Nofas Mid-South. General Information. Contact Information. At A Glance. Nonprofit. Nofas Mid-South Address

Transcription

1 Nofas Mid-South General Information Contact Information Nonprofit Nofas Mid-South Address 696 Jackson Ave MEMPHIS, TN Phone Facebook facebook.com/nofasmidsouth Twitter At A Glance Year of Incorporation

2 Statements & Search Criteria Mission NOFAS MidSouth is committed to prevention of Fetal Alcohol Spectrum Disorders (FASD). NOFAS MidSouth provides advocacy, support, and education, and serves as a resource for the FASD community in the Mid- South. Background Fetal Alcohol Spectrum Disorders are the most prevalent preventable cause of developmental disability. Moreover, FASD is 100% preventable if the mother does not drink during pregnancy. NOFAS Mid-South is dedicated to the prevention of FASD in Memphis and surrounding areas. Fetal Alcohol Syndrome (FAS) was first described in medical literature in 1968 by French doctor Paul Lemoine but was largely ignored by the public and medical professionals. It was not until Drs. David W. Smith and Kenneth L. Jones at the University of Washington Medical School recognized a group of physical anomalies among children whose mothers were alcoholics that the medical community took heed. In the ensuing 40 years, as research has continued, the umbrella term Fetal Alcohol Spectrum Disorders has come to describe a wide array of physical, intellectual, developmental and behavioral effects directly attributed to maternal alcohol consumption during pregnancy.the National Organization on Fetal Alcohol Syndrome (NOFAS), founded in 1990, is a national non-profit organization focused on fetal alcohol spectrum disorders (FASD). NOFAS works to educate the public about FASD and the risks of drinking alcohol while pregnant and advocates for improved public policy for people affected by FASD. NOFAS serves as a resource for people living with FASD, as well as educators, care providers and other professionals seeking information about FASD. NOFAS has a network of over 40 affiliates around the United States.NOFAS Mid-South was formed in Memphis in 2013 by a group of individuals affected by Fetal Alcohol Spectrum Disorders (FASD) through children, grandchildren, or siblings. Because of our connection to FASD we have a passion for prevention, and for supporting other affected families and individuals. In 2013 we formed a board, became an affiliate of NOFAS (National Organization on Fetal Alcohol Syndrome) and established a 501c3 not-for-profit entity. We spent the next two years networking with other NOFAS affiliates and learning the work of FASD prevention and family advocacy.in August 2015 we hired our first part-time employee and began the work building brand and cause awareness and establishing partnerships throughout the community. The eradication of FASD in the midsouth continues to build momentum as we strengthen ties with area agencies that serve women in their childbearing years and children with developmental disabilities, and become more active in direct service delivery. Impact NOFAS MidSouth has been in the planning and strategizing phase of development since hiring an Executive Director in August of The Salvation Army Purdue Center of Hope generously donated office space in a high-traffic area of their Social Services wing, where each week dozens of individuals are exposed to our message of awareness and prevention of Fetal Alcohol Spectrum Disorders (FASD).In 2016 our focus has been on coalition and awareness building. We have developed a website and social media presence, and created and distributed printed informational materials. Through local radio programs, social media campaigns and health fairs we have disseminated information about the prevention of Fetal Alcohol Spectrum Disorders to over 60,000 people. We traveled to Nashville for Disability Day on the Hill, joining with thousands of social workers, advocates, effected families and individuals and other concerned citizens to raise awareness of and advocate on behalf of those with developmental disabilities. Our Executive Director and board members met with members of the Memphis congressional delegation and asked for their support in eradicating the number one cause of developmental disability Fetal Alcohol Spectrum Disorders.Our public seminar with FASD expert Dr. Leigh Tenkku Lepper of the University of Missouri educated over 100 attendees representing more than 30 area agencies, and we were pleased to present to over 50 Lebonheur LEADS workers at an in-service meeting. Early in 2017 we are slated to present our message at Porter Leath staff inservice meetings. We continue to seek opportunities to educate both vulnerable populations and the individuals and agencies that serve them. In 2017 as we continue to expand in active service delivery, we are implementing programs to take our message to women in their childbearing years by partnering with care providers, service delivery agencies, schools and churches throughout the midsouth. In the first months of the coming year we are confirmed to provide education to Agape's Families in Transition Life Skills Training program, and the Operation Smart Child program at Neighborhood Christian Center on an ongoing basis, and are in conversation with several other area agencies and school officials about taking our message to their populations. 2

