what a year! secretary treasurer report in this issue vol. 1 no. 2 summer 2015 Member Profile 2015 NASPGHAN Nutrition Symposium

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1 vol. 1 no. 2 smmer 2015 what a year! Greetings fellow CPNP members, Jne 12 th marked the year anniversary of CPNP s inception and what a year it has been! Or grop has already made an impressive mark within NASPGHAN and across the contry. Or membership has grown to over 140 strong; or Member Center on the NASPGHAN website is p and rnning, with featres being pdated as I sit writing to yo; or CPNP committees are hard at work on or Professional Development, Clinical Practice, and Media goals; and or CPNP listserv is live for networking and problem-solving! I m so looking forward to what the next year brings or Ask the RD webpage featre for or provider partners and World Congress 2016, to name a few things on the horizon. Most exciting thogh, is that or next Annal Ntrition Symposim for CPNP is jst arond the corner. Hard to believe it s almost October! We ve revamped or content based on yor feedback from previos years sch as more time for discssion and qestions and joint sessions with or NASPGHAN partners. We ve also been asked to have CPNP representation at the APGNN conference or NASPGHAN nrsing partners this year. We hope yo enjoy the changes we ve made and that the Symposim is a great learning and networking experience. I trly look forward to seeing all of yo in a few months! As always, if yo have any qestions, sggestions, frther feedback or want to get involved, don t hesitate to contact or Exective Board at (cpnp.naspghan@gmail.com). See yo soon, Amber Smith Chair-Elect, CPNP secretary treasrer report Do yo know anyone who might be interested in being a member? Or membership is still only $25 for the year and yo get $50 off yor registration to the symposim. Go to ( today to apply for membership! Carmyn Zoller, RD, LDN, CSP, CNSC Secretary/Treasrer in this isse 2 Hot Topic Smart Phone Apps for Pediatric GI Registered Dietitians 4 5 Member Profile 2015 NASPGHAN Ntrition Symposim Capitol Hill Day 3 CPNP Committee Reports /16 Meetings of Interest

2 vol. 1 no. 2 smmer 2015 Smart Phone Apps for Pediatric GI Registered Dietitians By Abigail Lndin, MS, RD, CSP Whether it s plotting on a growth chart, reading labels for allergens, or tracking yor steps, there s an app for it! There are thosands of smart phone apps that can make life a little easier for both RDs and patients. Here are a few of the best free apps that are most applicable to the Pediatric GI and Ntrition setting. JOURNALING AND TRACKING APPS MyFitnessPal is one of the most poplar apps for recording food intake and fitness. This app can easily sync with other apps and devices that monitor physical activity to compare food intake to calories brned! The ser can set goals, follow trends, scan barcodes, calclate the ntrition in homemade recipes, and commnicate with a social network, too. MyFitnessPal is most appropriate for teens or adlts. Similar apps are Foodcate and LoseIt. Similac StrongMoms allows sers to follow feeding, sleeping, diapers, and growth pattern trends over time. This app incldes options for both formla feeding and breastfeeding babies. As an added perk, moms and dads are provided other sefl advice and tips for feeding and parenting. The Neocate app allows parents to record food items introdced and any possible allergic reactions by baby. Bowel Mover allows the ser to jornal bowel movements, water intake, dietary changes and trends over time. One bit of information to keep in mind, the dietary component is mainly focsed on glten. This app is great for patients who provide a vage stooling history or are trying to identify patterns. Tmmy Tracker gives the ser the capability to track food intake, medication, physical activity, GI symptoms, and weight. This app also has a bilt-in database of healthy recipes and can generate a shopping list based on recommended recipes and yor own recipes. Tmmy Tracker does only allow tracking for a few days before reqiring an pgrade to the paid version of the app. EoE Tracker helps patients record which of the six most common food allergens they have eliminated in their diet and describe any symptoms on either a six or twelve-week elimination plan. This app provides a checklist of food items that shold be inclded and those that shold be avoided within each of the six common food allergens in addition to general information abot EoE. Unfortnately, EOE Tracker does not inclde a food diary for patients to actally log their food intake. APPS FOR KIDS Bean Sprots is an app that featres games sch as the Veg Head in which kids can decorate a smiley face design with healthy foods. This app also has fn and interactive videos that featre the Imaginibbles making recipes like Crocamole and food related conversations that