New PML Caregivers Support Group in Côte-des-Neiges. Join us for the Parcours Parkinson (Parkinson's Journey)

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Dortha Shields
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Y e a r 2, n o 1 S e p t e m b e r 2 0 1 7 IN THIS

Côte-des-Neiges Thanks to the support of L'Appui

support group for promotes an approach of mutual

Register at PML at montreallaval@parkinsonquebec.

Guided by an experienced health professional,

held once a month (Tuesdays from 3:30 pm to 5:30

H3W 3C8 (Côte- Ste-Catherine Metro station).

Parcours Parkinson (Parkinson's Journey) The main

September 17th at Parc La Fontaine (in front of

) A fun & festive gathering, the Journey is an

improve the services of Parkinson Montreal Laval.

You can register or make a donation at www.

ca (by selecting the Montréal-Laval journey) or on

Make a donation after September 17th PML can

1 Y e a r 2, n o 1 S e p t e m b e r IN THIS ISSUE New PML Caregivers Support Group in Côte-des-Neiges Thanks to the support of L'Appui Montréal, Parkinson Montréal-Laval (PML) now has a support group for promotes an approach of mutual aid, respect, openness and nonjudgment. Register at PML at montreallaval@parkinsonquebec.ca caregivers of people with PD. Guided by an experienced health professional, caregivers share experiences and information on ways of doing and acting. This group aims to break the isolation Meetings are held once a month (Tuesdays from 3:30 pm to 5:30 pm) at the Centre Évasion, 5701 Décarie Blvd, Mtl H3W 3C8 (Côte- Ste-Catherine Metro station). The Centre Évasion can offer respite at home during the meetings. For information and reservations, contact the Centre at often felt by caregivers and Join us for the Parcours Parkinson (Parkinson's Journey) The main source of funding for Parkinson Montréal-Laval September 17th at Parc La Fontaine (in front of Espace La Fontaine, 3933 du Parc La Fontaine Av.) A fun & festive gathering, the Journey is an annual rendez-vous to raise funds to maintain & improve the services of Parkinson Montreal Laval. People can participate by walking 1 or 2,5 km, or by running for 2,5 or 5 km. There will be many kiosks, animation & places to picnic together. Come join the fun! Register is open at 9 am. You can register or make a donation at (by selecting the Montréal-Laval journey) or on the day of the event. Make a donation after September 17th PML can receive donations at any time via website of Canadon - page of Parkinson Montréal-Laval. Or make a check payable to Parkinson Montreal-Laval and mail to 550 Sherbrooke Street West, West Tower, Suite 471, Montreal (QC) H3A 1B9. THANK YOU FOR YOUR SUPPORT!!! which allows us to offer services for the well-being of people living with Parkinson's in Montreal and Laval.

P a g e 2 Parkinson en mouvement (PEM) is celebrating it's 10th anniversary this year.

PEM programs are based on research on the positive effects of music, dance, certain types of movements and voice exercises for people with PD.

He presents PEM dance classes as a therapy that has done him the greatest good. He regrets that, unlike the many drugs he takes, PEM dance-movement classes are not reimbursed by the RAMQ.

2 P a g e 2 Parkinson en mouvement (PEM) is celebrating it's 10th anniversary this year. Ten years of having people with PD & their caregivers dancing and singing to improve their posture, their gait, their balance AND for the mere fun of it! PEM programs are based on research on the positive effects of music, dance, certain types of movements and voice exercises for people with PD. Tom Lozar, who is in a PEM dance class, gave a vibrant testimony in an article published in The Montreal Gazette this summer. He presents PEM dance classes as a therapy that has done him the greatest good. He regrets that, unlike the many drugs he takes, PEM dance-movement classes are not reimbursed by the RAMQ... After 10 years of contributing to the well-being of people living with PD, PEM hopes the Ministry of Health will some day recognize its value. PEM offers courses in Downtown Montreal, Notre-Dame-de-Grâce, Rosemont, and the South Shore. It has plans to open up classes in Dorval & Laval. For information: Tania at or Sarah at parkinsonenmouvement@gmail.com Website: parkinsonenmouvement.org Article by Tom Lozar at The Montreal Women's Y has a conference to explain the services provided to seniors by CLSCs and how to access them. Entitled "Navigating the System: Understanding Services for Seniors by the CLSC", the conference is presented by the Y Caregiver Support Program. It is open to all but requires registration. Each participant will receive documentation including relevant resources and information. Conference in English on 12 October 2017; in French on November 28 Registration: , ext. 226 / relativesaidantes@ydesfemmesmtl.org

Y e a r 2, n o 1 P a g e 3 For people living East of Saint-Laurent Boulevard in Montreal, Accès Bénévolat-Est de Montréal offers a transport escort service for medical appointments.