3 Needs NOFAS Midsouth needs opportunities to educate the public about prevention and effects of Fetal Alcohol Spectrum Disorders (FASD). If your organization, school, church, or other civic group would like to host a presentation about this prevalent, yet 100% preventable cause of developmental disability, please contact Ellen Hafen at (901) We also need monetary contributions to cover our operating costs and in-kind media donations in the form of television, radio, print, blog or other. NOFAS Midsouth would also like to invite the public to participate in our social media praise of restaurants who prominently display the required-by- Tennessee-law Fetal Alcohol Syndrome warning sign in their establishments. When you are in an area restaurant and see a warning sign, please take a photo and send it to nofasmidsouth@gmail.com. Please include name and location of the restaurant, along with the names of any persons in the photo.the amount of alcohol that constitutes "one drink" is often grossly over estimated. So that we can create a concrete visual representation, we are in need of serving glasses of the following types and sizes (may be mix and match):shot glass 1.5 ozcordial or Sherry 3ozWine glass 5 oztumbler 8 ozbeer mug or pub glass 12 oz Areas Of Service Areas Served Areas MidSouth NOFAS Mid-South primarily serves Western Tennessee, Eastern Arkansas and Mississippi, but we will give support, assistance and referrals to anyone who contacts us. Service Categories Specifically Named Diseases 3

4 Programs Programs Prevention Awareness Education for Professionals Description Fetal Alcohol Spectrum Disorders are the number one preventable developmental disability, and Awareness Education is the number one factor in prevention. NOFAS MidSouth's board members/volunteers are prepared to provide education on the effects and prevention of Fetal Alcohol Exposure in a variety of formats from small informal discussion groups to large audio-visual-enhanced lectures. We believe that sustained efforts in educating care-giving professionals about the risk of alcohol exposure to the fetus will bring about a paradigm shift regarding alcohol and pregnancy. Our Prevention Awareness Education for Professionals Program seeks to inform and empower professional caregivers to use their influence and expertise to prevent Fetal Alcohol Exposure. Our Prevention Awareness Education for Professionals Program reaches helping professionals in their workplace, through Lunch and Learn, staff inservice trainings, and seminars. Budget $9, Target Population Strategy Long term Success Short Term Success Adults Long-term success will be evident in a reduction of drinking during pregnancy, thereby reducing the incidence of Fetal Alcohol Spectrum Disorders. This result will be measured in national and state statistics regarding drinking during pregnancy that are periodically gathered by the Centers for Disease Control and various researchers throughout the country. We believe that sustained efforts in educating care-giving professionals about the risk of alcohol exposure to the fetus will bring about a paradigm shift regarding alcohol and pregnancy. We are in the momentum-building stages of this program, and are off to a great start. As we continue to work with area agencies, schools and the public to raise awareness and provide prevention education we feel confident that we will have long-term success to report in the coming years. Short term success will be measured in the number of individual caregiving professionals who receive information about Fetal Alcohol Spectrum Disorders (FASD). We will gather this information from attendance logs and feedback forms at lectures and trainings, and direct count at stop-by events such as health fairs and conferences. 4

5 Prevention Awareness Education for Women in their Childbearing Years Description Fetal Alcohol Spectrum Disorders (FASD) are the number one preventable developmental disability, and Awareness Education is the number one factor in prevention. Early intervention into the choices to consume alcohol while there is a chance of becoming pregnant is key to prevention. The high rate of unintended pregnancies combined with drinking behaviors in this group put it at high risk for Fetal Alcohol Exposure. Our Prevention Awareness Education for Women in Their Childbearing Years reaches at-risk women who are currently receiving services from area agencies as a part of an agency's established eduational programs. Budget $7, Target Population Strategy Long term Success Short Term Success Females Long-term success will be evident in a reduction of drinking during pregnancy, thereby reducing the incidence of Fetal Alcohol Spectrum Disorders. This result will be measured in national and state statistics regarding drinking during pregnancy that are periodically gathered by the Centers for Disease Control and various researchers throughout the country. We believe that sustained efforts in educating women in their childbearing years about the risk of alcohol exposure to the fetus will bring about a paradigm shift regarding alcohol and pregnancy. We are in the coalition-building stages of this program. As we continue to work with area agencies to raise awareness and provide prevention education we feel confident that we will have long-term success to report in the coming years. Short term success will be measured in the number of women who receive information about Fetal Alcohol Spectrum Disorders (FASD). We will gather this information from attendance logs and feedback forms at the point of contact. 5

