Brain Injury Association of Massachusetts Inc.

Transcription

1 Brain Injury Association of Massachusetts Inc. General Information 3 Lyman Street, Suite 1 Westborough, MA 1581 (58) Website Organization Contact Tania Fernandez biama@biama.org Year of Incorporation

2 Statements & Search Criteria Mission Statement The mission of the Brain Injury Association of Massachusetts is to create a better future for brain injury survivors and their families through brain injury prevention, education, advocacy, and support. Background Statement In 1981, a small group of family members came together because they felt the needs of their loved ones who had suffered traumatic brain injury (TBI) were not being addressed by the medical profession or any state agency. Although the dramatic expansion of emergency medical systems and improvements in trauma care had led to an increase in the number of survivors of brain injury, communities were ill-prepared to serve this population. From these humble beginnings in Framingham, MA, emerged the National Head Injury Foundation which later became the Brain Injury Association of America, with more than 4 chartered state affiliates. The Brain Injury Association of Massachusetts (BIA-MA) was incorporated in 1982 as one of the first statewide brain injury associations in the U.S. and remains the only organization of its kind in Massachusetts. In 1986, BIA-MA advocated for the establishment of the Statewide Head Injury Program (SHIP), a government program that funds community-based programs for persons with traumatic brain injury. Today, BIA-MA is still leading the way. BIA-MA annually provides support, information and resources to approximately 14, survivors, families and medical professionals. BIA-MA sponsors more than 3 support groups throughout Massachusetts which provides a forum for sharing information about brain injury and an opportunity to meet others who share similar experiences and concerns. It also organizes a variety of educational, recreational and social activities. BIA-MA has been honored with numerous honors and awards, including an Outstanding Advocacy Award from the Brain Injury Association of America, a National Lifesavers Award from the National Highway Traffic Safety Administration, two Gold Awards from the New England Society for Healthcare Communications for a veterans with TBI billboard and the Faces of Brain Injury banners, and a Leadership Award from Riverside Community Care, Inc. 2

3 Impact Statement FY 214 Accomplishments 1. Increased the Head Injury Treatment Services Trust Fund (HITS) collections from 75% to 1%, to support community based services for brain injury survivors. 2. Provided 4,623 middle and high school students with the tools and resources to prevent brain injury and make healthy living choices through our Think-A-Head program. 3. Over 5,5 attendances at statewide support groups received information, resources and encouragement. 4. Educated over 7 caregivers and brain injury professionals at the BIA-MA Annual Conference. 5 Year Strategic Goals 1. Diversify our sources of funding and become sustainable over the long term through funding that is predictable, repeatable and sustainable. 2. Increase awareness and understanding of brain injury. 3. Stay abreast of current brain injury trends to meet the current and future needs of survivors, family members, caregivers, and the general public. 4. Improve and increase support to those affected by brain injury. 5. Develop a diversified and expanded Board of Directors. Needs Statement 1. Independent funding for prevention programs such as Think-A-Head aimed at educating elementary and middle school aged children about preventing brain injuries. 2. Expanding resources for survivors and caregivers including, but not limited to: more support groups, day programming, recreational activities, and educational resources. CEO/Executive Director Statement BIA-MA has grown from a handful of volunteers providing support to each other to a statewide association that provides information, resources and support services as well as prevention and education to more than 3, survivors, families and medical professionals throughout the Commonwealth. BIA-MA has more than 3 support groups throughout the state to help reduce the isolation that so many survivors endure. Service Categories Human Services Geographic Areas Served The Association has two regional offices (E. Wareham and Pittsfield) to better serve individuals in southeastern and western Massachusetts along with a regional office in Central Massachusetts. The Brain Injury Association of Massachusetts is statewide organization that promotes and fosters the empowerment of persons with brain injury through active participation in the association and the community. Please review online profile for full list of selected areas served. 3

