Oklahoma Family Center for Autism

Transcription

1 Oklahoma Family Center for Autism nprofit Profile Contact Information nprofit Address Oklahoma Family Center for Autism 2801 NW 154th ST Edmond, OK Oklahoma County Phone (405) Website Contact Name Melinda Lauffenburger Contact Alternate Address B N. May Avenue #106 Oklahoma City OK Alternate Phone At a Glance Organization's type of tax exempt status Organization Does Business As (DBA) Supporting Organization Public Supported Charity AutismOklahoma.org AutismOklahoma.org 1

2 Year Founded 2002 IRS Ruling Year 2007 Registered with the Secretary of State? State Registration Expiration Mar 2017 Other ways to donate support, or volunteer Volunteer There are many ways to volunteer with Autism Oklahoma.You can help with a parent group in your community or assist with childcare. We have mentorship opportunities with teens or young adults. More information about these volunteer opportunities are on the parent support group pages at our website. Our biggest annual event is the PieceWalk, which is organized by great volunteers serving on PieceWalk committees. The commitment is for 12 months, meets once a month and most position can be done from your home computer. see Piecewalk.org for more details. Our Wish List MAC Computers Books and DVDs about autism Sensory Items $25 gift cards for awards or volunteer recognition Downtown Studio space for artists Monthly meeting space for people Raffle items gift cards (WalMart, Target, restaurants, stores, Visa check cards etc.) Office supplies reams of paper, envelopes, stamps etc. Statements Mission Investing together to grow, learn, and serve the families of Oklahoma affected by autism. Background AutismOklahoma.org started in 2002 in Edmond, Oklahoma. Today, we have eight parent support groups throughout Oklahoma, an annual PieceWalk & 5K, summer camps, college, teen and adult groups as well as many more community events and social opportunities. We also have 2 pre-employment clubs for young adults called Bee's Knees and Invisible Layers Productions. Our websites, e-newsletters, social media, and our mascot Dash provide ways for us to to reach out and connect with each other and with the community

3 Impact Summary of Common Philosophy: Every person with autism is unique and has something to offer our community. By creating interest based connections, individuals with autism are able to reach their potential. We are families helping families and every family has a unique story and journey. We are seizing the opportunities to reach our communities and our state with a positive autism awareness message. Core Values: 1. Every person with autism is unique and has something amazing to offer our community and society. 2. By creating interest based connections, individuals with autism are able to shine and reach their potential. 3. In order to better serve our children and other families, we must become engaged family participants rather than bystanders. Government or education systems cannot and will not "fix" our children or families but we can increase opportunities, joy, and outcomes by helping each other. 4. We are families helping families! AOK will build a structure to support engaged parents and families through their journey. This is our best chance of helping 1 in 50 children who have autism. 5. We will develop and invest in parent leaders who are engaged and participating to support our cause and the programs of AOK. 6. All our groups will provide a safe place to share experiences and challenges with other families who can relate and support each other. "Safe place" means that we are grounded in grace and kindness toward everyone. 7. We will not judge others and we will not criticize approaches that work for families. 8. Creativity is essential to reaching individuals with autism and we are all changed by providing a platform that encourages creativity and expression. 9. We will encourage parent leaders to develop innovative ideas that have a big impact on individuals and families affected by autism. We have grown by seizing opportunities to make something big happen! 10.We are committed to bringing out the best in others and will always have hope. 11.We will seize the opportunities to reach our communities and our state with a positive autism awareness message. 12. We will look for and invest in programs that have a big impact on individuals with autism and their families. Needs AutismOklahoma.org needs volunteers, including parent support group leaders, website developers, graphic designer, and committee leaders for our annual PieceWalk. CEO/Executive Director Statement AutismOklahoma.org provides a way for engaged parents to work together to build programs and experiences that benefit families and individuals with autism. Donations to AutismOklahoma.org directly benefit families living in Oklahoma. We provide the infrastructure and models for parents to get involved and make a difference in Oklahoma. Area Served Area Served Geographic Area Served Oklahoma - Statewide Blanchard, Canadian Valley, Edmond, Guthrie, Muskogee, rman, Oklahoma City, Shawnee, Stillwater, Latino community in Oklahoma City, Oklahoma City Metro area. Statewide support and national impact for preemployment models and films. Service Categories Primary Organizational Category Human Services/Alliances & Advocacy 3