focs on topics sch as, What wold an alien pack in his lnch? The ScienceHero app takes kids on an easy to nderstand and physiologically accrate animated trip throgh the GI tract, starting in the moth and ending in the toilet. RD TOOLS STAT GrowthCharts Lite makes plotting percentiles on a growth chart qick and easy. It s perfect for calclating z-scores and estimating ideal body weight. Abbott, Nestlé, and Ntricia Metabolics have very sefl apps that contain prodct gide information. Carrying arond all of those mini prodct gidebooks is mch less cmbersome when all that information is only a toch away! The USDA DRI Calclator app allows sers to enter a patient s age, height, weight, and sex to qickly estimate macrontrient and microntrient needs. As an added benefit, this app also incldes a patient edcation section for several disease states. Epocrates and CliniCalc are apps that are helpfl for those little calclations that are so tricky to remember. Using these apps, sers are qickly able to calclate corrected calcim for albmin, basal energy expenditre (for adlts), mid-parental height, corrected gestational age, and growth velocity, jst to name a few. CONSUMER INFORMATION ShopWell allows sers to inpt allergens, ingredients to avoid, and ntrients to emphasize. It provides pictres of brand name foods listed by food type and gives a score based on how it compares to each ser s established gidelines Users of this app can even scan a food label and the app will show if that particlar food contains a specific allergen! There is a great shopping gide for individals following many special diets, bt most specifically for those with mltiple food allergies. The Bathroom Map app ses GPS location to find restrooms nearby. Users can rate restrooms so the database stays relevant and p to date. This is a great tool for parents with potty training children and individals experiencing incontinence, encopresis, and rgency. The CalorieKing app has food labels for almost every food item yo cold possibly think of, inclding fresh, processed, and restarant foods. Users can change the serving size for a qick calclation that is relevant to his or her food intake. This app is great for estimating macrontrient intake sch as with a calorie cont and conting carbohydrate intake. The Fodmapdiet app incldes a seven-day men that incldes low FODMAP food items. The majority of apps that allow sers to inpt their own food intake and calorie goals while following a FODMAP diet cost money, bt this free app at least provides FODMAP followers some examples of the meals they can expect on the diet. DO YOU HAVE ANY OTHER APPS YOU ARE DYING TO SHARE? DO YOU KNOW OF OR USE PAID APPS THAT ARE WELL WORTH THE MONEY? IF SO, SHARE YOUR SUGGESTIONS ON THE CPNP LISTSERV! 2

3 vol. 1 no. 2 smmer 2015 CPNP committee REPORTS CPNP Professional Development Committee Chair: Jenny Crose, MS, RD, CDE, CD We are excited to annonce that NASPGHAN/CPNP is now an accredited provider of Contining Professional Edcation (CPE) throgh the Commission on Dietetic Registration (CDR)! We will send ot opportnities to receive free contining edcation activities in ftre blletins and s. We are also looking for members who wold like to join or professional edcation committee to work on creating these opportnities. (cpnp. naspghan@gmail.com) if yo are interested. Commnications Committee Chair: Sally Schwartz, RD, CSP, LDN Are yo involved in anything pediatric ntritionally noteworthy? Tell s what yo are doing. Pblished research? Featred colmn? We d love to share yor innovative work with or membership in an pcoming or blletin. In addition, if yo have any ideas, pcoming blletins, CEU articles or s send them or way! sbmissions to Sally Schwartz at Listserv Committee Chair: Carmyn Zoller, RD, LDN, CSP, CNSC Everyone that has sent a reqest has been directly added to the listserv. Althogh we are sing a Google platform, it shold not be necessary to log into Google to participate. Yo will receive all posts via yor selection (all vs digest option vs abridged option). If yo wold like to post, yo do not have to log in to the platform to do so; yo can send an to (cpnpdiscssion-grop@naspghan.org) and it will post to the platform as well as the entire listserv. If yo wold like to reply to posts/ s, yo can select reply if yo want to respond to the individal that sbmitted the post or reply all if yo wold like yor to go to the whole listserv. If yo are having troble participating or yo have frther qestions, please s at (cpnp.listserv@gmail.com). We look forward to hearing from everyone! Thanks! NASPGHAN IBD Committee Chair: Stacie Townsend, MS, RD, CSP, LDN The IBD committee has been working on transitioning of care for or IBD patients with or pediatric patients (in conjnction with other adlt societies). Several clinical reports: post operative recrrence combination therapy for IBD treatment liver