Cancer Support Community of Southern Connecticut

Transcription

1 Cancer Support Community of Southern Connecticut General Information Contact Information Nonprofit Cancer Support Community of Southern Connecticut Address PO Box 2182 c/o Astrid Bernard Branford, CT Phone (203) Web Site Web Site Facebook Facebook Twitter Twitter At A Glance Year of Incorporation 2006 Former Names The Wellness Community of Southern Connecticut Organization's type of tax exempt status Organization received a competitive grant from the community foundation in the past five years Public Supported Charity No 1

2 Mission & Areas Served Statements Mission The Cancer Support Community of Southern Connecticut (CSC-SCT) is an affiliate of the Cancer Support Community an international network of independently chartered nonprofits that provide professional programs of emotional support, education and hope for people affected by cancer, at no charge to participants, so that no one faces cancer alone. The Cancer Support Community was formed by the unification of The Wellness Community and Gilda s Club, and the network now consists of more than 50 local affiliates, 100 satellite locations and online programs. CSC-SCT is proud to be building the first facility and off-site capacity of its kind in Connecticut, serving Fairfield, New Haven, Middlesex and New London Counties. Background CSC-SCT offerings are all evidence-based and professionally led. Our program has a framework designed by a national team of experts, and will be implemented locally by a licensed health and wellness professional who will adapt our portfolio of offerings to members needs. We maintain a gold standard of psychosocial cancer support, recognized around the world as the hallmark of the Cancer Support Community. This commitment allows medical professionals to refer their patients without hesitation, building a strong alliance between our efforts and theirs, and ensures that all members of the community have access to the highest quality and full spectrum of services. The CSC-SCT target population is expansive and inclusive. Our programs are designed to serve anyone affected by cancer - men, women, children, teens, patients, survivors, caregivers, friends and loved ones. We accept members affected by any type of cancer. We accept members at any stage of their journey, from the moment of diagnosis, to years post treatment or families living with loss. Our members are the experts in identifying their support needs; our professionals help them navigate the appropriate options. All CSC-SCT programs are offered free of charge to members. Our program has a framework designed by a national team of experts, and will be implemented locally by a licensed health and wellness professional who will adapt our portfolio of offerings to members needs. The Cancer Support Community program has five core components: Support- Licensed professionals work with each member individually to develop a personalized plan. We offer in-person group sessions, topical networking groups for different types of cancer, and online support options. Education- Includes lectures and workshops about cancer and its treatments as well as programs that enhance life skills and coping. All are presented by experts. Healthy Lifestyle- Includes mind/body programs, exercise classes, and nutrition workshops. Social Opportunities- Includes varied activities from jokefests to knitting circles to book clubs to potlucks and evolves with the preferences of the active community. Information and Referrals- Includes a resource library and computer access for self-directed research, as well as referrals to local services. 2