4 Secondary Organizational Category Tertiary Organizational Category Diseases Disorders & Medical Disciplines/Autism Health Care Patient & Family Support Programs Parent Support Group Description Parent support groups provide peer mentoring, emotional support, educational programming, and family safe events. AutismOklahoma offers parent support groups in 6 Oklahoma geographies under the following names: AutismCanadianValley, AutismEdmond, AutismMuskogee, Autismrman AutismOKC, AutismStillwater. AutismLatino serves the Hispanic community in the Oklahoma City metro area. In addition, we have a Writer's Group for parents who desire a writing experience with a professional author. Approximately families attend each group every month for an estimated impact of 180 families each year per group or 1440 families for all groups. Groups provide childcare for toddlers and school age children with autism and also include regular social groups. Budget $40, These eight support groups leaders work together regularly and receive annual training and development. Category Education, General/Other Adult Education Strategy Population Served Program Short-term Success Program Long-term Success Program Success Monitoring Examples of Program Success People/Families with People of Developmental Disabilities Families At- Risk Populations Helping families feel less isolated and alone. Help for families to find resources that they need to help their loved one with autism. Family support and understanding for more inclusive participation in communities, schools, and social events Survey data from parents and participants The number of programs developed from our parent support group structure has increased from 3 to 31. Parents are getting more involved to assist each other and engage the community for additional programming and support. 4

5 Social Groups and Summer Experiences Description AutismOklahoma provides special groups and summer experiences to help engage children, teens and young adults in social activities. Some groups are held in conjunction with parent support groups and included The College Group, Teen 2 Teen, and Friends. Budget $33, AutismOklahoma also provides innovative summer experiences in interest areas to encourage communication and involvement. Some of these experiences include Big Swanky Art Show, Comiccamp, Little Swanky, Camp ggin, AKON Adventure and Summer Advance. In 2013, over 200 children, teens and young adults attended social groups and camps offered by AutismOklahoma. Category Mutual, Membership Benefit, General/Other Mutual, Membership Benefit, General/Other Strategy Population Served Program Short-term Success Program Long-term Success Program Success Monitoring Examples of Program Success Elderly and/or Disabled Children and Youth (0-19 years) Adults Persons with autism will be more willing to leave their homes to participate in an activity with others. The ultimate goal is for young people to have social opportunities in their area of interest so that they can be a contributor in the community. Survey of parents and notes of leaders. Each year, we are providing more camps and getting more participation. Parents are extremely excited when their child has an opportunity to excel in an environment where they are not judged for their differences but where their differences are featured. 5

6 PieceWalk and Autism Awareness Description AutismOklahoma provides the PieceWalk & 5K on the first Saturday in May in downtown Oklahoma City. The PieceWalk is the largest single autism event in our state and draws upwards of 8000 people annually. The PieceWalk is an awareness and fundraising event that features entertainment, resources, and an opportunity to build community around individuals affected by autism. Budget $90, AutismOklahoma also provides Boots N Bling, an annual kick-off event that includes information about our programs and about autism. The PieceWalk also includes other awareness events including chili suppers, restuarant nights, bake sales, and other events. In addition, we provide education to public schools who partner with us to celebrate autism during our PieceWalk season. Our mascot, Dash, has a full body costume and visits community events. In addition, Dash has a twitter account to communicate with his fans. AutismOklahoma provides a number of other autism awareness tools including our website, e-news, social media strategies, Public Service Announcements and even a full-length movie. All of these programs are designed to engage our community in understanding and accepting people who have autism. Category Education, General/Other Education, General/Other Strategy Population Served Program Short-term Success Program Long-term Success Program Success Monitoring Examples of Program Success Families Adults Children and Youth (0-19 years) As a result of the PieceWalk, families are more confident to participate in the community. Our ultimate success will occur when families can more fully participate in their communities. Individuals with autism need more support than 2 parents can offer. Programs like the PieceWalk create an environment to promote participation of a group of supporters for each individual with autism and their family. More participation in the PieceWalk. We would like to see more people with autism with their own support team participating in this event every year. We also want to see our subscribers, followers, website traffic increase as a result of more community involvement. All of our programs have grown significantly over the past 3 years. Last year, we had 185 teams participate in the PieceWalk. 6

