Virginia Hemophilia Foundation

Transcription

1 Virginia Hemophilia Foundation General Information Contact Information Nonprofit Virginia Hemophilia Foundation Address 410 N. Ridge Rd., Suite 215 Richmond, VA Phone Fax Web Site Facebook Twitter facebook.com/virginia-hemophilia- Foundation/ #!/pages/Virginia- At A Glance Year of Incorporation 1975 Organization's type of tax exempt status Public Supported Charity 1

2 Statements & Search Criteria Mission Dedicated to serving and supporting the needs of those impacted by a bleeding disorder through education, advocacy, and community. Background The Virginia Hemophilia Foundation (VHF) formerly known as the United Virginia Chapter of the National Hemophilia Foundation (UVC-NHF) was founded in 1975 by a group of concerned parents, patients, doctors and nurses with the common goal of making life easier for persons affected by hemophilia and related bleeding disorders. At that time, treating bleeding episodes was time consuming and not very efficient. Many bleeding episodes required lengthy hospital stays and left permanent damage. Life was difficult at best and pain was a way of life. Today, treatment is much better and most families are able to manage this condition through home treatment. Hospital stays are few and far between. However, living with a chronic illness still presents challenges. The cost of treating hemophilia can easily run over $200,000 per year. Insurance may be difficult to obtain and job choices are still somewhat limited. VHF continues to have a strong presence and provides a variety of support services, i.e. educational and support programs, advocacy opportunities, an annual meeting, family and summer camps, a quarterly newsletter, medic alert bracelets, seminars for parents, teens and adults, etc. Impact VHF serves the bleeding disorder community throughout the Commonwealth of Virginia. This year we have touched 100's of lives by: 1. Strengthening our advocacy presence with a new Advocacy Committee Chair, webinars, and an increase utilization of VoterVoice. 2.Helping several families in financial crisis with medical bills, rent, utilities, etc. 3. Continuing our outreach to school personnel and the general community through conference presentations, exhibits, health fairs, and targeted community events. 4. Offering several quality programs, including summer and family camp, annual meeting, Adult Retreat, Family Overnight, and First Step Picnic. Some of our goals for the upcoming year include: increasing individual donations, increasing the number of kids we send to camp, improving our social networking ability, strengthening our advocacy efforts, raising greater awareness of bleeding disorders among the general public, and strengthening our special events. Needs What can you do: 1. Volunteer your time or service 2. Donate blood or organize a blood drive for hemophilia 3. Become a member of VHF 4. Participate in our educational and/or fund raising events 5. Make a tax-deductible contribution CEO/Executive Director Statement This is an exciting time for VHF. VHF is financially sound, has seen a significant increase in quality and quantity of programs over the last several years, and has seen greater community participation. In fact, several programs have needed a waiting list and/or have had over 100 participants. We continue to have a strong advocacy presence and outstanding board members who work hard to serve the needs of the bleeding disorder community through education, advocacy, and support for research for a cure. We are seen by the national hemophilia groups as innovative and progressive. I hope to work with you as we continue to strengthen and grow VHF s capacity to serve you. Areas Of Service Areas Served 2

3 Areas Metro Richmond Tri-cities Region Richmond, City Ashland Chester Chesterfield County Colonial Heights, City Dinwiddie County Ettrick Goochland County Hanover County Henrico County Hopewell, City Matoaka Petersburg, City Powhatan County Prince George County Sussex County Charles City County Gloucester County King and Queen County Lancaster County Louisa County Mathews County Middlesex County New Kent County Northumberland County Charlottesville-Albermarle Hampton Roads Northern Neck Shenandoah Valley Southside Virginia Southwest Virginia In summary, VHF serves the bleeding disorder community for most of the Commonwealth of Virginia with the exception of the counties adjacent to the District of Columbia. Service Categories Patient & Family Support 3

4 Programs Programs Summer Camp - Camp Youngblood Description An excellent opportunity for kids ages 7-17 who have a bleeding disorder or their siblings. It is a perfect opportunity for kids to learn more about their disorder, interact with others with bleeding disorders, and to have fun! Budget $15, Annual Education Meeting Description An educational opportunity for the entire family. As well as a great time to meet new friends and reconnect with old friends. Budget $6, First Steps Description Programs for families with infants or young children with bleeding disorders to get together for educational meetings, peer-to-peer networking, mentoring, and social gatherings Budget $3, Adult Programs Description Events focused specifically on adults with bleeding disorders and their loved ones, which includes health and wellness retreats, social events, and educational programs. Budget $6, Fitness Programs Description Resources and events that encourage active living. These can include financial assistance for enrolling in fitness programs and activities, as well as opportunities for members to participate and experience a variety of sports like bowling, hiking, fishing, swimming, golf, and baseball. Budget $10,