3 Impact Cancer has staggeringly high incidence rates, nationally and locally. Nationally, looking at all forms of cancer, over the course of their life, men have a 1 in 2 chance of developing an invasive cancer and women have a 1 in 3 chance of doing so. The American Cancer Society estimates that 1.5 million cases of cancer are diagnosed annually, with about 20,000 new cancer diagnoses made in Connecticut each year. In 2009, Yale University School of Public Health conducted a needs assessment for cancer-related services in Southern Connecticut, funded and supported in part by CSC-SCT. Healthcare professionals, community leaders, cancer patients and survivors were interviewed to assess their knowledge and opinions on the resources available in Southern Connecticut. Research participants were asked to identify gaps in services currently available in the local area. As a result of this assessment, the need for a Cancer Support Community facility in Southern Connecticut was confirmed. Specific areas of need included: guidance to patients in navigating psychosocial support services, programming for caregivers, cancer survivor support programs, programs that cater to the diverse populations of cancer patients and survivors, access to and integration of alternative therapies into cancer treatments, information and guidance on nutritional options for patients, body image counseling for both men and women, and knowledge and access at all stages of cancer, including post-treatment. Needs The board of directors has set a target date of mid-2014 to launch full program activity and operational capacity in Connecticut. This includes the opening of an anchor facility in eastern Fairfield County or western New Haven County we are currently evaluating locations for ease of access, functional capacity and costs. Given the demographic and geographic realities of southern Connecticut, the board, with approval from the international CSC network leadership, will collaborate with partner organizations to bring program content and services directly into Connecticut communities extending from Danbury to New London. As we are requesting funding for the launch year, based on the implementation process established by the more than 50 open affiliates, the first year will have certain one-time objectives such as site selection for the base of operations. More generally, each year we will measure success based on the number of people who benefit from our program (CSC members or participants) and partnerships with existing organizations and facilities throughout the state -- hospitals, community centers and other local partners. Specific needs include board members, volunteers, and other people who would like to help. From our launch year (2014) budget, are the following specific needs: Rent and Maintenance $60,000 Insurance $5,000 Office Supplies and Postage $11,000 Telephone and Utilities $10,000 Office Equipment $18,000 Database and Website $5,000 Design, Printing, Marketing $18,000 Program Materials $25,000 Audit and Legal Fees $7,500 Training and Conferences $11,000 Other Fees $1,000 CEO Statement Backed by evidence that the best cancer care includes emotional and social support, the Cancer Support Community offers these services to all people affected by cancer. Likely the largest professionally-led network of cancer support worldwide, the organization delivers a comprehensive menu of personalized and essential services. Because no cancer care plan is complete without emotional and social support, the Cancer Support Community has a vibrant network of community-based centers and online services run by trained and licensed professionals. This distinguished track record of helping people living with cancer is much needed here in Connecticut. 3

4 Board Chair Statement The board of directors of CSC-SCT has set forth a well-considered implementation plan and fundraising strategy to launch in 2014 and continue to grow both the base of financial support and the number of beneficiaries. As we are requesting funding for the launch year, based on the implementation process established by the more than 50 open affiliates, the first year will have certain one-time objectives such as site selection for the base of operations. More generally, each year we will measure success based on the number of people who benefit from our program (CSC members or participants) and partnerships with existing organizations and facilities throughout the state -- hospitals, community centers and other local partners. Service Categories Primary Organization Category Diseases Disorders & Medical Disciplines / Cancer Areas Served State wide Ansonia Bethany Branford Cheshire Derby East Haven Guilford Hamden Lower Naugatuck Valley Madison Milford New Haven North Branford North Haven Orange Oxford Seymour Shelton Shoreline Wallingford West Haven Woodbridge Other CSC-SCT is proud to be building the first facility and off-site capacity of its kind in Connecticut, primarily serving the people of Fairfield, New Haven, Middlesex and New London Counties, however, anyone in the state of Connecticut is welcome to participate in our programs and services. In the future, we may also expand more directly into northern Connecticut. 4

5 Programs Programs Cancer Support Community Description CSC-SCT program has a framework designed by a national team of experts, and will be implemented locally by a licensed health and wellness professional who will adapt our portfolio of offerings to members needs. We maintain a gold standard of psychosocial cancer support, recognized around the world as the hallmark of the Cancer Support Community. This commitment allows medical professionals to refer their patients without hesitation, building a strong alliance between our efforts and theirs, and ensures that all members of the community have access to the highest quality and full spectrum of services. The diversity of our programming best serves a diversity of needs. By offering a portfolio of psychosocial support services including multiple offerings for group support, education, healthy lifestyle, social activities, information and referrals, our licensed professionals are able to help each member construct a customized plan that serves their individual needs. Budget $0.00 Category Health Care, General/Other / Patient & Family Support Population Served General/Unspecified / / Program is linked to organization s mission and strategy Short Term Success Long Term Success Program Success Monitored By Yes 5

6 Examples of Program Success Success has been widely demonstrated at the national and affiliate level. We will apply the same criteria once we launch. 6

7 Support Description Support- Licensed professionals work with each member individually to develop a personalized plan. We offer in-person group sessions, topical networking groups for different types of cancer, and online support options. Budget $0.00 Category Health Care, General/Other / Patient & Family Support Population Served General/Unspecified / / Program is linked to organization s mission and strategy Short Term Success Long Term Success Program Success Monitored By Examples of Program Success Yes CSC-SCT is still and affiliate-in-development, so examples of program success will be available after we launch in That said, every affiliate, as well as the national CSC organization, has demonstrated success. 7

