Tea. Time for. Scones. fortsc. Fundraising Pack 2018

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1 Fundraising Pack 2018

2 Hi everyone I'm Kathryn, Fundraising Officer for the TSA, and I'd like to tell you about for TSC For those of you who don't know, for TSC 2018, runs from Monday 14 May to Sunday 20 May, with TSC Global Awareness Day on Tuesday 15 May being the highlight of the week. It is our flagship fundraising event and, I am glad to say, over the last few years it has gone from strength to strength. We now need your help to make for TSC 2018 our best year ever. It's really easy to get involved it's all about drinking tea, eating scones (or any treats you fancy!) and sharing information about TSC and the TSA with your family, friends, neighbours, colleagues, team mates, school friends, club or society pals. To help you to do this we have created this fundraising pack which is packed with great ideas to help you make the most of our for TSC 2018 appeal. For the first time, we have worked with a diet expert and TSC community member, to bring you a recipe for a Ketogenic Scone which many people with TSC will enjoy and may find to be a healthier alternative to traditional scones. You can find this recipe inside Remember, you can hold a for TSC event anywhere you choose - at work, at school, where you worship, with your team mates, or even in your own home. The choice is yours. I'm always here to help you with your events, you can contact me at kathryn.harrison@tuberous-sclerorsis.org to support awareness raising for TSC Global Awareness Day, it would also be great if you could share your stories and photos on our social media ; Facebook, Twitter and Instagram. So good luck, enjoy and I look forward to hearing all about your delicious treats and seeing your photos and videos. To make your fundraising as easy as possible, we ve included in this pack: 1. 5 ideas for fundraising events. 2. A basic scone and ketogenic recipes, you don t have to be Delia to make these! 3. Poster and invitations so you can tell everyone when your event will happen. 4. Cake or cocktail flags to jazz up those delights. 5. Thank you letter from an affected family. The affect of TSC on families can be tough to explain. Print this letter so your guests can read the Collin s family s story of living with the condition 6. A Gift Aid Form and return slip to make the most of every penny raised, we can claim an extra 25p in every 1 donated. As a small charity with enormous ambitions for everyone affected by TSC, you can rest assured that every penny raised will make a significant difference to our work. So, thank you on behalf of the 10,000 people affected by this condition. Kathryn Harrison Community Fundraising Manager (North) Want a printed pack sent out to you? Or a collection tin? fundraising@tuberous-sclerosis.org Call: or

3 5 Top Fundraising Ideas 1. Summer garden party Do you have a large garden or community centre that could host a family friendly summer party? Think croquet, games, delicious cakes and tea. 2. Office breakfast Create a great start to the day with some homeibaked savoury scones and strong tea to kick start your colleagues day. 3. cocktail party There s nothing like an evening with a group of friends, sipping on tea cocktails with scone based nibbles. Who could refuse that invitation? 4. Scone bake off Many people love a competition. For those of you who like your baking, why not host a bake-off event? 5. High tea party Think fine china, world teas, sandwiches and scones to delight you and your guests have the perfect recipe for an afternoon high tea party.

4 Basic Scone Recipe Grab your pinny, warm that oven and let s get this scone bake on! Ingredients - Makes g/8oz self raising flour A pinch of salt 55g/2oz butter 25g/1oz caster sugar 150ml/5fl oz milk 1 free-range egg, beaten, to glaze (alternatively use a little milk) Preparation Method 1. Heat the oven to 220C/425F/Gas 7. Lightly grease a baking sheet. 2. Mix together the flour and salt and rub in the butter. 3. Stir in the sugar and then the milk to get a soft dough. 4. Turn on to a floured work surface and knead very lightly. Pat out to a round 2cm/¾in thick. Use a 5cm/2in cutter to stamp out rounds and place on a baking sheet. Lightly knead together the rest of the dough and stamp out more scones to use it all up. 5. Brush the tops of the scones with the beaten egg. Bake for minutes until well risen and golden. Leave on a wire rack to cool, serve wit jam and cream - and do save some to sell before munching them down!