In this case, a fee of $ 0.50 per kilometer applies, beginning & ending at the residence of the escort.

For information: Claire Parr à Accès Bénévolat 514.523.6599 ext. 35 / info@accesbenevolat.org Parkinson Quebec produces webinars on topics of interest for people with PD.

The four webinars to be produced this fall will examine labor rights and workers with PD; autonomy and the loss of it; changing sexuality; the latest advances in research.

3 Y e a r 2, n o 1 P a g e 3 For people living East of Saint-Laurent Boulevard in Montreal, Accès Bénévolat-Est de Montréal offers a transport escort service for medical appointments. The accompanist stays with the person throughout their journey (in regular STM or adapted transport) and in the waiting room. The accompanist can also provide transportation. In this case, a fee of $ 0.50 per kilometer applies, beginning & ending at the residence of the escort. To be eligible for this service, the CLSC must validate that the person is low-income, suffers a loss of autonomy and has no one to accompany him to his medical appointments. For information: Claire Parr à Accès Bénévolat ext. 35 / info@accesbenevolat.org Parkinson Quebec produces webinars on topics of interest for people with PD. Those already produced include topics such as empowerment; drugs and their effects; optimization of medication; motivation; travel. The four webinars to be produced this fall will examine labor rights and workers with PD; autonomy and the loss of it; changing sexuality; the latest advances in research. It is possible to listen to the webinars already produced via the U-tube pages of Parkinson Québec. To participate in live webinars in the future, and thus be able to ask questions, simply register and choose if you want to be part of a viewing group or watch from home. The latter option requires only a computer and Internet access. For more information and registration: Claudie Noël, project manager ext. 222 / cnoel@parkinsonquebec.ca) A team from McGill University wants to look at the brain of people with PD as they are walking. They need walkers... This is just one of the many research projects on PD going on in Montreal that require participants with PD. To register with the participant bank : The Réseau Parkinson Québec / Quebec Parkinson Network: -qpn.ca - section for participants

P a g e 4 Parkinson Montreal-Laval (PML) provides free services to people living with PD and their caregivers.

adapted dance & exercise classes are some of PML's services. Following is the list of services as of autumn 2017. Others will be added during the year.

868.0597 WEB: parkinsonmontreal-laval.ca A diagnosis of PD comes as a shock, causes anxiety and many questions.

Registration required by email or telephone. PML currently has five self-help groups that meet once a month in different areas of Montreal & Laval.

All of our self-help groups are run by volunteers and aim to break isolation, promote verbalization and mutual support.

4 P a g e 4 Parkinson Montreal-Laval (PML) provides free services to people living with PD and their caregivers. Meetings for newly diagnosed, self-help groups, caregiver support groups, conferences on how to better live with PD, financial support to organizations offering adapted dance & exercise classes are some of PML's services. Following is the list of services as of autumn Others will be added during the year. For more information or to register for these activities, please call or write to Nicole Sicard, Coordinator montreal-laval@parkinsonquebec.ca TÉL.: WEB: parkinsonmontreal-laval.ca A diagnosis of PD comes as a shock, causes anxiety and many questions. Thus, PML organizes individual or small group meetings that address different aspects of life with PD, and answer many of the questions people may have. Registration required by or telephone. PML currently has five self-help groups that meet once a month in different areas of Montreal & Laval. PML also offers training for people who would like to organize groups in the spirit of extending this service to other neighbourhoods. All of our self-help groups are run by volunteers and aim to break isolation, promote verbalization and mutual support. At the moment, there are meetings in Montreal's- East end, West end & Downtown; as well as in Dorval and in Laval-des-Rapides. EAST-END GROUP (HOCHELAGA-MAISONNEUVE) Location: Carrefour Jeunesse Emploi Hochelaga-Maisonneuve, 3440 Ontario St East, Mtl H1W 1P9 Schedule: The last Friday of each month, from 1:30 pm to 3:30 pm. Moderator: Richard Goulet Spoken language: French

Y e a r 2, n o 1 P a g e 5 DOWNTOWN GROUP Location: Parkinson Montreal-Laval offices, 550 Sherbrooke Street West, West Tower, Suite 471, Montreal, Qc, H3A 1B9 Schedule: The third Friday of each