4 Programs Ambassador Program Description The Ambassador Program focuses on injury prevention and education for all ages. Ambassadors present their knowledge and personal insight into brain injury, making a seamless link between prevention and real life examples. The Ambassadors stress the importance of prevention because there is no cure for brain injury. All Ambassadors are volunteer speakers, who have either sustained a brain injury or have a loved one with a brain injury. All share a desire to tell their stories to help others avoid this devastating tragedy. Ambassadors are available to speak in all locations throughout Massachusetts. The Ambassador speech is split into two parts. The first part conveys the same message about our organization, comparison facts about TBIs and other medical conditions, general information about how tbis happen, and then prevention. The Ambassador then tells his/her personal story about their experience. The entire presentation typically takes about twenty minutes. The Ambassador Program offers its services to a variety of audiences, ranging from local civic groups, businesses, and medical facilities. This past year, we have made a number of speeches to Rotary Clubs, Lions Clubs and Kiwanis Clubs throughout all areas of Massachusetts. Ambassadors have also spoken to Parent/Teacher Organizations, college audiences, ski instructors, and state public health organizations. After the presentation, BIA-MA receives feedback from the audiences on the speech. The feedback has been overwhelming positive. Very often, BIA-MA arranges additional speeches from these audiences. Many organizations have also made donations to BIA-MA. Budget 25 Category Population Served Program Short Term Success Program Long term Success Health Care, General/Other Health Care, General/Other Adults, Families, Other Named Groups The short term success is to increase awareness of brain injury. The number of annual contacts is the number of individuals who were informed about brain injury and the consequences of living with brain injury. In addition, the program promotes awareness to prevent injuries and educate the public on the risks and impact of brain injury. Last year, the program reached over 75 people, 3 speeches x 25 attendees per speech. A larger percentage of the Massachusetts population will receive information about the risks and impacts of brain injury. The ultimate goal is a Massachusetts where all preventable brain injuries are prevented. 4

5 Program Success Monitored By Examples of Program Success Ambassadors bring program evaluations to each speech for the audience members to fill out at the conclusion. The Ambassador Program Coordinator also asks for feedback from the club s contact person both by and phone. Many clubs have also recommended our program to other clubs. In fiscal year , over thirty speeches were made to Rotary Clubs, Kiwanis Clubs, Lions Clubs and other civic groups. New Ambassadors have also come forward after hearing an Ambassador speech. In March of 212, the Ambassador Program in coordination with the Stow Parent Teacher Organization presented an event to parents and teachers in the Nashoba Regional School District. The program featured two teenagers, one with a TBI from snowboarding and one with two sports concussions. The local legislator also attended with a staff member that had suffered a concussion from a sports event. Our Communication s Department featured this event in our quarterly newsletter and website. The program encouraged another teenager with two concussions to step forward to become an Ambassador. These two teenagers have now formed a personal relationship. 5

6 Think-A-Head Description Think A-Head is an interactive school-based program designed to promote brain injury awareness and prevention. The Brain Injury Association of Massachusetts (BIA-MA) has developed age appropriate programs that are tailored to specific grade levels. Think A-Head provides students with information and tools to be able help them avoid risk-taking behaviors and promote healthy living habits. Budget 5 Program Topics: *Brain Injury Awareness- making students aware of the frequency of brain injury *Playground safety- playing it safe at recess (falls, body awareness etc.) *Pedestrian/helmet safety- rules of the road and proper helmet use. *Seatbelts- - understanding the importance of buckling up *Alcohol and drug awareness- the impact that drugs and alcohol have on the developing teen brain *Impaired driving-- the dangers of driving impaired *Concussions- Keeping safe while playing school sports and afterschool activities Category Human Services, General/Other Children & Youth Services Population Served Children and Youth ( - 19 years),, Program Short Term Success Program Long term Success Program Success Monitored By Examples of Program Success 6

7 Management CEO/Executive Director Executive Director Term Start July 213 Ms. Nicole M. Godaire Experience Nicole began as Executive Director of BIA-MA on July 1, 213. Joining the organization in 25, Nicole has served in several capacities including, but not limited to Manager of Operations and Education Programs, and most recently Assistant Executive Director. Nicole has played a large role in advocating for those affected by brain injury, increasing the Head Injury Treatment Services Trust Fund (HITS) from 6 % to 75% during 212. In addition, she facilitated an organization-wide strategic plan. Co-CEO Term Start June Former CEOs Name Term Arlene Korab June 213 Senior Staff Laura Mason Title Director of Operations Experience/Biography Staff Information Full Time Staff Part Time Staff Volunteers Contractors Retention Rate % Staff Demographics - Ethnicity African American/Black Asian American/Pacific Islander Caucasian 17 7

8 Hispanic/Latino 1 Native American/American Indian Other Staff Demographics - Gender Male Female Unspecified 2 16 Formal Evaluations CEO Formal Evaluation CEO/Executive Formal Evaluation Frequency Senior Management Formal Evaluation Senior Management Formal Evaluation Frequency nmanagement Formal Evaluation n Management Formal Evaluation Frequency Annually Annually Annually Plans & Policies Organization has a Fundraising Plan? Organization has a Strategic Plan? Years Strategic Plan Considers Date Strategic Plan Adopted v 212 Does your organization have a Business Continuity of Operations Plan? Management Succession Plan? Organization Policy and Procedures ndiscrimination Policy Whistleblower Policy Document Destruction Policy Is your organization licensed by the Government? Registration Permit? Under Development Under Development 5 Under Development Collaborations The Brain Injury Association of Massachusetts collaborates with the Massachusetts Rehabilitation Commission, the Department of Public Health, health related organizations and serves on committees that address disability and prevention issues, including Money Follows the Person, Dual 8