5 Ketogenic Recipe (8-10) This ketogenic scone recipe was designed and written by a TSC Mum who uses the ketogenic diet, and who is also a nutritional specialist. But this recipe is for everyone to enjoy! Blend together: 100g ground almonds / full fat almond flour 100g melted unsalted butter 30g double cream 120g (approx. x 3 medium sized) eggs ½ a teaspoon of baking powder Then gently stir in 70g raspberries* If you have a sweet tooth, add zero-carb sweetener to taste (e.g. 8 drops of Hermesetas liquid) Add water if needed to achieve a smooth cake mixture type consistency. Pour into a greased or silicone cupcake baking tin and cook at 180 degrees centigrade for 20 mins Serve with clotted cream if desired. (2.9:1 fat:carb/protein ratio without the clotted cream) What is the ketogenic diet? A ketogenic diet is a low carb high fat diet which some people with TSC have found useful to help control epilepsy. *The raspberries can replaced with 70g Dr Oetker dark chocolate chips plus a 5 drops of vanilla extract; or with 20g of lemon juice and some zest; or with 35g blended banana plus ½ a teaspoon of ground cinnamon. Happy baking! for TSC 2018 Appeal Name: Address: Postcode Phone: I have raised and enclose a cheque. Sorry, I couldn t host an event but would like to make a donation of... We would like to keep your contact details on file so that we can keep you up to date of the charity s activities. Please tick this box if you are happy for us to keep your details on file and contact you for future events Please return to: Kathryn Harrison, The Tuberous Sclerosis Society, CAN Mezzanine, Loman Street. London SE1 0EH

6 Donating Text TEAS01 with the amount you d like to donate to Visit and click Donate Send a cheque to: Tuberous Sclerosis Association, CAN Mezzanine, Loman Street, London, SE1 0EH Join The Community TSAssociationUK Need help organising your event, or just want to talk it through? Call or Kathryn on fundraising@tuberous-sclerosis.org

7 We re raising money to support families affected by the rare genetic condition Tuberous Sclerosis Complex Come Join Us! Everyone Welcome When and Where Share your scrummy photos using #and For more info go to

8 You are invited to for TSC at We re raising money to support families affected by the rare genetic condiuon Tuberous Sclerosis Complex You are invited to for TSC at We re raising money to support families affected by the rare genetic condiuon Tuberous Sclerosis Complex You are invited to for TSC at We re raising money to support families affected by the rare genetic condiuon Tuberous Sclerosis Complex

9 Cake Flags Cut out these adorable flags and stick them to cocktail sticks to make cake or cocktail flags for your for TSC 2018 party.

10 Are you a UK Taxpayer? If so, you can use Gift Aid to make your donations go further by completing this declaration. If you Gift Aid your donation, the charity will continue to receive an additional 25p. Please complete the form below and return it to us with your donation. Thank you for your support. Charity Name: Tuberous Sclerosis Association Amount Date / / Tick all that apply I would like to Gift Aid this donation I would like to Gift Aid all future donations until further notice I would like to Gift Aid all previous donations for the charity s current financial period and the previous six Name Surname Address Postcode Tel Signature To qualify for Gift Aid, you must pay an amount of UK Income Tax and/or Capital Gains Tax at least equal to the tax that the charity reclaims on your donations in the appropriate tax year (currently 25p for each 1 given)*. Tax year is 6 April one year to 5 April the next. Data Protection: In accordance with the 1998 Data Protection Act, the Tuberous Sclerosis Association (TSA) would like to use your details to keep you informed about our work and send you further appeals for help. Please tick this box if you are happy for us to keep your details on file and contact you for future events Thank you for your support it is greatly appreciated. Please return to : Tuberous Sclerosis Association, Can Mezzanine, Loman Street, London, SE1 0EH. Tuberous Sclerosis Association is a Company Limited by Guarantee Registered in England and Wales No English Registered Charity Number Scottish Registered Charity No. SC Registered Office: CAN Mezzanine, Loman Street London. SE1 0EH

11 Hi! We are Victoria and Dale Collins and we live in Cardiff with our four children, Josh, Ollie, Oskar and Jess. Jess has Tuberous Sclerosis Complex and in 2016 we volunteered to help the TSA to make a video to promote the annual for TSC 2018 appeal. Jess was then two years old and we really didn t know where we were going to be with her. At that time she hadn't started to talk and we didn t dream of her going to mainstream school. And now, two years later, not only is Jess talking but she is in mainstream school and doing very well. Having the TSA there for support has been immense. There is so much information on the website, there are family day outs, and the regional support advisers who are there on the end of the phone and at the drop of a text message. We have been very, very fortunate to have had so much support and information from the TSA and we know that we wouldn't be where we are today without their help. All this costs money so we're asking you, as supporters, to please do whatever you can to fundraise for the TSA to help keep these vital services going. A for TSC 2018 get together is one of the easiest ways to raise money all you need is some friends, some tea and cakes and the opportunity for your friends to make a donation of their choice, and some information about TSC and the TSA to share. It really is as simple as that. So please get a brew on and start baking and do what you can and let's all help to make for TSC 2018 the best year ever. Thank you, Victoria, Dale, Josh, Ollie, Oskar and Jess