isses and IBD CPNP Clinical Practice/Research Committee Chair: Sarah Vermilyea, RD One evening I got the call that I was constantly waiting for: The family is here, and they are interested in enrolling their child in yor stdy! For this particlar stdy, we had chosen a tight enrollment period 24 hors so there was no time to waste. I threw some money at the friends I was ot to dinner with, drove to the hospital, and literally ran from the parking ramp to the PICU. I arrived within a half hor of receiving the call. I M HERE!!! Bt... the family had gone home for the night, and by morning or 24-hor enrollment period wold be expired for this child. Another missed opportnity! Research can be incredibly rewarding, bt oh-so-frstrating as well! What research are yo and/or yor facility working on? Let s know if yo are excited to share yor stories of what yo are working on, triblations, and sccesses of doing pediatric ntrition-related research! s at (cpnp.napsghan@gmail. com). NASPGHAN Clinical Practice Committee Chair: Sarah Vermilyea, RD We have been working hard to plan the Clinical Practice events for the Annal Meeting coming p in October! The 4 Clinical Practice Form (Friday, October 9th starting at 5:30pm) is titled Medicine Controversies in Clinical Pediatric Gastroenterology Practice and will be presented by 3 talented speakers (Drs. Harland Winter, John Pohl, and Andrew Mlberg). This will inclde warnings, the se of social media to receive and disseminate medication information, and off label se of medications. The Practice Economics Session (Satrday, October 10th, 10:30am-12:00 pm) will inclde information abot billing, coding, revene, and national srvey reslts. 3

4 vol. 1 no. 2 smmer 2015 member PROFILE Monica R Cicchini, MS, RD, CSP, LD Monica is an otpatient dietitian at MedStar Georgetown University Hospital s comprehensive pediatric practice. Monica received her Bachelor s of Science and Dietetic Internship from the University of Maryland and her Master s of Science in Clinical Ntrition from Rtgers University. Monica has been a registered dietitian for almost seven years, exclsively with pediatrics. Monica started working with chronically ill children sch as those with cerebral palsy and msclar dystrophy. She has also worked as a ketogenic dietitian while at Beth Israel MedicalCenter. At Phoenix Children s Hospital she was a member of the CVICU team, seeing critically ill cardiac infants and heart transplant patients prior to coming to her crrent position. Crrently at MedStar Georgetown University Hospital, Monica works in a very bsy GI program in addition to neonatology, endocrinology, nerology, plmonology, and adolescent medicine teams. She sees patients from all of these specialties almost exclsively in the otpatient setting, making her a well-ronded pediatric specialist. Monica was involved as a Reviewer for the Academy of Ntrition and Dietetics Children with Special Healthcare Needs pocket gide and Academy of Ntrition and Dietetics Pediatric Ntrition Care Manal Diabetes chapter. She developed the Ketogenic Diet and Modified Atkins diet program at Beth Israel Medical Center. Monica has participated in the development of Georgetown Medical Center s Aerodigestive Clinic as well as participating in the Sports Feling Project. She has pblished an article in the Pediatric Ntrition Practice Grop Post, a pblication of the Pediatric Ntrition Practice Grop (PNPG) of the Academy of Ntrition and Dietetics on Ntrition in Pediatric Heart Transplant. Monica has been involved in development of a Ntrition Elective Corse for the Georgetown University Medical School. In addition, Monica has made nmeros presentations to family/residents and/or patients on varying topics from Pediatric Cardiac Transplant, childhood obesity to pediatric ntrition to name a few NUTRITION SYMPOSIUM October 9-10, 2015 / Washington Hilton / Washington, DC If yo haven t already signed p for this year s symposim, don t delay! We really kicked it p a notch this year. Friday incldes expanded content as part of the NASPGHAN annal meeting, inclding: Non-alcoholic fatty liver disease (NAFLD), long-term complications of PN, short bowel syndrome, swallowing disorders, and dysphagia. Satrday s Ntrition Symposim will featre a linep of leading ntrition experts who will discss: Diet and the Microbiome, Strategies for Managing Obesity, Ntrition in the Bone Marrow Transplant (BMT) patient, Inflammatory Bowel Disease (IBD), Ntrition and Atism, Iron Deficiency and the Developing Brain, Liver Ntrition, and Cystic Fibrosis. Also inclded, case stdy-based rondtable discssions on: Allergy, Ntrition in IBD, Cystic Fibrosis, Liver, BMT Ntrition, and Ntrition in the hypometabolic child. Pls, a special session on blenderized feeding learn tricks and tips from experts! Complete program and registration information is available at (nasphgan.org). Registration