Ovations For A Cure, Inc.

Transcription

1 Ovations For A Cure, Inc. General Information 251 West Central Street, Suite 35 Natick, MA 176 (58) Website Organization Contact Lisa@OvationsForTheCure.org Year of Incorporation 26 1

2 Statements & Search Criteria Mission Statement Ovations for the Cure, Inc. is dedicated to the relentless pursuit of a cure for ovarian cancer. Our education programs focus on increasing public awareness of the symptoms of ovarian cancer in an effort to improve earlier detection of ovarian cancer and thus better outcomes for women who have ovarian cancer. Secondly, our patient programs are created to give knowledge, hope, and comfort to those women currently diagnosed and living with ovarian cancer. Ovations for the Cure, Inc. also provides critical funding for new and ongoing ovarian cancer research initiatives that focus on early detection, prevention, developing more effective treatments for ovarian cancer, and to cure ovarian cancer in our lifetime. Background Statement WHO WE ARE: Ovations for the Cure * Was founded as a 51(c)(3) non-profit organization in April of 26 by Patricia Flaherty. * Is dedicated to supporting the research, patient treatment and awareness of ovarian cancer. * Proliferates broad-spectrum awareness of the risk factors and subtle warning signs of ovarian cancer. WHAT WE ARE FIGHTING: Ovarian Cancer * Will be diagnosed more than 22, times worldwide in 212. * Will be diagnosed 22,43 times in the United States this year alone. * Is hard to detect and equally difficult to diagnose, because symptoms like bloating, abdominal pain, trouble eating and urinary urgency or frequency are problems any woman may experience at any given moment. * Claims more deaths than any other gynecological cancer. * Takes the lives of 3 out of every 4 women diagnosed with the disease. The symptoms of ovarian cancer are hard to detect and equally difficult to diagnose. That's because bloating, abdominal pain, trouble eating and urinary urgency or frequency are problems any woman may experience at any given moment. Many women, though, unaware of the subtle clues that ovarian cancer presents, ignore the only warning signs they may ever get. As a result, they seek medical attention only when symptoms become more pronounced and their condition has dangerously progressed. Even then, the disease is one that is not likely to be recognized immediately. Now the fifth leading cause of cancer deaths among women, it is a disease that ought to be more understandable; and therefore, more preventable. There is currently no early detection test for ovarian cancer. Ovations for the Cure of Ovarian Cancer needs your help in changing these statistics. 2

3 Impact Statement In the last year we have introduced two new patient programs, in addition to maintaining our previous programs of monthly support groups and symposium in September each year. While undergoing treatment, keeping a healthy diet, or even having food in the home, for an ovarian cancer patient and their family becomes challenging. In speaking with our patients/supporters, food shopping and preparing meals for themselves and their family becomes a huge undertaking. Therefore, Ovations is now offering complimentary healthy meals to ovarian cancer patients and their families while they are undergoing treatment. In 211, we serviced only the New England area. In 212, we wish to expand this program to a National level. In the past year, we have also introduced our "Princess Bracelet". This is an exclusive item only to ovarian cancer patients and survivors. The Princess Bead & Bracelet program provides patients with an elegant, silver-plated bangle bracelet adorned with a teal blue crystal bead, with sterling silver imprints on each side. Ovations for the Cure of Ovarian Cancer also continues its mission by providing awareness brochures in every OB/GYN office Nationwide. We have also increased our awareness through the growth of our website. We currently receive over 3, visits PER MONTH. Our focus on teaching people the signs and symptoms of ovarian cancer has reached to an internationl level with this exposure. Our continued funding of research is now at a total of $1.4 million since 26. Ovations continues to find any and all methods of increasing awareness of this insidious disease, serving those that have fallen victim to it and funding research to prevent it. Needs Statement Our needs include funding of programs and operations, volunteers for delivering meals, and board members. Service Categories Fund Raising & Fund Distribution Cancer Cancer Research Geographic Areas Served We help anyone anywhere in need. Please review online profile for full list of selected areas served. 3