9 Medicare and Medicaid Eligible inidividuals, the Cross Disability Coalition, lcoal Chambers of Commerce, Mass Pinn, Partners in Prevention, BESt, Safe Kids and the Falls Coalition. 9

10 Board & Governance Board Chair Board Chair Ms. Teresa Hayes Company Affiliation Braintree Rehabilitation Hopital Term Sept 212 to Board Members Name Affiliation Status David Bradley Jr. Real Estate Voting Helen Brown Bryant Esq. Law Office of Helen Brown Bryant Voting John Byler Writer Voting Robert Cantu MA, MD, FACS, FAANS, FACSM Neurological Surgery, Inc. Voting David Dwork Esq. Law Office of David Dwork Voting Evan Gray OneAmerica Voting Laura Herman Insurance Marketing Agencies Voting Kenneth Kolpan Esq. Law Office of Kenneth I. Kolpan, P.C. Voting Matthew Martino CFA Nixon Peabody, LLP Voting Lisa Saba CBIS NeuroRestorative Voting Marilyn Price Spivack Spaulding Rehabilitation Hospital Voting Harold Wilkinson MD, PhD Massachusetts General Hospital Voting Susan Zellmann-Rohrer RBM Technologies Voting Board Demographics - Ethnicity African American/Black 1 Asian American/Pacific Islander Caucasian 13 Hispanic/Latino Native American/American Indian Other Board Demographics - Gender Male Female Unspecified Board Information 1

11 Number of Full Board Meetings Annually Written Board Selection Criteria? Written Conflict of Interest Policy? Percentage Making Monetary Contributions Percentage Making In-Kind Contributions Constituency Includes Client Representation 1 Under Development 71% 21% Comments CEO Comments 11

12 Financials Fiscal Year Fiscal Year Start July 1, 214 Fiscal Year End June 3, 215 Projected Revenue $1,783,875. Projected Expenses $1,875,937. Endowment? Spending Policy N/A Credit Line? Reserve Fund? Months Reserve Fund Covers Detailed Financials Revenue and Expenses Fiscal Year Total Revenue $1,782,912 $1,812,47 $1,862,687 Total Expenses $1,577,352 $1,833,984 $1,655,989 Revenue Sources Fiscal Year Foundation and Corporation Contributions Government Contributions $1,313,97 $1,31,118 $1,372,394 Federal State $1,313,97 $1,31,118 $1,372,394 Local Unspecified Individual Contributions $119,26 $171,27 $174,87 Indirect Public Support Earned Revenue $266,194 $275,162 $278,463 Investment Income, Net of Losses $4,794 $4,377 $1,335 Membership Dues Special Events $78,991 $51,363 $35,688 Revenue In-Kind Other

13 Expense Allocation Fiscal Year Program Expense $1,17,68 $1,241,13 $1,198,487 Administration Expense $269,61 $391,13 $353,89 Fundraising Expense $137,143 $21,841 $14,413 Payments to Affiliates Total Revenue/Total Expenses Program Expense/Total Expenses 74% 68% 72% Fundraising Expense/Contributed Revenue 9% 13% 7% Assets and Liabilities Fiscal Year Total Assets $1,232,13 $1,59,744 $1,69,897 Current Assets $1,226,465 $1,49,21 $1,44,324 Long-Term Liabilities $ $ $ Current Liabilities $63,249 $96,45 $84,666 Total Net Assets $1,168,854 $963,294 $985,231 Short Term Solvency Fiscal Year Current Ratio: Current Assets/Current Liabilities Long Term Solvency Fiscal Year Long-Term Liabilities/Total Assets % % % Top Funding Sources Fiscal Year Top Funding Source & Dollar Amount Second Highest Funding Source & Dollar Amount Third Highest Funding Source & Dollar Amount Capital Campaign Currently in a Capital Campaign? Capital Campaign Anticipated in Next 5 Years? Comments Foundation Staff Comments Financial summary data in the charts and graphs above are per the organization's IRS Form 99s. Contributions from foundations and corporations are listed under individuals when the breakout was not available. Please note, the Government revenue amount for fiscal years 214, 213 and 212 is per the nonprofit's audited financials. Created Copyright 218 The Boston Foundation 13