Down Syndrome Association of Middle Tennessee

Transcription

1 Down Syndrome Association of Middle Tennessee General Information Contact Information Nonprofit Down Syndrome Association of Middle Tennessee Address P.O. Box 1182 Mt. Juliet, TN Phone (615) Web Site Web Site Facebook Facebook Twitter Twitter At A Glance Year of Incorporation

2 Mission & Impact Statements Mission The Mission of the Down Syndrome Association of Middle Tennessee is: To ensure individuals with Down syndrome are valued for their extraordinary gifts and contributions, empowering them to pursue meaningful, included lives by providing education, advocacy, support and community for people with Down syndrome and their families, and serving as a resource for educators, healthcare professionals, employers and the entire Middle Tennessee community. Background DSAMT was formed in 1995 by a group of parents with children with Down syndrome. The organization has grown from a network of about 25 families in 1998, to a membership of more than 5,000 community members today. DSAMT is a non-profit 501(c)3 tax exempt organization, led by a fifteen-member Board of Directors and the Executive Director. DSAMT is affiliated with the National Down Syndrome Society, the National Down Syndrome Congress ad Global Down Syndrome. These national organizations provide DSAMT with current up-to-date information on research, advocacy and policy issues concerning individuals with Down syndrome. DSAMT works closely with the Disability Coalition of TN, The Arc of Tennessee, GiGi's Playhouse Nashville, the Tennessee Council on Developmental Disabilities and other disability organizations locally and nationally. DSAMT has become the leading resource for parents in Middle Tennessee for accurate and up-to-date information on Down syndrome issues. DSAMT envisions a world in which all people with Down syndrome have the opportunity to realize their life aspirations. To that end, we provide: 1. First Call Program helping families with a new diagnosis, those new to the area and with secondary diagnoses; 2. School Partnership Program supporting educators with training and resources; 3. Medial Partnership Program supporting the medical community with training and resources; 4. Employer Partnership Program supporting the business community to facilitate competitive employment opportunities; 5. Advocacy supporting individuals with DS and their families to advocate for inclusion and acceptance; educating the community on key issues and working with legislators; 6. Education providing caregivers with training and resources; 7. Community connecting families to our others in our community, resources, activities and support; and 8. Inclusive Programs providing inclusive, educational, employment and social opportunities. 2

3 Impact DSAMT has recently launched its new website and resource center, providing families with the most up-to-date, accurate and comprehensive information available for Middle Tn on Down syndrome. Additionally, it launched an outreach effort specifically to spanish-speaking families, which includes informational materials for newly diagnosed families, a support group and parent mentors, as well as a dedicated phone line to connect directly to other spanish-speaking mentors. It also launched its first employment initiative, hiring four adults with Down syndrome! In 2018, DSAMT has advocated for successful passage of the Down Syndrome Information Act in the TN General Assembly, which requires the TN Department of Health to make available on its website up-todate information on Down syndrome and the TN support groups. This legislation will have a tremendous impact on families who receive the diagnosis state-wide. Current goals include 1) expansion of our employment program "Pepe's with a Purpose" to employ more individuals with DS; 2) raise funds to purchase property to be used for a Down syndrome enrichment center and office; 3) outreach to medical professionals in all 41 counties so that every OBGYN and Pediatrician has knowledge of the newly passed DS Information Act and access to DSAMT New & Expecting Parent Guide; 4) expansion of our parent support groups; 5) fundraising to support an educator conference to give them the tools needed to maximize the progress of exceptional learners in the classroom. Needs DSAMT's most pressing need is to maintain funding to support ongoing programs, and to increase funding in order to expand opportunities for direct service in the community. Please visit our website for more information about how you can help. Other ways to donate, support, or volunteer Current opportunities for support, donation, sponsorship, in-kind gifts, purchases and volunteer are located on our website at Checks are accepted at DSAMT, PO Box 1182, Mt. Juliet, TN Service Categories Primary Organization Category Human Services / Developmentally Disabled Services/Centers Secondary Organization Category Civil Rights, Social Action, Advocacy / Disabled Persons' Rights Tertiary Organization Category Community Improvement, Capacity Building / Community & Neighbourhood Development Areas of Service Areas Served TN - Davidson TN - Williamson TN - Rutherford TN - Wilson TN - Sumner TN - Bedford TN - Cannon TN - Cheatham 3

4 TN - Clay TN - Coffee TN - Cumberland TN - Davidson TN - Dekalb TN - Dickson TN - Fentress TN - Franklin TN - Giles TN - Hickman TN - Houston TN - Humphreys TN - Lawrence TN - Lewis TN - Lincoln TN - Macon TN - Maury TN - Montgomery TN - Moore TN - Overton TN - Perry TN - Pickett TN - Putnam TN - Robertson TN - Rutherford TN - Smith TN - Stewart TN - Sumner TN - Trousdale TN - Van Buren TN - Warren TN - Wayne TN - White TN - Williamson TN - Wilson While based in Davidson county, the Down Syndrome Association of Middle Tennessee serves all forty one counties that make up the Middle Tennessee region. CEO Statement The Down Syndrome Association of Middle Tennessee is unique. Our staff is committed to being available at any time to speak with educators, parents and families to discuss life issues and find resolutions. Our member families act as ambassadors in the community, supporting one another and advocating for their loved ones with Down syndrome. 4

