8 doctors and 10 years to be

Transcription

1 NURSE S TOOLKIT It taks an avrag of 8 doctors and 10 yars to b dianosd with ndomtriosis. You can hlp chang livs.

2 HOW TO USE THIS TOOLKIT girls in your s u join thousands of nurs school & community. Yo U.S. who ar nacting & ducators across th w can chang livs. this program. Togthr, lp you rcogniz OUR primary goal is to h & ncourag girls to ndomtriosis symptoms Rsarch shows that sk appropriat car. th first to know whn school nurss ar usually ms. As arly rcognition a tnag girl has sympto u play a pivotal rol. & diagnosis ar ky, yo idas on how you THIS toolkit shars facts & impact in your may mak th gratst school & community. m of th world s WE VE partnrd with so rvard, Yal, Stanford formost xprts from Ha s rsourc togthr. & many mor to put thi r. Simply put, Howvr, it can t stop th it happn. w nd you to mak THANK YOU for hlping ork for lasting dw YOU CAN lay th groun dvastating narrativ chang. W can nd th n lad th way. of ndomtriosis. You ca n Coh r n o c du nn Sha ctor/pro at? h r W Di ndo of E NURSE EDUCAT INITIATI ION VE THIS I S ACTIO A SOCIAL N CAM inspir PAIGN d by th ENDO WHAT succssful fi lm? W v spark d an in mov m t sprad nt to chang rnational ing wid spra girls livs b THE P y d awar OWER nss. lis in OF TH th pa E PRO rt you w GR ho wo icipation of nurss AM r k halth a c h lik d y scho ols & c ay to crat o m muniti By usi s. ng thi s Spc and To ial Ed olkit, ition D y ou ar xtrao VD part o rdinar f this y mov mn t!

3 WHAT YOU NEED TO KNOW RONIC, IS A CH u similar to tiss r wh E AS SE SYSTEMIC DI th utrus. ws outsid th lining of th utrus gro lops into lsions which This misplacd tissu dv t cycl in th sam way tha l rspond to th mnstrua nth mo ng dos: ach th tissu of th utrin lini down, and shds. aks br up, lds th tissu bui ding and inflammation This rsults in intrnal bl scarring, adhsions,, causing pain, infrtility and bowl problms. Y. Du to a lack of, it taks an avrag of tion awarnss and misinforma, diagnosd. Unfortunatly 10 yars & 8 doctors to b by sly iou sr n always tak complaints of pain ar not. rs vid pro halthcar EARLY DETECTION IS KE Plas hav your radar up. TEENAGERS ARE NO T TOO YOUNG TO HA VE. An st imatd 1 in 10 girls & womn absolutly know girls wh o hav it. ENDO IS AN INVISI BLE ILLNESS. Girls ma y look halthy, but still xprin c xcruciating pain & oth r symptoms. PERIOD PAIN IS NO T NORMAL. A subtl discomfort during priods is norm al, but svr pain tha t intrfrs with a girl s lif is NOT. 70% of girls with chron ic plvic pain hav ndomtriosis. hav ndomtriosis so you IS NOT AN STI. A girl can NOT catch it. Th caus is un known although w kn ow that gntics, hormons, dit & xposur to crtain nvironmntal toxins may play a rol. Th girl did nothing wr ong to hav it. Thr ar othr sympto ms byond plvic pain. A girl may hav ONE, ALL or any COMBINATION of th s: SYMPTOMS Svr priod cramp s (pain so bad that sh can t do hr usual routin for hours or days at a tim ) Havy priods Bloating, nausa, dia rrha or constipation, pain with bowl movmnts (co uld b constant or ma go with priods) y com & Frqunt or burning urination Pain with xrcis or activitis Fatigu Pain with sx

4 HOW YOU CAN HELP A GIRL WITH : PROVIDE SUPPORT & a plac to rst whn th pain is flaring. It s important to track symptoms and tims of th month. If th pain and/or symptoms ar cyclical, thr should b a strong suspicion of ndomtriosis. That said, sh may hav pain during hr priod, at othr tims of hr cycl or vry day of th month. PROVIDE INFORMATION & rsourcs to ducat hr about th disas. A good plac to start is with th onlin rsourcs in th back pag of th toolkit. HELP MAKE ALLOWANCES to support achivmnt of hr acadmic goals. Talk with hr about what sh can tolrat in school and what sh just can t manag. CLASSMATES, FRIENDS AND FAMILY nd to know & undrstand what sh s going through. Encourag hr to communicat with hr support ntwork. TEACHERS, COACHES AND/OR ADMINISTRATION nd to undrstand that hr pain is a ral mdical condition. Educat thm with information about ndomtriosis, including th film + toolkit. PUT THIS TOOLKIT INTO ACTION PAIN IS NOT NORMAL 1 in 10 girls has SYMPTOMS Svr priod cramps (pain so bad you can t do your usual routin) Havy blding with your priod Bloating, nausa, diarrha or constipation (could b constant or com & go with your priods) Endo What? If you hav qustions about ndomtriosis, spak with th nurs or your doctor. You can also visit Frqunt or burning urination Pain with xrcis or othr activitis Fatigu *** Although th most common symptom is painful priods, symptoms can b any or all of ths. Ths symptoms can also occur in btwn priods! WATCH THE FILM. HANG THE ENCLOSED POSTER in your infirmary so that studnts may s it & start to larn about ndomtriosis. An asy way to instantly sprad awarnss! READ THE FACTS about Endo & Symptoms Chcklist in this Toolkit so that you can quickly & asily rcogniz thm in girls who com to s you. SHARE THE DVD + TOOLKIT with your school administrators & halth tachrs. W hav a rady-mad Lsson Plan for Halth tachrs on our wbsit ( REFER HER TO A HEALTH CARE PROVIDER to xplor hr symptoms furthr. B awar that th majority of providrs may not b accuratly informd about ndomtriosis. B prpard to hlp furthr dirct hr to othr accurat rsourcs. INITIATE THE CONVERSATION. If you think a studnt has ndomtriosis, suggst sh xplor hr symptoms with a halth car providr. *Unfortunatly, many halthcar providrs do not know th symptoms of ndomtriosis or rronously bliv tnagrs can t hav it. Follow up with th studnt & ncourag hr to rach out to som of th rsourcs on th nxt pag. FEEDBACK? W d lov to har from you at nurss@ndowhat.com.

5 FOR MORE INFORMATION ABOUT VISIT OUR WEBSITE ENDOWHAT.COM ENDO GIRL TALK ndogirltalk.org RESEARCH CENTER ndocntr.org FOUNDATION OF AMERICA ndofound.org ASSOCIATION ndomtriosisassn.org GROUPS ON FACEBOOK ERC Girl Talk Endo Warriors Nancy s Nook Endo Mtropolis