fee: $150 (CPNP members), $200 (non-members) before the early bird deadline! Fee incldes registration to the NASPGHAN Annal Meeting. Yo can now log on to the NASPGHAN website and pdate yor personal information, inclding the ntrition specialty In her free time, she loves being otside with activities sch as backpacking, biking, climbing, hiking and rnning. areas in which yo are involved. Go to We are looking forward to seeing Monica present at this year s CPNP Symposim. Monica will be presenting a case stdy in the breakot sessions titled ASSESSING NUTRITIONAL NEEDS IN THE HYPOMETABOLIC CHILD. get in. If yo have any troble with the logon and password, 4 and click on Member Center. Use yor logon and password to contact Kim Rose, krose@naspghan.org or call

5 vol. 1 no. 2 smmer 2015 capitol hill DAY As the Secretary-Treasrer for CPNP, I am fortnate to also be able to sit on NASPGHAN s Pblic Affairs and Advocacy Committee (PAAC). PAAC is very active in lobbying for Medicaid reimbrsement, FDA reglations, celiac disease and glten intolerance, and medical foods coverage. As dietitians in today s changing health care insrance environment, I imagine that we all strggle with the isse of coverage of medical foods, specifically formlas and modlar prodcts. It is hard to know if all prodcts are covered nder all plans, in all states, and for all diagnoses. It s very encoraging to see that PAAC has also taken p this case and is acting to try to create niversal coverage for formlas, modlars, and thickeners. In lie of a traditional Annal Meeting next year, we will be participating in the 2016 World Congress of Pediatric Gastroenterology, Hepatology and Ntrition. CPNP has been asked to plan the ntrition content dring one day of this international event. Mark yor calendars for October 5 8, 2016 to join s in Montréal, Canada! Watch this short video to get a glimpse of the beaty of Montréal! (2 mintes Montreal video.avi) With a coordinated effort from the American Academy of Pediatrics, PAAC has been working with both senators and representatives to help lead legislative drafting for a bill mandating coverage of medically necessary foods and to help focs on identifying other members of Congress to co-lead legislative efforts. In the coming months, PAAC is planning on asking for a NASPGHAN wide call to action to help promote this legislation and lobbying efforts. PAAC is also planning to inclde medical foods coverage in their lobbying efforts on Capitol Hill Day, which is taking place in conjnction with the annal NASPGHAN meeting on Wednesday, October 7th. The PAAC is very interested in having spport from or dietitians. The cost for the day is $50.00, which incldes lnch and transportation. Participants will be able to register for Capitol Hill Day participation when they register for the annal meeting or CPNP symposim. If yo are interested in participating or yo wold like more information, please feel free to contact me (czoller@lriechildrens.org) or Dr. Amethyst Krbegov (amethyst.krbegov@ childrenscolorado.org) who is one of the physicians very involved and spportive of this movement. We wold love for or CPNP members to have an active role in lobbying for this isse. on the horizon: N2U NASPGHAN Ntrition University N2U is an Edcational corse organized by the NASPGHAN Fondation and spported by Ntricia North America, focsed on specialized ntrition edcation in areas associated with the practice of pediatric gastroenterology and ntrition. For the pcoming 2016 corse, NASPGHAN is expanding eligibility this year to inclde Pediatric Registered Dietitians, as well as third-year post-doctoral fellows and gradates of pediatric gastroenterology training programs within the past 10 years. Praveen Goday, Corse Director explains, Or expert faclty joined for dietitians and together explored interactive discssions, reviewing the latest practice methods and data while sharing hands on approaches to every day challenges. MORE INFORMATION ON APPLICATION PROCESS FORTHCOMING. 5

6 vol. 1 no. 2 smmer /16 MEETINGS of interest ACADEMY OF NUTRITION AND DIETETICS: FOOD & NUTRITION CONFERENCE & EXPO (FNCE ) OCTOBER 3 6, 2015 Nashville, Tennessee Contact: NASPGHAN ANNUAL CONFERENCE/NUTRITION SYMPOSIUM OCTOBER 9 10, 2015 Washington Hilton Washington, DC Contact: STRATEGIES FOR TREATING PEDIATRIC FEEDING DISORDERS OCTOBER 30 31, 2015 For Seasons Hotel Baltimore, MD Contact: CLINICAL NUTRITION WEEK 2016: AMERICAN SOCIETY OF PARENTERAL AND ENTERAL NUTRITION JANUARY Astin, TX Contact: Introdcing a new website for teens with Inflammatory Bowel Diseases jobs JstLikeMeIBD.org Pediatric dietitian positions have now been added to the NASPGHAN job board. To view, go to NASPGHAN.org Training and Career Development Job Board naspghan.org/content/67/en/job-board. There are also opportnities to post resmes or open positions available at yor instittion. 6