5 Board & Governance Board Chair Board Chair Elizabeth Leftwich Company Affiliation Community Volunteer Term July 2017 to June Board Co-Chair Board CoChair Sarahbeth Spasojevich Company Affiliation Community Volunteer Term July 2017 to June Board Members Name Affiliation Status Kelly Cartwright Community Volunteer Voting Monika Eiden Community Volunteer Voting Megan Lawson Community Volunteer Voting Jean Parnell Bon Secours Voting Michael Silva Community Volunteer Voting Daniel Warren Community Volunteer Voting Michael Welshonce Community Volunteer Voting Board Demographics - Ethnicity African American/Black 0 Asian American/Pacific Islander 0 Caucasian 9 Hispanic/Latino 0 Native American/American Indian 0 Board Demographics - Gender Male 3 Female 6 Unspecified 0 Governance Board Term Lengths 2 Board Term Limits 3 5

6 Board Meeting Attendance % 0 Written Board Selection Criteria? Written Conflict of Interest Policy? Percentage Making Monetary Contributions 100 Percentage Making In-Kind Contributions 100 Number of Full Board Meetings Annually 4 Standing Committees Board Development / Board Orientation Executive Development / Fund Development / Fund Raising / Grant Writing / Major Gifts Scholarship Finance Legislative 6

7 Management Executive Director/CEO Executive Director Kelly Waters Term Start May Experience Master of Social Work, 1995, University of North Carolina, Chapel Hill, NC Bachelor of Science, Psychology, Minor in Human Services, 1993, James Madison University, Harrisonburg, VA; Summa Cum Laude, Outstanding Senior Psychology Student Licensed Clinical Social Worker since January 1997, Certificate in Nonprofit Management, Duke University Office of Continuing Studies, August 2003 Emerging Nonprofit Leader Program Graduate Especially for Nonprofit Organization, June 2009 Senior Staff Name Heather Conner Title Program and Communication Director Staff Full Time Staff 2 Part Time Staff 0 Volunteers 30 Contractors 2 Retention Rate 100 Plans Organization has a Fundraising Plan? Organization has a Strategic Plan? Under Development Years Strategic Plan Considers 3 Date Strategic Plan Adopted 2011 Management Succession Plan? Organization Policy and Procedures Nondiscrimination Policy Whistleblower Policy Document Destruction Policy Directors and Officers Insurance Policy 7

8 Financials Fiscal Year July Fiscal Year 2018 Projected Revenue $437, Projected Expenses $374, Endowment Value 0 Spending Policy N/A Percentage (if selected) 0% s Detailed Financials Revenue and Expenses Total Revenue $522,785 $490,011 $373,284 Total Expenses $385,332 $310,029 $295,458 Revenue Sources Foundation and Corporation Contributions Government Contributions $0 $0 $0 Federal State Local Unspecified Individual Contributions $370,939 $296,970 $273,068 Indirect Public Support Earned Revenue $52, $32,500 Investment Income, Net of Losses $3,773 $3,690 $3,664 Membership Dues Special Events $94,886 $131,701 $64,052 Revenue In-Kind Other $437 $57,

9 Expense Allocation Program Expense $320,016 $258,620 $256,761 Administration Expense $48,346 $37,772 $29,134 Fundraising Expense $16,970 $13,637 $9,563 Payments to Affiliates Total Revenue/Total Expenses Program Expense/Total Expenses 83% 83% 87% Fundraising Expense/Contributed Revenue 4% 3% 3% Assets and Liabilities Total Assets $914,067 $772,408 $587,173 Current Assets $692,865 $557,115 $377,702 Long-Term Liabilities $ Current Liabilities $12,086 $7,880 $2,627 Total Net Assets $901,981 $764,528 $584,546 Short Term Solvency Current Ratio: Current Assets/Current Liabilities Long Term Solvency Long-Term Liabilities/Total Assets 0% 0% 0% Top Funding Sources Top Funding Source & Dollar Amount Second Highest Funding Source & Dollar Amount Third Highest Funding Source & Dollar Amount Capital Campaign Currently in a Capital Campaign? No Goal 0 State Charitable Solicitaions Permit Permit? Nov 2017 Registration Exempt Jan 2019 Comments Foundation Comments Financial information provided from audited financial statements. Audited financial statements and IRS 990 for FY 2011 prepared by Hostetler Stott, CPA. Audited financial statements and IRS 990s for FY 2010 and 2009 prepared by Thomas C. Stott, CPA. Revenue from "Foundations and Corporations" also includes support from individuals. 9

10 Created Copyright 2018 The Community Foundation Serving Richmond & Central Virginia 10