6 Prevention Awareness Education in Shelby County Schools Description Fetal Alcohol Spectrum Disorders are the number one preventable developmental disability, and Awareness Education is the number one factor in prevention. Early intervention into the choices to consume alcohol while there is a chance of becoming pregnant is key to prevention. The high rate of unintended pregnancies combined with drinking behaviors in this age group put it at particularly high risk for Fetal Alcohol Exposure. Our Prevention Awareness Education for Youth and Young Adults reaches young people in their school or college setting, through presentations in middle and high school health classes, college orientations, and health fairs at these locations. The National Organization on Fetal Alcohol Syndrome developed a school curriculum specifically for bring FASD prevention into the schools. It engages children on a meaningful age-appropriate level through separate curriculum content for grades K-2, 3-5, 6-8 and Our initial emphasis will be on grades 6-8 in one middle school as a pilot program. Budget $5, Target Population Strategy Long term Success Short Term Success Adolescents Only (13-19 years) Long-term success will be evident in a reduction of drinking during pregnancy, thereby reducing the incidence of Fetal Alcohol Spectrum Disorders. This result will be measured in national and state statistics regarding drinking during pregnancy that are periodically gathered by the Centers for Disease Control and various researchers throughout the country. We believe that sustained efforts in educating care-giving professionals about the risk of alcohol exposure to the fetus will bring about a paradigm shift regarding alcohol and pregnancy. We are in the coalition-building stages of this program. As we continue to work with area school officials to raise awareness and provide prevention education we feel confident that we will have long-term success to report in the coming years. Short term success will be measured in the number of individual students who receive information about Fetal Alcohol Spectrum Disorders (FASD). We will gather this information from attendance logs and feedback forms at, and direct count in classrooms and at stop-by events such as health fairs and conferences. 6

7 Board & Governance Board Chair Board Chair Mr John P Dewald Company Affiliation Retired Business Owner: Agency Services, Inc. Term Sept 2013 to Sept dewaldjs@gmail.com Board Members Name Affiliation Status Sharon Cash Salvation Army Renewal Place Voting Mr John P. Dewald Andrea Elberger Retired Business Owner: Agency Services, Inc. Retired: University of Tennessee Health Science Center Voting Voting Charlene Harmon Community Volunteer Voting Lisa Martin Community Volunteer Voting Board Demographics - Ethnicity African American/Black 2 Asian American/Pacific Islander 0 Caucasian 3 Hispanic/Latino 0 Native American/American Indian 0 Board Demographics - Gender Male 1 Female 4 Unspecified 0 Governance Board Term Lengths 3 Board Term Limits 3 Board Meeting Attendance % 80 Written Board Selection Criteria? Written Conflict of Interest Policy? Percentage Making Monetary Contributions 40 Number of Full Board Meetings Annually 4 7

8 Management Executive Director/CEO Executive Director Ellen Hafen Term Start Aug Experience Our Administrative Director, Ellen Rae Hafen has a degree in Chemical Dependency Studies from American River College in Sacramento, CA. She brings with her a wealth of experience in chemical dependency in marginalized populations, crisis intervention, and team motivation. Ms. Hafen became passionate about FAS while working as an intern at Mercy Perinatal Recovery Network. Her experience in organizational management comes from six years of ownership and management of a weekly newspaper and three years as office manager of a multi-professional, private practice psychotherapy group. She has been responsible for: hiring, training, managing and terminating employees; coordinating and motivating teams with diverse skills and responsibilities to meet deadlines; managing multiple professional calendars and scheduling various rooms and facilities; managing small business payables and receivables, including collections; planning and executing various programs, trainings and lectures; and creating, coordinating and disseminating promotional material in print, social media and websites. Her unique array of skills and experience in chemical dependency, office management, and marketing make her ideal for our small office environment. Staff Full Time Staff 0 Part Time Staff 1 Volunteers 0 Contractors 0 Retention Rate 0 Plans Organization has a Fundraising Plan? Organization has a Strategic Plan? Years Strategic Plan Considers 3 Date Strategic Plan Adopted July 2016 Management Succession Plan? No Organization Policy and Procedures Under Development Nondiscrimination Policy Under Development Whistleblower Policy No Document Destruction Policy No Directors and Officers Insurance Policy 8

9 Financials Fiscal Year July Fiscal Year 2017 Projected Revenue $50, Projected Expenses $50, Endowment Value 0 Spending Policy Income Only Percentage (if selected) 0% Form 990s Form 990 Form 990 Detailed Financials Revenue and Expenses Total Revenue Total Expenses Revenue Sources Foundation and Corporation Contributions Government Contributions $0 $0 $0 Federal State Local Unspecified Individual Contributions Indirect Public Support Earned Revenue Investment Income, Net of Losses Membership Dues Special Events Revenue In-Kind Other

10 Expense Allocation Program Expense Administration Expense Fundraising Expense Payments to Affiliates Total Revenue/Total Expenses Program Expense/Total Expenses Fundraising Expense/Contributed Revenue Assets and Liabilities Total Assets Current Assets Long-Term Liabilities Current Liabilities Total Net Assets Short Term Solvency Current Ratio: Current Assets/Current Liabilities Long Term Solvency Long-Term Liabilities/Total Assets Top Funding Sources Top Funding Source & Dollar Amount Second Highest Funding Source & Dollar Amount Third Highest Funding Source & Dollar Amount Capital Campaign Currently in a Capital Campaign? No Goal $0 Capital Campaign Anticipated in Next 5 Years? No State Charitable Solicitaions Permit Permit? Exempt June 2017 Created Copyright