5 Y e a r 2, n o 1 P a g e 5 DOWNTOWN GROUP Location: Parkinson Montreal-Laval offices, 550 Sherbrooke Street West, West Tower, Suite 471, Montreal, Qc, H3A 1B9 Schedule: The third Friday of each month, from 6 pm to 8 pm Moderator: Carmen Fortin Spoken language: French WEST END GROUP (note: this group will be activated when enough people show interest for it) Location: Côte-des-Neiges-Notre-Dame-de-Grâce borough (exact location to be determined) Schedule: The first Wednesday of each month, from 1:30 pm to 3:30 pm. Moderators: Paul Mallette and Bernadette Cardyn Languages spoken: English WEST ISLAND GROUP Location: Herron House, 2400 Herron Road, Dorval, H9S 5W3 Schedule: The second Tuesday of the month, from 6:30 pm to 8:30 pm Moderator: Claire Savage Spoken language: French LAVAL GROUP* Location: Emile-Nelligan Library, 325, Cartier West blvd, Laval, H7N 2J5 Schedule: The last Tuesday of each month, from 1:30 pm to 3:30 pm Moderator: Annie Mathieu Spoken language: French *Self-help group in Laval! PML opened its first self-help group in Laval in January Discussions are in French, and brings together a dozen participants. Annie Mathieu, the animator of the group, offers a glimpse: "The members of the self-help group in Laval know how to give themselves time to" talk and listen "without judging one another. Though Parkinson's is what brought us together, we talk about things that relate to our global health. We've discussed things like our ability to manage our level of anxiety, our need for a rich inner life (well-being / spirituality), and how to cue into our strenghts." Motivation and personal values will be part of the themes discussed in the coming months. Would you like to join the group or make suggestions? Write to Annie: anniemathieu13@gmail.com

P a g e 6 Parkinson's disease presents particular challenges and leads to constant changes in life. As a caregiver, it is good to feel that we are not alone in living this adaptation on a daily basis.

The group promotes an approach of mutual support, respect, openness and non-judgment.

6 P a g e 6 Parkinson's disease presents particular challenges and leads to constant changes in life. As a caregiver, it is good to feel that we are not alone in living this adaptation on a daily basis. That's why PML has created a caregiver support group to break their isolation and share experiences while learning to take care of themselves. The group promotes an approach of mutual support, respect, openness and non-judgment. Location: Centre Évasion, 5701 Décarie blvd, Mtl H3W 3C8 (Côte-Ste- Catherine Metro station) Schedule: One Tuesday per month, from 3:30 pm to 5:30 pm Moderator: Christianne Bourgie, health professional Spoken language: French Please note: Registration to the group is with PML not the Centre Évasion Another note: Centre Évasion is an NPO specializing in respite services. It can offer a presence at home while the caregiver is attending the group meeting. Please contact the Centre to specify terms and conditions, including costs. Centre Évasion: This fall, PML is offering two lectures on "How to better live with PD", one on appropriate exercises for people with PD, the other on medication. The conferences are in French, and each lasts 90 minutes. They are presented in many Montreal neighbourhoods and in Laval. All the places chosen are accessible to persons with reduced mobility. SCHEDULE OF PHYSICAL EXERCISE CONFERENCES Language: French The PHYSICAL EXERCISE conference presents activities and exercises adapted for people with PD & their caregivers. How to make a wise choice of activity, based on one's tastes, schedule & capacities and how to maximize the overall benefits of physical exercise. IN MONTRÉAL Thursday, September 8 at 1:30 pm Langelier Library, 6473 Sherbrooke Street East, Mtl, H1N 1C5

Y e a r 2, n o 1 P a g e 7 Thursday, September 14th at 1:00 pm Cartierville Library, 5900 de Salaberry Street, Mtl, H4J 1J8 Thursday, 28 September at 6:30 pm In the offices of Parkinson

7 Y e a r 2, n o 1 P a g e 7 Thursday, September 14th at 1:00 pm Cartierville Library, 5900 de Salaberry Street, Mtl, H4J 1J8 Thursday, 28 September at 6:30 pm In the offices of Parkinson Montreal-Laval, 550 Sherbrooke Street West, West Tower, Suite 471, Mtl, H3A 1B4 Tuesday, October 3 at 1:30 pm Saint-Henri Library, 4707 Notre-Dame Street West, Mtl, H4C 1S9 IN LAVAL Wednesday, 20 September at 6:30 pm Wednesday, 15 November at 1:30 pm Germaine-Guèvremont Library, 2900 Concorde East Blvd, Laval, H7E 2B6 - SCHEDULE OF MEDICATION CONFERENCES Language: French The conference on MEDICATION addresses how the various drugs work & new therapeutic avenues; what best suits each person & why; the importance of taking medication on time and the tricks to be successful in doing so. IN MONTRÉAL Thursday, October 12 at 1:00 pm Cartierville Library, 5900 de Salaberry Street, Mtl, H4J 1J8 Thursday, October 13 at 1:30 pm Langelier Library, 6473 Sherbrooke Street East, Mtl, H1N 1C5 Tuesday, November 7 at 1:30 pm Saint-Henri Library, 4707 Notre-Dame Street West, Mtl, H4C 1S9 Thursday, 9 November at 6:30 pm In the offices of Parkinson Montreal-Laval, 550 Sherbrooke Street West, West Tower, Suite 471, Mtl, H3A 1B4 IN LAVAL Wednesday, 11 October at 6:30 pm Wednesday, December 6 at 1:30 pm Germaine-Guèvremont Library, 2900 Concorde East Blvd, Laval, H7E 2B6