5 Down syndrome is considered a disability by many, but at DSAMT we focus on the strengths and abilities of all people. We know that people with Down syndrome are not defined by the number of chromosomes in their DNA; they are individuals, each with unique talents, interests, and capabilities. DSAMT continues to further faith and confidence in our families and members by offering creative opportunities and programs for them to explore. We hope to reach all Middle Tennesseans through our advocacy efforts and that our community will continue to view people with Down syndrome as active and valuable citizens. 5

6 Programs Programs First Call Description First Call provides new and expectant parents with a trained parent mentor, information, gifts and baby showers. It supports families upon receipt of secondary diagnoses, during long hospital stays and times of crisis. Through this program, it also provides materials to local providers and hospitals. Budget Population Served Adults,, Community, Support & Education Description DSAMT provides support groups and family activities for new parents and those sharing the experience of Down syndrome. Group family counseling with a professional facilitator is also available as needed. DSAMT also provides regular support groups including D.A.D.S. (Dads Appreciating Down Syndrome), community outreach groups, and Moms Night Out meetings. It also provides educational workshops and bi-annual educational conferences. Budget Population Served,, Inclusive Programs Description DSAMT provides inclusive, age-appropriate recreational, educational and social opportunities for individuals with Down syndrome. These include but are not limited to: Creative Arts Camp, ican Shine Bike Camp, Easter Seals Camp, Extraordinary Evening Dance for teens & adults, Once Upon a Friendship Dance for middle-school aged children, employment opportunities, Circle of Friends monthly social program, Next Chapter Book Club weekly reading program, Extraordinary Fun with Friends activities throughout the community and scholarship opportunities. Budget Population Served,, School, Medical & Employer Partnership Programs Description DSAMT supports educators, medical professionals and employers with training and resources to meet the needs of individuals with Down syndrome in the classroom, as patients and in competitive work placements. Budget Population Served,, 6

7 Advocacy Description DSAMT supports individuals with DS and their families to advocate for inclusion and acceptance, educating the community on key issues. It works with local, state and national law makers on key legislation that benefits those with disabilities. It provides advocacy support and training to parents with school-aged children. Budget Population Served,, CEO Comments Regarding our programs, our biggest challenge today remains outreach to our outlying communities. In order to provide programs in these areas requires additional funding. 7

8 Governance Board Chair Board Chair Mr. Will Vaughn Company Affiliation Cort Term Aug 2015 to July Board Members Name Affiliation Status Jim Anisi Voting April Booten St. Thomas Hospital Voting Anne-Marie Clark Rachel Goode Vanderbilt University Medical Center Voting Voting Christine Gupton Williamson Co Schools Voting Faithe Logan Craig Maynard Voting Voting Travis Pelfrey HCA Voting Joseph Rinaldo Comfort Supply Voting Todd Staley State of Tennessee Dept. of Financial Institution Voting Rebecca Tinsley Turner Construction Voting Duane Willis Morgan & Akins, PLLC Voting Courtney Wright Vanderbilt University Voting Board Demographics - Ethnicity African American/Black 0 Asian American/Pacific Islander 0 Caucasian 14 Hispanic/Latino 0 Native American/American Indian 0 Other 0 Board Demographics - Gender Male 7 Female 7 Unspecified 0 Governance 8

9 Board Term Lengths 2 Board Term Limits 2 Board Meeting Attendance % 85% Written Board Selection Criteria? Written Conflict of Interest Policy? Under Development Percentage Making Monetary Contributions 100% Percentage Making In-Kind Contributions 100% Constituency Includes Client Representation Number of Full Board Meetings Annually 6 Board CoChair Board CoChair Mrs. Faithe Logan Term Jan 2016 to Dec 2018 Standing Committees Advisory Board Board Development Community Outreach / Community Relations Development / Fund Raising Education Parents Program Special Events Strategic Planning Risk Management Provisions Employee Benefits Liability General Property Coverage & Professional Liability Special Event Liability Workers Compensation and Employers' Liability CEO Comments DSAMT has always wanted to include individuals with Down syndrome in the decision making process and to guide the organization. We are currently, in 2018, in the process of developing a Young Professionals Board, which will require 20% of members have Down syndrome, to fulfill this need and help our self-advocates develop leadership skills, build confidence and make social connections. 9