8 Education Description Education- Includes lectures and workshops about cancer and its treatments as well as programs that enhance life skills and coping. All are presented by experts. Budget $0.00 Category Health Care, General/Other / Patient & Family Support Population Served General/Unspecified / / Program is linked to organization s mission and strategy Short Term Success Long Term Success Program Success Monitored By Examples of Program Success Yes Success has been widely demonstrated at the national and affiliate level. We will follow the same criteria upon launch. 8

9 Healthy Lifestyle Description Healthy Lifestyle- Includes mind/body programs, exercise classes, and nutrition workshops. Budget $0.00 Category Health Care, General/Other / Patient & Family Support Population Served General/Unspecified / / Program is linked to organization s mission and strategy Short Term Success Long Term Success Program Success Monitored By Examples of Program Success Yes Once we open, we will follow-the same criteria as the very successful national organization and affiliates. 9

10 Social Opportunities Description Social Opportunities- Includes varied activities from jokefests to knitting circles to book clubs to potlucks and evolves with the preferences of the active community. Budget $0.00 Category Health Care, General/Other / Patient & Family Support Population Served General/Unspecified / / Program is linked to organization s mission and strategy Short Term Success Long Term Success Program Success Monitored By Examples of Program Success Yes Once launched, we will apply the same criteria as the national organization and our sister affiliates. 10

11 Information and Referrals Description Information and Referrals- Includes a resource library and computer access for self-directed research, as well as referrals to local services. Budget $0.00 Category Health Care, General/Other / Patient & Family Support Population Served General/Unspecified / / Program is linked to organization s mission and strategy Short Term Success Long Term Success Program Success Monitored By Examples of Program Success Yes Once we open, we will apply the same criteria as our national organization and sister affiliates. Program Comments CEO Comments The board of directors of CSC-SCT has set forth a well-considered implementation plan and fundraising strategy to launch in 2014 and continue to grow both the base of financial support and the number of beneficiaries. As we are requesting funding for the launch year, based on the implementation process 11

12 established by the more than 50 open affiliates, the first year will have certain one-time objectives such as site selection for the base of operations. More generally, each year we will measure success based on the number of people who benefit from our program (CSC members or participants) and partnerships with existing organizations and facilities throughout the state -- hospitals, community centers and other local partners. 12

13 Leadership & Staff CEO/Executive Director Matthew Lesser Term Start Apr Staff Number of Full Time Staff 1 Number of Part Time Staff 1 Number of Volunteers 11 Number of Contract Staff 0 Staff Retention Rate 100% Staff Demographics - Ethnicity African American/Black 0 Asian American/Pacific Islander 0 Caucasian 2 Hispanic/Latino 0 Native American/American Indian 0 Other 0 0 Staff Demographics - Gender Male 1 Female 1 Unspecified 0 Plans & Policies Organization has a Fundraising Plan? Organization has a Strategic Plan? Management Succession Plan? Organization Policy and Procedures Nondiscrimination Policy Whistleblower Policy Under Development Under Development Under Development Under Development Yes No 13

14 Board & Governance Board Chair Mr. Robert Breunig Company Affiliation Synapse Group Term Jan 2013 to Dec 2015 Board of Directors Name Loreen Brown Elizabeth D Andrea Susan Ennis Kristen Garlans Gerlinde Kehlenbach Ben Maini Iain McQueen Jeanette Mobeck Brian Reklaitis Jennifer Stahl Affiliation Board Demographics - Ethnicity African American/Black 0 Asian American/Pacific Islander 0 Caucasian 11 Hispanic/Latino 0 Native American/American Indian 0 Other 0 0 Board Demographics - Gender Male 4 Female 7 Unspecified 0 Governance Board Term Lengths 0 Board Term Limits 0 Board Meeting Attendance % 0% 14