7 Pre-employment Interest Clubs Description Bee's Knees and Invisible Layers Productions (ILP). Invisible Layers are innovative models and pre-employment clubs for young adults who have autism. The club provides for 3 primary needs. Budget $53, The clubs are an avenue for developing social and team skills in an area of interest. This is an important consideration since many young adults with autism isolate if not compelled to participate in life through an interest area. 2. The clubs provide for "alternative pre-employment" in that the members learn skills to create quality art and videos while building and maintaining a business model with real customers. 3. The group members participate in developing creative ways to express their views and tell their stories. The club members demonstrate personal transformations in confidence and willingness to participate in life. As far as we know, our clubs are one of a kind opportunity and a unique model for personal transformation. Category Employment, General/Other Vocational Guidance Strategy Population Served Program Short-term Success Program Long-term Success Program Success Monitoring Examples of Program Success Adults Adolescents Only (13-19 years) Identification of products and markets that will buy products. Engaging individuals with autism who can be successful in interest programs. Learning skills to work as a team. Individuals with autism could become employed in their area of interest. Individuals could contribute at a significant level of contribution that would be meaningful and enjoyable. Parent and individual survey to measure confidence and ability to work together Willingness to participate in community activities Success in developing high quality products Our Bee's Knees group participates in the Big Swanky Art Show that attracted 400 people and every piece of art was sold. Invisible Layers has generated $2000 monthly from business customers by developing 3-5 minute website videos for other non-profits and businesses. Disaster Programs Voluntary Organizations Active in Disaster (VOAD) Member Comments on Programs 7

8 CEO/Executive Director/Board Comments AutismOklahoma.org is a grassroots parent s organization of families affected by autism in Oklahoma. We received our 501c3 in October of 2007 and have annual revenue approaching $250,000. Today, 1 in 68 children born will be diagnosed with autism. This is an exponential increase with an unknown cause. Autism is not curable but individuals can recover from many autism symptoms. Unfortunately, Oklahoma is one of 17 states that do not provide medical insurance for autism treatments. As a result, Oklahoma families affected by autism have to unite and help each other by finding creative solutions. Taking the lead in this effort, AutismOklahoma.org provides support for more than 3500 families annually. Our websites include www. PieceWalk.org, Fast growth is a big challenge, but the statistics of autism prevalence are indicative of the need for more and more support for families in Oklahoma. We are continuing to grow and add parent support groups, summer programs and pre-employment clubs. Our organization is primarily run through volunteers. We have over 600 volunteers annually. One of our biggest challenge is continued growth with minimal staff and superior management and focus. Staff & Management CEO/Executive Director Start Date May Melinda Lauffenburger melinda@autismoklahoma.org CEO/Executive Director Experience Melinda Lauffenburger is the founder of AutismOklahoma.org. The organization started in 2002 in Edmond as a parent support group. Melinda volunteered as Executive Director until Melinda's prior experience includes ownership of Trinity Management Group, sales with Hewlett-Packard, and consultant with Alltel. Senior Staff Name Dee Blose Alicia Clark Zac Davis Crystal Frost Trina Naff-Eaves Stacey Weddington Title Director of Program Development Director, Volunteers Director, Media and Invisible Layers Director of Community Engagement Program Director Director of Community Impact Staff Information 8

9 Number of Full-time Staff 4 Number of Part-time Staff 1 Number of Contract Staff 2 Number of Volunteers 700 Staff Retention Rate 100 % Are professional development opportunities provided? Does CEO/Executive Director have formal evaluations? Management Reports to Board? Staff Demographics - Ethnicity African American/Black 1 Caucasian 3 Native American/American Indian 1 Staff Demographics - Gender Male 1 Female 5 Organizational Plans Fundraising Plan Policy against commission-based compensation for fundraising consultant Communication Plan Strategic Plan Under Development Under Development Number of Years Strategic Plan Considers 2 Date Strategic Plan Adopted Feb 2015 Management Succession Plan Organization Policies and Procedures Continuity of Operations Plan Policies ndiscrimination Policy Whistle Blower Policy Document Destruction Policy Directors and Officers Insurance Policy Collaborations 9

10 We have active partnerships with Youth & Family Services of El Reno for Bee's Knees and summer experiences. Awards Awards Award/Recognition Organization Year Recipient of Double Wolf Dare Week Award and Contributions Edmond Santa Fe High School 2014 Risk Management Provisions Directors and Officers Policy Government Licenses Is your organization licensed by the government (federal, state and/or local)? Comments on Staff & Management CEO/Executive Director/Board Comments AutismOklahoma worked with a consultant to create a comprehensive Operations Manual in The manual includes all legally required governance, financial, and safety policies, and standard policies for all "Best Practice" organizations. Governance Board Chair Company Affiliation John Cooper Term July 2016 to June Consumer Credit Counseling Services of Central Oklahoma jcooper@cccsok.org Board of Directors List Current as of Jan 01, 2018 Name Affiliation Status Dusty Burchfield John Chay Vice President John Cooper President Burchfield Commercial Real Estate Voting Consumer Credit Counseling of Central Oklahoma Voting Voting Dr. Beth DeGrace OU Health Sciences Center Voting Angi Bruss Gavin Public Relations Consultant Voting Phil Inzinga Radio Executive Producer and cohost of The Morning Animals Voting Melinda Lauffenburger Director Trinity Management Group LLC Voting 10