10 Management Executive Director/CEO Executive Director Term Start Jan Mrs. Alecia Talbott Experience Alecia became the the executive director of DSAMT in 2012, after spending several years as an active member and volunteer in our organization and in the disability community. She received her BA & MA from Western Kentucky University, taught at Nashville State and Volunteer State Community Colleges, directed marketing at Passport Health Communications, Inc. and was a freelance marketing professional before joining DSAMT. Ms. Talbott is a strong advocate for inclusion and acceptance for those with Down syndrome and other disabilities in the community and schools, having completed the Vanderbilt Volunteer Advocacy Program, Wrightslaw training and other advocacy trainings. Her passion lies in helping those with Down syndrome show the world that those with something extra bring extraordinary gifts to our communities that should be recognized and valued. She also serves on the Disability Coalition for Education, Vanderbilt's Disability Pathfinder Advisory Committee, and the Tennessee Disability Coalition Board of Directors. In 2011 she was named Best Buddies TN Champion of the Year and in 2016 received the Nashville Business Journal s Woman of the Year Award. She is also an NDSS DS-Ambassador. She is an NDSS Ambassador and NDSC Advocate. Staff Full Time Staff 3 Part Time Staff 0 Volunteers 200 Contractors 3 Retention Rate 100% Plans & Policies Does the organization have a documented Fundraising Plan? Does the organization have an approved Strategic Plan? Under Development In case of a change in leadership, is a Management Succession plan in place? No Does the organization have a Policies and Procedures Plan? Does the organization have a Nondiscrimination Policy? Does the organization have a Whistle Blower Policy? 10

11 Does the organization have a Document Destruction Policy? Affiliations Affiliation Center for Nonprofit Management Excellence Network Year 2000 Community Resource Center - Nashville 2003 National Down Syndrome Society 2000 National Down Syndrome Congress 2002 Alliance on Disability Policy of Tennessee 2007 Vanderbilt University Medical Center 2013 Belmont University 2013 Lebanon/Wilson County Chamber of Commerce 2016 The ARC of Tennessee 2013 Awards Awards Award/Recognition Organization Year Federal Home Loan Bank of Ohio Federal Home Loan Bank 2005 Community Partner Recognition Vanderbilt Kennedy Center 2005 National Conference Recognition National Down Syndrome Society 2003 Nashville Habitat for Humanity Nashville Habitat for Humanity 2005 Community Partner Frist Center for the Arts

12 Financials Fiscal Year Fiscal Year Start Jan Fiscal Year End Dec Projected Revenue $519, Projected Expenses $496, Endowment Value $15, Endowment Spending Policy N/A Endowment Spending Percentage (if selected) 0% Detailed Financials Revenue and Expenses Fiscal Year Total Revenue $435,640 $371,234 $276,882 Total Expenses $453,396 $379,946 $236,840 Revenue Sources Fiscal Year Foundation and Corporation $65,000 $0 $11,500 Contributions Government Contributions $0 $0 $0 Federal $0 $0 $0 State $0 $0 $0 Local $0 $0 $0 Unspecified $0 $0 $0 Individual Contributions $100,978 $52,721 $248,127 Indirect Public Support $0 $0 $0 Earned Revenue ($39,398) $9,654 $7,879 Investment Income, Net of Losses $1,982 $1,031 $410 Membership Dues $0 $0 $0 Special Events $307,078 $254,390 $8,966 Revenue In-Kind $0 $53,438 $0 Other $0 $0 $0 12

13 Expense Allocation Fiscal Year Program Expense $241,945 $185,885 $180,059 Administration Expense $17,357 $13,603 $35,397 Fundraising Expense $194,094 $180,458 $21,384 Payments to Affiliates $0 Total Revenue/Total Expenses Program Expense/Total Expenses 53% 49% 76% Fundraising Expense/Contributed Revenue 41% 59% 8% Assets and Liabilities Fiscal Year Total Assets $376,653 $379,300 $409,441 Current Assets $35,158 $351,676 $403,856 Long-Term Liabilities $0 $0 $0 Current Liabilities $30,051 $14,942 $16,106 Total Net Assets $346,602 $364,358 $393,335 Short Term Solvency Fiscal Year Current Ratio: Current Assets/Current Liabilities Long Term Solvency Fiscal Year Long-Term Liabilities/Total Assets 0% 0% 0% Top Funding Sources Fiscal Year Top Funding Source & Dollar Amount Fundraising Events $307,078 Contributions, Gifts, Contributions, Gifts & and Grants $254,390 Grants $248,127 Second Highest Funding Source & Dollar Amount Third Highest Funding Source & Dollar Amount Contributions, Gifts, and Grants $100,978 Noncash Contributions $53,438 Foundations and Corporations $65,000 Contributions, Gifts, and Grants $52,721 Foundations and Corporations $11,500 Fundraising Events $8,966 Capital Campaign Is the organization currently conducting a Capital Campaign for an endowment or the purchase of a major asset? Campaign Purpose To purchase property and building space for Down syndrome enrichment center and DSAMT offices. Capital Campaign Goal $1,000, Campaign Start and End Dates Jan 2018 to 0 Capital Campaign Raised-to-Date Amount $0.00 as of 0 Capital Campaign Anticipated in Next 5 Years? State Charitable Solicitations Permit TN Charitable Solicitations Registration - Expires June 2019 Registration No 0 13

14 GivingMatters.com Financial Comments Financial figures taken from the prepared by Uselton, Clay, & Bright. P.C. Comments provided by Nicole Rose 07/23/2018. Created Copyright 2018 The Community Foundation of Middle Tennessee 14