4 Programs Learning for Living Symposium Description Sixth Annual Learning for Living Symposium at the Boston Four Seasons Hotel on September 22, 212. This event is free of charge to all ovarian cancer patients. The Learning for Living with Ovarian Cancer Symposium is an annual forum to educate and update ovarian cancer patients actively receiving treatment, survivors, and caregivers at no cost on the latest updates on ovarian cancer research and new treatments. During the symposium, experts in the treatment of ovarian cancer as well as basic and translational research in ovarian cancer present the updates and critical information important to the audience. After each speaker, there is an open question and answer session for the attendees. The following years talks are chosen based on audience suggestions for future symposiums topics. Budget Category Health Care, General/Other Patient Education Population Served People/Families of People with Cancer,, Program Short Term Success Program Long term Success Program Success Monitored By Examples of Program Success Measuring program success: Success will be defined by the number of attendees as well as their responses to a questionnaire given. This questionnaire gives participants an opportunity to give comments about the presentations, what they liked and disliked about the program, and to give suggestions for future presentations. Every person attending the symposium is given a questionnaire. The results of this questionnaire are tabulated for combined analysis of each speaker and the event as a whole. All ovarian cancer patients can learn the latest medical updates of this insidious disease in an open and easy to understand format. Questionnaires distributed the day of the event. Sixth year in a row with new patients coming each year. We also have the questionnaire results from the previous year. 4

5 Helping Hands Description While undergoing treatment, keeping a healthy diet, or even having food in the home, for an ovarian cancer patient and their family becomes challenging. In speaking with our patients/supporters, food shopping and preparing meals for themselves and their family becomes a huge undertaking. Therefore, Ovations is now offering complimentary healthy meals to ovarian cancer patients and their families while they are undergoing treatment. In 211, we serviced only the New England area. In 212, we have expanded this program to a National level. Budget 736 Category Health Care, General/Other Patient & Family Support Population Served People/Families of People with Cancer,, Program Short Term Success Program Long term Success Program Success Monitored By Examples of Program Success Success will be defined by the number of patients served as well as their responses to a questionnaire given. This questionnaire gives patients and their family an opportunity to give comments about the meals, what they liked and disliked about the program, and how it helped them during their treatment. Every person receiving the meals is given a questionnaire. The results of this questionnaire are tabulated for combined analysis. To feed all ovarian cancer patients undergoing treatment nationwide. Questionnaire Program went to 15 families served within 1 months of program inception. 5

6 Princess Bracelet Description The Princess Bead & Bracelet program provides patients with an elegant, silver-plated bangle bracelet adorned with a teal blue crystal bead, with sterling silver imprints on each side. The bracelets are free to ovarian patients and survivors as a way of guiding them on their roads to recovery. These women have already paid a heavy price we'd like to give them hope through their returns to health. Budget 461 Category Human Services, General/Other Human Services, General/Other Population Served People/Families of People with Cancer,, Program Short Term Success Program Long term Success Program Success Monitored By Examples of Program Success The number of bracelets sent out each month. Every ovarian cancer patient wears these bracelets with pride. The number of bracelets sent out each month. We average 1 bracelets per month since the inception of this program in 211. Awareness Brochures Description In an effort to spread awareness about ovarian cancer, its symptoms and what you should know, Ovations for the Cure of Ovarian Cancer has created pamphlets to display in your waiting area, desktop or other public location. We've distributed over 4, brochures to over 9,5 offices in all U.S. states, plus some in Canada. But, we've still got miles to go. Ovations provides these pamphlets and acrylic display holders to hospitals and doctors' offices around the nation free of charge. Budget 426 Category Health Care, General/Other Early Intervention & Prevention Population Served Females,, Program Short Term Success Program Long term Success Program Success Monitored By Examples of Program Success The more women read these pamphlets, the more they know the signs and symptoms of ovarian cancer. Knowing these symptoms could save a woman's life. Having full brochure holders in every OB/GYN and Cancer Center in the US. Continued sending of brochures. After five years, we are currently in all 5 states. 6

7 Management CEO/Executive Director Executive Director Mr. Paul Flaherty Term Start Apr 26 Co-CEO Co-CEO Term Start Dec 27 Mrs. Lisa Anne Madden Experience With a financial degree from Bentley University and experience in turning for profit companies around, Lisa's expertise has helped Ovations establish a new base after the Founder had passed. Staff Information Full Time Staff Part Time Staff Volunteers Contractors Retention Rate 2 2 1% Staff Demographics - Ethnicity African American/Black Asian American/Pacific Islander Caucasian 1 Hispanic/Latino Native American/American Indian Other Staff Demographics - Gender Male Female Unspecified 1 Formal Evaluations CEO Formal Evaluation 7

