in an event isn t for you, why not use your superpower behind the scenes? Volunteers are an essential part of Team CF! Whether helping set up at events, joining in a cheer crew on a race day, helping with the admin or rallying supporters, help us offer the best event experience ever! Find out more at cysticfibrosis.org.uk/volunteer 10 could provide vital support and information to parents and families when they need it most having just learned their newborn child has cystic fibrosis. Just 10 could ease the distress felt by providing our new diagnosis information pack. Activity Villain Rating Very Easy Fighting for a Life Unlimited 19

20 Save the date CF Week Supporting 2 Researching June 2019 Save the date for our annual awareness and fundraising week, including Wear Yellow Day on Friday 21 June. 6 Trialling 7 Fundraising 3 4 ActivityCampaigning Campaigning 1 Villain Rating Very Easy 20 cysticfibrosis.org.uk 5 6

21 We don t have a bat phone, but we do have sign up to stay in touch! We are very grateful for all your support, and for being part of our mission to beat cystic fibrosis for good. We would like to keep you up to date with the latest opportunities to get involved with our work, from fundraising to campaigns, and share with you the impact your support is having on people with cystic fibrosis, but we need your permission to contact you by . Please fill in and cut out the form overleaf and let us know you are happy to receive our s, and help us fight for a life unlimited by cystic fibrosis. Fighting for a Life Unlimited 21

22 CF is an invisible condition don t become invisible too! We d love to keep you updated about our work and how you can help, including petitions and fundraising activities. Your details will only be used by us and you can change your mind at any time. First name: Surname: Address: Town: County: Postcode: Please write your address here: If you would like to receive s tick here If you no longer wish to receive communication by post tick here For more information about changing your contact preferences please call or supportercare@cysticfibrosis.org.uk. Or update online at preferences.cysticfibrosis.org.uk, either login and click on your name or register. Please see cysticfibrosis.org.uk/privacy-policy for details of our privacy policy. Please return this form to: My permission matters, Cystic Fibrosis Trust, 2nd Floor, One Aldgate, London EC3N 1RE. 22 cysticfibrosis.org.uk RES2019

23 Helpful Information To find out what other activities and events are happening across the UK visit cysticfibrosis.org.uk/events If you have any questions about fundraising or events, contact our Events Team on or Other helpful contacts There are other ways to be a hero - whether you re making a regular donation, remembering someone with cystic fibrosis in your will or getting your work place involved in fundraising - use your superpower and be part of the team. Regular donations : T E: supportercare@cysticfibrosis.org.uk Gifts in wills T: E: legacies@cysticfibrosis.org.uk Companies T: E: company@cysticfibrosis.org.uk Fighting for a Life Unlimited 23

24 Find us online cysticfibrosis.org.uk Cystic Fibrosis #TeamCF Cystic Fibrosis Trust Registered as a charity in England and Wales ( ) and in Scotland (SC040196). A company limited by guarantee, registered in England and Wales number Registered office: 2nd Floor, One Aldgate, London EC3N 1RE.