11 Board Demographics - Ethnicity Caucasian 6 Other 0 Parents of person with autism = 2 Board Demographics - Gender Male 4 Female 3 Governance Information Board Term Lengths Board Term Limits 1 years 20 terms Number of Full Board Meetings Annually 6 Board Meeting Attendance % 80 % Percentage of Board Making Monetary Contributions to the Organization Percentage of Board Making In-Kind Contributions to the Organization Board Orientation Constituency Includes Client Representation Written Board Selection Criteria? Written Conflict of Interest Policy? 100 % 80 % Under Development Standing Committees Finance Management Comments on Board & Governance CEO/Executive Director/Board Comments AutismOklahoma.org is a growing organization. This past year, we implemented many of the infrastructure items including governance, program, staff, and volunteer policies and procedures. Financials Current Fiscal Year Jan 01, 2018-Dec 31,2018 Current Year Budgeted Total Income $565,918 Current Year Budgeted Total Expenses $563,119 Prior Three Years' Financial History Income and Expenses 11

12 Fiscal Year Total Revenue $497,938 $395,653 $274,971 Total Expenses $425,205 $340,438 $272,350 Revenue Less Expenses $72,733 $55,215 $2,621 Income Sources Fiscal Year Contributions $428,949 $177,500 $165,613 Foundation and Corporation Contributions Government Contributions $7,500 $137,675 $0 Federal State Local Unspecified $7,500 $137, Individual Contributions Indirect Public Support Earned Revenue $40,706 $37,855 $65,102 Investment Income, Net of Losses $578 $216 $180 Unrealized Gain/Loss ($7) Membership Dues Special Events $20,242 $41,648 $44,076 Revenue In-Kind Other ($30) $ Expense Allocation Fiscal Year Program Expense $394,608 $319,536 $250,312 Administration Expense $30,597 $15,449 $14,162 Fundraising Expense -- $5,453 $7,876 Payments to Affiliates Total Revenue/Total Expenses Program Expense/Total Expenses 93% 94% 92% Fundraising Expense/Contributed Revenue 0% 3% 18% Assets and Liabilities Fiscal Year Total Assets $355,787 $261,927 $207,370 Current Assets $353,767 $261,927 $207,370 Long-Term Liabilities Current Liabilities $23,915 $2,788 $3,446 Total Net Assets $331,872 $259,139 $203,924 Short-term Solvency Fiscal Year Current Ratio: Current Assets/Current Liabilities Long-term Solvency Fiscal Year Long-Term Liabilities/Total Assets 0% 0% 0% 12

13 Top Funding Sources Fiscal Year Top Funding Source & Dollar Amount Contributions $428,949 Contributions $177,500 Contributions $165,613 Second Highest Funding Source & Dollar Earned Revenue Govt - Unspec Earned Revenue Amount $40,706 $137,675 $65,102 Third Highest Funding Source & Dollar Amount Special Events $20,242 Special Events $41,648 Special Events $44,076 Endowment and Other Financial Information Endowment? Endowment Spending Policy Endowment Spending Policy Percentage (if selected) Credit line? Rreserve fund? Tax Credits? N/A 0 % Capital Campaign Currently in a Capital Campaign? Comments on Financials CEO/Executive Director/Board Comments After 2011, AutismOklahoma.org identified three events as fundraisers. Our annual Drive for Autism, Dash Bash (called Boots and Bling in 2016) and our PieceWalk 5K. These 3 projects represent fundraisers with revenue. Foundation Staff Comments All prior year financial information is from IRS Form 990s. Contributions may include foundations and corporations when the breakout was not available. The financial information presented is obtained from the following sources: IRS Form 990, independent audit reports, financial statements board approved when available, and supplemental information from the organization. We do not warrant or guarantee the timeliness, errors or inaccuracies. With respect to information regarding financial performance, nothing on this website should be interpreted as a statement or interpretation by OCCF staff. Organizations with a GiveSmartOKC profile are responsible for updating information annually within 45 days following the end of their fiscal year. 13

14 Created Copyright 2018 Oklahoma City Community Foundation 14