15 Number of Full Board Meetings Annually 0 Written Conflict of Interest Policy Yes Percentage Making Monetary Contributions 100% Percentage Making In-Kind Contributions 0% Additional Board/s Members and Affiliations Name Dr. Charles Glass Mr. Gary Havican Dr. William Kelly Dr. Tish Knobf Ms. Wendy Lewis Dr. Giovanni Racculia Ms. Jean Richo Ms. Marge Shand RN Dr. Anna Tirado Affiliation Guilford Internal Medicine Group Middlesex Hospital Cancer Center Director, Clinical Research Service Yale Cancer Center Yale University School of Nursing 3 steps to Wellness Hematologist Fellow American College of Physicians Retired Retired County Obstetrics & Gynecology Group CEO Comments Thank you very much for your support of the Cancer Support Community of Southern Connecticut. Your support to CSC-SCT helps further our goal of providing professional programs of emotional support, education and hope for people affected by cancer, at no charge to participants, so that no one faces cancer alone. 15

16 Financials Financials Fiscal Year Start Jan Fiscal Year End Dec Projected Revenue $375, Projected Expenses $87, Endowment Value $0.00 Percentage (if selected) 0% Detailed Financials Prior Three Years Total Revenue and Expense Totals Chart Fiscal Year Total Revenue $57,509 $38, Total Expenses $70,531 $17, Prior Three Years Revenue Sources Chart Fiscal Year Foundation and Corporation $57,171 $4, Contributions Government Contributions $0 $0 $0 Federal State Local Unspecified Individual Contributions Indirect Public Support Earned Revenue Investment Income, Net of Losses $ Membership Dues Special Events -- $33, Revenue In-Kind Other -- $ Prior Three Years Expense Allocations Chart Fiscal Year Program Expense $24,698 $17, Administration Expense $45, Fundraising Expense Payments to Affiliates Total Revenue/Total Expenses Program Expense/Total Expenses 35% 100% -- Fundraising Expense/Contributed Revenue 0% 0% -- 16

17 Prior Three Years Assets and Liabilities Chart Fiscal Year Total Assets $126,385 $118, Current Assets $126,385 $118, Long-Term Liabilities Current Liabilities Total Net Assets $126,385 $118, Prior Three Years Top Three Funding Sources Fiscal Year Top Funding Source & Dollar Amount Second Highest Funding Source & Dollar Amount Third Highest Funding Source & Dollar Amount Solvency Short Term Solvency Fiscal Year Current Ratio: Current Assets/Current Liabilities Long Term Solvency Fiscal Year Long-Term Liabilities/Total Assets 0% 0% -- Capital Campaign Currently in a Capital Campaign? No Goal $0.00 Comments CEO Comments The Cancer Support Community of Southern Connecticut (CSC-SCT) is an affiliate of the Cancer Support Community an international network of independently chartered nonprofits that provide professional programs of emotional support, education and hope for people affected by cancer, at no charge to participants, so that no one faces cancer alone. The Cancer Support Community was formed by the unification of The Wellness Community and Gilda s Club, and the network now consists of more than 50 local affiliates, 100 satellite locations and online programs. The current year projected income is substantially higher than projected expenses because we will apply income toward the 2014 launch year budget. 17

18 Foundation Staff Comments This profile, including the financial summaries prepared and submitted by the organization based on its own independent and/or internal audit processes and regulatory submissions, has been read by The Community Foundation. Financial information is input by Foundation staff directly from the organization s IRS Form 990, audited financial statements or other financial documents approved by the nonprofit s board. The Foundation has not audited the organization s financial statements or tax filings, and makes no representations or warranties thereon. The Community Foundation requires three years of financial information from the nonprofit organization; however, this requirement may not be available for some organizations due to their more recent incorporation or formation. The Community Foundation is continuing to receive information submitted by the organization and may periodically update the organization s profile to reflect the most current financial and other information available. The organization has completed the fields required by The Community Foundation and updated their profile in the last year. To see if the organization has received a competitive grant from The Community Foundation in the last five years, please go to the General Information Tab of the profile. Created Copyright 2018 The Community Foundation for Greater New Haven 18