8 CEO/Executive Formal Evaluation Frequency Senior Management Formal Evaluation Senior Management Formal Evaluation Frequency NonManagement Formal Evaluation Non Management Formal Evaluation Frequency Annually Annually Annually Plans & Policies Organization has a Fundraising Plan? Organization has a Strategic Plan? Years Strategic Plan Considers Does your organization have a Business Continuity of Operations Plan? Organization Policy and Procedures Nondiscrimination Policy Whistleblower Policy Document Destruction Policy Directors and Officers Insurance Policy Under Development Under Development 2 No 8

9 Board & Governance Board Chair Board Chair Mr Paul Flaherty Company Affiliation Founder's husband Term Jan 211 to Jan 212 Board Members Name Affiliation Status Mr. Paul Flaherty Founder's husband Voting Mrs. Stephanie Gertz PhD None Voting Dr Ursula Matulonis None Voting Mr. David Yarckin D.S. Yarckin Electric Voting Board Demographics - Ethnicity African American/Black Asian American/Pacific Islander Caucasian 4 Hispanic/Latino Native American/American Indian Other Board Demographics - Gender Male Female Unspecified 2 2 Board Information Board Term Lengths Number of Full Board Meetings Annually Board Meeting Attendance % Written Board Selection Criteria? Written Conflict of Interest Policy? Percentage Making Monetary Contributions Percentage Making In-Kind Contributions 1 6 1% Under Development 75% 1% 9

10 Constituency Includes Client Representation No 1

11 Financials Fiscal Year Fiscal Year Start Jan 1, 212 Fiscal Year End Dec 31, 212 Projected Revenue $1,,. Projected Expenses $1,,. Endowment? No Spending Policy Income Only Credit Line? No Reserve Fund? Months Reserve Fund Covers Detailed Financials Revenue and Expenses Fiscal Year Total Revenue $339,889 $477,56 $1,317,598 Total Expenses $353,86 $96,326 $1,627,721 Revenue Sources Fiscal Year Foundation and Corporation $97,3 $124, -- Contributions Government Contributions $ $ $ Federal State Local Unspecified Individual Contributions $183,487 $219,75 $1,32,477 Indirect Public Support Earned Revenue $4,586 $7,756 $3,323 Investment Income, Net of Losses $275 $2,962 $8,315 Membership Dues Special Events $54,241 $123,38 $272,839 Revenue In-Kind Other $644 11

12 Expense Allocation Fiscal Year Program Expense $177,846 $54,841 $1,46,753 Administration Expense $11,29 $164,63 $224,725 Fundraising Expense $74,85 $255,422 $356,243 Payments to Affiliates $ $ $ Total Revenue/Total Expenses Program Expense/Total Expenses 5% 56% 64% Fundraising Expense/Contributed Revenue 22% 55% 27% Assets and Liabilities Fiscal Year Total Assets $25,454 $214,871 $689,673 Current Assets $177,498 $184,471 $656,498 Long-Term Liabilities $ $ $ Current Liabilities $152,46 $147,492 $139,474 Total Net Assets $53,48 $67,379 $55,199 Short Term Solvency Fiscal Year Current Ratio: Current Assets/Current Liabilities Long Term Solvency Fiscal Year Long-Term Liabilities/Total Assets % % % Top Funding Sources Fiscal Year Top Funding Source & Dollar Amount Second Highest Funding Source & Dollar Amount Third Highest Funding Source & Dollar Amount Capital Campaign Currently in a Capital Campaign? No Comments CEO Comments Please note, our founder passed in 28, which reduced our annual income by approximately $1 million per year. There were also residual expenses in 29 from signed agreements by the Founder. We have now restructured to fit within our revenue and maintain our mission statement. Foundation Staff Comments Financial summary data, charts, and graphs are from IRS 99s. For FY 28, contributions from foundations and corporations are listed under individuals as the breakdown was not available. Created Copyright 218 The Boston Foundation 12