8 P a g e 8 PML supports some fitness groups that provide services specifically designed for people with PD. It currently supports Parkinson en mouvement, a Montreal based NPO that has people with PD & their caregivers dancing and singing for 10 years now; as well as Neuromotrix and the kinesiologist Marie-Eve Robillard who offer adapted exercises and boxing lessons. Parkinson en mouvement has courses in Downtown Montreal, Rosemont and Notre-Dame-de-Grâce; Neuromotrix in the East end of Montreal; and Marie-Eve Robillard in Rosemont and Laval. The schedule and the rates of the activities are specified on the website of each organization. Parkinson en mouvement Tania at or Sarah at parkinsonenmouvement@gmail.com Neuromotrix Tel.: info@neuromotrix.com Marie-Eve Robillard, kinésiologue Tel.: meve.robillard@gmail.com The David Matthew Aronson Fund was created by the family of this young man who was diagnosed with PD when he was only 32 years old. The fund is intended to provide financial support for the cost of an exercise program for people with PD aged 50 and under. Please fill in the form for this purpose. You will find it on our website in the Service tab then young diagnosed. Here is the link: Fonds-Aronson.2doc-6.pdf

9 Y e a r 2, n o 1 P a g e 9 The CHUM and MUHC movement disorder clinics serve people with PD and other movement disorders. They are at the forefront of what is done in terms of diagnostic services, evaluation and follow-up. Teams include neurologists, nurses, physiotherapists, speech therapists, social workers and occupational therapists. A doctor's reference is required to be admitted to these clinics. Several Day Centers in the health care system have adapted exercise programs for people with PD. Most require a reference from the local CLSC. Find you CLSC: Parkinson en mouvement (PEM) offers dance-movement and singing lessons designed specifically for people with PD & their caregivers. Courses are offered in Downtown Montreal, Rosemont and Notre-Dame-de-Grâce; hopefully soon in Laval and Dorval. The Cummings Community Center has adapted programs for people with PD including exercises, boxing and Tai Chi. FOR CAREGIVERS, their are several organizations specialized in services for them, One is The Caregiver Network, a distance learning network offering support to caregivers, their loved ones and to the health care professionals who work with them. Several organizations, including Parkinson Québec, have teleconferences on that network. Huddol, for caregivers Huddol is a new social network for caregivers launched by Parkinson Québec last April. Huddol allows a caregiver to share experiences, thoughts and concerns with others going through the same things, interact with professionals, and find valuable information on Parkinson s. Overall, Huddle reduces isolation and fosters support among caregivers. To sign up simply click the link: English community: French community: Choose Parkinson Caregivers. L'Appui Montréal - Support for Caregivers in Montréal Tel.: L'Appui Laval - Support for Caregivers in Laval Tel.: Montreal's South-West Caregivers Group (covering Dorval-Lachine-Lasalle-Verdun) Tel.: The Lavallois Association of Caregivers - for caregivers in Laval Tel:

10 P a g e 10 Parkinson Montreal-Laval (PML) offers direct services to people with PD who live on the island of Montreal or Laval. PML is a member of "Parkinson Quebec" which produces information tools to inform about Parkinson's disease and how to live better with it. It also supports research. Together, the two organizations have many tools and experienced resource people to contribute to the well-being of people with PD. Another major organization is the " Parkinson Quebec Network", which brings together researchers in Quebec studying PD, and keeps a registry of people with PD who are willing to participate in research projects. Info line T

SPRING-SUMMER PROGRAM APRIL TO AUGUST 2018

SPRING-SUMMER PROGRAM APRIL TO AUGUST 2018 Painting created by Michel D. during art therapy workshops for people with dementia Contact us to identify the programs and activities that best suit your needs!